Civic Intelligence

Scleroderma Research Foundation

990 • Fiscal year 2018 • EIN 68-0087234

May 01, 2017 to Apr 30, 2018 • Filed on Jan 04, 2019

Organization ProfileWWW.SCLERODERMARESEARCH.ORG
220 Montgomery StSan Francisco, CA 94104

(415) 834-9444

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

17th percentile

0.01x

Higher debt load relative to assets than 17% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Liabilities / Revenue

12th percentile

0.01x

Higher debt load relative to revenue than 12% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Net Margin

86th percentile

37%

Higher net margin than 86% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Top Officer Pay

54th percentile

$130,612

Higher top officer pay than 54% of similar nonprofits.

Top officer pay equals 2.8% of source-year revenue.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Asset Growth

92nd percentile

45%

Faster asset growth than 92% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2017 to 2018

Revenue Growth

91st percentile

64%

Faster revenue growth than 91% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets17th percentile

Assets

Up

$5,318,800

Up $1,640,160 (+45%) from 2017

Net Assets

Up

$5,266,873

Up $1,754,608 (+50%) from 2017

Liabilities

Down

$51,927

Down $114,448 (-69%) from 2017

Revenue And Expenses
Liabilities / Revenue12th percentileNet Margin86th percentile

Revenue

Up

$4,733,081

Up $1,852,833 (+64%) from 2017

Expenses

Up

$3,005,455

Up $477,819 (+19%) from 2017

Net Income

Up

$1,727,626

Up $1,375,014 (+390%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2012: $2,953,581Liabilities 2012: $58,716Net Assets 2012: $2,894,8652012Assets 2013: $3,204,230Liabilities 2013: $249,978Net Assets 2013: $2,954,2522013Assets 2014: $3,296,007Liabilities 2014: $188,273Net Assets 2014: $3,107,7342014Assets 2015: $3,162,131Liabilities 2015: $35,964Net Assets 2015: $3,126,1672015Assets 2016: $3,139,910Liabilities 2016: $89,381Net Assets 2016: $3,050,5292016Assets 2017: $3,678,640Liabilities 2017: $166,375Net Assets 2017: $3,512,2652017Assets 2018: $5,318,800Liabilities 2018: $51,927Net Assets 2018: $5,266,8732018Assets 2019: $7,445,548Liabilities 2019: $296,597Net Assets 2019: $7,148,9512019Assets 2020: $9,592,172Liabilities 2020: $201,194Net Assets 2020: $9,390,9782020Assets 2021: $9,819,469Liabilities 2021: $346,825Net Assets 2021: $9,472,6442021Assets 2022: $11,143,637Liabilities 2022: $1,240,870Net Assets 2022: $9,902,7672022Assets 2023: $18,654,748Liabilities 2023: $7,122,391Net Assets 2023: $11,532,3572023Assets 2024: $32,999,784Liabilities 2024: $18,916,787Net Assets 2024: $14,082,9972024

Highlighted filing

2018

Assets$5,318,800
Liabilities$51,927
Net Assets$5,266,873
Open 2018 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $1,266,850Expenses 2012: $1,710,851Net Income 2012: -$444,0012012Revenue 2013: $1,796,130Expenses 2013: $1,763,404Net Income 2013: $32,7262013Revenue 2014: $2,087,681Expenses 2014: $1,864,887Net Income 2014: $222,7942014Revenue 2015: $2,480,174Expenses 2015: $2,457,021Net Income 2015: $23,1532015Revenue 2016: $2,501,519Expenses 2016: $2,512,527Net Income 2016: -$11,0082016Revenue 2017: $2,880,248Expenses 2017: $2,527,636Net Income 2017: $352,6122017Revenue 2018: $4,733,081Expenses 2018: $3,005,455Net Income 2018: $1,727,6262018Revenue 2019: $5,168,122Expenses 2019: $3,364,239Net Income 2019: $1,803,8832019Revenue 2020: $3,931,140Expenses 2020: $2,957,771Net Income 2020: $973,3692020Revenue 2021: $3,768,969Expenses 2021: $3,687,303Net Income 2021: $81,6662021Revenue 2022: $5,892,738Expenses 2022: $4,658,602Net Income 2022: $1,234,1362022Revenue 2023: $8,418,038Expenses 2023: $6,487,599Net Income 2023: $1,930,4392023Revenue 2024: $12,173,161Expenses 2024: $9,622,521Net Income 2024: $2,550,6402024

Highlighted filing

2018

Revenue$4,733,081
Expenses$3,005,455
Net Income$1,727,626
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
May 1, 2017 to Apr 30, 2018
Signed
Jan 4, 2019
Return Version
2017v2.2
Gross Receipts
$5,281,425
Mission and Program Overview

Mission

The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.

