Civic Intelligence

Scleroderma Research Foundation

990 • Fiscal year 2021 • EIN 68-0087234

Jan 01, 2021 to Dec 31, 2021 • Filed on Jun 09, 2022

220 Montgomery St Ste 484San Francisco, CA 94104

(415) 834-9444

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

31st percentile

0.04x

Higher debt load relative to assets than 31% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

38th percentile

0.09x

Higher debt load relative to revenue than 38% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Net Margin

29th percentile

2.2%

Higher net margin than 29% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

78th percentile

$204,803

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 5.4% of source-year revenue.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Asset Growth

31st percentile

2.4%

Faster asset growth than 31% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

24th percentile

-4.1%

Faster revenue growth than 24% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Assets

Up

$9,819,469

Up $227,297 (+2.4%) from 2020

Net Assets

Up

$9,472,644

Up $81,666 (+0.9%) from 2020

Liabilities

Up

$346,825

Up $145,631 (+72%) from 2020

Revenue

Down

$3,768,969

Down $162,171 (-4.1%) from 2020

Expenses

Up

$3,687,303

Up $729,532 (+25%) from 2020

Net Income

Down

$81,666

Down $891,703 (-92%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2012: $2,953,581Liabilities 2012: $58,716Net Assets 2012: $2,894,8652012Assets 2013: $3,204,230Liabilities 2013: $249,978Net Assets 2013: $2,954,2522013Assets 2014: $3,296,007Liabilities 2014: $188,273Net Assets 2014: $3,107,7342014Assets 2015: $3,162,131Liabilities 2015: $35,964Net Assets 2015: $3,126,1672015Assets 2016: $3,139,910Liabilities 2016: $89,381Net Assets 2016: $3,050,5292016Assets 2017: $3,678,640Liabilities 2017: $166,375Net Assets 2017: $3,512,2652017Assets 2018: $5,318,800Liabilities 2018: $51,927Net Assets 2018: $5,266,8732018Assets 2019: $7,445,548Liabilities 2019: $296,597Net Assets 2019: $7,148,9512019Assets 2020: $9,592,172Liabilities 2020: $201,194Net Assets 2020: $9,390,9782020Assets 2021: $9,819,469Liabilities 2021: $346,825Net Assets 2021: $9,472,6442021Assets 2022: $11,143,637Liabilities 2022: $1,240,870Net Assets 2022: $9,902,7672022Assets 2023: $18,654,748Liabilities 2023: $7,122,391Net Assets 2023: $11,532,3572023Assets 2024: $32,999,784Liabilities 2024: $18,916,787Net Assets 2024: $14,082,9972024

Highlighted filing

2021

Assets$9,819,469
Liabilities$346,825
Net Assets$9,472,644

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $1,266,850Expenses 2012: $1,710,851Net Income 2012: -$444,0012012Revenue 2013: $1,796,130Expenses 2013: $1,763,404Net Income 2013: $32,7262013Revenue 2014: $2,087,681Expenses 2014: $1,864,887Net Income 2014: $222,7942014Revenue 2015: $2,480,174Expenses 2015: $2,457,021Net Income 2015: $23,1532015Revenue 2016: $2,501,519Expenses 2016: $2,512,527Net Income 2016: -$11,0082016Revenue 2017: $2,880,248Expenses 2017: $2,527,636Net Income 2017: $352,6122017Revenue 2018: $4,733,081Expenses 2018: $3,005,455Net Income 2018: $1,727,6262018Revenue 2019: $5,168,122Expenses 2019: $3,364,239Net Income 2019: $1,803,8832019Revenue 2020: $3,931,140Expenses 2020: $2,957,771Net Income 2020: $973,3692020Revenue 2021: $3,768,969Expenses 2021: $3,687,303Net Income 2021: $81,6662021Revenue 2022: $5,892,738Expenses 2022: $4,658,602Net Income 2022: $1,234,1362022Revenue 2023: $8,418,038Expenses 2023: $6,487,599Net Income 2023: $1,930,4392023Revenue 2024: $12,173,161Expenses 2024: $9,622,521Net Income 2024: $2,550,6402024

Highlighted filing

2021

Revenue$3,768,969
Expenses$3,687,303
Net Income$81,666
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Jun 9, 2022
Return Version
2021v4.0
Gross Receipts
$4,021,547
Mission and Program Overview

Mission

The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.

The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,360,504$7,676,732▼ $683,772
Pledges and Grants Receivable$120,000$1,491,312▲ $1,371,312
Cash and Non-Interest-Bearing Accounts$1,050,225$538,650▼ $511,575
Land, Buildings, and Equipment, Net$13,365$62,976▲ $49,611
Prepaid Expenses and Deferred Charges$47,829$28,972▼ $18,857
Receivables From Officers Etc-$11,000-
Accounts Receivable-$9,653-
Savings and Temporary Cash Investments$249$174▼ $75
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$9,592,172$9,819,469▲ $227,297
Other Assets Total-$0-
Liabilities
Grants Payable-$179,696-
Accounts Payable and Accrued Expenses$136,435$167,129▲ $30,694
Other Liabilities$64,759--
Total Liabilities$201,194$346,825▲ $145,631
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$7,439,559$7,232,642▼ $206,917
Net Assets With Donor Restrictions$1,951,419$2,240,002▲ $288,583
Total Net Assets Fund Balance$9,390,978$9,472,644▲ $81,666
Total Liabilities and Net Assets / Fund Balance$9,592,172$9,819,469▲ $227,297

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$62,976$26,412$89,388
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joanne GoldExecutive DirectorFT$193,236$11,567$204,803
Cori TraubDirector PhilanthropyFT$108,558$5,379$113,937

