Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
990 • Fiscal year 2019 • EIN 68-0087234
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
Liabilities / Revenue
26th percentile
Higher debt load relative to revenue than 26% of similar nonprofits.
Net Margin
86th percentile
Higher net margin than 86% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
91st percentile
Faster asset growth than 91% of similar nonprofits.
Revenue Growth
64th percentile
Faster revenue growth than 64% of similar nonprofits.
Assets
Up$7,445,548
Up $2,126,748 (+40%) from 2018
Net Assets
Up$7,148,951
Up $1,882,078 (+36%) from 2018
Liabilities
Up$296,597
Up $244,670 (+471%) from 2018
Revenue
Up$5,168,122
Up $435,041 (+9.2%) from 2018
Expenses
Up$3,364,239
Up $358,784 (+12%) from 2018
Net Income
Up$1,803,883
Up $76,257 (+4.4%) from 2018
To fund scientific research to find a cure for scleroderma
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $33,400 | $3,462,009 | ▲ $3,428,609 |
| Accounts Receivable | $1,575,948 | $1,022,437 | ▼ $553,511 |
| Investments in Publicly Traded Securities | $904,878 | $799,430 | ▼ $105,448 |
| Cash and Non-Interest-Bearing Accounts | $494,983 | $224,101 | ▼ $270,882 |
| Land, Buildings, and Equipment, Net | $20,206 | $20,689 | ▲ $483 |
| Prepaid Expenses and Deferred Charges | $18,441 | $19,512 | ▲ $1,071 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $5,318,800 | $7,445,548 | ▲ $2,126,748 |
| Other Assets Total | $2,270,944 | $1,897,370 | ▼ $373,574 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $51,927 | $296,597 | ▲ $244,670 |
| Total Liabilities | $51,927 | $296,597 | ▲ $244,670 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $3,464,073 | $5,686,865 | ▲ $2,222,792 |
| Temporarily Rstr Net Assets | $1,802,800 | $1,462,086 | ▼ $340,714 |
| Total Net Assets Fund Balance | $5,266,873 | $7,148,951 | ▲ $1,882,078 |
| Total Liabilities and Net Assets / Fund Balance | $5,318,800 | $7,445,548 | ▲ $2,126,748 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $20,689 | $117,211 | $137,900 |
| Other Assets Org | $8,466 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Tom Frank | Executive Director | FT | $139,692 | $139,692 |
| Alex Gonzalez | Director Development | FT | $131,084 | $131,084 |
| Amy Hewitt | Executive Director | FT | $48,750 | $48,750 |
| Name | Title |
|---|---|
| Luke Evnin | Chair/secretary |
| Deann Wright | President |
| Bob Saget | Board Member |
| Bob Smith | Board Member |
| Caryn Zucker | Board Member |
| David Knoller | Board Member |
| Eric Kau Md | Board Member |
| Sharon Dobie MD | Board Member |
| Violetta Merin | Board Member |
| Susan Feniger | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Food Inventory | 4 | $33,000 | Fair Market Value (FMV) |
| Other Non Cash Contri Table | 11 | $29,455 | Fair Market Value (FMV) |
| Other Non Cash Contri Table | 6 | $16,948 | Fair Market Value (FMV) |
| Other Non Cash Contri Table | 1 | $3,500 | Fair Market Value (FMV) |
| Total Noncash Contributions | 22 | $82,903 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $2,077,403 |
| Other Expenses | $739,557 |
| Salaries, Compensation, and Employee Benefits | $547,279 |
| Total Fundraising Expense | $228,803 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $2,077,403 | - | - | $2,077,403 |
| Other Salaries and Wages | $154,603 | $27,893 | $114,481 | $296,977 |
| Current Officers, Directors, Trustees, and Key Employees | $155,465 | $14,133 | $18,844 | $188,442 |
| Conferences and Meetings | $141,072 | - | - | $141,072 |
| Office Expenses | $36,024 | $36,599 | $19,336 | $91,959 |
| Occupancy | $51,272 | $10,797 | $24,042 | $86,111 |
| Fees for Services Accounting | - | $83,178 | - | $83,178 |
| Information Technology | $34,643 | $6,198 | $21,818 | $62,659 |
| Payroll Taxes | $37,990 | $6,361 | $17,509 | $61,860 |
| Fees for Services Other | $26,853 | $660 | $6,587 | $34,100 |
| Other Expenses | $32,541 | $57,128 | - | $32,541 |
| Travel | $10,122 | $7,619 | $2,197 | $19,938 |
| Depreciation Depletion | $6,300 | $1,327 | $2,954 | $10,581 |
| Insurance | $1,209 | $1,846 | $567 | $3,622 |
| Advertising | - | - | $468 | $468 |
| Total Functional Expenses | $2,765,497 | $369,939 | $228,803 | $3,364,239 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $3,364,239 |
| Total Expenses per Audited Statements | $3,364,239 |
| Total Expenses per Form 990 | $3,364,239 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins University | Baltimore, MD | - | Scleroderma Research | $729,696 |
| Stanford University | Stanford, CA | - | Scleroderma Research | $341,953 |
| University of Utah | Salt Lake City, UT | - | Scleroderma Researc | $193,989 |
| University of Texas | Dallas, TX | - | Scleroderma Researc | $142,545 |
| Hospital for Special Surgery | New York, NY | - | Scleroderma Research | $141,818 |
| Yale UniversityHoward Hughes | New Haven, CT | - | Scleroderma Research | $125,000 |
| Geisel School of Medicine | Hanover, NH | - | Scleroderma Research | $113,501 |
| University of Rochester | Baltimore, MD | - | Scleroderma Research | $75,000 |
| Georgetown University | Washington, DC | - | Scleroderma Researc | $36,944 |
| University of California Sf | San Francisco, CA | - | Scleroderma Research | $35,000 |
| Seattle Childrens Research | Seattle, WA | - | Scleroderma Research | $25,000 |
| University of Pittsburg | Pittsburg, PA | - | Scleroderma Research | $25,000 |
| Columbia University | New York, NY | - | Scleroderma Research | $22,491 |
| George Washington University | Philadelphia, PA | - | Scleroderma Researc | $21,416 |
| Mass General Hospital | Boston, MA | - | Scleroderma Research | $12,950 |
| Medical UnivSouth Carolina | Charleston, SC | - | Scleroderma Researc | $12,950 |
| University of Michigan | Ann Arbor, MI | - | Scleroderma Research | $12,950 |
| Northwestern School of Medici | Chicago, IL | - | Scleroderma Research | $9,200 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $456,729 |
| Fundraising Gross Income | $80,850 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Cool Comedy La | $594,806 | $41,750 | $267,270 | $-225,520 |
| Cool Comedy Ny | $900,764 | $39,100 | $189,459 | $-150,359 |
| Total Events | $1,495,570 | $80,850 | $456,729 | $-375,879 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| ADAM SAGET nephew of | Bob Saget Bd Member | Event Production | No | $76,810 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Board members luke evnin and deann wright are husband and wife”
“Organization staff and executive director review tax returns and pass on copies to board members before filing originals with designated agencies”
“Organization has a conflict of interest policy for all employees and board members.a reminder questionnaire is distributed to board members and staff annually.”
