Civic Intelligence

Curepsp Inc

EIN 52-1704978 • 501(c)3 • New York, NY

Profile

Increase awareness of progressive supranuclear palsy, corticobasal degeneration, and other atypical parkinsonian disorders; fund research toward treatment, cure and prevention; educate healthcare prof; and provide support, info and hope for affected persons and their families.

325 Hudson Street 4th FloorNew York, NY 10013-1045

www.curepsp.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

51st percentile

0.13x

Higher debt load relative to assets than 51% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

58th percentile

0.22x

Higher debt load relative to revenue than 58% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

52nd percentile

5.5%

Higher net margin than 52% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

83rd percentile

$251,631

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 4.9% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

70th percentile

12%

Faster asset growth than 70% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

85th percentile

55%

Faster revenue growth than 85% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets51st percentile

Assets

Up

$8,687,169

Up $909,920 (+12%) from 2023

Liabilities

Down

$1,133,772

Down $270,726 (-19%) from 2023

Net Assets

Up

$7,553,397

Up $1,180,646 (+19%) from 2023

Operations
Liabilities / Revenue58th percentileNet Margin52nd percentile

Revenue

Up

$5,127,686

Up $1,818,739 (+55%) from 2023

Expenses

Up

$4,845,918

Up $589,342 (+14%) from 2023

Net Income

Up

$281,768

Up $1,229,397 (+130%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth70th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2024

Assets$8,687,169
Liabilities$1,133,772
Net Assets$7,553,397
Open 2024 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2024

Revenue$5,127,686
Expenses$4,845,918
Net Income$281,768
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,687,169
Liabilities
$1,133,772
Net assets
$7,553,397
Revenue
$5,127,686
Expenses
$4,845,918
Net income
$281,768
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Apr 25, 2025
Return Version
2023v6.0
Gross Receipts
$6,883,457
Mission and Program Overview

Mission

To raise awareness, build community, improve care and find a cure for psp, cbd and msa.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,386,382$6,395,653▲ $9,271
Savings and Temporary Cash Investments$224,301$949,402▲ $725,101
Cash and Non-Interest-Bearing Accounts$729,889$326,774▼ $403,115
Prepaid Expenses and Deferred Charges$163,233$318,111▲ $154,878
Pledges and Grants Receivable$69,771$314,706▲ $244,935
Land, Buildings, and Equipment, Net$85,648$204,692▲ $119,044
Inventories for Sale or Use$106,261$167,944▲ $61,683
Accounts Receivable-$4,623-
Total Assets$7,777,249$8,687,169▲ $909,920
Other Assets Total$11,764$5,264▼ $6,500
Liabilities
Grants Payable$973,896$688,177▼ $285,719
Deferred Revenue$223,513$248,513▲ $25,000
Accounts Payable and Accrued Expenses$207,089$197,082▼ $10,007
Total Liabilities$1,404,498$1,133,772▼ $270,726
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,218,158$5,724,836▲ $506,678
Net Assets With Donor Restrictions$1,154,593$1,828,561▲ $673,968
Total Net Assets Fund Balance$6,372,751$7,553,397▲ $1,180,646
Total Liabilities and Net Assets / Fund Balance$7,777,249$8,687,169▲ $909,920

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$203,072$235,674$438,746
Equipment$1,620$32,673$34,293

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$357,599-▲ $41,672-$363,961
2022$351,053-▲ $32,546-$357,599
2021$397,078-▼ $43,025-$351,053
2020$316,620-▲ $80,458-$397,078
2019$332,916-▼ $1,296-$316,620
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kristophe J DiazExe Director and Chief Science OfficerFT$214,003$37,628$251,631
Richard T Spain IvDirector, DevelopmentFT$131,237$17,467$148,704
Jaclyn C ZendrianVP-eventsFT$126,164$18,343$144,507
Jennifer L BrummetAssoc. Dir, Scientific Affairs and PartnerFT$125,677$17,410$143,087
Jessica ShurerDirector Clinical Affairs and AdvocacyFT$104,783$20,158$124,941

Board Members and Trustees

NameTitle
Jack PhillipsChair (beginning 1/24)
William McfarlandChair (through 1/24)
Lawrence GolbeChair - Scientific Advisory Board
Amy BranchVice Chair
Alexander PantelyatDirector
Ileen McfarlandDirector
James McclellanDirector
Louis FoxwellDirector
Maggie OrsethDirector
Mana Bhatt SanghviDirector
Nadine TattonDirector
Paul FreemanDirector
Lawrence LevienSecretary
Justin SheaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Regina PrintingPrinting Services260 WAGNER STREET, Middlesex, NJ 08846$307,161
Developing Now INCWebsite Developement Services134 N 4TH STREET FLOOR 2, Brooklyn, NY 11249$177,144
Arabella Advisors LLCAccounting Services1828 L ST NORTHWEST STE 300, Washington, DC 20036$129,457
Revenue and Support

