Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2017 • EIN 52-1704978

Jul 01, 2016 to Jun 30, 2017 • Filed on May 10, 2018

Organization ProfileWWW.CUREPSP.ORG
1206 York Road Ste L-4Lutherville, MD 21093

(347) 294-2893

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.15x

Higher debt load relative to assets than 58% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

61st percentile

0.17x

Higher debt load relative to revenue than 61% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

70th percentile

13%

Higher net margin than 70% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2017

Asset Growth

27th percentile

-2.8%

Faster asset growth than 27% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

15th percentile

-16%

Faster revenue growth than 15% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$3,074,588

Down $88,174 (-2.8%) from 2016

Net Assets

Up

$2,608,161

Up $382,155 (+17%) from 2016

Liabilities

Down

$466,427

Down $470,329 (-50%) from 2016

Revenue And Expenses
Liabilities / Revenue61st percentileNet Margin70th percentile

Revenue

Down

$2,704,782

Down $519,039 (-16%) from 2016

Expenses

Down

$2,357,223

Down $794,998 (-25%) from 2016

Net Income

Up

$347,559

Up $275,959 (+385%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth27th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2017

Assets$3,074,588
Liabilities$466,427
Net Assets$2,608,161
Open 2017 Filing

Operations Trend

Revenue Growth15th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2017

Revenue$2,704,782
Expenses$2,357,223
Net Income$347,559
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
May 10, 2018
Return Version
2016v3.1
Gross Receipts
$2,797,290
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,475,532$1,478,278▲ $2,746
Cash and Non-Interest-Bearing Accounts$1,064,908$895,681▼ $169,227
Investments in Publicly Traded Securities$388,290$427,158▲ $38,868
Land, Buildings, and Equipment, Net$36,859$158,787▲ $121,928
Prepaid Expenses and Deferred Charges$34,854$50,959▲ $16,105
Accounts Receivable$13,104$22,920▲ $9,816
Inventories for Sale or Use-$20,382-
Pledges and Grants Receivable$3,850$4,650▲ $800
Total Assets$3,162,762$3,074,588▼ $88,174
Other Assets Total$145,365$15,773▼ $129,592
Liabilities
Grants Payable$767,110$354,040▼ $413,070
Accounts Payable and Accrued Expenses$169,646$112,387▼ $57,259
Total Liabilities$936,756$466,427▼ $470,329
Net Assets / Fund Balance
Unrestricted Net Assets$1,311,405$1,749,321▲ $437,916
Temporarily Rstr Net Assets$542,483$455,396▼ $87,087
Permanently Rstr Net Assets$372,118$403,444▲ $31,326
Total Net Assets Fund Balance$2,226,006$2,608,161▲ $382,155
Total Liabilities and Net Assets / Fund Balance$3,162,762$3,074,588▼ $88,174

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$158,787$134,457$293,244

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$372,118-▲ $34,596-$403,444
2015$380,827-▼ $5,591-$372,118
2014$383,411-▲ $529-$380,827
2013$351,169-▲ $35,179-$383,411
2012$325,369-▲ $29,537-$351,169
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
David KempPresidentFT$200,000$200,000

Board Members and Trustees

NameTitle
William McfarlandChair
John BurhoeChair Emerit
Everett CookVice Chair
Adam MurphyDirector
Amy BranchDirector
Ileen McfarlandDirector
James SheaDirector
Jeffrey FriedmanDirector
Jim McclellanDirector
Lawrence GolbeDirector
Stephen GoldmanDirector
Brendan DixonSecretary
George JankiewiczTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,577,806
Program Service Revenue
$106,430
Investment Income
$9,566
Other Revenue
$10,980
All Other Contributions
$2,394,790
Change in Net Assets
$347,559

