Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2024 • EIN 52-1375827

Jul 01, 2023 to Jun 30, 2024 • Filed on Jan 31, 2025

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.25x

Higher debt load relative to assets than 59% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

71st percentile

0.57x

Higher debt load relative to revenue than 71% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

7th percentile

-41%

Higher net margin than 7% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

70th percentile

$253,525

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 5.1% of source-year revenue.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

7th percentile

-13%

Faster asset growth than 7% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

9th percentile

-29%

Faster revenue growth than 9% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets59th percentile

Assets

Down

$11,162,466

Down $1,734,956 (-13%) from 2023

Net Assets

Down

$8,353,197

Down $1,458,039 (-15%) from 2023

Liabilities

Down

$2,809,269

Down $276,917 (-9.0%) from 2023

Revenue And Expenses
Liabilities / Revenue71st percentileNet Margin7th percentile

Revenue

Down

$4,941,722

Down $1,974,176 (-29%) from 2023

Expenses

Up

$6,956,852

Up $495,110 (+7.7%) from 2023

Net Income

Down

-$2,015,130

Down $2,469,286 (-544%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2024: $11,162,466Liabilities 2024: $2,809,269Net Assets 2024: $8,353,1972024Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2024

Assets$11,162,466
Liabilities$2,809,269
Net Assets$8,353,197
Open 2024 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2024: $4,941,722Expenses 2024: $6,956,852Net Income 2024: -$2,015,1302024Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2024

Revenue$4,941,722
Expenses$6,956,852
Net Income-$2,015,130
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Jan 31, 2025
Return Version
2023v6.0
Gross Receipts
$6,367,023
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,588,217$9,255,822▼ $332,395
Cash and Non-Interest-Bearing Accounts$2,257,990$878,390▼ $1,379,600
Pledges and Grants Receivable$270,820$602,650▲ $331,830
Prepaid Expenses and Deferred Charges$348,601$268,330▼ $80,271
Land, Buildings, and Equipment, Net$31,708$48,920▲ $17,212
Total Assets$12,897,422$11,162,466▼ $1,734,956
Other Assets Total$400,086$108,354▼ $291,732
Liabilities
Grants Payable$2,416,673$2,166,680▼ $249,993
Accounts Payable and Accrued Expenses$315,680$377,001▲ $61,321
Deferred Revenue$134,975$174,024▲ $39,049
Other Liabilities$218,858$91,564▼ $127,294
Total Liabilities$3,086,186$2,809,269▼ $276,917
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$7,687,928$6,082,611▼ $1,605,317
Net Assets With Donor Restrictions$2,123,308$2,270,586▲ $147,278
Total Net Assets Fund Balance$9,811,236$8,353,197▼ $1,458,039
Total Liabilities and Net Assets / Fund Balance$12,897,422$11,162,466▼ $1,734,956

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$44,425$148,127$192,552
Other Land Buildings$4,495$82,533$87,028
Leasehold Improvements$0$21,166$21,166

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$2,123,308-▲ $238,530$91,252$2,270,586
2022$1,655,912$395,455▲ $159,524$87,583$2,123,308
2021$1,881,204-▼ $155,307$69,985$1,655,912
2020$1,658,720-▲ $293,349$70,865$1,881,204
2019$1,627,038$31,682▲ $101,713$101,713$1,658,720
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary J WheatleyCEOFT$218,445$35,080$253,525
Michael B HydeVP of FinanceFT$158,406$33,748$192,154
Ashley M PruettVP of Community EngagementFT$127,832$21,887$149,719

Board Members and Trustees

NameTitle
Kevin BoyanowskiChair (interim Treas Jul 23-apr 24)
Carol Feghali-bostwick Ph DVice Chair
Aj NahmadDirector
Christina LocckeDirector
Cos MallozziDirector
Courtney CaliendoDirector
Jane LadasDirector
Linda Bornstein Baum OdDirector
Marcia WalkerDirector
Mark Orozco Iii MbaDirector
Mary BladesDirector
Nancy WaltermireDirector
Tracy PorterDirector
Zeba HyderDirector
J Michael Levengood EsqSecretary
Blake EmbreeTREASURER (SINCE APR '24)

Highest Paid Contractors

ContractorServicesLocationCompensation
Community Counseling Service Co LLCProfessional ServicesPO BOX 824885, Philadelphia, PA 19182-4885$106,791
Revenue and Support

Revenue Composition

Contributions and Grants
$3,912,611
Program Service Revenue
$0
Investment Income
$970,638
Other Revenue
$58,473
All Other Contributions
$3,124,240
Change in Net Assets
$-2,015,130

