Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2016 • EIN 52-1704978

Jul 01, 2015 to Jun 30, 2016 • Filed on Mar 23, 2017

Organization ProfileWWW.CUREPSP.ORG
30 East Padonia Road 201Timonium, MD 21093

(347) 294-2893

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.30x

Higher debt load relative to assets than 69% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

69th percentile

0.29x

Higher debt load relative to revenue than 69% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

50th percentile

2.2%

Higher net margin than 50% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

89th percentile

$193,846

Higher top officer pay than 89% of similar nonprofits.

Top officer pay equals 6.0% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

16th percentile

-7.5%

Faster asset growth than 16% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

75th percentile

19%

Faster revenue growth than 75% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets69th percentile

Assets

Down

$3,162,762

Down $256,113 (-7.5%) from 2015

Net Assets

Up

$2,226,006

Up $66,009 (+3.1%) from 2015

Liabilities

Down

$936,756

Down $322,122 (-26%) from 2015

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin50th percentile

Revenue

Up

$3,223,821

Up $503,398 (+19%) from 2015

Expenses

Up

$3,152,221

Up $677,371 (+27%) from 2015

Net Income

Down

$71,600

Down $173,973 (-71%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth16th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2016

Assets$3,162,762
Liabilities$936,756
Net Assets$2,226,006
Open 2016 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2016

Revenue$3,223,821
Expenses$3,152,221
Net Income$71,600
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
Mar 23, 2017
Return Version
2015v3.0
Gross Receipts
$3,719,855
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

Increase awareness of progressive supranuclear palsy, corticobasal degeneration, and other atypical parkinsonian disorders; fund research toward treatment, cure and prevention; educate healthcare prof; and provide support, info and hope for affected persons and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,476,504$1,475,532▼ $972
Cash and Non-Interest-Bearing Accounts$1,420,212$1,064,908▼ $355,304
Investments in Publicly Traded Securities$383,269$388,290▲ $5,021
Land, Buildings, and Equipment, Net$32,016$36,859▲ $4,843
Prepaid Expenses and Deferred Charges$83,266$34,854▼ $48,412
Accounts Receivable$12,850$13,104▲ $254
Pledges and Grants Receivable$3,700$3,850▲ $150
Total Assets$3,418,875$3,162,762▼ $256,113
Other Assets Total$7,058$145,365▲ $138,307
Liabilities
Grants Payable$962,491$767,110▼ $195,381
Accounts Payable and Accrued Expenses$296,387$169,646▼ $126,741
Total Liabilities$1,258,878$936,756▼ $322,122
Net Assets / Fund Balance
Unrestricted Net Assets$1,555,625$1,311,405▼ $244,220
Temporarily Rstr Net Assets$223,545$542,483▲ $318,938
Permanently Rstr Net Assets$380,827$372,118▼ $8,709
Total Net Assets Fund Balance$2,159,997$2,226,006▲ $66,009
Total Liabilities and Net Assets / Fund Balance$3,418,875$3,162,762▼ $256,113

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$36,859$85,104$121,963

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$380,827-▼ $5,591-$372,118
2014$383,411-▲ $529-$380,827
2013$351,169-▲ $35,179-$383,411
2012$325,369-▲ $29,537-$351,169
2011$341,164-▼ $12,480-$325,369
Compensation and Service Providers
Top Officer Pay89th percentile

Employees

NameTitleFull / Part TimeBaseTotal
David KempPresidentFT$193,846$193,846
Richard ZyneFormer Presi-$108,159$108,159
Richard ZyneFormer President-$108,159$108,159

Board Members and Trustees

NameTitle
William McfarlandChair
Everett CookVice Chair
Adam MurphyDirector
Amy BranchDirector
Burton BenjaminDirector
Heather CianciDirector
Ileen McfarlandDirector
James SheaDirector
Jeffrey FriedmanDirector
Jim McclellanDirector
Lawrence GolbeDirector
Paul FreemanDirector
Stephen GoldmanDirector
Yvette BordelonDirector
Brendan DixonSecretary
George JankiewiczTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,119,335
Program Service Revenue
$101,521
Investment Income
$5,459
Other Revenue
$-2,494
All Other Contributions
$2,843,682
Change in Net Assets
$71,600

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,223,821
Revenue Not Reported on Form 990
$-5,591
Total Revenue per Audited Statements
$3,218,230
Total Revenue per Form 990
$3,223,821
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,508,769
Salaries, Compensation, and Employee Benefits$1,165,951
Total Fundraising Expense$522,075
Grants and Similar Amounts Paid$477,501
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$533,097$157,356$149,489$839,942
Grants to Domestic Orgs$367,501--$367,501
Fees for Services Other$196,484-$96,250$292,734
Advertising$282,513$3,338-$285,851
Office Expenses$107,239$5,815$94,581$207,635
Current Officers, Directors, Trustees, and Key Employees$123,030$36,317$34,499$193,846
All Other Expenses$132,510$19,118$17,037$168,665
Conferences and Meetings$144,404--$144,404
Foreign Grants$110,000--$110,000
Occupancy$57,834$17,446$26,457$101,737
Payroll Taxes$45,180$14,441$13,723$73,344
Information Technology$36,918$7,576$21,008$65,502
Fees for Services Legal$25,457$39,262-$64,719
Other Employee Benefits$30,739$9,845$9,348$49,932
Fees for Services Accounting-$26,763-$26,763
Other Expenses$24,360$22,963$22,610$24,360
Travel$3,046$16,361-$19,407
Depreciation Depletion$6,561$2,151$2,044$10,756
Pension Plan Contributions$5,474$1,750$1,663$8,887
Insurance$5,191$1,702$1,616$8,509
Total Functional Expenses$2,244,223$385,923$522,075$3,152,221

