Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2024 • EIN 52-1704978

Jul 01, 2023 to Jun 30, 2024 • Filed on Apr 25, 2025

Organization ProfileWWW.CUREPSP.ORG
325 Hudson Street 4th FloorNew York, NY 10013-1045

(646) 725-1453

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

51st percentile

0.13x

Higher debt load relative to assets than 51% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

57th percentile

0.22x

Higher debt load relative to revenue than 57% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

53rd percentile

5.5%

Higher net margin than 53% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

83rd percentile

$251,631

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 4.9% of source-year revenue.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

68th percentile

12%

Faster asset growth than 68% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

85th percentile

55%

Faster revenue growth than 85% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets51st percentile

Assets

Up

$8,687,169

Up $909,920 (+12%) from 2023

Net Assets

Up

$7,553,397

Up $1,180,646 (+19%) from 2023

Liabilities

Down

$1,133,772

Down $270,726 (-19%) from 2023

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin53rd percentile

Revenue

Up

$5,127,686

Up $1,818,739 (+55%) from 2023

Expenses

Up

$4,845,918

Up $589,342 (+14%) from 2023

Net Income

Up

$281,768

Up $1,229,397 (+130%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth68th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2024

Assets$8,687,169
Liabilities$1,133,772
Net Assets$7,553,397
Open 2024 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2024

Revenue$5,127,686
Expenses$4,845,918
Net Income$281,768
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Apr 25, 2025
Return Version
2023v6.0
Gross Receipts
$6,883,457
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

To raise awareness, build community, improve care and find a cure for psp, cbd and msa.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,386,382$6,395,653▲ $9,271
Savings and Temporary Cash Investments$224,301$949,402▲ $725,101
Cash and Non-Interest-Bearing Accounts$729,889$326,774▼ $403,115
Prepaid Expenses and Deferred Charges$163,233$318,111▲ $154,878
Pledges and Grants Receivable$69,771$314,706▲ $244,935
Land, Buildings, and Equipment, Net$85,648$204,692▲ $119,044
Inventories for Sale or Use$106,261$167,944▲ $61,683
Accounts Receivable-$4,623-
Total Assets$7,777,249$8,687,169▲ $909,920
Other Assets Total$11,764$5,264▼ $6,500
Liabilities
Grants Payable$973,896$688,177▼ $285,719
Deferred Revenue$223,513$248,513▲ $25,000
Accounts Payable and Accrued Expenses$207,089$197,082▼ $10,007
Total Liabilities$1,404,498$1,133,772▼ $270,726
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,218,158$5,724,836▲ $506,678
Net Assets With Donor Restrictions$1,154,593$1,828,561▲ $673,968
Total Net Assets Fund Balance$6,372,751$7,553,397▲ $1,180,646
Total Liabilities and Net Assets / Fund Balance$7,777,249$8,687,169▲ $909,920

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$203,072$235,674$438,746
Equipment$1,620$32,673$34,293

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$357,599-▲ $41,672-$363,961
2022$351,053-▲ $32,546-$357,599
2021$397,078-▼ $43,025-$351,053
2020$316,620-▲ $80,458-$397,078
2019$332,916-▼ $1,296-$316,620
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kristophe J DiazExe Director and Chief Science OfficerFT$214,003$37,628$251,631
Richard T Spain IvDirector, DevelopmentFT$131,237$17,467$148,704
Jaclyn C ZendrianVP-eventsFT$126,164$18,343$144,507
Jennifer L BrummetAssoc. Dir, Scientific Affairs and PartnerFT$125,677$17,410$143,087
Jessica ShurerDirector Clinical Affairs and AdvocacyFT$104,783$20,158$124,941

