Civic Intelligence

Scleroderma Research Foundation

990 • Fiscal year 2022 • EIN 68-0087234

Jan 01, 2022 to Dec 31, 2022 • Filed on Sep 21, 2023

Organization Profilewww.sclerodermaresearch.org
220 Montgomery St Ste 484San Francisco, CA 94104

(415) 834-9444

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.11x

Higher debt load relative to assets than 41% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Liabilities / Revenue

49th percentile

0.21x

Higher debt load relative to revenue than 49% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Net Margin

72nd percentile

21%

Higher net margin than 72% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Top Officer Pay

60th percentile

$206,032

Higher top officer pay than 60% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Asset Growth

75th percentile

13%

Faster asset growth than 75% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Revenue Growth

87th percentile

56%

Faster revenue growth than 87% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$11,143,637

Up $1,324,168 (+13%) from 2021

Net Assets

Up

$9,902,767

Up $430,123 (+4.5%) from 2021

Liabilities

Up

$1,240,870

Up $894,045 (+258%) from 2021

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin72nd percentile

Revenue

Up

$5,892,738

Up $2,123,769 (+56%) from 2021

Expenses

Up

$4,658,602

Up $971,299 (+26%) from 2021

Net Income

Up

$1,234,136

Up $1,152,470 (+1411%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth75th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2012: $2,953,581Liabilities 2012: $58,716Net Assets 2012: $2,894,8652012Assets 2013: $3,204,230Liabilities 2013: $249,978Net Assets 2013: $2,954,2522013Assets 2014: $3,296,007Liabilities 2014: $188,273Net Assets 2014: $3,107,7342014Assets 2015: $3,162,131Liabilities 2015: $35,964Net Assets 2015: $3,126,1672015Assets 2016: $3,139,910Liabilities 2016: $89,381Net Assets 2016: $3,050,5292016Assets 2017: $3,678,640Liabilities 2017: $166,375Net Assets 2017: $3,512,2652017Assets 2018: $5,318,800Liabilities 2018: $51,927Net Assets 2018: $5,266,8732018Assets 2019: $7,445,548Liabilities 2019: $296,597Net Assets 2019: $7,148,9512019Assets 2020: $9,592,172Liabilities 2020: $201,194Net Assets 2020: $9,390,9782020Assets 2021: $9,819,469Liabilities 2021: $346,825Net Assets 2021: $9,472,6442021Assets 2022: $11,143,637Liabilities 2022: $1,240,870Net Assets 2022: $9,902,7672022Assets 2023: $18,654,748Liabilities 2023: $7,122,391Net Assets 2023: $11,532,3572023Assets 2024: $32,999,784Liabilities 2024: $18,916,787Net Assets 2024: $14,082,9972024

Highlighted filing

2022

Assets$11,143,637
Liabilities$1,240,870
Net Assets$9,902,767
Open 2022 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $1,266,850Expenses 2012: $1,710,851Net Income 2012: -$444,0012012Revenue 2013: $1,796,130Expenses 2013: $1,763,404Net Income 2013: $32,7262013Revenue 2014: $2,087,681Expenses 2014: $1,864,887Net Income 2014: $222,7942014Revenue 2015: $2,480,174Expenses 2015: $2,457,021Net Income 2015: $23,1532015Revenue 2016: $2,501,519Expenses 2016: $2,512,527Net Income 2016: -$11,0082016Revenue 2017: $2,880,248Expenses 2017: $2,527,636Net Income 2017: $352,6122017Revenue 2018: $4,733,081Expenses 2018: $3,005,455Net Income 2018: $1,727,6262018Revenue 2019: $5,168,122Expenses 2019: $3,364,239Net Income 2019: $1,803,8832019Revenue 2020: $3,931,140Expenses 2020: $2,957,771Net Income 2020: $973,3692020Revenue 2021: $3,768,969Expenses 2021: $3,687,303Net Income 2021: $81,6662021Revenue 2022: $5,892,738Expenses 2022: $4,658,602Net Income 2022: $1,234,1362022Revenue 2023: $8,418,038Expenses 2023: $6,487,599Net Income 2023: $1,930,4392023Revenue 2024: $12,173,161Expenses 2024: $9,622,521Net Income 2024: $2,550,6402024

Highlighted filing

2022

Revenue$5,892,738
Expenses$4,658,602
Net Income$1,234,136
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 21, 2023
Return Version
2022v5.0
Gross Receipts
$6,134,816
Mission and Program Overview

