Civic Intelligence

National Scleroderma Foundation

990 • Fiscal year 2012 • EIN 52-1375827

Jul 01, 2011 to Jun 30, 2012 • Filed on Feb 07, 2013

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 10501923
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

36th percentile

0.13x

Higher debt load relative to assets than 36% of similar nonprofits.

2012 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2012

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2012

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2012

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2012

Asset Growth

21st percentile

-3.9%

Faster asset growth than 21% of similar nonprofits.

2012 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2011 to 2012

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets36th percentile

Assets

Down

$10,615,606

Down $430,324 (-3.9%) from 2011

Net Assets

Down

$9,182,832

Down $303,067 (-3.2%) from 2011

Liabilities

Down

$1,432,774

Down $127,257 (-8.2%) from 2011

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$4,446,158

Down $965,683 (-18%) from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2012

Assets$10,615,606
Liabilities$1,432,774
Net Assets$9,182,832
Open 2012 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2012

Revenue-
Expenses$4,446,158
Net Income-
Open 2012 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2011 to Jun 30, 2012
Signed
Feb 7, 2013
Return Version
2011v1.2
Gross Receipts
$5,639,924
Mission and Program Overview

Mission

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Major Activities

Activity 2
Support and advocacy:a.the scleroderma provides informational and emotional support to those whose lives have been impacted by this disease through a variety of services including:i.a nation-wide network of active support groupsii.a toll-free helpline where patients can connect with trained staff to assist with questionsiii.referrals to physicians and other medical professionals who are expert in scleroderma-related issuesiv.online forums for peer-to-peer support and information exchangesv.weekly and quarterly publications focused on issues of concern and importance to the scleroderma communityb.advocacy:i.the scleroderma foundation participates in numerous national coalitions focused on enhancing understanding and support for autoimmune disorders, womens health issues and rare diseasesii.the scleroderma foundation engages with medical experts, local and national leaders, and other thought leaders to enhance awareness and understanding about scleroderma and issues of concern to the scleroderma patient community.
Filing and Contact Details

