Civic Intelligence

Curepsp Inc.

990 • Fiscal year 2014 • EIN 52-1704978

Jul 01, 2013 to Jun 30, 2014 • Filed on Jan 16, 2015

Organization ProfileWWW.CUREPSP.ORG
30 East Padonia Road21093

(410) 785-7004

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

79th percentile

0.42x

Higher debt load relative to assets than 79% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

81st percentile

0.41x

Higher debt load relative to revenue than 81% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Net Margin

39th percentile

4.2%

Higher net margin than 39% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

77th percentile

$119,498

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 3.6% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

92nd percentile

47%

Faster asset growth than 92% of similar nonprofits.

2014 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

72nd percentile

17%

Faster revenue growth than 72% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2014

Balance Sheet
Liabilities / Assets79th percentile

Assets

Up

$3,282,151

Up $1,051,970 (+47%) from 2013

Net Assets

Up

$1,913,895

Up $172,437 (+9.9%) from 2013

Liabilities

Up

$1,368,256

Up $879,533 (+180%) from 2013

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin39th percentile

Revenue

$3,302,536

No earlier filing loaded for comparison.

Expenses

Up

$3,165,278

Up $1,017,934 (+47%) from 2013

Net Income

$137,258

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $2,613,728Liabilities 2011: $1,265,206Net Assets 2011: $1,348,5222011Assets 2012: $2,926,706Liabilities 2012: $904,358Net Assets 2012: $2,022,3482012Assets 2013: $2,230,181Liabilities 2013: $488,723Net Assets 2013: $1,741,4582013Assets 2014: $3,282,151Liabilities 2014: $1,368,256Net Assets 2014: $1,913,8952014Assets 2015: $3,418,875Liabilities 2015: $1,258,878Net Assets 2015: $2,159,9972015Assets 2016: $3,162,762Liabilities 2016: $936,756Net Assets 2016: $2,226,0062016Assets 2017: $3,074,588Liabilities 2017: $466,427Net Assets 2017: $2,608,1612017Assets 2018: $3,716,323Liabilities 2018: $811,227Net Assets 2018: $2,905,0962018Assets 2019: $4,347,464Liabilities 2019: $737,016Net Assets 2019: $3,610,4482019Assets 2020: $5,358,201Liabilities 2020: $784,288Net Assets 2020: $4,573,9132020Assets 2021: $8,414,669Liabilities 2021: $916,524Net Assets 2021: $7,498,1452021Assets 2022: $7,863,202Liabilities 2022: $1,105,775Net Assets 2022: $6,757,4272022Assets 2023: $7,777,249Liabilities 2023: $1,404,498Net Assets 2023: $6,372,7512023Assets 2024: $8,687,169Liabilities 2024: $1,133,772Net Assets 2024: $7,553,3972024

Highlighted filing

2014

Assets$3,282,151
Liabilities$1,368,256
Net Assets$1,913,895
Open 2014 Filing

Operations Trend

Revenue Growth72nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,380,040Expenses 2011: $1,654,149Net Income 2011: -$274,1092011Revenue 2012: $2,409,645Expenses 2012: $1,723,339Net Income 2012: $686,3062012Expenses 2013: $2,147,3442013Revenue 2014: $3,302,536Expenses 2014: $3,165,278Net Income 2014: $137,2582014Revenue 2015: $2,720,423Expenses 2015: $2,474,850Net Income 2015: $245,5732015Revenue 2016: $3,223,821Expenses 2016: $3,152,221Net Income 2016: $71,6002016Revenue 2017: $2,704,782Expenses 2017: $2,357,223Net Income 2017: $347,5592017Revenue 2018: $2,838,978Expenses 2018: $2,564,520Net Income 2018: $274,4582018Revenue 2019: $3,115,437Expenses 2019: $2,394,117Net Income 2019: $721,3202019Revenue 2020: $3,522,143Expenses 2020: $2,632,741Net Income 2020: $889,4022020Revenue 2021: $6,342,039Expenses 2021: $3,488,363Net Income 2021: $2,853,6762021Revenue 2022: $3,806,911Expenses 2022: $3,461,407Net Income 2022: $345,5042022Revenue 2023: $3,308,947Expenses 2023: $4,256,576Net Income 2023: -$947,6292023Revenue 2024: $5,127,686Expenses 2024: $4,845,918Net Income 2024: $281,7682024