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,152,221
Total Expenses per Audited Statements$3,152,221
Total Expenses per Form 990$3,152,221
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Boston UniversityBoston, MA501c3Preclinical Research$100,000
University of CaliforniaSan Francisco, CA501c3Preclinical Research$100,000
Mayo Clinic JacksonvilleJacksonville, FL501c3Preclinical Research$92,501
Columbia UniversityNew York, NY501c3Preclinical Research$75,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$17,255
Fundraising Gross Income$10,764
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Boot/scoot$42,910---
Marco Island Wa$27,015$3,525$5,591$-2,066
Total Events$131,968$10,764$14,094$-3,330
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Wolfe Fiedler PaCPAAccounting & ConsultNo$31,500
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“William mcfarland ileen mcfarland chair director spousal”

Form 990, Page 6, Part VI, Line 3

“Organization contracted cpa to serve as outsource cfo”

Form 990, Page 6, Part VI, Line 11B

“990 is provided to the finance committee for review and comments before filing”

Form 990, Page 6, Part VI, Line 12C

“Executive director reviews forms”

Form 990, Page 6, Part VI, Line 15A

“Board discussed performance and uses salary data to determine. Periodical ly the board also obtains an independent compensation study to determine s alary levels.”

Form 990, Page 6, Part VI, Line 15B

“President-ceo performs annual employee reviews and approves increases with in the scope of an annual budget. The organization periodically obtains s alary reviews from an outside consultant to verify that the salaries are w ithin a competitive range.”

Form 990, Page 6, Part VI, Line 17

“Louisiana, maryland, maine, massachusetts, michigan, minnesota, mississippi, missouri, nevada, new hampshire, new jersey, new mexico, new york, north carolina, north dakota, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, texas, utah, virginia, washington, west virginia, wisconsin”

Form 990, Page 6, Part VI, Line 19

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Curepsp Inc
EIN
52-1704978
Phone
3472942893
Address
30 EAST PADONIA ROAD 201, TIMONIUM, MD 21093

Signing Officer

Name
David Kemp
Title
President
Phone
3472942893
Signed
2017-03-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Kemp
Formed
1990
Legal Domicile
Md
Voting Board Members
17
Independent Board Members
17
Employees
19
Volunteers
100

Preparer

Firm
Wolfe & Fiedler Pa
Address
634 FREDERICK RD STE 1, CATONSVILLE, MD 21228
Preparer
John R Fiedler
Phone
4107470789
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Increase awareness of progressive supranuclear palsy, corticobasal degeneration, and other atypical parkinsonian disorders; fund research toward treatment, cure and prevention; educate healthcare prof; and provide support, info and hope for affected persons and their families.”

Form 990, Page 2, Part III, Line 4D

“Goals of the patient engagement program: accelerating clinical trials to develop treatments and discover cures for rare diseases.”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“Income is used to support psp research by students”

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IRS990/Form990PartVIISectionAGrp/PersonNm10STEPHEN GOLDMAN
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IRS990/Form990PartVIISectionAGrp/PersonNm12JEFFREY FRIEDMAN
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IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt17FORMER PRESI
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IRS990/MissionDesc0INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.
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IRS990/ProgSrvcAccomActy2Grp/Desc0GOALS OF PROGRAMS & EDUCATION: 1. CUREPSP SERVES PATIENTS, FAMILIES AND OTHER CAREGIVERS MANAGING PRIME OF LIFE NEURODEGENERATION TO IMPROVE QUALITY OF LIFE AND PATIENT OUTCOMES. CUREPSP DOES THIS THROUGH FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL COLLABORATION, ONLINE AND PRINTED RESOURCES AND SOCIAL MEDIA. CUREPSP PROVIDES SCIENTIFIC AND CLINICAL RESOURCES AID IN DIAGNOSIS AND TREATMENT OF PSP AND RELATED DISEASES.
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IRS990/ProgSrvcAccomActy3Grp/Desc0GOALS OF THE COMMUNICATION AND AWARENESS PROGRAM: CUREPSP PROVIDES EDUCATION AND AWARENESS THROUGH ONLINE RESOURCES, PRINTED MATERIALS AND PROFESSIONAL CONFERENCE ATTENDANCE TO NEUROLOGISTS AND RELATED HEALTHCARE PROFESSIONALS TO MAKE THEM BETTER ABLE TO PROVIDE ACCURATE DIAGNOSES AND TO ENCOURAGE THEM TO DIRECT PATIENTS INTO CLINICAL TRIALS. CUREPSP EDUCATES THE GENERAL PUBLIC ABOUT PRIME OF LIFE NEURODEGENERATION THROUGH PUBLICITY, SOCIAL MEDIA, EVENTS, WEBSITE AND ADVERTISING IN ORDER TO PROVIDE UNDERLYING SUPPORT FOR ITS PROGRAMS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES.
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,162,762
Liabilities
$936,756
Net assets
$2,226,006
Revenue
$3,223,821
Expenses
$3,152,221
Net income
$71,600
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27