Board Members and Trustees

NameTitle
Jack PhillipsChair (beginning 1/24)
William McfarlandChair (through 1/24)
Lawrence GolbeChair - Scientific Advisory Board
Amy BranchVice Chair
Alexander PantelyatDirector
Ileen McfarlandDirector
James McclellanDirector
Louis FoxwellDirector
Maggie OrsethDirector
Mana Bhatt SanghviDirector
Nadine TattonDirector
Paul FreemanDirector
Lawrence LevienSecretary
Justin SheaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Regina PrintingPrinting Services260 WAGNER STREET, Middlesex, NJ 08846$307,161
Developing Now INCWebsite Developement Services134 N 4TH STREET FLOOR 2, Brooklyn, NY 11249$177,144
Arabella Advisors LLCAccounting Services1828 L ST NORTHWEST STE 300, Washington, DC 20036$129,457
Revenue and Support

Revenue Composition

Contributions and Grants
$5,179,385
Program Service Revenue
$0
Investment Income
$-82,146
Other Revenue
$30,447
All Other Contributions
$4,672,617
Change in Net Assets
$281,768

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,127,686
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$898,878
Total Revenue per Audited Statements
$6,026,564
Total Revenue per Form 990
$5,127,686
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,985,687
Salaries, Compensation, and Employee Benefits$1,688,770
Grants and Similar Amounts Paid$1,171,461
Total Fundraising Expense$430,560
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$863,810$84,276$151,022$1,099,108
Grants to Domestic Orgs$722,321--$722,321
Advertising$432,032$8,450$101,332$541,814
Foreign Grants$328,735--$328,735
Current Officers, Directors, Trustees, and Key Employees$225,736$28,217$28,217$282,170
Information Technology$146,733$7,936$43,491$198,160
Travel$180,499$3,887$12,713$197,099
Other Employee Benefits$147,531$12,987$24,943$185,461
Fees for Services Accounting-$143,506-$143,506
Grants to Domestic Individuals$120,405--$120,405
Fees for Services Other$82,817$25,034$6,624$114,475
Payroll Taxes$78,371$7,119$12,939$98,429
Conferences and Meetings$54,833$15,577$14,224$84,634
Occupancy$50,104$3,460$6,282$59,846
Depreciation Depletion$43,598$3,960$7,198$54,756
Fees for Services Legal-$52,172-$52,172
Pension Plan Contributions$18,786$1,662$3,154$23,602
Insurance$364$16,869$1,539$18,772
Office Expenses$6,208$455$1,383$8,046
Other Expenses$45,667$2,003$9,185$2,003
All Other Expenses$525--$525
Total Functional Expenses$3,900,876$514,482$430,560$4,845,918

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,845,918
Total Expenses per Audited Statements$4,845,918
Total Expenses per Form 990$4,845,918
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North Texas Community FoundationForth Worth, TX501 (c) (3)Rainwater Prime of Life Fund - Cure Pillar of Our Mission$180,000
Mayo Clinic JacksonvilleJacksonville, FL501 (c) (3)Funding Research - Cure Pillar of Our Mission$100,000
UclaLos Angeles, CA501 (c) (3)Funding Research - Cure Pillar of Our Mission$100,000
Sjo Research & ConsultingPhoenixville, PA501 (c) (3)Patient Journey Project - Consciousness Pillar of Our Mission$62,980
Oregon Health and Science UniversityPortland, OR501 (c) (3)Fy24 Center of Care Cares Grant$50,000
Baylor College of MedicineHouston, TX501 (c) (3)Fy24 Curepsp Center of Care Cares Grant$30,000
Cleveland Clinic ClevelandCleveland, OH501 (c) (3)Fy24 Center of Care Cares Grant$29,341
Virginia Commonwealth UniversityRishmond, VA501 (c) (3)Fy24 Center of Care Annual Award - Vcu$10,000