Mission

To fund scientific research to find a cure for scleroderma

The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$7,676,732$8,215,407▲ $538,675
Cash and Non-Interest-Bearing Accounts$538,650$1,489,493▲ $950,843
Pledges and Grants Receivable$1,491,312$1,207,075▼ $284,237
Land, Buildings, and Equipment, Net$62,976$45,607▼ $17,369
Prepaid Expenses and Deferred Charges$28,972$38,910▲ $9,938
Receivables From Officers Etc$11,000$0▼ $11,000
Accounts Receivable$9,653$0▼ $9,653
Savings and Temporary Cash Investments$174$174→ $0
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$9,819,469$11,143,637▲ $1,324,168
Other Assets Total-$146,971-
Liabilities
Accounts Payable and Accrued Expenses$167,129$775,777▲ $608,648
Deferred Revenue-$287,435-
Other Liabilities-$157,658-
Grants Payable$179,696$20,000▼ $159,696
Total Liabilities$346,825$1,240,870▲ $894,045
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$7,232,642$8,984,292▲ $1,751,650
Net Assets With Donor Restrictions$2,240,002$918,475▼ $1,321,527
Total Net Assets Fund Balance$9,472,644$9,902,767▲ $430,123
Total Liabilities and Net Assets / Fund Balance$9,819,469$11,143,637▲ $1,324,168

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$45,607$43,343$88,950
Compensation and Service Providers
Top Officer Pay60th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joanne GoldExecutive DirectorFT$193,724$12,308$206,032
Gloria BlechaDevelopment MngrFT$104,973$9,926$114,899

Board Members and Trustees

NameTitle
Luke Evnin PhDChairman
Bob SagetBoard Member
Caryn ZuckerBoard Member
David KnollerBoard Member
Eric Kau MDBoard Member
Regina HallBoard Member
Sharon Dobie MDBoard Member
Susan FenigerBoard Member
Violetta MerinBoard Member
Deann WrightSecretary
Bob SmithTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Ravix Financial IncFinance & HR226 Airport Pkwy Ste 400, San Jose, CA 95110$144,045
Browne Inc dba BrowneMusserMarketing & Outreach10 Rice Lane, Larkspur, CA 94939$124,776
Revenue and Support

Revenue Composition

Contributions and Grants
$5,376,802
Program Service Revenue
$170,531
Investment Income
$116,754
Other Revenue
$228,651
All Other Contributions
$4,539,160
Change in Net Assets
$1,234,136

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$1,832,446Fair Market Value (FMV)
Other Non Cash Contri Table12$67,210Fair Market Value (FMV)
Total Noncash Contributions18$1,899,656-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,861,923
Revenue Not Reported on Financial Statements
$30,815
Revenue Not Reported on Form 990
$-994,541
Total Revenue per Audited Statements
$4,867,382
Total Revenue per Form 990
$5,892,738
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,442,093
Other Expenses$1,541,492
Salaries, Compensation, and Employee Benefits$675,017
Total Fundraising Expense$603,144
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,417,093--$2,417,093
Fees for Services Other$339,722$9,082$51,151$399,955
Other Salaries and Wages$237,588$38,331$98,116$374,035
Conferences and Meetings$184,199$232$175,852$360,283
Advertising$162,499$13,193$73,378$249,070
Current Officers, Directors, Trustees, and Key Employees$111,819$44,728$67,091$223,638
Fees for Services Accounting-$144,045-$144,045
Office Expenses$57,685$8,137$29,039$94,861
Occupancy$48,505$8,084$24,458$81,047
Information Technology$39,743$3,111$31,330$74,184
Fees for Services Legal$47,564--$47,564
Payroll Taxes$25,075$5,319$11,989$42,383
Other Employee Benefits$18,551$6,026$10,384$34,961
Travel$9,438$1,263$22,637$33,338
Fees for Service Investment Mgmnt Fees-$30,815-$30,815
Foreign Grants$25,000--$25,000
Depreciation Depletion$10,421$1,737$5,211$17,369
Insurance$5,198$1,255$2,508$8,961
Total Functional Expenses$3,740,100$315,358$603,144$4,658,602

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,658,602
Expenses per Audited Statements$4,437,259
Total Expenses per Audited Statements$4,437,259
Expenses Not Reported on Financial Statements$221,343
Other Expense Adjustments$190,528
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford School of MedicineSan Francisco, CA501c3Research$719,797
John Hopkins UniversityChicago, IL501c3Research$236,469
University of UtahSalt Lake City, UT501c3Research$233,012
University of PittsburghPittsburgh, PA501c3Research$175,000
Hospital for Special SurgeryNew York, NY501c3Research$141,516
Univ of TX Health Science CtrDallas, TX501c3Research$125,201
Yale UniversityNew Haven, CT501c3-$125,000
Trustees of Dartmouth CollegeHanover, NH501c3Research$116,033
Boston Childrens Hospital CoBoston, MA501c3Research$95,651
McGovern Med SchoolUT HealthHouston, TX501c3Research$79,456
Trustees of the Univ of PAPhiladelphia, PA501c3Research$68,916
Regents of Univ of MichiganPittsburgh, PA501c3Research$66,603
Vanderbilt University Med CtrDallas, TX501c3-$58,875
Regents of Univ of CA-UCSFLoa Angeles, CA501c3Research$46,130
Georgetown Univ Medical CtrWashington, DC501c3Research$42,989
Columbia UniversityNew York, NY501c3Research$29,847
Northwestern UniversityChicago, IL501c3Research$21,382
Duke UniversityCharlotte, NC501c3Research$13,606
Mayo ClinicMinneapolis, MN501c3Research$13,606
Medical Univ of SouthCarolinaCharleston, SC501c3Research$5,214

