Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2019 • EIN 52-1704978

Jul 01, 2018 to Jun 30, 2019 • Filed on May 26, 2020

Organization Profilewww.curepsp.org
1216 Broadway 2nd FloorNew York, NY 10001

(802) 734-1185

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.17x

Higher debt load relative to assets than 64% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

78th percentile

0.24x

Higher debt load relative to revenue than 78% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Net Margin

79th percentile

23%

Higher net margin than 79% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

85th percentile

$215,455

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 6.9% of source-year revenue.

2019 filings • NTEE G • $1M-$5M nonprofits • Source year 2019

Asset Growth

68th percentile

17%

Faster asset growth than 68% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

52nd percentile

9.7%

Faster revenue growth than 52% of similar nonprofits.

2019 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets64th percentile

Assets

Up

$4,347,464

Up $631,141 (+17%) from 2018

Net Assets

Up

$3,610,448

Up $705,352 (+24%) from 2018

Liabilities

Down

$737,016

Down $74,211 (-9.1%) from 2018

Revenue And Expenses
Liabilities / Revenue78th percentileNet Margin79th percentile

Revenue

Up

$3,115,437

Up $276,459 (+9.7%) from 2018

Expenses

Down

$2,394,117

Down $170,403 (-6.6%) from 2018

Net Income

Up

$721,320

Up $446,862 (+163%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth68th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2019

Assets$4,347,464
Liabilities$737,016
Net Assets$3,610,448
Open 2019 Filing

Operations Trend

Revenue Growth52nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2019

Revenue$3,115,437
Expenses$2,394,117
Net Income$721,320
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
May 26, 2020
Return Version
2018v3.1
Gross Receipts
$3,731,037
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases;

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$452,650$2,334,111▲ $1,881,461
Savings and Temporary Cash Investments$1,484,449$1,025,983▼ $458,466
Cash and Non-Interest-Bearing Accounts$1,553,651$850,058▼ $703,593
Prepaid Expenses and Deferred Charges$86,613$81,487▼ $5,126
Pledges and Grants Receivable$1,650$25,500▲ $23,850
Land, Buildings, and Equipment, Net$90,243$23,325▼ $66,918
Inventories for Sale or Use$20,859$0▼ $20,859
Accounts Receivable$12,728$0▼ $12,728
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Total Assets$3,716,325$4,347,464▲ $631,139
Other Assets Total$13,482$7,000▼ $6,482
Liabilities
Grants Payable$531,587$458,113▼ $73,474
Deferred Revenue$159,659$184,091▲ $24,432
Accounts Payable and Accrued Expenses$119,986$94,812▼ $25,174
Total Liabilities$811,232$737,016▼ $74,216
Net Assets / Fund Balance
Unrestricted Net Assets$2,062,060$2,538,372▲ $476,312
Temporarily Rstr Net Assets$390,383$739,160▲ $348,777
Permanently Rstr Net Assets$452,650$332,916▼ $119,734
Total Net Assets Fund Balance$2,905,093$3,610,448▲ $705,355
Total Liabilities and Net Assets / Fund Balance$3,716,325$4,347,464▲ $631,139

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$23,325$171,285$194,610

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$452,650-▲ $9,116-$332,916
2017$403,444-▲ $52,826-$452,650
2016$372,118-▲ $34,596-$403,444
2015$380,827-▼ $5,591-$372,118
2014$383,411-▲ $529-$380,827
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David KempPresidentFT$199,955$15,500$215,455
Alexander Klein - thru 022019Director Scient AffairsFT$153,439$15,500$153,439

Board Members and Trustees

NameTitle
William McFarlandChair
Amy BranchVice Chair
Everett CookDirector
Ileen McFarlandDirector
Jeff FreidmanDirector
John Jr BurhoeDirector
John Sr BurhoeDirector
Larry Golbe thru 022019Director
McClellan JamesDirector
Mike DixonDirector
Orseth MaggieDirector
Stephen GoldmanDirector
Larry LevienSecretary
Justin SheaTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,845,244
Program Service Revenue
$205,367
Investment Income
$48,189
Other Revenue
$16,637
All Other Contributions
$2,704,623
Change in Net Assets
$721,320