International Summary

Offices
0
Employees
0
Spending
$328,735

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
United KingdomGrantmakingFunding Research - Cure Pillar of Our Mission--$100,000
CanadaGrantmakingPsp Brain Donation Program - Cure Pillar of Our Mission--$100,000
United KingdomGrantmakingFunding Research - Cure Pillar of Our Mission--$98,735
CanadaGrantmakingFy24 Center of Care Award - University of Toronto--$5,000
CanadaGrantmakingFy24 Curepsp Center of Care Payment - Chum--$5,000
United KingdomGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
SpainGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
IndiaGrantmakingStudent Fellowship Grant - Cure Pillar of Our Mission--$5,000
United KingdomGrantmakingTwo Student Fellowship Grants - Cure Pillar of Our Mission--$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$86,359
Fundraising Gross Income$86,359
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Curepsp Awareness Walk$207,274$50,189$49,775$414
CAROL'S RESEARCH CHALLENGE$138,662$72$72$0
Total Events$593,127$86,359$86,359$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“William r. Mcfarland and ileen j mcfarland are husband and wife.”

Form 990, Part VI, Section B, Line 11B

“The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.”

Form 990, Part VI, Section B, Line 15A

“The board of directors discussed performance and uses salary data to determine. Periodically the board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Section C, Line 19

“Governing documents are made available upon request.”

Filing and Contact Details

Filer

Filer Name
Curepsp Inc
EIN
52-1704978
Phone
6467251453
Address
325 HUDSON STREET 4TH FLOOR, NEW YORK, NY 10013-1045

Signing Officer

Name
Kristophe Diaz
Title
Executive Director
Phone
6467251453
Signed
2025-04-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristophe Diaz
Formed
1990
Legal Domicile
Md
Voting Board Members
14
Independent Board Members
14
Employees
14
Volunteers
318

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS 16TH, FLOOR, NEW YORK, NY 10018
Preparer
Mike Schall
Phone
2122682804
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending june 30, 2021 and later are subject to examination by applicable taxing authorities.”

