Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2021 • EIN 52-1704978

Jul 01, 2020 to Jun 30, 2021 • Filed on May 09, 2022

Organization Profilewww.curepsp.org
1216 Broadway 2nd FloorNew York, NY 10001

(802) 734-1185

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.11x

Higher debt load relative to assets than 42% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Liabilities / Revenue

40th percentile

0.14x

Higher debt load relative to revenue than 40% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Net Margin

84th percentile

45%

Higher net margin than 84% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Top Officer Pay

61st percentile

$202,377

Higher top officer pay than 61% of similar nonprofits.

Top officer pay equals 3.2% of source-year revenue.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Asset Growth

92nd percentile

57%

Faster asset growth than 92% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Revenue Growth

86th percentile

80%

Faster revenue growth than 86% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets42nd percentile

Assets

Up

$8,414,669

Up $3,056,468 (+57%) from 2020

Net Assets

Up

$7,498,145

Up $2,924,232 (+64%) from 2020

Liabilities

Up

$916,524

Up $132,236 (+17%) from 2020

Revenue And Expenses
Liabilities / Revenue40th percentileNet Margin84th percentile

Revenue

Up

$6,342,039

Up $2,819,896 (+80%) from 2020

Expenses

Up

$3,488,363

Up $855,622 (+32%) from 2020

Net Income

Up

$2,853,676

Up $1,964,274 (+221%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2021

Assets$8,414,669
Liabilities$916,524
Net Assets$7,498,145
Open 2021 Filing

Operations Trend

Revenue Growth86th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2021

Revenue$6,342,039
Expenses$3,488,363
Net Income$2,853,676
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
May 9, 2022
Return Version
2020v4.0
Gross Receipts
$13,890,025
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

To raise awareness, build community, improve care and find a cure for PSP, CBS and MSA.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,899,072$3,126,783▲ $227,711
Investments in Publicly Traded Securities$1,914,755$2,771,922▲ $857,167
Cash and Non-Interest-Bearing Accounts$170,337$2,166,770▲ $1,996,433
Prepaid Expenses and Deferred Charges$132,506$130,293▼ $2,213
Pledges and Grants Receivable$108,000$82,874▼ $25,126
Land, Buildings, and Equipment, Net$10,055$4,401▼ $5,654
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$5,358,201$8,414,669▲ $3,056,468
Other Assets Total$123,476$131,626▲ $8,150
Liabilities
Grants Payable$356,532$542,420▲ $185,888
Deferred Revenue$178,807$223,513▲ $44,706
Accounts Payable and Accrued Expenses$114,914$150,591▲ $35,677
Unsecured Notes Loans Payable$134,035--
Total Liabilities$784,288$916,524▲ $132,236
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,326,160$6,394,463▲ $3,068,303
Net Assets With Donor Restrictions$1,247,753$1,103,682▼ $144,071
Total Net Assets Fund Balance$4,573,913$7,498,145▲ $2,924,232
Total Liabilities and Net Assets / Fund Balance$5,358,201$8,414,669▲ $3,056,468

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$4,401$199,317$203,718

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2020$316,620-▲ $80,458-$397,078
2019$332,916-▼ $1,296-$316,620
2018$452,650-▲ $9,116-$332,916
2017$403,444-▲ $52,826-$452,650
2016$372,118-▲ $34,596-$403,444
Compensation and Service Providers
Top Officer Pay61st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David KempPresidentFT$194,000$8,377$202,377
Kristophe DiazVP-Sci. AffairsFT$169,932$11,917$181,849

Board Members and Trustees

NameTitle
William McFarlandChair
John Sr BurhoeChair Emeritus
Larry GolbeChair SAB
Amy BranchVice Chair
Alexander PantelyatDirector
Andrew MausDirector
Brent R BluettDirector
Everett CookDirector
Ileen McFarlandDirector
Jack PhilipsDirector
James McClellanDirector
Jessica ShurerDirector
Maggie OrsethDirector
Mana Bhatt SanghviDirector
Robert HandDirector
Lawrence LevienSecretary
Justin SheaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Regina PrintingPrinting Services260 Wagner Street, Middlesex, NJ 08846$181,522
Kiwi Partners IncAccounting Services237 West 35th Street Suite 1101, New York, NY 10001$104,045
Revenue and Support