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,115,437
Revenue Not Reported on Form 990
$-15,965
Total Revenue per Audited Statements
$3,099,472
Total Revenue per Form 990
$3,115,437
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,252,132
Salaries, Compensation, and Employee Benefits$835,694
Grants and Similar Amounts Paid$306,291
Total Fundraising Expense$194,017
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$444,217$74,778$10,933$529,928
Grants to Domestic Orgs$216,291--$216,291
Current Officers, Directors, Trustees, and Key Employees$140,000$50,000$10,000$200,000
All Other Expenses$131,893$8,400$15,718$156,011
Occupancy$82,208$17,361$2,897$102,466
Information Technology$56,678$16,359$19,694$92,731
Foreign Grants$90,000--$90,000
Fees for Services Accounting-$82,750-$82,750
Other Expenses$33,330$45,828$1,031$80,189
Depreciation Depletion$52,052$11,118$1,865$65,035
Conferences and Meetings$53,595$7,466$1,390$62,451
Payroll Taxes$42,623$9,097$1,527$53,247
Fees for Services Legal$41,924$8,198-$50,122
Other Employee Benefits$31,995$6,829$1,147$39,971
Travel$16,365$6,667$15,254$38,286
Fees for Services Other$9,078$19,463$186$28,727
Insurance-$26,857-$26,857
Pension Plan Contributions$10,044$2,144$360$12,548
Total Functional Expenses$1,804,897$395,203$194,017$2,394,117

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,394,117
Total Expenses per Audited Statements$2,394,117
Total Expenses per Form 990$2,394,117
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Regents of the UCLALos Angeles, CA-Research$100,000
Rush University Medical CenteChicago, IL501c3Research$10,000

International Summary

Spending
$90,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South AmericaGrant making-00$90,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$4,752
Fundraising Gross Income$4,752
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Event$145,373$4,752$4,752$0
Total Events$145,373$4,752$4,752-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“William R. McFarland and Ileen J McFarland are husband and wife.John T. Burhoe and John T. Burhoe, Jr. are father and son.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Governing documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
CurePSP Inc
EIN
52-1704978
Phone
8027341185
Address
1216 Broadway 2nd Floor, New York, NY 10001

Signing Officer

Name
David Kemp
Title
President
Signed
2020-05-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Kemp
Formed
1990
Legal Domicile
Md
Voting Board Members
13
Independent Board Members
13
Employees
14
Volunteers
170

Preparer

Firm
Schall & Ashenfarb Cpas
Address
307 5th Ave 15th Floor, NEW YORK, NY 10016-6517
Preparer
Michael Schall
Phone
2122682800
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2016 and later are subject to examination by applicable taxing authorities.”

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IRS990/Form990PartVIISectionAGrp/PersonNm3Larry Levien
IRS990/Form990PartVIISectionAGrp/PersonNm4Everett Cook
IRS990/Form990PartVIISectionAGrp/PersonNm5Jeff Freidman
IRS990/Form990PartVIISectionAGrp/PersonNm6John Sr Burhoe
IRS990/Form990PartVIISectionAGrp/PersonNm7Larry Golbe thru 022019
IRS990/Form990PartVIISectionAGrp/PersonNm8Ileen McFarland
IRS990/Form990PartVIISectionAGrp/PersonNm9John Jr Burhoe
IRS990/Form990PartVIISectionAGrp/PersonNm10Mike Dixon
IRS990/Form990PartVIISectionAGrp/PersonNm11Stephen Goldman
IRS990/Form990PartVIISectionAGrp/PersonNm12McClellan James
IRS990/Form990PartVIISectionAGrp/PersonNm13Orseth Maggie
IRS990/Form990PartVIISectionAGrp/PersonNm14David Kemp
IRS990/Form990PartVIISectionAGrp/PersonNm15Alexander Klein - thru 022019
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IRS990/OtherExpensesGrp/FundraisingAmt183132
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IRS990/OtherExpensesGrp/ProgramServicesAmt333330
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1129798
IRS990/ProgSrvcAccomActy2Grp/Desc0CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0621220
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0256374
IRS990/ProgSrvcAccomActy3Grp/Desc0CurePSP publishes a library of printed and online educational materials for families, patients, physicians and other healthcare professionals. The foundation sponsors professional education conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually supported by CurePSP further educate the general public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0503908
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IRS990/PYContributionsGrantsAmt02456446

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,347,464
Liabilities
$737,016
Net assets
$3,610,448
Revenue
$3,115,437
Expenses
$2,394,117
Net income
$721,320
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27