Raw XML AppendixShowing 400 of 872 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0CUREPSP SERVES AS A CATALYST FOR DEVELOPING NEW TREATMENTS AND ULTIMATELY A CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND CORTICOBASAL DEGENERATION (CBD), BOTH OF WHICH ARE PRIMARY TAUOPATHIES. THE SCIENTIFIC RESEARCH AND PROJECTS SUPPORTED BY CUREPSP NOT ONLY FOCUS ON THESE CONDITIONS BUT ALSO BENEFIT BROADER SCIENTIFIC PRIORITIES RELATED TO OTHER NEURODEGENERATIVE DISEASES, INCLUDING ALZHEIMER'S, PICK'S DISEASE, ARGYROPHILIC GRAIN DISEASE, CHRONIC TRAUMATIC ENCEPHALOPATHY, AND CERTAIN TYPES OF FAMILIAL FRONTOTEMPORAL DEMENTIA. THIS BROAD IMPACT UNDERSCORES THE SIGNIFICANCE OF CUREPSP'S CONTRIBUTIONS TO THE FIELD OF NEUROLOGICAL RESEARCH. CONTINUED ON SCHEDULE OCUREPSP'S FUNDING AND PARTNERSHIPS ARE STRATEGICALLY FOCUSED ON ADVANCING RESEARCH IN SEVERAL KEY AREAS: (A) UNDERSTANDING THE CAUSES AND RISK FACTORS OF NEURODEGENERATION, (B) DISCOVERING AND VALIDATING BIOMARKERS AND CLINICAL TESTS TO ENHANCE DIAGNOSIS AND FACILITATE MORE EFFECTIVE CLINICAL TRIALS, (C) IDENTIFYING GENETIC VARIANTS LINKED TO THESE DISEASES, (D) DEVELOPING THERAPIES THAT COULD PREVENT, HALT, OR REVERSE THE BRAIN DAMAGE CAUSED BY THE PATHOLOGICAL ACCUMULATION OF PROTEINS, AND (E) ASSISTING PHARMACEUTICAL COMPANIES AND RESEARCH INSTITUTIONS IN RECRUITING PARTICIPANTS FOR CLINICAL TRIALS AND PROMOTING THESE TRIALS. ADDITIONALLY, CUREPSP COLLABORATES WITH LEADING INSTITUTIONS LIKE THE MAYO CLINIC'S BRAIN BANK IN JACKSONVILLE, FLORIDA, TO SUPPLY ESSENTIAL BRAIN TISSUE SAMPLES TO RESEARCHERS WORLDWIDE, THEREBY EXPANDING ACCESS TO THESE CRUCIAL BIOLOGICAL RESOURCES. CUREPSP'S PARTNERSHIPS ARE DESIGNED TO FAST-TRACK SHARED OBJECTIVES. IN THIS EFFORT, CUREPSP WORKS CLOSELY WITH AND CO-INVESTS IN PROGRAMS AND RESEARCH ALONGSIDE PROMINENT NONPROFIT ORGANIZATIONS AND FOUNDATIONS, SUCH AS THE ALZHEIMER'S ASSOCIATION, THE MICHAEL J. FOX FOUNDATION, THE PARKINSON'S FOUNDATION, AND THE RAINWATER CHARITABLE FOUNDATION, AS WELL AS PATIENT-LED ORGANIZATIONS LIKE MISSION MSA IN THE UNITED STATES AND THE PSP ASSOCIATION IN THE UNITED KINGDOM.
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IRS990/FeesForServicesLegalGrp/TotalAmt052172
IRS990/FeesForServicesOtherGrp/FundraisingAmt06624
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt025034
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt082817
IRS990/FeesForServicesOtherGrp/TotalAmt0114475
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt0328735
IRS990/ForeignGrantsGrp/TotalAmt0328735
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt56.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt735.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt131.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1417628
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1517467
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1618343
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1717410
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1820158
IRS990/Form990PartVIISectionAGrp/PersonNm0JACK PHILLIPS
IRS990/Form990PartVIISectionAGrp/PersonNm1WILLIAM MCFARLAND
IRS990/Form990PartVIISectionAGrp/PersonNm2AMY BRANCH
IRS990/Form990PartVIISectionAGrp/PersonNm3JUSTIN SHEA
IRS990/Form990PartVIISectionAGrp/PersonNm4LAWRENCE LEVIEN
IRS990/Form990PartVIISectionAGrp/PersonNm5LAWRENCE GOLBE
IRS990/Form990PartVIISectionAGrp/PersonNm6JAMES MCCLELLAN
IRS990/Form990PartVIISectionAGrp/PersonNm7ILEEN MCFARLAND
IRS990/Form990PartVIISectionAGrp/PersonNm8MAGGIE ORSETH
IRS990/Form990PartVIISectionAGrp/PersonNm9LOUIS FOXWELL
IRS990/Form990PartVIISectionAGrp/PersonNm10ALEXANDER PANTELYAT
IRS990/Form990PartVIISectionAGrp/PersonNm11PAUL FREEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm12MANA BHATT SANGHVI
IRS990/Form990PartVIISectionAGrp/PersonNm13NADINE TATTON
IRS990/Form990PartVIISectionAGrp/PersonNm14KRISTOPHE J DIAZ
IRS990/Form990PartVIISectionAGrp/PersonNm15RICHARD T SPAIN IV
IRS990/Form990PartVIISectionAGrp/PersonNm16JACLYN C ZENDRIAN
IRS990/Form990PartVIISectionAGrp/PersonNm17JENNIFER L BRUMMET
IRS990/Form990PartVIISectionAGrp/PersonNm18JESSICA SHURER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14234003
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15131237
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16126164
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17125677
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18104783
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR (BEGINNING 1/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR (THROUGH 1/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5CHAIR - SCIENTIFIC ADVISORY BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXE DIR AND CHIEF SCIENCE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR, DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt16VP-EVENTS
IRS990/Form990PartVIISectionAGrp/TitleTxt17ASSOC. DIR, SCIENTIFIC AFFAIRS AND PARTNER
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIR. CLINICAL AFFAIRS AND ADVOCACY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0506768