To fund scientific research to find a cure for scleroderma

Balance Sheet Detail
LineBeginningEndChange
Assets
Accounts Receivable$325,633$1,575,948▲ $1,250,315
Investments in Publicly Traded Securities-$904,878-
Cash and Non-Interest-Bearing Accounts$540,863$494,983▼ $45,880
Savings and Temporary Cash Investments$450,902$33,400▼ $417,502
Land, Buildings, and Equipment, Net$19,366$20,206▲ $840
Prepaid Expenses and Deferred Charges$21,191$18,441▼ $2,750
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$3,678,640$5,318,800▲ $1,640,160
Other Assets Total$2,320,685$2,270,944▼ $49,741
Liabilities
Accounts Payable and Accrued Expenses$166,375$51,927▼ $114,448
Total Liabilities$166,375$51,927▼ $114,448
Net Assets / Fund Balance
Unrestricted Net Assets$3,350,687$3,464,073▲ $113,386
Temporarily Rstr Net Assets$161,578$1,802,800▲ $1,641,222
Total Net Assets Fund Balance$3,512,265$5,266,873▲ $1,754,608
Total Liabilities and Net Assets / Fund Balance$3,678,640$5,318,800▲ $1,640,160

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$20,206$106,630$126,836
Other Assets Org$9,755--
Compensation and Service Providers
Top Officer Pay54th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amy HewittExecutive DirectorFT$130,612$130,612
Alex GonzalezDirector DevelopmentFT$118,054$118,054

Board Members and Trustees

NameTitle
Luke EvninChair/secretary
Deann WrightPresident
Bob SagetBoard Member
Caryn ZuckerBoard Member
Dan WelchBoard Member
David KnollerBoard Member
Eric Kau MdBoard Member
Kristen Baker-bellamyBoard Member
Saville KellnerBoard Member
Sharon Dobie MDBoard Member
Violetta MerinBoard Member
Susan FenigerCFO
Revenue and Support

Revenue Composition

Contributions and Grants
$5,049,463
Program Service Revenue
$0
Investment Income
$100,087
Other Revenue
$-416,469
All Other Contributions
$2,796,678
Change in Net Assets
$1,727,626

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$571,971Fair Market Value (FMV)
Food Inventory25$39,412Fair Market Value (FMV)
Other Non Cash Contri Table54$33,323Fair Market Value (FMV)
Other Non Cash Contri Table31$30,730Fair Market Value (FMV)
Other Non Cash Contri Table20$18,820Fair Market Value (FMV)
Total Noncash Contributions137$694,256-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,733,081
Revenue Not Reported on Form 990
$26,982
Total Revenue per Audited Statements
$4,760,063
Total Revenue per Form 990
$4,733,081
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,769,853
Other Expenses$732,001
Salaries, Compensation, and Employee Benefits$503,601
Total Fundraising Expense$226,367
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,769,853--$1,769,853
Other Salaries and Wages$170,092$29,267$104,153$303,512
Fees for Services Other$154,690$20,246$9,943$184,879
Current Officers, Directors, Trustees, and Key Employees$107,755$9,796$13,061$130,612
Conferences and Meetings$111,082--$111,082
Occupancy$50,763$10,492$21,233$82,488
Fees for Services Accounting-$71,923-$71,923
Office Expenses$19,872$32,325$12,432$64,629
Information Technology$20,699$3,658$19,077$43,434
Payroll Taxes$22,851$3,227$9,260$35,338
Other Employee Benefits$21,009$4,342$8,788$34,139
Other Expenses$15,059$571$2,784$18,414
Travel$8,628$872$3,196$12,696
Depreciation Depletion$6,366$1,316$2,663$10,345
All Other Expenses-$3,848-$3,848
Insurance$1,207$1,840$505$3,552
Advertising--$1,265$1,265
Total Functional Expenses$2,530,011$249,077$226,367$3,005,455