Highlighted filing

2014

Revenue$3,302,536
Expenses$3,165,278
Net Income$137,258
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2013 to Jun 30, 2014
Signed
Jan 16, 2015
Return Version
2013v4.0
Gross Receipts
$3,319,294
Mission and Program Overview

Mission

Curepsp is a nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during middle age. Since it was founded in 1990, cure psp has provided signficant support for scientists, patients and families, and healthcare professionals. Because of its focus on tau protein-related diseases like progressive supranuclear palsy (psp), curepsp occupies a central position in current neurodegeneration research through its funding of talented early career investigators and its abiility to recruit for and market clincal trials in psp now being undertaken by major pharmaceutical manufacturers.

Increase awareness of progressive supranuclear palsy, corticobasal degeneration, and other atypical parkinsonian disorders; fund research toward treatment, cure and prevention; educate healthcare prof; and provide support, info and hope for affected persons and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,798,118$2,437,432▲ $639,314
Investments in Publicly Traded Securities$351,244$383,411▲ $32,167
Pledges and Grants Receivable$14,850$310,485▲ $295,635
Accounts Receivable$6,409$83,432▲ $77,023
Prepaid Expenses and Deferred Charges$26,636$38,557▲ $11,921
Land, Buildings, and Equipment, Net$22,169$23,453▲ $1,284
Cash and Non-Interest-Bearing Accounts$6,772$1,398▼ $5,374
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$2,230,181$3,282,151▲ $1,051,970
Other Assets Total$3,983$3,983→ $0
Liabilities
Grants Payable$412,320$1,276,394▲ $864,074
Accounts Payable and Accrued Expenses$76,403$91,862▲ $15,459
Total Liabilities$488,723$1,368,256▲ $879,533
Net Assets / Fund Balance
Unrestricted Net Assets$795,012$1,220,901▲ $425,889
Permanently Rstr Net Assets$351,169$383,411▲ $32,242
Temporarily Rstr Net Assets$595,277$309,583▼ $285,694
Total Net Assets Fund Balance$1,741,458$1,913,895▲ $172,437
Total Liabilities and Net Assets / Fund Balance$2,230,181$3,282,151▲ $1,051,970

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$23,453$210,911$234,364

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2013$351,169-▲ $35,179-$383,411
2012$325,369-▲ $29,537-$351,169
2011$341,164-▼ $12,480-$325,369
2010$285,520-▲ $55,644-$341,164
2009-$29,241--$292,058
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Richard ZynePresident & CEOFT$119,498$119,498

Board Members and Trustees

NameTitle
John BurhoeChairman
Everett CookVice President
Adam MurphyDirector
Amy BranchDirector
Brendan DixonDirector
Burton BenjaminDirector
Dan JohnsonDirector
Heather CianciDirector
Ileen WatsonDirector
Jeffrey FriedmanDirector
Jim McclellanDirector
John PorterDirector
Justin SheaDirector
Lawrence GolbeDirector
Stephen GoldmanDirector
Yvette BordelonDirector
William McfarlandSecretary
George JankiewiczTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,173,974
Program Service Revenue
$0
Investment Income
$10,945
Other Revenue
$117,617
All Other Contributions
$3,115,827
Change in Net Assets
$137,258

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,302,536
Revenue Not Reported on Form 990
$35,179
Total Revenue per Audited Statements
$3,337,715
Total Revenue per Form 990
$3,302,536
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,996,786
Salaries, Compensation, and Employee Benefits$662,807
Other Expenses$505,685
Total Fundraising Expense$257,593
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,633,000--$1,633,000
Other Salaries and Wages$307,521$57,846$80,224$445,591
Foreign Grants$363,786--$363,786
Current Officers, Directors, Trustees, and Key Employees$82,471$15,513$21,514$119,498
All Other Expenses$68,646$6,012$11,562$86,220
Conferences and Meetings$67,148-$15$67,163
Occupancy$53,683$3,355$10,066$67,104
Payroll Taxes$32,332$6,188$8,564$47,084
Other Employee Benefits$27,935$5,346$7,405$40,686
Information Technology$22,177$755$7,678$30,610
Fees for Services Accounting-$21,972-$21,972
Other Expenses$17,718$183$549$18,450
Advertising$16,004--$16,004
Pension Plan Contributions$6,830$1,307$1,811$9,948
Insurance-$7,444-$7,444
Depreciation Depletion$4,606$514$568$5,688
Office Expenses$4,315$246$739$5,300
Fees for Services Legal$2,310$145$433$2,888
Total Functional Expenses$2,759,543$148,142$257,593$3,165,278