Revenue Composition

Contributions and Grants
$5,179,385
Program Service Revenue
$0
Investment Income
$-82,146
Other Revenue
$30,447
All Other Contributions
$4,672,617
Change in Net Assets
$281,768

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,127,686
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$898,878
Total Revenue per Audited Statements
$6,026,564
Total Revenue per Form 990
$5,127,686
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,985,687
Salaries, Compensation, and Employee Benefits$1,688,770
Grants and Similar Amounts Paid$1,171,461
Total Fundraising Expense$430,560
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$863,810$84,276$151,022$1,099,108
Grants to Domestic Orgs$722,321--$722,321
Advertising$432,032$8,450$101,332$541,814
Foreign Grants$328,735--$328,735
Current Officers, Directors, Trustees, and Key Employees$225,736$28,217$28,217$282,170
Information Technology$146,733$7,936$43,491$198,160
Travel$180,499$3,887$12,713$197,099
Other Employee Benefits$147,531$12,987$24,943$185,461
Fees for Services Accounting-$143,506-$143,506
Grants to Domestic Individuals$120,405--$120,405
Fees for Services Other$82,817$25,034$6,624$114,475
Payroll Taxes$78,371$7,119$12,939$98,429
Conferences and Meetings$54,833$15,577$14,224$84,634
Occupancy$50,104$3,460$6,282$59,846
Depreciation Depletion$43,598$3,960$7,198$54,756
Fees for Services Legal-$52,172-$52,172
Pension Plan Contributions$18,786$1,662$3,154$23,602
Insurance$364$16,869$1,539$18,772
Office Expenses$6,208$455$1,383$8,046
Other Expenses$45,667$2,003$9,185$2,003
All Other Expenses$525--$525
Total Functional Expenses$3,900,876$514,482$430,560$4,845,918

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,845,918
Total Expenses per Audited Statements$4,845,918
Total Expenses per Form 990$4,845,918
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North Texas Community FoundationForth Worth, TX501 (c) (3)Rainwater Prime of Life Fund - Cure Pillar of Our Mission$180,000
Mayo Clinic JacksonvilleJacksonville, FL501 (c) (3)Funding Research - Cure Pillar of Our Mission$100,000
UclaLos Angeles, CA501 (c) (3)Funding Research - Cure Pillar of Our Mission$100,000
Sjo Research & ConsultingPhoenixville, PA501 (c) (3)Patient Journey Project - Consciousness Pillar of Our Mission$62,980
Oregon Health and Science UniversityPortland, OR501 (c) (3)Fy24 Center of Care Cares Grant$50,000
Baylor College of MedicineHouston, TX501 (c) (3)Fy24 Curepsp Center of Care Cares Grant$30,000
Cleveland Clinic ClevelandCleveland, OH501 (c) (3)Fy24 Center of Care Cares Grant$29,341
Virginia Commonwealth UniversityRishmond, VA501 (c) (3)Fy24 Center of Care Annual Award - Vcu$10,000

International Summary

Offices
0
Employees
0
Spending
$328,735

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
United KingdomGrantmakingFunding Research - Cure Pillar of Our Mission--$100,000
CanadaGrantmakingPsp Brain Donation Program - Cure Pillar of Our Mission--$100,000
United KingdomGrantmakingFunding Research - Cure Pillar of Our Mission--$98,735
CanadaGrantmakingFy24 Center of Care Award - University of Toronto--$5,000
CanadaGrantmakingFy24 Curepsp Center of Care Payment - Chum--$5,000
United KingdomGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
SpainGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
IndiaGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
United KingdomGrantmakingTwo Student Fellowship Grants - Cure Pillar of Our Mission--$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$86,359
Fundraising Gross Income$86,359
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Curepsp Awareness Walk$207,274$50,189$49,775$414
CAROL'S RESEARCH CHALLENGE$138,662$72$72$0
Total Events$593,127$86,359$86,359$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“William r. Mcfarland and ileen j mcfarland are husband and wife.”