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,005,455
Total Expenses per Audited Statements$3,005,455
Total Expenses per Form 990$3,005,455
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Johns Hopkins UniversityBaltimore, MD-Scleroderma Research$580,000
Johns Hopkins UniversityBaltimore, MD-Scleroderma Research$243,961
Stanford UniversityStanford, CA-Scleroderma Research$225,000
Johns Hopkins UniversityLutherville, MD-Scleroderma Research$165,000
Yale UniversityHoward HughesNew Haven, CT-Scleroderma Research$150,000
Weill Cornell Medical CollegeNew York, NY-Scleroderma Research$125,000
Geisel School of MedicineHanover, NH-Scleroderma Research$105,000
Stanford UniversityPalo Alto, CA-Scleroderma Research$60,000
Stanford Univ School MedicinePalo Alto, CA-Scleroderma Research$52,500
Childrens Hospital PittsburgPittsburg, PA-Scleroderma Research$25,500
Seattle Childrens HospitalSeattle, WA-Scleroderma Research$25,392
UcsfSan Francisco, CA-Scleroderma Research$12,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$548,344
Fundraising Gross Income$131,875
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cool Comedy La$1,142,440$87,000$355,894$-268,894
Cool Comedy Ny$1,198,287$44,875$183,045$-138,170
Total Events$2,384,660$131,875$548,344$-416,469
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
ADAM SAGET nephew ofBob Saget Bd MemberEvent ProductionNo$66,135

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Board members luke evnin and deann wright are husband and wife”

Form 990, Part VI, Line 11B: Form 990 Review Process

“Organization staff and executive director review tax returns and pass on copies to board members before filing originals with designated agencies”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Organization has a conflict of interest policy for all employees and board members.a reminder questionnaire is distributed to board members and staff annually.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Salary surveys are conducted using industry relevant guidelines in conjunction with professional history of employees salary. Recommendations are presented to board members for approval.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Salary surveys are conducted using industry relevant guidelines in conjunction with professional history of employees salary. Recommendations are presented to board members for approval.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Scleroderma Research Foundation
EIN
68-0087234
Phone
4158349444
Address
220 MONTGOMERY ST, SAN FRANCISCO, CA 94104

Signing Officer

Name
Deann Wright
Title
President
Signed
2019-01-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Luke Evnin
Formed
1986
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
12
Employees
7
Volunteers
30

Preparer

Firm
Bunker & Company LLP
Address
4340 Redwood Hwy Suite 117, San Rafael, CA 94903-2123
Preparer
Joseph C Bunker
Phone
4154997661
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IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
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IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIR. DEVELOPMENT
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IRS990/LocalChaptersInd0false
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IRS990/MembersOrStockholdersInd0false
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IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO FUND SCIENTIFIC RESEARCH TO FIND A CURE FOR SCLERODERMA
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IRS990/MoreThan5000KToOrgInd0false
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IRS990/OfficeExpensesGrp/ProgramServicesAmt019872
IRS990/OfficeExpensesGrp/TotalAmt064629
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
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IRS990/OtherExpensesGrp/Desc0recruitment
IRS990/OtherExpensesGrp/Desc1Printing and Publications
IRS990/OtherExpensesGrp/Desc2VENUE
IRS990/OtherExpensesGrp/Desc3Postage and Shipping
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IRS990/OtherExpensesGrp/FundraisingAmt110876
IRS990/OtherExpensesGrp/FundraisingAmt27109
IRS990/OtherExpensesGrp/FundraisingAmt32784
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt055064
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1290
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IRS990/OtherExpensesGrp/TotalAmt232988
IRS990/OtherExpensesGrp/TotalAmt318414
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IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt09260
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03227
IRS990/PayrollTaxesGrp/ProgramServicesAmt022851
IRS990/PayrollTaxesGrp/TotalAmt035338
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Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,318,800
Liabilities
$51,927
Net assets
$5,266,873
Revenue
$4,733,081
Expenses
$3,005,455
Net income
$1,727,626
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.0$18.9$14.1$12.2$9.62$2.55
2023Detailed filing. Detailed filing data is available for this year.$18.7$7.12$11.5$8.42$6.49$1.93
2022Detailed filing. Detailed filing data is available for this year.$11.1$1.24$9.90$5.89$4.66$1.23
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.35$9.47$3.77$3.69$0.08
2020Detailed filing. Detailed filing data is available for this year.$9.59$0.20$9.39$3.93$2.96$0.97
2019Detailed filing. Detailed filing data is available for this year.$7.45$0.30$7.15$5.17$3.36$1.80
2018Detailed filing. Detailed filing data is available for this year.$5.32$0.05$5.27$4.73$3.01$1.73
2017Detailed filing. Detailed filing data is available for this year.$3.68$0.17$3.51$2.88$2.53$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.14$0.09$3.05$2.50$2.51$0.01
2015Detailed filing. Detailed filing data is available for this year.$3.16$0.04$3.13$2.48$2.46$0.02
2014Summary only. Only limited summary data is available for this year.$3.30$0.19$3.11$2.09$1.86$0.22
2013Summary only. Only limited summary data is available for this year.$3.20$0.25$2.95$1.80$1.76$0.03
2012Summary only. Only limited summary data is available for this year.$2.95$0.06$2.89$1.27$1.71$0.44