Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2022 • EIN 52-1704978

Jul 01, 2021 to Jun 30, 2022 • Filed on May 10, 2023

Organization Profilewww.curepsp.org
1216 Broadway 2nd FloorNew York, NY 10001

(646) 725-1453

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

52nd percentile

0.14x

Higher debt load relative to assets than 52% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Liabilities / Revenue

64th percentile

0.29x

Higher debt load relative to revenue than 64% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Net Margin

55th percentile

9.1%

Higher net margin than 55% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Top Officer Pay

78th percentile

$208,383

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 5.5% of source-year revenue.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Asset Growth

26th percentile

-6.6%

Faster asset growth than 26% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Revenue Growth

10th percentile

-40%

Faster revenue growth than 10% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets52nd percentile

Assets

Down

$7,863,202

Down $551,467 (-6.6%) from 2021

Net Assets

Down

$6,757,427

Down $740,718 (-9.9%) from 2021

Liabilities

Up

$1,105,775

Up $189,251 (+21%) from 2021

Revenue And Expenses
Liabilities / Revenue64th percentileNet Margin55th percentile

Revenue

Down

$3,806,911

Down $2,535,128 (-40%) from 2021

Expenses

Down

$3,461,407

Down $26,956 (-0.8%) from 2021

Net Income

Down

$345,504

Down $2,508,172 (-88%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth26th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2022

Assets$7,863,202
Liabilities$1,105,775
Net Assets$6,757,427
Open 2022 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2022

Revenue$3,806,911
Expenses$3,461,407
Net Income$345,504
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2021 to Jun 30, 2022
Signed
May 10, 2023
Return Version
2021v4.1
Gross Receipts
$3,918,928
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,771,922$5,658,237▲ $2,886,315
Cash and Non-Interest-Bearing Accounts$2,166,770$1,509,198▼ $657,572
Savings and Temporary Cash Investments$3,126,783$363,665▼ $2,763,118
Prepaid Expenses and Deferred Charges$130,293$144,499▲ $14,206
Pledges and Grants Receivable$82,874$56,899▼ $25,975
Land, Buildings, and Equipment, Net$4,401$3,650▼ $751
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$8,414,669$7,863,202▼ $551,467
Other Assets Total$131,626$127,054▼ $4,572
Liabilities
Grants Payable$542,420$676,670▲ $134,250
Deferred Revenue$223,513$223,513→ $0
Accounts Payable and Accrued Expenses$150,591$205,592▲ $55,001
Total Liabilities$916,524$1,105,775▲ $189,251
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,394,463$5,663,353▼ $731,110
Net Assets With Donor Restrictions$1,103,682$1,094,074▼ $9,608
Total Net Assets Fund Balance$7,498,145$6,757,427▼ $740,718
Total Liabilities and Net Assets / Fund Balance$8,414,669$7,863,202▼ $551,467

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,650$202,655$206,305

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2021$397,078-▼ $43,025-$351,053
2020$316,620-▲ $80,458-$397,078
2019$332,916-▼ $1,296-$316,620
2018$452,650-▲ $9,116-$332,916
2017$403,444-▲ $52,826-$452,650
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David KempPresidentFT$200,000$8,383$208,383
Kristophe DiazExecutive DirectorFT$190,885$15,536$206,421

Board Members and Trustees

NameTitle
William McFarlandChair
John Sr BurhoeChair Emeritus
Larry GolbeChair SAB
Amy BranchVice Chair
Alexander PantelyatDirector
Andrew MausDirector
Brent R Bluett thru 522Director
Everett Cook Thru 622Director
Ileen McFarlandDirector
Jack PhilipsDirector
James McClellanDirector
Jessica Shurer Thru 1021Director
Maggie OrsethDirector
Mana Bhatt SanghviDirector
Paul FreemanDirector
Robert HandDirector
Lawrence LevienSecretary
Justin SheaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Regina PrintingPrinting Services260 Wagner Street, Middlesex, NJ 08846$433,298
Kiwi Partners IncAccounting Services237 West 35th Street Suite 1101, New York, NY 10001$108,041
Revenue and Support

Revenue Composition

Contributions and Grants
$3,585,545
Program Service Revenue
$0
Investment Income
$217,382
Other Revenue
$3,984
All Other Contributions
$3,198,112
Change in Net Assets
$345,504

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,793,954
Revenue Not Reported on Financial Statements
$12,957
Revenue Not Reported on Form 990
$-1,086,222
Total Revenue per Audited Statements
$2,707,732
Total Revenue per Form 990
$3,806,911
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,348,289
Salaries, Compensation, and Employee Benefits$1,122,055
Grants and Similar Amounts Paid$991,063
Total Fundraising Expense$254,343
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$826,900--$826,900
Other Salaries and Wages$524,668$42,218$31,472$598,358
Current Officers, Directors, Trustees, and Key Employees$242,268$50,191$32,495$324,954
Fees for Services Other$117,417$17,713$22,500$157,630
Information Technology$124,288$9,263$19,678$153,229
Fees for Services Accounting-$123,675-$123,675
Other Employee Benefits$101,592$12,332$7,709$121,633
Foreign Grants$103,500--$103,500
Travel$63,007$29,329$977$93,313
Payroll Taxes$56,614$7,093$4,654$68,361
Occupancy$55,329$6,867$4,490$66,686
Fees for Services Legal$10,830$49,750$950$61,530
Grants to Domestic Orgs$60,663--$60,663
Other Expenses$20,596$1,515$1,242$23,353
Office Expenses$17,664$1,620$968$20,252
Insurance-$15,382-$15,382
Fees for Service Investment Mgmnt Fees-$12,957-$12,957
Pension Plan Contributions$8,315$30$404$8,749
Conferences and Meetings$5,222$150-$5,372
Depreciation Depletion$2,764$347$227$3,338
All Other Expenses$1,481$311$122$1,914
Total Functional Expenses$2,766,372$440,692$254,343$3,461,407