IRS990/FundraisingDirectExpensesAmt086359
IRS990/FundraisingGrossIncomeAmt086359
IRS990/GainOrLossGrp/SecuritiesAmt0-255680
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantAmt0759828
IRS990/GrantsPayableGrp/BOYAmt0973896
IRS990/GrantsPayableGrp/EOYAmt0688177
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0120405
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0120405
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0722321
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0722321
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01410867
IRS990/GrossReceiptsAmt06883457
IRS990/GrossSalesOfInventoryAmt05729
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt043491
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt07936
IRS990/InformationTechnologyGrp/ProgramServicesAmt0146733
IRS990/InformationTechnologyGrp/TotalAmt0198160
IRS990/InsuranceGrp/FundraisingAmt01539
IRS990/InsuranceGrp/ManagementAndGeneralAmt016869
IRS990/InsuranceGrp/ProgramServicesAmt0364
IRS990/InsuranceGrp/TotalAmt018772
IRS990/InventoriesForSaleOrUseGrp/BOYAmt0106261
IRS990/InventoriesForSaleOrUseGrp/EOYAmt0167944
IRS990/InvestmentIncomeGrp/ExclusionAmt0173534
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0173534
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt06386382
IRS990/InvestmentsPubTradedSecGrp/EOYAmt06395653
IRS990/IRPDocumentCnt029
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0268347
IRS990/LandBldgEquipBasisNetGrp/BOYAmt085648
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0204692
IRS990/LandBldgEquipCostOrOtherBssAmt0473039
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01666547
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt06372751
IRS990/NetAssetsOrFundBalancesEOYAmt07553397
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-255680
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-255680
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt02864
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt02864
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0898878
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt05218158
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt05724836
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06282
IRS990/OccupancyGrp/ManagementAndGeneralAmt03460
IRS990/OccupancyGrp/ProgramServicesAmt050104
IRS990/OccupancyGrp/TotalAmt059846
IRS990/OfficeExpensesGrp/FundraisingAmt01383
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0455
IRS990/OfficeExpensesGrp/ProgramServicesAmt06208
IRS990/OfficeExpensesGrp/TotalAmt08046
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt011764
IRS990/OtherAssetsTotalGrp/EOYAmt05264
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt024943
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt012987
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0147531
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0185461
IRS990/OtherExpensesGrp/Desc0RESEARCH
IRS990/OtherExpensesGrp/Desc1OTHER EXPENSES
IRS990/OtherExpensesGrp/Desc2POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/Desc3EQUIPMENT RENTAL
IRS990/OtherExpensesGrp/FundraisingAmt06314
IRS990/OtherExpensesGrp/FundraisingAmt19185
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt096020
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1892
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22003
IRS990/OtherExpensesGrp/ProgramServicesAmt0314950
IRS990/OtherExpensesGrp/ProgramServicesAmt136851
IRS990/OtherExpensesGrp/ProgramServicesAmt245667
IRS990/OtherExpensesGrp/TotalAmt0314950
IRS990/OtherExpensesGrp/TotalAmt1139185
IRS990/OtherExpensesGrp/TotalAmt255744
IRS990/OtherExpensesGrp/TotalAmt32003
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/ExclusionAmt027583
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt027583
IRS990/OtherRevenueTotalAmt027583
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0151022
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt084276
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0863810
IRS990/OtherSalariesAndWagesGrp/TotalAmt01099108
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt012939
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07119
IRS990/PayrollTaxesGrp/ProgramServicesAmt078371
IRS990/PayrollTaxesGrp/TotalAmt098429
IRS990/PensionPlanContributionsGrp/FundraisingAmt03154
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01662
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt018786
IRS990/PensionPlanContributionsGrp/TotalAmt023602
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt069771
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0314706
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0163233
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0318111
IRS990/PrincipalOfficerNm0KRISTOPHE DIAZ
IRS990/ProfessionalFundraisingInd00

Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,687,169
Liabilities
$1,133,772
Net assets
$7,553,397
Revenue
$5,127,686
Expenses
$4,845,918
Net income
$281,768
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27