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,165,278
Total Expenses per Audited Statements$3,165,278
Total Expenses per Form 990$3,165,278
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
23-1352685--Biomarkers in Neurodegenerative$600,000
95-6006144--Cbd Research$267,000
13-5598093--Investigator Initiated Research$100,000
95-6006144--Investigator Initiated Research$100,000
94-6036493--Investigator Initiated Research$100,000
94-6036493--Transgenic Rats Mutant Human Tau$100,000
23-1352685--Gene Analysis Follow Up and Replica$100,000
59-3102112--Investigator Initiated Research$100,000
04-2312909--Investigator Initiated Research$75,000
59-3337028--Brain Bank$66,000
41-6011702--Msa Research$25,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$134,375
Fundraising Direct Expenses$16,758
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 2$14,529$9,529-$9,529
Event 1$25,269$5,269$4,143$1,126
Total Events$102,475$44,328$13,986$30,342
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-CPAAccounting and ConsultingNo$31,000

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company

“Organization contracted cpa to serve as outsource cfo”

Form 990, Part VI, Line 11B: Form 990 Review Process

“990 is provided to board for review and comments before filing”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Executive director reviews forms”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Board discussed performance and uses salary data to determine. Periodically the board also obtains an independent compensation study to determine salary levels.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“President-ceo performs annual employee reviews and approves increases within the scope of an annual budget. The organization periodically obtains salary reviews from an outside consultant to verify that the salaries are within a competitive range.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“UPON REQUEST”

Filing and Contact Details

Filer

EIN
52-1704978
Phone
4107857004

Signing Officer

Name
George Jankiewicz
Title
Treasurer
Signed
2015-01-16
Discuss with paid preparer
Yes

Organization Details

Formed
1990
Legal Domicile
Md
Voting Board Members
18
Independent Board Members
18
Employees
9
Volunteers
140

Preparer

Preparer
John R Fiedler
Phone
4107470789
Supplemental Narrative

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“Income is used to support psp research by students”

Raw XML AppendixShowing 400 of 790 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Goals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Goals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders.

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,282,151
Liabilities
$1,368,256
Net assets
$1,913,895
Revenue
$3,302,536
Expenses
$3,165,278
Net income
$137,258
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.69$1.13$7.55$5.13$4.85$0.28
2023Detailed filing. Detailed filing data is available for this year.$7.78$1.40$6.37$3.31$4.26$0.95
2022Detailed filing. Detailed filing data is available for this year.$7.86$1.11$6.76$3.81$3.46$0.35
2021Detailed filing. Detailed filing data is available for this year.$8.41$0.92$7.50$6.34$3.49$2.85
2020Detailed filing. Detailed filing data is available for this year.$5.36$0.78$4.57$3.52$2.63$0.89
2019Detailed filing. Detailed filing data is available for this year.$4.35$0.74$3.61$3.12$2.39$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.72$0.81$2.91$2.84$2.56$0.27
2017Detailed filing. Detailed filing data is available for this year.$3.07$0.47$2.61$2.70$2.36$0.35
2016Detailed filing. Detailed filing data is available for this year.$3.16$0.94$2.23$3.22$3.15$0.07
2015Summary only. Only limited summary data is available for this year.$3.42$1.26$2.16$2.72$2.47$0.25
2014Detailed filing. Detailed filing data is available for this year.$3.28$1.37$1.91$3.30$3.17$0.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.49$1.74$2.15
2012Summary only. Only limited summary data is available for this year.$2.93$0.90$2.02$2.41$1.72$0.69
2011Summary only. Only limited summary data is available for this year.$2.61$1.27$1.35$1.38$1.65$0.27
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2014 filings • 501(c)3 • $1M-$5M nonprofits