Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
51st percentile
Higher debt load relative to revenue than 51% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 6.5% of source-year revenue.
Asset Growth
77th percentile
Faster asset growth than 77% of similar nonprofits.
Revenue Growth
70th percentile
Faster revenue growth than 70% of similar nonprofits.
Assets
Up$5,358,201
Up $1,010,737 (+23%) from 2019
Net Assets
Up$4,573,913
Up $963,465 (+27%) from 2019
Liabilities
Up$784,288
Up $47,272 (+6.4%) from 2019
Revenue
Up$3,522,143
Up $406,706 (+13%) from 2019
Expenses
Up$2,632,741
Up $238,624 (+10.0%) from 2019
Net Income
Up$889,402
Up $168,082 (+23%) from 2019
Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.
Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases;
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,025,983 | $2,899,072 | ▲ $1,873,089 |
| Investments in Publicly Traded Securities | $2,334,111 | $1,914,755 | ▼ $419,356 |
| Cash and Non-Interest-Bearing Accounts | $850,058 | $170,337 | ▼ $679,721 |
| Prepaid Expenses and Deferred Charges | $81,487 | $132,506 | ▲ $51,019 |
| Pledges and Grants Receivable | $25,500 | $108,000 | ▲ $82,500 |
| Land, Buildings, and Equipment, Net | $23,325 | $10,055 | ▼ $13,270 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $4,347,464 | $5,358,201 | ▲ $1,010,737 |
| Other Assets Total | $7,000 | $123,476 | ▲ $116,476 |
| Liabilities | |||
| Grants Payable | $458,113 | $356,532 | ▼ $101,581 |
| Deferred Revenue | $184,091 | $178,807 | ▼ $5,284 |
| Unsecured Notes Loans Payable | - | $134,035 | - |
| Accounts Payable and Accrued Expenses | $94,812 | $114,914 | ▲ $20,102 |
| Total Liabilities | $737,016 | $784,288 | ▲ $47,272 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $2,538,372 | $3,326,160 | ▲ $787,788 |
| Net Assets With Donor Restrictions | $1,072,076 | $1,247,753 | ▲ $175,677 |
| Total Net Assets Fund Balance | $3,610,448 | $4,573,913 | ▲ $963,465 |
| Total Liabilities and Net Assets / Fund Balance | $4,347,464 | $5,358,201 | ▲ $1,010,737 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $10,055 | $193,663 | $203,718 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2019 | $332,916 | - | ▼ $1,296 | - | $316,620 |
| 2018 | $452,650 | - | ▲ $9,116 | - | $332,916 |
| 2017 | $403,444 | - | ▲ $52,826 | - | $452,650 |
| 2016 | $372,118 | - | ▲ $34,596 | - | $403,444 |
| 2015 | $380,827 | - | ▼ $5,591 | - | $372,118 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| David Kemp | President | FT | $200,000 | $28,305 | $228,305 |
| Name | Title |
|---|---|
| William McFarland | Chair |
| John Sr Burhoe | Chair Emeritus |
| Amy Branch | Vice Chair |
| Alex Pantelyat | Director |
| Andy Maus | Director |
| Bobby Hand | Director |
| Brent Bluett | Director |
| Everett Cook | Director |
| Ileen McFarland | Director |
| Jeff Freidman thru 102019 | Director |
| Jessica Shurer | Director |
| John Jr Burhoe thru 32020 | Director |
| Larry Golbe rejoined 12020 | Director |
| McClellan James | Director |
| Orseth Maggie | Director |
| Stephen Goldman | Director |
| Larry Levien | Secretary |
| Justin Shea | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Regina Printing | Printing Services | 260 Wagner Street, Middlesex, NJ 08846 | $284,568 |
| Kiwi Partners Inc | Accounting Services | 237 West 35th Street Suite 1101, New York, NY 10001 | $107,977 |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,240,621 |
| Salaries, Compensation, and Employee Benefits | $920,284 |
| Grants and Similar Amounts Paid | $471,836 |
| Total Fundraising Expense | $213,221 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $463,432 | $69,707 | $23,389 | $556,528 |
| Grants to Domestic Orgs | $391,836 | - | - | $391,836 |
| Current Officers, Directors, Trustees, and Key Employees | $130,000 | $50,000 | $20,000 | $200,000 |
| All Other Expenses | $60,663 | $40,586 | $2,625 | $103,874 |
| Fees for Services Accounting | - | $100,425 | - | $100,425 |
| Information Technology | $65,817 | $17,541 | $16,117 | $99,475 |
| Occupancy | $77,131 | $14,544 | $5,639 | $97,314 |
| Other Employee Benefits | $70,521 | $12,298 | $5,156 | $87,975 |
| Foreign Grants | $80,000 | - | - | $80,000 |
| Other Expenses | $7,832 | $11,519 | $49,736 | $69,087 |
| Fees for Services Other | $37,365 | $29,629 | $300 | $67,294 |
| Travel | $48,100 | $14,390 | $2,943 | $65,433 |
| Payroll Taxes | $49,517 | $8,635 | $3,621 | $61,773 |
| Fees for Services Legal | $42,662 | $7,529 | - | $50,191 |
| Conferences and Meetings | $31,917 | $735 | $1,097 | $33,749 |
| Depreciation Depletion | $17,925 | $3,142 | $1,311 | $22,378 |
| Pension Plan Contributions | $11,229 | $1,958 | $821 | $14,008 |
| Insurance | $276 | $11,981 | - | $12,257 |
| Total Functional Expenses | $2,004,847 | $414,673 | $213,221 | $2,632,741 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $2,632,741 |
| Total Expenses per Audited Statements | $2,632,741 |
| Total Expenses per Form 990 | $2,632,741 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| North Texas Community Foundat | Fort Worth, TX | - | Research | $100,000 |
| Duke University | Durham, NC | - | Research | $80,000 |
| Regenerative Research Foundat | Rensselaer, NY | - | Research | $80,000 |
| UT Southwestern Medical Cente | Dallas, TX | - | Research | $80,000 |
| Ichan School of Medicine | New York, NY | - | Research | $50,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe | Grant making | - | 0 | 0 | $80,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising Event | $111,497 | - | - | - |
| Total Events | $111,497 | - | - | - |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“William R. McFarland and Ileen J McFarland are husband and wife.John T. Burhoe and John T. Burhoe, Jr. are father and son.”