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,704,782
Revenue Not Reported on Form 990
$34,596
Total Revenue per Audited Statements
$2,739,378
Total Revenue per Form 990
$2,704,782
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,097,564
Salaries, Compensation, and Employee Benefits$930,159
Total Fundraising Expense$466,301
Grants and Similar Amounts Paid$329,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$431,479$97,203$93,222$621,904
Grants to Domestic Orgs$329,500--$329,500
Office Expenses$108,327$2,332$218,351$329,010
Current Officers, Directors, Trustees, and Key Employees$135,260$35,860$28,880$200,000
Conferences and Meetings$168,896--$168,896
Occupancy$84,489$34,772$26,057$145,318
All Other Expenses$67,524$18,884$30,581$116,989
Information Technology$36,523$2,720$28,545$67,788
Payroll Taxes$41,523$10,856$8,747$61,126
Depreciation Depletion$35,157$8,991$7,242$51,390
Fees for Services Legal$13,226$35,927-$49,153
Fees for Services Accounting-$37,974-$37,974
Other Employee Benefits$22,672$5,930$4,773$33,375
Other Expenses$20,866$7,198$16,570$20,866
Pension Plan Contributions$9,343$2,443$1,968$13,754
Insurance$9,157$1,695$1,365$12,217
Advertising$11,957$69-$12,026
Travel$235$6,176-$6,411
Fees for Services Other$4,993--$4,993
Fees for Service Investment Mgmnt Fees$3,270--$3,270
Total Functional Expenses$1,560,049$330,873$466,301$2,357,223

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,357,223
Total Expenses per Audited Statements$2,357,223
Total Expenses per Form 990$2,357,223
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Humboldt State UniversityArcata, CA501c3Preclinical Research$100,000
Nyu School of MedicineBoston, MA501c3Preclinical Research$83,500
Teachers Coll Columbia UniversityNew York, NY501c3Preclinical Research$50,000
Columbia UniversityNew York, NY501c3Preclinical Research$44,000
Regenerative Research FoundationRenselaer, NY501c3Preclinical Research$40,000
Mount Sinai School of MedicineNew York, NY501c3Preclinical Research$12,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$23,024
Fundraising Direct Expenses$16,640
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Marco Island Wa$35,730$8,932$6,589$2,343
Hill Country Wi$36,148$7,230$1,400$5,830
Total Events$123,429$23,024$15,756$7,268
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Wolfe Fiedler PaCPAAccounting & ConsultNo$28,800
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“William mcfarland ileen mcfarland chair director spousal”

Form 990, Page 6, Part VI, Line 3

“Organization contracted cpa to serve as outsource cfo”

Form 990, Page 6, Part VI, Line 11B

“990 is provided to the finance committee for review and comments before filing”

Form 990, Page 6, Part VI, Line 12C

“Executive director reviews forms”

Form 990, Page 6, Part VI, Line 15A

“Board discussed performance and uses salary data to determine. Periodical ly the board also obtains an independent compensation study to determine s alary levels.”

Form 990, Page 6, Part VI, Line 15B

“President-ceo performs annual employee reviews and approves increases with in the scope of an annual budget. The organization periodically obtains s alary reviews from an outside consultant to verify that the salaries are w ithin a competitive range.”

Form 990, Page 6, Part VI, Line 17

“Louisiana, maryland, maine, massachusetts, michigan, minnesota, mississippi, missouri, nevada, new hampshire, new jersey, new mexico, new york, north carolina, north dakota, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, texas, utah, virginia, washington, west virginia, wisconsin”

Form 990, Page 6, Part VI, Line 19

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Curepsp Inc
EIN
52-1704978
Phone
3472942893
Address
1206 YORK ROAD STE L-4, LUTHERVILLE, MD 21093

Signing Officer

Name
David Kemp
Title
President
Phone
3472942893
Signed
2018-05-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Kemp
Formed
1990
Legal Domicile
Md
Voting Board Members
13
Independent Board Members
13
Employees
17
Volunteers
180

Preparer

Firm
Wolfe & Fiedler Pa
Address
634 FREDERICK RD STE 1, CATONSVILLE, MD 21228
Preparer
John R Fiedler
Phone
4107470789
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.”

