Civic Intelligence

National Scleroderma Foundation

990 • Fiscal year 2013 • EIN 52-1375827

Jul 01, 2012 to Jun 30, 2013 • Filed on Nov 11, 2013

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 10501923
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.14x

Higher debt load relative to assets than 38% of similar nonprofits.

2013 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2013

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2013

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2013

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2013

Asset Growth

70th percentile

9.6%

Faster asset growth than 70% of similar nonprofits.

2013 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets38th percentile

Assets

Up

$11,639,084

Up $1,023,478 (+9.6%) from 2012

Net Assets

Up

$10,017,425

Up $834,593 (+9.1%) from 2012

Liabilities

Up

$1,621,659

Up $188,885 (+13%) from 2012

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$4,069,723

Down $376,435 (-8.5%) from 2012

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth70th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2013

Assets$11,639,084
Liabilities$1,621,659
Net Assets$10,017,425
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2013

Revenue-
Expenses$4,069,723
Net Income-
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2012 to Jun 30, 2013
Signed
Nov 11, 2013
Return Version
2012v2.1
Gross Receipts
$8,993,673
Mission and Program Overview

Mission

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Major Activities

Activity 2
Support and advocacy:a.the scleroderma provides informational and emotional support to those whose lives have been impacted by this disease through a variety of services including:i.a nation-wide network of active support groupsii.a toll-free helpline where patients can connect with trained staff to assist with questionsiii.referrals to physicians and other medical professionals who are expert in scleroderma-related issuesiv.online forums for peer-to-peer support and information exchangesv.weekly and quarterly publications focused on issues of concern and importance to the scleroderma communityb.advocacy:i.the scleroderma foundation participates in numerous national coalitions focused on enhancing understanding and support for autoimmune disorders, womens health issues and rare diseasesii.the scleroderma foundation engages with medical experts, local and national leaders, and other thought leaders to enhance awareness and understanding about scleroderma and issues of concern to the scleroderma patient community.
Filing and Contact Details