“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS.”
“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”
“The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels.”
“Governing documents are made available upon request.”
“Refund of grants = $95872”
“The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2017 and later are subject to examination by applicable taxing authorities.”
“Refund of grants $95872”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 94812 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 114914 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases; |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 3307671 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2625 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 40586 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 60663 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 103874 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | David Kemp |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8027341185 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1216 Broadway 2nd Floor |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | New York |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10001 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 850058 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 170337 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 20000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 50000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 130000 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 200000 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1097 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 735 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 31917 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 33749 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 107977 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 284568 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 237 West 35th Street Suite 1101 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 260 Wagner Street |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | New York |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | Middlesex |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | NJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 10001 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 08846 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | Kiwi Partners Inc |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | Regina Printing |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Accounting Services |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | Printing Services |
| IRS990/ContriRptFundraisingEventAmt | 0 | 111497 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3419168 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 471836 |
| IRS990/CYInvestmentIncomeAmt | 0 | 80238 |
| IRS990/CYOtherExpensesAmt | 0 | 1240621 |
| IRS990/CYOtherRevenueAmt | 0 | 22737 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 889402 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 920284 |
| IRS990/CYTotalExpensesAmt | 0 | 2632741 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 213221 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3522143 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 184091 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 178807 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1311 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 3142 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 17925 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 22378 |
| IRS990/Desc | 0 | CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | true |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1072076 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1247753 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 12 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 752360 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 100425 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 100425 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 7529 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 42662 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 50191 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 300 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 29629 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 37365 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 67294 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 80000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 80000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 16 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 17 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 18 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 6.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 3.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 8305 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | David Kemp |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | William McFarland |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Amy Branch |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Justin Shea |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Larry Levien |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Everett Cook |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Jeff Freidman thru 102019 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | John Sr Burhoe |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Larry Golbe rejoined 12020 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Ileen McFarland |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Andy Maus |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Brent Bluett |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Stephen Goldman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | McClellan James |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Orseth Maggie |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | John Jr Burhoe thru 32020 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | Jessica Shurer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | Alex Pantelyat |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | Bobby Hand |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 220000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Vice Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Chair Emeritus |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1990 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 111497 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 3679 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 552390 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 458113 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 356532 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 391836 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 391836 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 5494037 |
| IRS990/GrossReceiptsAmt | 0 | 9012501 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 16117 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 17541 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 65817 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 99475 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 11981 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 276 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 12257 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 76559 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 76559 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2334111 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1914755 |
| IRS990/IRPDocumentCnt | 0 | 53 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 193663 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 23325 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 10055 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 203718 |
| IRS990/LegalDomicileStateCd | 0 | MD |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 5490358 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases; |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 3610448 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 4573913 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 3679 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 3679 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -21809 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2538372 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3326160 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5639 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 14544 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 77131 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 97314 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 7000 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 123476 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 95872 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 5156 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 12298 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 70521 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 87975 |
| IRS990/OtherExpensesGrp/Desc | 0 | Recruiting and marketing |
| IRS990/OtherExpensesGrp/Desc | 1 | Direct mail |
| IRS990/OtherExpensesGrp/Desc | 2 | Research support |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 53511 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 26955 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 49736 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 20054 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 11519 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 155644 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 179926 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 83054 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 7832 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 229209 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 206881 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 83054 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 69087 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Other Revenue |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 22737 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 22737 |
| IRS990/OtherRevenueTotalAmt | 0 | 22737 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 23389 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 69707 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 463432 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 556528 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.