Filer

EIN
52-1375827
Raw XML AppendixShowing 400 of 757 raw XML fields

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IRS990/Activity2/Description0SUPPORT AND ADVOCACY:A.THE SCLERODERMA PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I.A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII.A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII.REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERT IN SCLERODERMA-RELATED ISSUESIV.ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV.WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITYB.ADVOCACY:I.THE SCLERODERMA FOUNDATION PARTICIPATES IN NUMEROUS NATIONAL COALITIONS FOCUSED ON ENHANCING UNDERSTANDING AND SUPPORT FOR AUTOIMMUNE DISORDERS, WOMENS HEALTH ISSUES AND RARE DISEASESII.THE SCLERODERMA FOUNDATION ENGAGES WITH MEDICAL EXPERTS, LOCAL AND NATIONAL LEADERS, AND OTHER THOUGHT LEADERS TO ENHANCE AWARENESS AND UNDERSTANDING ABOUT SCLERODERMA AND ISSUES OF CONCERN TO THE SCLERODERMA PATIENT COMMUNITY.
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IRS990/Description0RESEARCH AND EDUCATION:1. RESEARCH: A. THE SCLERODERMA FOUNDATION PROVIDES FUNDS FOR CLINICAL AND BENCH RESEARCH FOCUSED ON SCLERODERMA/SYSTEMIC SCLEROSIS AND COMORBID CONDITIONS THROUGH A PEER REVIEW RESEARCH PROGRAM MODELED ON PROTOCOLS SET FORTH BY THE NATIONAL INSTITUTES OF HEALTH. B. THE SCLERODERMA FOUNDATION ALSO PROVIDES MENTORING OPPORTUNITIES FOR YOUNG INVESTIGATORS ENTERING THE FIELD OF SCLERODERMA RESEARCH 2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDCIAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
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IRS990/MissionDescription0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
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IRS990/PayrollTaxes/ProgramServices031752
IRS990/PayrollTaxes/Total059488
IRS990/PensionPlanContributions/Fundraising0363
IRS990/PensionPlanContributions/ManagementAndGeneral02824
IRS990/PensionPlanContributions/ProgramServices04488
IRS990/PensionPlanContributions/Total07675
IRS990/PermanentlyRestrictedNetAssets/BOY01542375
IRS990/PermanentlyRestrictedNetAssets/EOY01542375
IRS990/PledgesAndGrantsReceivable/BOY029288
IRS990/PledgesAndGrantsReceivable/EOY070000
IRS990/PoliciesReferenceChapters01
IRS990/PoliticalActivities00
IRS990/PremiumsPaid00
IRS990/PrepaidExpensesDeferredCharges/BOY088805
IRS990/PrepaidExpensesDeferredCharges/EOY0312877
IRS990/PriorExcessBenefitTransaction00
IRS990/ProfessionalFundraising00
IRS990/ProgramServiceRevenue/BusinessCode0611710
IRS990/ProgramServiceRevenueCY070765
IRS990/ProgramServiceRevenue/Description0REGISTRATION FEES
IRS990/ProgramServiceRevenuePriorYear012262
IRS990/ProgramServiceRevenue/RelatedOrExemptFunctionIncome070765
IRS990/ProgramServiceRevenue/TotalRevenueColumn070765
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions00
IRS990/ReconcilationOtherChanges0-289925
IRS990/ReconcilationRevenueExpenses0-13142
IRS990/RegularMonitoringEnforcement01
IRS990/RelatedEntity00
IRS990/RelatedOrgControlledEntity00
IRS990/ReportFin48Footnote01
IRS990/ReportInvestOthSecurities00
IRS990/ReportLandBldgEquip01
IRS990/ReportOtherAssets00
IRS990/ReportOtherLiabilities01
IRS990/ReportProgRelInvest00
IRS990/RevenuesLessExpensesCY0-13142
IRS990/RevenuesLessExpensesPriorYear0280832
IRS990/SalariesEtcCurrentYear0700054
IRS990/SalariesEtcPriorYear0714603
IRS990/SavingsAndTempCashInvestments/BOY01722970
IRS990/SavingsAndTempCashInvestments/EOY0764052
IRS990ScheduleA/AmountsSubstContributorsTotal03289274
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear04191501
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year05488506
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus2Years04284391
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus3Years05790608
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus4Years04225936
IRS990ScheduleA/GiftsGrantsContribReceived170/Total023980942
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear0166728
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year0109160
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus2Years0204709
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus3Years0210074
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus4Years0124868
IRS990ScheduleA/GrossInvestmentIncome170/Total0815539
IRS990ScheduleA/GrossReceiptsFromAdmissionsEtc0129062
IRS990ScheduleA/OtherIncome170/CurrentTaxYear0115
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus1Year0524
IRS990ScheduleA/OtherIncome170/Total0639
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IRS990ScheduleA/PublicSupportPertcentPriorYear00.88610
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IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year05488506
IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years04284391
IRS990ScheduleA/Total170/CurrentTaxYearMinus3Years05790608
IRS990ScheduleA/Total170/CurrentTaxYearMinus4Years04225936
IRS990ScheduleA/Total170/Total023980942
IRS990ScheduleA/TotalSupport024797120
IRS990ScheduleB/ContributorInfo/AggregateContributions0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City0RESTRICTED
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IRS990/ScheduleBRequired01
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IRS990ScheduleD/CurrentYear/EndOfYearBalance01819237
IRS990ScheduleD/CurrentYear/InvestmentEarningsOrLosses04444
IRS990ScheduleD/CurrentYearMinus1Year/BeginningOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus1Year/EndOfYearBalance01814793
IRS990ScheduleD/CurrentYearMinus1Year/InvestmentEarningsOrLosses0272418
IRS990ScheduleD/CurrentYearMinus2Years/BeginningOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus2Years/EndOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus3Years/BeginningOfYearBalance0437042
IRS990ScheduleD/CurrentYearMinus3Years/Contributions01105343
IRS990ScheduleD/CurrentYearMinus3Years/EndOfYearBalance01453593
IRS990ScheduleD/CurrentYearMinus3Years/InvestmentEarningsOrLosses0-88792
IRS990ScheduleD/DonatedServicesUseOfFacilities01040
IRS990ScheduleD/DonatedSrvcAndUseOfFacilities01040
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IRS990ScheduleD/Equipment/BookValue024625
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Document Assets

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Filings

Displayed year

2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$10,615,606
Liabilities
$1,432,774
Net assets
$9,182,832
Revenue
-
Expenses
$4,446,158
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80