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,885,870
Revenue Not Reported on Financial Statements
$55,852
Revenue Not Reported on Form 990
$557,091
Total Revenue per Audited Statements
$5,442,961
Total Revenue per Form 990
$4,941,722
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,844,993
Other Expenses$2,658,330
Grants and Similar Amounts Paid$1,453,529
Total Fundraising Expense$1,016,674
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,358,744$368,142$155,150$1,882,036
Grants to Domestic Orgs$1,241,529--$1,241,529
Conferences and Meetings$238,108$88,706$256,913$583,727
Fees for Services Other$364,147$26,916$107,690$498,753
Current Officers, Directors, Trustees, and Key Employees$152,542$265,400$26,300$444,242
Information Technology$262,168$87,389$87,389$436,946
Other Employee Benefits$206,394$50,648$24,356$281,398
Travel$166,566$31,602$31,602$229,770
Office Expenses$52,528$16,696$149,503$218,727
Occupancy$118,422$37,471$55,977$211,870
Foreign Grants$200,000--$200,000
Payroll Taxes$131,803$52,122$15,776$199,701
Insurance$47,502$15,834$15,834$79,170
Fees for Service Investment Mgmnt Fees-$55,852-$55,852
Fees for Services Accounting-$45,500-$45,500
Pension Plan Contributions$28,213$6,231$3,172$37,616
Fees for Services Legal-$35,274-$35,274
Depreciation Depletion$14,144$4,888$4,888$23,920
Other Expenses$6,932$3,466$12,042$22,440
Advertising$8,254$2,750$2,750$13,754
Grants to Domestic Individuals$12,000--$12,000
Total Functional Expenses$4,711,440$1,228,738$1,016,674$6,956,852

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,956,852
Expenses per Audited Statements$6,901,000
Total Expenses per Audited Statements$6,901,000
Expenses Not Reported on Financial Statements$55,852
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Case Western Reserve UniversityCleveland, OH501(c)3Research$200,000
Kao Autoimmunity Institute Cedars-sinai Medical CenterLos Angeles, CA501(c)3Research$200,000
The Regents of the University of MichiganPittsburgh, PA501(c)3Research$200,000
The Regents of the University of MichiganPittsburgh, PA501(c)3Research$200,000
The University of Texas at El PasoEl Paso, TX501(c)3Research$200,000
Virginia Commonwealth UniversityRichmond, VA501(c)3Research$200,000

International Summary

Offices
0
Employees
0
Spending
$200,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesGrant AwardResearch00$200,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$238,586
Fundraising Gross Income$238,586
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Sf New England Golf Tourny$165,234$59,618$59,618$0
Coconut Creek Fl-stepping Out Walk$65,090$7,550$7,550$0
Total Events$1,026,957$238,586$238,586$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$91,564
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“All members of the board of directors submit annual disclosure statements, which are then reviewed by the committee on corporate governance and nominations and filed with legal counsel. Any member who gives notice of potential conflict is advised to abstain from participating in any item of business related to that conflict(s) which may come before the board.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
National Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE 105, DANVERS, MA 01923

Signing Officer

Name
Mary J Wheatley Iom Cae
Title
Chief Executive Officer
Phone
8007224673
Signed
2025-01-31
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary J Wheatley
Formed
1993
Legal Domicile
Il
Voting Board Members
16
Independent Board Members
16
Employees
35
Volunteers
225

Preparer

Firm
Baker Tilly Advisory Group Lp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Loss on disposal of property & equipment -522.”

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support scleroderma research .”

PART X, LINE 2:

“The organization is a nonprofit organization as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2024, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2024. The organization does not expect any material change in uncertain tax benefits within the next 12 months.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Loss on disposal of property & equipment -522.”