Filer

EIN
52-1375827
Raw XML AppendixShowing 400 of 731 raw XML fields

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IRS990/Activity2/Description0SUPPORT AND ADVOCACY:A.THE SCLERODERMA PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I.A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII.A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII.REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERT IN SCLERODERMA-RELATED ISSUESIV.ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV.WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITYB.ADVOCACY:I.THE SCLERODERMA FOUNDATION PARTICIPATES IN NUMEROUS NATIONAL COALITIONS FOCUSED ON ENHANCING UNDERSTANDING AND SUPPORT FOR AUTOIMMUNE DISORDERS, WOMENS HEALTH ISSUES AND RARE DISEASESII.THE SCLERODERMA FOUNDATION ENGAGES WITH MEDICAL EXPERTS, LOCAL AND NATIONAL LEADERS, AND OTHER THOUGHT LEADERS TO ENHANCE AWARENESS AND UNDERSTANDING ABOUT SCLERODERMA AND ISSUES OF CONCERN TO THE SCLERODERMA PATIENT COMMUNITY.
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IRS990/Description0RESEARCH AND EDUCATION:1. RESEARCH: A. THE SCLERODERMA FOUNDATION PROVIDES FUNDS FOR CLINICAL AND BENCH RESEARCH FOCUSED ON SCLERODERMA/SYSTEMIC SCLEROSIS AND COMORBID CONDITIONS THROUGH A PEER REVIEW RESEARCH PROGRAM MODELED ON PROTOCOLS SET FORTH BY THE NATIONAL INSTITUTES OF HEALTH. B. THE SCLERODERMA FOUNDATION ALSO PROVIDES MENTORING OPPORTUNITIES FOR YOUNG INVESTIGATORS ENTERING THE FIELD OF SCLERODERMA RESEARCH 2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDCIAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
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IRS990/MissionDescription0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
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IRS990/PledgesAndGrantsReceivable/EOY070000
IRS990/PoliciesReferenceChapters01
IRS990/PoliticalActivities00
IRS990/PremiumsPaid00
IRS990/PrepaidExpensesDeferredCharges/BOY0312877
IRS990/PrepaidExpensesDeferredCharges/EOY0118529
IRS990/PriorExcessBenefitTransaction00
IRS990/ProfessionalFundraising00
IRS990/ProgramServiceRevenue/BusinessCode0611710
IRS990/ProgramServiceRevenueCY073399
IRS990/ProgramServiceRevenue/Description0REGISTRATION FEES
IRS990/ProgramServiceRevenuePriorYear070765
IRS990/ProgramServiceRevenue/RelatedOrExemptFunctionIncome073399
IRS990/ProgramServiceRevenue/TotalRevenueColumn073399
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions00
IRS990/ReconcilationOtherChanges00
IRS990/ReconcilationRevenueExpenses0480622
IRS990/ReconciliationUnrealizedInvest0353971
IRS990/RegularMonitoringEnforcement01
IRS990/RelatedEntity00
IRS990/RelatedOrgControlledEntity00
IRS990/ReportFin48Footnote01
IRS990/ReportInvestOthSecurities00
IRS990/ReportLandBldgEquip01
IRS990/ReportOtherAssets00
IRS990/ReportOtherLiabilities01
IRS990/ReportProgRelInvest00
IRS990/RevenuesLessExpensesCY0480622
IRS990/RevenuesLessExpensesPriorYear0-13142
IRS990/SalariesEtcCurrentYear0963181
IRS990/SalariesEtcPriorYear0700054
IRS990/SavingsAndTempCashInvestments/BOY0764052
IRS990/SavingsAndTempCashInvestments/EOY0961313
IRS990ScheduleA/AmountsSubstContributorsTotal03655130
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYear04202914
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus1Year04191501
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus2Years05488506
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus3Years04284391
IRS990ScheduleA/GiftsGrantsContribReceived170/CurrentTaxYearMinus4Years05790608
IRS990ScheduleA/GiftsGrantsContribReceived170/Total023957920
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYear0168470
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus1Year0166728
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus2Years0109160
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus3Years0204709
IRS990ScheduleA/GrossInvestmentIncome170/CurrentTaxYearMinus4Years0210074
IRS990ScheduleA/GrossInvestmentIncome170/Total0859141
IRS990ScheduleA/GrossReceiptsFromAdmissionsEtc0202461
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus1Year0115
IRS990ScheduleA/OtherIncome170/CurrentTaxYearMinus2Years0524
IRS990ScheduleA/OtherIncome170/Total0639
IRS990ScheduleA/PubliclySupportedOrg170b1Avi0X
IRS990ScheduleA/PublicSupportPertcentage17000.81810
IRS990ScheduleA/PublicSupportPertcentPriorYear00.83440
IRS990ScheduleA/PublicSupportTotal170020302790
IRS990ScheduleA/ThirtyThreePercntTestsCY1700X
IRS990ScheduleA/Total170/CurrentTaxYear04202914
IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year04191501
IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years05488506
IRS990ScheduleA/Total170/CurrentTaxYearMinus3Years04284391
IRS990ScheduleA/Total170/CurrentTaxYearMinus4Years05790608
IRS990ScheduleA/Total170/Total023957920
IRS990ScheduleA/TotalSupport024817700
IRS990ScheduleB/ContributorInfo/AggregateContributions0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNumber0RESTRICTED
IRS990/ScheduleBRequired01
IRS990ScheduleD/CurrentYear/BeginningOfYearBalance01819237
IRS990ScheduleD/CurrentYear/EndOfYearBalance01885727
IRS990ScheduleD/CurrentYear/InvestmentEarningsOrLosses066490
IRS990ScheduleD/CurrentYearMinus1Year/BeginningOfYearBalance01814793
IRS990ScheduleD/CurrentYearMinus1Year/EndOfYearBalance01819237
IRS990ScheduleD/CurrentYearMinus1Year/InvestmentEarningsOrLosses04444
IRS990ScheduleD/CurrentYearMinus2Years/BeginningOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus2Years/EndOfYearBalance01814793
IRS990ScheduleD/CurrentYearMinus2Years/InvestmentEarningsOrLosses0272418
IRS990ScheduleD/CurrentYearMinus3Years/BeginningOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus3Years/EndOfYearBalance01542375
IRS990ScheduleD/CurrentYearMinus4Years/BeginningOfYearBalance0437042
IRS990ScheduleD/CurrentYearMinus4Years/Contributions01105343
IRS990ScheduleD/CurrentYearMinus4Years/EndOfYearBalance01453593
IRS990ScheduleD/CurrentYearMinus4Years/InvestmentEarningsOrLosses0-88792
IRS990ScheduleD/DonatedServicesUseOfFacilities02890
IRS990ScheduleD/DonatedSrvcAndUseOfFacilities02890
IRS990ScheduleD/EndowmentsHeldByRelatedOrgs00
IRS990ScheduleD/EndowmentsHeldByUnrelatedOrgs00
IRS990ScheduleD/Equipment/BookValue016835
IRS990ScheduleD/Equipment/Depreciation040815
IRS990ScheduleD/Equipment/OtherCostOrOtherBasis057650
IRS990ScheduleD/ExpensesNotRptdF99002890
IRS990ScheduleD/ExpensesNotRptdOnFinStmt00
IRS990ScheduleD/ExpensesSubtotal04069723
IRS990ScheduleD/FootnoteInPartXIII0X
IRS990ScheduleD/Form990ScheduleDPartXIII/Explanation0THE ENDOWMENT CONSISTS OF A PERMANENTLY RESTRICTED FUND ESTABLISHED IN 2007. THE ENDOWMENT IS TO SUPPORT RESEARCH FOR THE DISEASE SCLERODERMA.
IRS990ScheduleD/Form990ScheduleDPartXIII/Explanation1THE ORGANIZATION IS A NONPROFIT CORPORATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM UNRELATED TRADE OR BUSINESS INCOME. THE ORGANIZATION HAS DETERMINED THAT IT DOES NOT HAVE ANY LIABILITIES ASSOCIATED WITH UNRELATED TRADE OR BUSINESS INCOME AND AS A RESULT, NO PROVISION FOR INCOME TAXES IS PRESENTED IN THESE FINANCIAL STATEMENTS. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENT OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF JUNE 30, 2013. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGES IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT TWELVE MONTHS. AS OF JUNE 30, 2013, THE ORGANIZATION IS NOT CURRENTLY UNDER EXAMINATION BY ANY TAXING AUTHORITIES. THE ORGANIZATION'S U.S. FEDERAL AND MASSACHUSETTS TAX RETURNS ARE GENERALLY OPEN FOR EXAMINATION FOR THREE YEARS FROM THE DATE OF FILING.

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Filings

Displayed year

2013 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$11,639,084
Liabilities
$1,621,659
Net assets
$10,017,425
Revenue
-
Expenses
$4,069,723
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80