“Salary surveys are conducted using industry relevant guidelines in conjunction with professional history of employees salary. Recommendations are presented to board members for approval.”
“Salary surveys are conducted using industry relevant guidelines in conjunction with professional history of employees salary. Recommendations are presented to board members for approval.”
“UPON REQUEST”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 51927 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 296597 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 1575948 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 1022437 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO FUND SCIENTIFIC RESEARCH TO FIND A CURE FOR SCLERODERMA |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 468 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 468 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 4007701 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | SAME |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4158349444 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 220 MONTGOMERY ST SUITE 484 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | SAN FRANCISCO |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94104 |
| IRS990/BusinessRlnWithFamMemInd | 0 | true |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 494983 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 224101 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 18844 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 14133 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 155465 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 188442 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 141072 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 141072 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1414720 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 5422421 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 2077403 |
| IRS990/CYInvestmentIncomeAmt | 0 | 121580 |
| IRS990/CYOtherExpensesAmt | 0 | 739557 |
| IRS990/CYOtherRevenueAmt | 0 | -375879 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 1803883 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 547279 |
| IRS990/CYTotalExpensesAmt | 0 | 3364239 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 228803 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 5168122 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 2954 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1327 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 6300 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 10581 |
| IRS990/Desc | 0 | THE FOUNDATION IS ASSISTING IN THE SEARCH TO FIND A CURE FOR SCLERODERMA, A LIFE THREATENING ILLNESS, BY FUNDING THE MOST PROMISING, HIGHEST QUALITY RESEARCH AND PLACING THE DISEASE IN THE PUBLIC EYE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 2765497 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 83178 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 83178 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 6587 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 660 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 26853 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 34100 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | LUKE EVNIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | SUSAN FENIGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DEANN WRIGHT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CARYN ZUCKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Violetta Merin |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BOB SAGET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DAVID KNOLLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Sharon Dobie MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ERIC KAU MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Bob Smith |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | AMY HEWITT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Tom Frank |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | ALEX GONZALEZ |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 48750 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 139692 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 131084 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR/SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Executive Dir. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Executive Dir. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIR. DEVELOPMENT |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 1414720 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 456729 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 80850 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 21343 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantAmt | 0 | 2077403 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2077403 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2077403 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 21343 |
| IRS990/GrossReceiptsAmt | 0 | 5624851 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 21818 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 6198 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 34643 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 62659 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 567 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1846 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1209 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3622 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 100237 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 100237 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 904878 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 799430 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 30 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 117211 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 20206 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 20689 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 137900 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO FUND SCIENTIFIC RESEARCH TO FIND A CURE FOR SCLERODERMA |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 5266873 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 7148951 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 21343 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 21343 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -375879 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -375879 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 78195 |
| IRS990/NoncashContributionsAmt | 0 | 82903 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 24042 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 10797 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 51272 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 86111 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 19336 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 36599 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 36024 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 91959 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2270944 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1897370 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | UNCOLLECTIBLE Receivables |
| IRS990/OtherExpensesGrp/Desc | 1 | recruitment |
| IRS990/OtherExpensesGrp/Desc | 2 | VENUE |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 116200 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 57128 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 32541 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 116200 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 57128 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 32541 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 114481 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 27893 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 154603 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 296977 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 17509 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6361 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 37990 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 61860 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 18441 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 19512 |
| IRS990/PrincipalOfficerNm | 0 | LUKE EVNIN |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 5049463 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1769853 |
| IRS990/PYInvestmentIncomeAmt | 0 | 100087 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 732001 |
| IRS990/PYOtherRevenueAmt | 0 | -416469 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 1727626 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 503601 |
| IRS990/PYTotalExpensesAmt | 0 | 3005455 |
| IRS990/PYTotalRevenueAmt | 0 | 4733081 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 1803883 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | true |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 33400 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 3462009 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 200000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 207000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 407000 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 5422421 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 5049463 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3224459 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2692311 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2534352 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 18923006 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 100237 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 76911 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 67670 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 79750 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 70866 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 395434 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 100237 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 76911 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 67670 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 79750 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 70866 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 395434 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.02050 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02200 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.52190 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.54150 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 10082904 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 2889546 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 2422386 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1212353 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.