Raw XML AppendixShowing 400 of 797 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
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IRS990/Desc0A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. RESEARCH: IN FY 2024, THE FOUNDATION MADE A COMMITMENT OF $1.4 MILLION TO FUND RESEARCH. THIS FUNDING AIMS TO STIMULATE AND SUPPORT INVESTIGATIONS INTO BETTER UNDERSTANDING THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVERMULTIPLE YEARS. IN FY 2024, FOUR AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND THREE AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIRAREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.THE PEER-REVIEW RESEARCH COMMITTEE IS COMPOSED OF HIGHLY RESPECTED SCIENTIFIC EXPERTS WHO REVIEW, CRITIQUE, AND RANK ALL APPLICATIONS BASED ON THE NATIONAL INSTITUTES OF HEALTH'S RANKING SYSTEM. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE FUNDED. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL OF FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS.
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IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1617580
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1733748
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1821887
IRS990/Form990PartVIISectionAGrp/PersonNm0COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm1COURTNEY CALIENDO
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTINA LOCCKE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4TRACY PORTER
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO III MBA
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BORNSTEIN BAUM OD
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8ZEBA HYDER
IRS990/Form990PartVIISectionAGrp/PersonNm9NANCY WALTERMIRE
IRS990/Form990PartVIISectionAGrp/PersonNm10AJ NAHMAD
IRS990/Form990PartVIISectionAGrp/PersonNm11JANE LADAS
IRS990/Form990PartVIISectionAGrp/PersonNm12KEVIN BOYANOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm13CAROL FEGHALI-BOSTWICK PH D
IRS990/Form990PartVIISectionAGrp/PersonNm14J MICHAEL LEVENGOOD ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm15BLAKE EMBREE
IRS990/Form990PartVIISectionAGrp/PersonNm16MARY J WHEATLEY
IRS990/Form990PartVIISectionAGrp/PersonNm17MICHAEL B HYDE
IRS990/Form990PartVIISectionAGrp/PersonNm18ASHLEY M PRUETT
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16235945
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17158406
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18127832
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12CHAIR (INTERIM TREAS JUL 23-APR 24)
IRS990/Form990PartVIISectionAGrp/TitleTxt13VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt14SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt15TREASURER (SINCE APR '24)
IRS990/Form990PartVIISectionAGrp/TitleTxt16CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt17VP OF FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP OF COMMUNITY ENGAGEMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0788371
IRS990/FundraisingDirectExpensesAmt0238586
IRS990/FundraisingGrossIncomeAmt0238586
IRS990/GainOrLossGrp/SecuritiesAmt0730320
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantAmt01453529
IRS990/GrantsPayableGrp/BOYAmt02416673
IRS990/GrantsPayableGrp/EOYAmt02166680
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt012000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt012000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01241529
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01241529
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01917035
IRS990/GrossReceiptsAmt06367023
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt087389
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt087389
IRS990/InformationTechnologyGrp/ProgramServicesAmt0262168
IRS990/InformationTechnologyGrp/TotalAmt0436946
IRS990/InsuranceGrp/FundraisingAmt015834
IRS990/InsuranceGrp/ManagementAndGeneralAmt015834
IRS990/InsuranceGrp/ProgramServicesAmt047502
IRS990/InsuranceGrp/TotalAmt079170
IRS990/InvestmentIncomeGrp/ExclusionAmt0240318
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0240318
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt09588217
IRS990/InvestmentsPubTradedSecGrp/EOYAmt09255822
IRS990/IRPDocumentCnt015
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0251826
IRS990/LandBldgEquipBasisNetGrp/BOYAmt031708
IRS990/LandBldgEquipBasisNetGrp/EOYAmt048920
IRS990/LandBldgEquipCostOrOtherBssAmt0300746
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01186715
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt09811236
IRS990/NetAssetsOrFundBalancesEOYAmt08353197
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0730320
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0730320
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0557613
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt07687928
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt06082611
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt055977
IRS990/OccupancyGrp/ManagementAndGeneralAmt037471
IRS990/OccupancyGrp/ProgramServicesAmt0118422
IRS990/OccupancyGrp/TotalAmt0211870
IRS990/OfficeExpensesGrp/FundraisingAmt0149503
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt016696
IRS990/OfficeExpensesGrp/ProgramServicesAmt052528
IRS990/OfficeExpensesGrp/TotalAmt0218727
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0400086
IRS990/OtherAssetsTotalGrp/EOYAmt0108354
IRS990/OtherChangesInNetAssetsAmt0-522
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt024356
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt050648
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0206394
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0281398
IRS990/OtherExpensesGrp/Desc0FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc1OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt067332
IRS990/OtherExpensesGrp/FundraisingAmt112042
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt033851
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13466
IRS990/OtherExpensesGrp/ProgramServicesAmt0101444
IRS990/OtherExpensesGrp/ProgramServicesAmt16932
IRS990/OtherExpensesGrp/TotalAmt0202627
IRS990/OtherExpensesGrp/TotalAmt122440
IRS990/OtherLiabilitiesGrp/BOYAmt0218858
IRS990/OtherLiabilitiesGrp/EOYAmt091564
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
IRS990/OtherRevenueMiscGrp/ExclusionAmt058473
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt058473
IRS990/OtherRevenueTotalAmt058473
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0155150
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0368142
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01358744
IRS990/OtherSalariesAndWagesGrp/TotalAmt01882036
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt015776
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt052122
IRS990/PayrollTaxesGrp/ProgramServicesAmt0131803
IRS990/PayrollTaxesGrp/TotalAmt0199701
IRS990/PensionPlanContributionsGrp/FundraisingAmt03172
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt06231
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt028213
IRS990/PensionPlanContributionsGrp/TotalAmt037616
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0270820
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0602650
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0348601
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0268330
IRS990/PrincipalOfficerNm0MARY J WHEATLEY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCEATTRACTS MORE THAN 500 PARTICIPANTS ANNUALLY.SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02782391
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt06057608
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01812000
IRS990/PYInvestmentIncomeAmt0476604
IRS990/PYOtherExpensesAmt01866701
IRS990/PYOtherRevenueAmt0381686
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0454156
IRS990/PYSalariesCompEmpBnftPaidAmt02783041
IRS990/PYTotalExpensesAmt06461742
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt06915898
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-2015130
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00

Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,162,466
Liabilities
$2,809,269
Net assets
$8,353,197
Revenue
$4,941,722
Expenses
$6,956,852
Net income
-$2,015,130
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2024Detailed filing. Detailed filing data is available for this year.$11.2$2.81$8.35$4.94$6.96$2.02
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80