Form 990, Part III

“Organization's significant accomplishments 1. Funded more than 180 research studies. Provides seed funding ("venture grants") to early career investigators. 2. Put on an annual global research symposium. 3.reimbursed families for the cost of brain donation to the mayo clinic, which provides tissue samples to scientists for their research. 4.provided patient and family support through some 50 in-person support groups and around 200 volunteers who provide telephone and online support. The curepsp forum allows people affected by the diseases to share information and support. 5. Held two family conferences a year attracting more than 100 patients and families to each. 6. Put on caregiver conferences and professional education meetings. 7. Provided grants to families for professional in-home care. 8. Recruited patients for clinical trials and markets the trials. 9. Published a library of printed and online information and provided telephone support.”

Form 990, Page 2, Part III, Line 4D

“Goals of the patient engagement program: accelerating clinical trials to develop treatments and discover cures for rare diseases.”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“Income is used to support psp research by students”

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IRS990/Form990PartVIISectionAGrp/PersonNm7GEORGE JANKIEWICZ
IRS990/Form990PartVIISectionAGrp/PersonNm8STEPHEN GOLDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm9WILLIAM MCFARLAND
IRS990/Form990PartVIISectionAGrp/PersonNm10JEFFREY FRIEDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm11JIM MCCLELLAN
IRS990/Form990PartVIISectionAGrp/PersonNm12JAMES SHEA
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IRS990/MissionDesc0CUREPSP IS A NONPROFIT ADVOCACY ORGANIZATION FOCUSED ON PRIME OF LIFE NEURODEGENERATIVE DISEASES, A SPECTRUM OF FATAL BRAIN DISORDERS THAT OFTEN STRIKE DURING MIDDLE AGE. SINCE IT WAS FOUNDED IN 1990, CURE PSP HAS PROVIDED SIGNFICANT SUPPORT FOR SCIENTISTS, PATIENTS AND FAMILIES, AND HEALTHCARE PROFESSIONALS. BECAUSE OF ITS FOCUS ON TAU PROTEIN-RELATED DISEASES LIKE PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CUREPSP OCCUPIES A CENTRAL POSITION IN CURRENT NEURODEGENERATION RESEARCH THROUGH ITS FUNDING OF TALENTED EARLY CAREER INVESTIGATORS AND ITS ABIILITY TO RECRUIT FOR AND MARKET CLINCAL TRIALS IN PSP NOW BEING UNDERTAKEN BY MAJOR PHARMACEUTICAL MANUFACTURERS.
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IRS990/ProgSrvcAccomActy2Grp/Desc0CUREPSP ADVOCATES FOR PATIENTS, FAMILIES, AND CAREGIVERS MANAGING PRIME OF LIFE NEURODEGENERATION TO IMPROVE QUALITY OF LIFE AND PATIENT OUTCOMES. CUREPSP DOES THIS THROUGH FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL EDUCATION, ONLINE AND PRINTED RESOURCES, AND SOCIAL MEDIA. CUREPSP SUPPORTS SOME 50 SUPPORT GROUPS AND AROUND 200 VOLUNTEERS PROVIDING ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT WORLDWIDE. CUREPSP'S CHERIE LEVIEN QUALITY OF LIFE FUND PROVIDES PROFESSIONAL IN-HOME CARE TO FAMILIES IN NEED.
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IRS990/ProgSrvcAccomActy2Grp/RevenueAmt088800
IRS990/ProgSrvcAccomActy3Grp/Desc0CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, AND PHYISICIANS AND OTHER HEALTHCARE PROFESSIONALS. THE FOUNDATION SPONSORS PROFESSIONAL EDUCATION CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE OF THE DISEASE THAT WILL LEAD TO EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY SUPPORTED BY CUREPSP FURTHER EDUCATE THE GENERAL PUBLIC. THE FOUNDATION MAINTAINS AN ONGOING RELATIONSHIP WITH A GLOBAL PR FIRM TO CREATE AWARENESS WITIH PROFESSIONALS AND THE GENERAL PUBLIC.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES.
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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,074,588
Liabilities
$466,427
Net assets
$2,608,161
Revenue
$2,704,782
Expenses
$2,357,223
Net income
$347,559
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27