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,461,407
Expenses per Audited Statements$3,448,450
Total Expenses per Audited Statements$3,448,450
Expenses Not Reported on Financial Statements$12,957
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North Texas Community FdtnFort Worth, TX-Research$106,900
UT Health Science Center at SSan Antonio, TX-Research$100,000
University of PennsylvaniaPhiladelphia, PA-Research$100,000
Massachusetts General HospitaBoston, MA-Research$90,000
The Regents of the UCLALos Angeles, CA-Research$90,000
UT Southwestern Medical CenteDallas, TX-Research$90,000
Icahn School of Medicine at MNew York, NY-Research$75,000
Columbia UniversityNew York, NY-Research$50,000

International Summary

Spending
$103,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrant making-00$93,500
CanadaGrantmaking-00$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Event$387,433---
Total Events$387,433---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“William R. McFarland and Ileen J McFarland are husband and wife.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Governing documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
CurePSP Inc
EIN
52-1704978
Phone
6467251453
Address
1216 Broadway 2nd Floor, New York, NY 10001

Signing Officer

Name
Kristophe Diaz
Title
Executive Director
Signed
2023-05-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristophe Diaz
Formed
1990
Legal Domicile
Md
Voting Board Members
15
Independent Board Members
15
Employees
12
Volunteers
260

Preparer

Firm
Sax Llp
Address
389 INTERPACE PARKWAY STE 3, PARSIPPANY, NJ 07054
Preparer
Michael Schall
Phone
2122682804
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“OTHER PROGRAM SERVICES 4: CurePSP organizes and administers a CurePSP Center of Care program, a network of medical centers across the United States and Canada with the goal of connecting people diagnosed with PSP, CBD, and MSA to the best possible care to support disease management and quality of life. The mission of CurePSP Centers of Care is to enhance access to accurate and early diagnosis, state-of-the-art clinical care, and comprehensive support, serve as regional leaders, increase awareness of PSP, CBD, and MSA, optimize standards of care delivery for PSP, CBD, and MSA, and create opportunities for multi-center research initiatives. Launched in 2022, the Collaborative Approaches to Resources, Education, and Support (CARES) grant program funds clinical research projects led by two or more Centers of Care”

Part III, Line 4A

“CurePSP funding of research and partnerships focuses on (a) the causes and risk factors for neurodegeneration, (b) the discovery or validation of biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with the pathological accumulation of protein in the brain, and (e) aiding pharmaceutical companies and research institutions in the recruitment of cohorts for clinical trials and marketing of those trials. In addition, CurePSP partners with world-leading institutions, including the Mayo Clinics brain bank, to provide critical brain tissue samples to researchers and increase access to these fundamental biological resources.”

Part III, Line 4B

“CurePSP's Quality of Life Respite grant, supported by the Cherie Levien Quality of Life Fund and many other donors, provides professional in-home care to families in need. As an example of an online resource, CurePSP organizes Ask The Experts interactive webinars during which subject matter experts in the medical and healthcare fields share their advice, knowledge, and research with patients and caregivers.”

Financial Statement Notes

Part X : FIN48 Footnote

“The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2019 and later are subject to examination by applicable taxing authorities.”

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IRS990/Form990PartVIISectionAGrp/PersonNm1Kristophe Diaz
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IRS990/Form990PartVIISectionAGrp/PersonNm3Amy Branch
IRS990/Form990PartVIISectionAGrp/PersonNm4Justin Shea
IRS990/Form990PartVIISectionAGrp/PersonNm5Lawrence Levien
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IRS990/Form990PartVIISectionAGrp/PersonNm7Jack Philips
IRS990/Form990PartVIISectionAGrp/PersonNm8John Sr Burhoe
IRS990/Form990PartVIISectionAGrp/PersonNm9Larry Golbe
IRS990/Form990PartVIISectionAGrp/PersonNm10Ileen McFarland
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IRS990/Form990PartVIISectionAGrp/PersonNm16Alexander Pantelyat
IRS990/Form990PartVIISectionAGrp/PersonNm17Robert Hand
IRS990/Form990PartVIISectionAGrp/PersonNm18Andrew Maus
IRS990/Form990PartVIISectionAGrp/PersonNm19Paul Freeman
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IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt2Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt3Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt4Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt5Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Chair Emeritus
IRS990/Form990PartVIISectionAGrp/TitleTxt9Chair SAB
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990PartVIISectionAGrp/TitleTxt14Director
IRS990/Form990PartVIISectionAGrp/TitleTxt15Director
IRS990/Form990PartVIISectionAGrp/TitleTxt16Director
IRS990/Form990PartVIISectionAGrp/TitleTxt17Director
IRS990/Form990PartVIISectionAGrp/TitleTxt18Director
IRS990/Form990PartVIISectionAGrp/TitleTxt19Director
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Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,863,202
Liabilities
$1,105,775
Net assets
$6,757,427
Revenue
$3,806,911
Expenses
$3,461,407
Net income
$345,504
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2022 filings • NTEE G • $5M-$10M nonprofits