Board Members and Trustees

NameTitle
Luke Evnin PhDChairman
Bob SagetBoard Member
Caryn ZuckerBoard Member
David KnollerBoard Member
Eric Kau MDBoard Member
Regina HallBoard Member
Sharon Dobie MDBoard Member
Susan FenigerBoard Member
Violetta MerinBoard Member
Deann WrightSecretary
Bob SmithTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Browne Inc dba BrowneMusserMarketing & Outreach10 Rice Lane, Larkspur, CA 94939$227,506
Ravix Financial IncFinance & HR226 Airport Pkwy Ste 400, San Jose, CA 95110$118,985
Revenue and Support

Revenue Composition

Contributions and Grants
$3,549,644
Program Service Revenue
$15,000
Investment Income
$411,284
Other Revenue
$-206,959
All Other Contributions
$2,834,407
Change in Net Assets
$81,666

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$124,317Fair Market Value (FMV)
Other Non Cash Contri Table17$31,995Fair Market Value (FMV)
Total Noncash Contributions23$156,312-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,737,095
Revenue Not Reported on Financial Statements
$31,874
Total Revenue per Audited Statements
$3,737,095
Total Revenue per Form 990
$3,768,969
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,253,391
Other Expenses$765,575
Salaries, Compensation, and Employee Benefits$668,337
Total Fundraising Expense$388,434
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,178,391--$2,178,391
Other Salaries and Wages$214,624$22,937$132,357$369,918
Advertising$194,810$639$40,586$236,035
Current Officers, Directors, Trustees, and Key Employees$100,983$56,102$67,322$224,407
Fees for Services Other$118,410$2,847$38,540$159,797
Fees for Services Accounting-$104,020-$104,020
Occupancy$51,427$8,571$25,713$85,711
Foreign Grants$75,000--$75,000
Office Expenses$39,408$6,624$27,353$73,385
Information Technology$29,044$3,355$27,251$59,650
Payroll Taxes$22,047$4,600$13,739$40,386
Other Employee Benefits$21,135$479$12,012$33,626
Fees for Service Investment Mgmnt Fees-$31,874-$31,874
Depreciation Depletion$8,323$753$2,257$11,333
Insurance$1,272$212$636$2,120
Travel$539$216$646$1,401
Conferences and Meetings$220$7$22$249
Total Functional Expenses$3,055,633$243,236$388,434$3,687,303

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,687,303
Expenses per Audited Statements$3,655,429
Total Expenses per Audited Statements$3,655,429
Expenses Not Reported on Financial Statements$31,874
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford School of MedicineSan Francisco, CA501c3Research$658,628
John Hopkins UniversityChicago, IL501c3Research$381,336
University of UtahSalt Lake City, UT501c3Research$275,224
Yale UniversityNew Haven, CT501c3Research$140,000
Hospital for Special SurgeryNew York, NY501c3Research$136,120
Univ of TX Health Science CtrDallas, TX501c3Research$118,612
Trustees of Dartmouth CollegeHanover, NH501c3Research$115,669
University of RochesterRochester, NY501c3Research$85,000
University of PittsburghPittsburgh, PA501c3Research$75,000
Regents of Univ of CA-UCSFLoa Angeles, CA501c3Research$46,130
McGovern Med SchoolUT HealthHouston, TX501c3Research$38,388
Trustees of the Univ of PAPhiladelphia, PA501c3Research$21,118
Columbia UniversityNew York, NY501c3Research$20,097
Northwestern UniversityChicago, IL501c3Research$19,941
Massachusetts GeneralHospitalBoston, MA501c3Research$15,131
Georgetown Univ Medical CtrWashington, DC501c3Research$13,647
Regents of Univ of MichiganPittsburgh, PA501c3Research$10,825
Medical Univ of SouthCarolinaCharleston, SC501c3Research$6,423

International Summary

Spending
$75,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants - Scleroderma Research-00$50,000
E Asia & PacificGrants - Scleroderma Research-00$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$252,578
Fundraising Gross Income$45,619
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cool Comedy$696,097$45,619$200,334$-154,715
Total Events$696,097$45,619$252,578$-206,959
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Officers, Directors, Trustees, and Key Employees-$11,000-
Receivables from Disqualified Persons-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 1A: Explanation of Delegated Broad Authority to Committee

A separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review.

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

Luke Evnin (Chairman) is married to Deann Wright (Secretary).

Form 990, Part VI, Line 11B: Form 990 Review Process

A draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval.

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy.

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

Market comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the Jan. 2021 BOD meeting.

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote.

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

Financial statements, bylaws, and conflict of interest policy are available on website.

Filing and Contact Details

Filer

Filer Name
Scleroderma Research Foundation
EIN
68-0087234
Phone
4158349444
Address
220 Montgomery St Ste 484, San Francisco, CA 94104

Signing Officer

Name
Joanne Gold
Title
Executive Director
Signed
2022-06-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Luke Evnin PhD
Formed
1987
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
10
Employees
5
Volunteers
355

Preparer

Firm
Crosby & Kaneda CPAs LLP
Address
1970 Broadway STE 930, Oakland, CA 94612
Preparer
Felix Gorrindo
Phone
5108352727
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 3: Ceased Conducting or Significant Changes To Services

In FY21, the SRF launched a new website design to make patient resources and disease information more engaging and user-friendly for the scleroderma community We also established the #SayScleroderma social media campaign to increase awareness about the disease.

Financial Statement Notes

Part X : FIN48 Footnote

The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2021 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed.

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IRS990/Desc0The mission of the Scleroderma Research Foundation is to find, fund, and facilitate the most promising research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. The Scleroderma Research Foundation's Research Program is governed by the Board of Directors and facilitated by a volunteer Scientific Advisory Board comprised of highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing useful therapies to help patients live longer, fuller lives - and, ultimately, a cure for scleroderma.Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.
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