Revenue Composition

Contributions and Grants
$6,290,908
Program Service Revenue
$0
Investment Income
$27,438
Other Revenue
$23,693
All Other Contributions
$5,934,036
Change in Net Assets
$2,853,676

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,342,039
Revenue Not Reported on Form 990
$70,556
Total Revenue per Audited Statements
$6,412,595
Total Revenue per Form 990
$6,342,039
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,343,135
Salaries, Compensation, and Employee Benefits$1,138,833
Grants and Similar Amounts Paid$1,006,395
Total Fundraising Expense$288,246
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$647,017$60,353$27,479$734,849
Grants to Domestic Orgs$650,327--$650,327
Foreign Grants$299,840--$299,840
Current Officers, Directors, Trustees, and Key Employees$131,549$50,596$20,238$202,383
Fees for Services Other$52,127$28,460$91,081$171,668
Information Technology$100,494$19,226$37,280$157,000
Other Employee Benefits$102,184$11,466$6,052$119,702
Fees for Services Accounting-$106,706-$106,706
All Other Expenses$89,817$7,229$624$97,670
Other Expenses$22,091$55,718$1,909$79,718
Occupancy$61,505$7,196$3,729$72,430
Payroll Taxes$60,612$7,049$3,676$71,337
Grants to Domestic Individuals$56,228--$56,228
Fees for Services Legal$44,849$7,475-$52,324
Insurance-$18,288-$18,288
Travel$6,468$6,277-$12,745
Pension Plan Contributions$10,173$136$253$10,562
Depreciation Depletion$4,803$560$291$5,654
Conferences and Meetings$3,790-$250$4,040
Total Functional Expenses$2,793,292$406,825$288,246$3,488,363

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,488,363
Total Expenses per Audited Statements$3,488,363
Total Expenses per Form 990$3,488,363
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North Texas Community FdtnFort Worth, TX501(c)(3)Research$200,000
The Regents of the UCLALos Angeles, CA501(c)(3)Research$100,000
Banner HealthPhoenix, AZ501(c)(3)Research$90,000
UM AmherstHadley, MA501(c)(3)Research$90,000
University of PennsylvaniaPhiladelphia, PA-Research$90,000
Jeff Golub Documentary LLCNew York, NY501(c)(3)Research$31,620
USC Keck School of MedicineLos Angeles, CA-Research$30,000
AftdKing of Prussia, PA501(c)(3)Sponsorship$10,000
Amazon Web ServicesSeattle, WA501(c)(3)Research$5,575

International Summary

Spending
$299,840

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrant making-00$299,840
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Event$222,837---
Total Events$222,837---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“William R. McFarland and Ileen J McFarland are husband and wife.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Governing documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
CurePSP Inc
EIN
52-1704978
Phone
8027341185
Address
1216 Broadway 2nd Floor, New York, NY 10001

Signing Officer

Name
Kristophe Diaz
Title
Executive Director
Signed
2022-05-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristophe Diaz
Formed
1990
Legal Domicile
Md
Voting Board Members
17
Independent Board Members
17
Employees
12
Volunteers
170

Preparer

Firm
Schall & Ashenfarb Cpas LLC
Address
307 FIFTH AVE 15TH FL, NEW YORK, NY 10016
Preparer
Michael Schall
Phone
2122682800
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2018 and later are subject to examination by applicable taxing authorities.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank.
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IRS990/Form990PartVIISectionAGrp/PersonNm5Lawrence Levien
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IRS990/Form990PartVIISectionAGrp/PersonNm7Jack Philips
IRS990/Form990PartVIISectionAGrp/PersonNm8John Sr Burhoe
IRS990/Form990PartVIISectionAGrp/PersonNm9Larry Golbe
IRS990/Form990PartVIISectionAGrp/PersonNm10Ileen McFarland
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IRS990/Form990PartVIISectionAGrp/PersonNm15Maggie Orseth
IRS990/Form990PartVIISectionAGrp/PersonNm16Jessica Shurer
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IRS990/Form990PartVIISectionAGrp/TitleTxt4Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt5Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Chair Emeritus
IRS990/Form990PartVIISectionAGrp/TitleTxt9Chair SAB
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IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
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Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,414,669
Liabilities
$916,524
Net assets
$7,498,145
Revenue
$6,342,039
Expenses
$3,488,363
Net income
$2,853,676
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27