International Summary

Spending
$25,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants - Scleroderma Research-00$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$454,200
Fundraising Direct Expenses$242,078
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cool Comedy$1,291,842$454,200-$454,200
Total Events$1,291,842$454,200$242,078$212,122
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Officers, Directors, Trustees, and Key Employees$11,000$0▼ $11,000
Receivables from Disqualified Persons-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating lease liability$157,658
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

“A separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review.”

Form 990, Part VI, Section A, Line 2

“Luke Evnin (Chairman) is married to Deann Wright (Secretary).”

Form 990, Part VI, Section B, Line 11B

“A draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval.”

Form 990, Part VI, Section B, Line 12C

“Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy.”

Form 990, Part VI, Section B, Line 15A

“Market comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the Jan. 2022 BOD meeting”

Form 990, Part VI, Section B, Line 15B

“Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote.”

Form 990, Part VI, Section C, Line 19

“Financial statements, bylaws, and conflict of interest policy are available on website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Research Foundation
EIN
68-0087234
Phone
4158349444
Address
220 Montgomery St Ste 484, San Francisco, CA 94104

Signing Officer

Name
Luke Evnin PhD
Title
Chairman
Signed
2023-09-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Luke Evnin PhD
Formed
1987
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
10
Employees
6
Volunteers
355

Preparer

Firm
Crosby & Kaneda CPAs LLP
Address
548 Market St PMB 97503, San Francisco, CA 94104
Preparer
Felix Gorrindo
Phone
5108352727
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“In FY22 the SRF launched our inaugural Patient Forum; a half-day broadcast of educational sessions and live Q&A provided free of charge for all people living with scleroderma and those who care about them.The Forum provide the scleroderma community with relevant information about the disease, updates on the current research including new initiatives, and opportunities to learn how to participate in research. We also established a new Bob Saget Memorial Scleroderma Research Fund in honor of the SRF's beloved Board Member who passed away tragically and unexpectedly on January 9, 2022. Gifts made to his memorial fund directly support the SRFs core research programs and will support all efforts to drive research forward until we find a cure.”

Financial Statement Notes

Part X : FIN48 Footnote

“The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2022 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed.”

Part XII, Line 4B: Other revenue amounts included on 990 but not included in F/S

“Event presentation $190528”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma.
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IRS990/ProgSrvcAccomActy3Grp/Desc0SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed.We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.
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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,143,637
Liabilities
$1,240,870
Net assets
$9,902,767
Revenue
$5,892,738
Expenses
$4,658,602
Net income
$1,234,136
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$33.0$18.9$14.1$12.2$9.62$2.55
2023Detailed filing. Detailed filing data is available for this year.$18.7$7.12$11.5$8.42$6.49$1.93
2022Detailed filing. Detailed filing data is available for this year.$11.1$1.24$9.90$5.89$4.66$1.23
2021Detailed filing. Detailed filing data is available for this year.$9.82$0.35$9.47$3.77$3.69$0.08
2020Detailed filing. Detailed filing data is available for this year.$9.59$0.20$9.39$3.93$2.96$0.97
2019Detailed filing. Detailed filing data is available for this year.$7.45$0.30$7.15$5.17$3.36$1.80
2018Detailed filing. Detailed filing data is available for this year.$5.32$0.05$5.27$4.73$3.01$1.73
2017Detailed filing. Detailed filing data is available for this year.$3.68$0.17$3.51$2.88$2.53$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.14$0.09$3.05$2.50$2.51$0.01
2015Detailed filing. Detailed filing data is available for this year.$3.16$0.04$3.13$2.48$2.46$0.02
2014Summary only. Only limited summary data is available for this year.$3.30$0.19$3.11$2.09$1.86$0.22
2013Summary only. Only limited summary data is available for this year.$3.20$0.25$2.95$1.80$1.76$0.03
2012Summary only. Only limited summary data is available for this year.$2.95$0.06$2.89$1.27$1.71$0.44