Form 990, Part VI, Section B, Line 11B

“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”

Form 990, Part VI, Section B, Line 15A

“The board of directors discussed performance and uses salary data to determine. Periodically the board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Section C, Line 19

“Governing documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Curepsp Inc
EIN
52-1704978
Phone
6467251453
Address
325 HUDSON STREET 4TH FLOOR, NEW YORK, NY 10013-1045

Signing Officer

Name
Kristophe Diaz
Title
Executive Director
Phone
6467251453
Signed
2025-04-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristophe Diaz
Formed
1990
Legal Domicile
Md
Voting Board Members
14
Independent Board Members
14
Employees
14
Volunteers
318

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS 16TH, FLOOR, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2122682804
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending june 30, 2021 and later are subject to examination by applicable taxing authorities.”

Raw XML AppendixShowing 400 of 872 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0207089
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0197082
IRS990/AccountsReceivableGrp/EOYAmt04623
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.
IRS990/AdvertisingGrp/FundraisingAmt0101332
IRS990/AdvertisingGrp/ManagementAndGeneralAmt08450
IRS990/AdvertisingGrp/ProgramServicesAmt0432032
IRS990/AdvertisingGrp/TotalAmt0541814
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IRS990/Desc0CUREPSP SERVES AS A CATALYST FOR DEVELOPING NEW TREATMENTS AND ULTIMATELY A CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND CORTICOBASAL DEGENERATION (CBD), BOTH OF WHICH ARE PRIMARY TAUOPATHIES. THE SCIENTIFIC RESEARCH AND PROJECTS SUPPORTED BY CUREPSP NOT ONLY FOCUS ON THESE CONDITIONS BUT ALSO BENEFIT BROADER SCIENTIFIC PRIORITIES RELATED TO OTHER NEURODEGENERATIVE DISEASES, INCLUDING ALZHEIMER'S, PICK'S DISEASE, ARGYROPHILIC GRAIN DISEASE, CHRONIC TRAUMATIC ENCEPHALOPATHY, AND CERTAIN TYPES OF FAMILIAL FRONTOTEMPORAL DEMENTIA. THIS BROAD IMPACT UNDERSCORES THE SIGNIFICANCE OF CUREPSP'S CONTRIBUTIONS TO THE FIELD OF NEUROLOGICAL RESEARCH. CONTINUED ON SCHEDULE OCUREPSP'S FUNDING AND PARTNERSHIPS ARE STRATEGICALLY FOCUSED ON ADVANCING RESEARCH IN SEVERAL KEY AREAS: (A) UNDERSTANDING THE CAUSES AND RISK FACTORS OF NEURODEGENERATION, (B) DISCOVERING AND VALIDATING BIOMARKERS AND CLINICAL TESTS TO ENHANCE DIAGNOSIS AND FACILITATE MORE EFFECTIVE CLINICAL TRIALS, (C) IDENTIFYING GENETIC VARIANTS LINKED TO THESE DISEASES, (D) DEVELOPING THERAPIES THAT COULD PREVENT, HALT, OR REVERSE THE BRAIN DAMAGE CAUSED BY THE PATHOLOGICAL ACCUMULATION OF PROTEINS, AND (E) ASSISTING PHARMACEUTICAL COMPANIES AND RESEARCH INSTITUTIONS IN RECRUITING PARTICIPANTS FOR CLINICAL TRIALS AND PROMOTING THESE TRIALS. ADDITIONALLY, CUREPSP COLLABORATES WITH LEADING INSTITUTIONS LIKE THE MAYO CLINIC'S BRAIN BANK IN JACKSONVILLE, FLORIDA, TO SUPPLY ESSENTIAL BRAIN TISSUE SAMPLES TO RESEARCHERS WORLDWIDE, THEREBY EXPANDING ACCESS TO THESE CRUCIAL BIOLOGICAL RESOURCES. CUREPSP'S PARTNERSHIPS ARE DESIGNED TO FAST-TRACK SHARED OBJECTIVES. IN THIS EFFORT, CUREPSP WORKS CLOSELY WITH AND CO-INVESTS IN PROGRAMS AND RESEARCH ALONGSIDE PROMINENT NONPROFIT ORGANIZATIONS AND FOUNDATIONS, SUCH AS THE ALZHEIMER'S ASSOCIATION, THE MICHAEL J. FOX FOUNDATION, THE PARKINSON'S FOUNDATION, AND THE RAINWATER CHARITABLE FOUNDATION, AS WELL AS PATIENT-LED ORGANIZATIONS LIKE MISSION MSA IN THE UNITED STATES AND THE PSP ASSOCIATION IN THE UNITED KINGDOM.
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