Civic Intelligence

Scleroderma Foundation Inc

EIN 52-1375827 • 501(c)3 • Danvers, MA

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Profile

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

55 Ferncroft Road 315Danvers, MA 01923

www.scleroderma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.26x

Higher debt load relative to assets than 59% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Liabilities / Revenue

66th percentile

0.44x

Higher debt load relative to revenue than 66% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Net Margin

29th percentile

-2.3%

Higher net margin than 29% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

14th percentile

-6.6%

Faster asset growth than 14% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2025

Revenue Growth

29th percentile

-2.1%

Faster revenue growth than 29% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2025

Balance Sheet
Liabilities / Assets59th percentile

Assets

Down

$11,259,408

Down $1,638,014 (-13%) from 2023

Liabilities

Down

$2,926,793

Down $159,393 (-5.2%) from 2023

Net Assets

Down

$8,332,615

Down $1,478,621 (-15%) from 2023

Operations
Liabilities / Revenue66th percentileNet Margin29th percentile

Revenue

Down

$6,628,652

Down $287,246 (-4.2%) from 2023

Expenses

Up

$6,783,274

Up $321,532 (+5.0%) from 2023

Net Income

Down

-$154,622

Down $608,778 (-134%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth14th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2025

Assets$11,259,408
Liabilities$2,926,793
Net Assets$8,332,615
Open 2025 Filing

Operations Trend

Revenue Growth29th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2025

Revenue$6,628,652
Expenses$6,783,274
Net Income-$154,622
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$11,259,408
Liabilities
$2,926,793
Net assets
$8,332,615
Revenue
$6,628,652
Expenses
$6,783,274
Net income
-$154,622
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Feb 12, 2026
Return Version
2024v5.5
Gross Receipts
$8,835,153
Mission and Program Overview

Mission

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,255,822$8,454,497▼ $801,325
Pledges and Grants Receivable$602,650$1,686,370▲ $1,083,720
Cash and Non-Interest-Bearing Accounts$878,390$404,938▼ $473,452
Prepaid Expenses and Deferred Charges$268,330$315,284▲ $46,954
Land, Buildings, and Equipment, Net$48,920$73,838▲ $24,918
Total Assets$11,162,466$11,259,408▲ $96,942
Other Assets Total$108,354$324,481▲ $216,127
Liabilities
Grants Payable$2,166,680$1,650,007▼ $516,673
Accounts Payable and Accrued Expenses$377,001$826,364▲ $449,363
Other Liabilities$91,564$297,034▲ $205,470
Deferred Revenue$174,024$153,388▼ $20,636
Total Liabilities$2,809,269$2,926,793▲ $117,524
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,825,611$4,595,071▼ $1,230,540
Net Assets With Donor Restrictions$2,527,586$3,737,544▲ $1,209,958
Total Net Assets Fund Balance$8,353,197$8,332,615▼ $20,582
Total Liabilities and Net Assets / Fund Balance$11,162,466$11,259,408▲ $96,942

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$30,473$173,211$203,684
Other Land Buildings$41,088$85,990$127,078
Leasehold Improvements$2,277$21,329$23,606

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$2,527,586$1,110,000▲ $204,883$104,925$3,737,544
2023$2,180,308$200,000▲ $238,530$91,252$2,527,586
2022$1,655,912$452,455▲ $159,524$87,583$2,180,308
2021$1,881,204-▼ $155,307$69,985$1,655,912
2020$1,658,720-▲ $293,349$70,865$1,881,204
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary J WheatleyCEOFT$234,901$43,102$278,003
Ashley M PruettVP of Community EngagementFT$142,126$27,913$170,039
Michael B HydeVP of FinanceFT$128,063$40,595$168,658
Catherine M AnastasiaSenior Director, Mission DeliveryFT$113,309$15,021$128,330
Elizabeth J MulroySenior Director, Chapter OperationsFT$113,580$3,892$117,472

Board Members and Trustees

NameTitle
Kevin BoyanowskiChair
Carol Feghali-bostwick Ph DVice Chair
Aj NahmadDirector
Christina LocckeDirector
Cos MallozziDirector
Courtney Caliendo EsqDirector
J Michael Levengood EsqDirector
Jane LadasDirector
Linda Bornstein Baum OdDirector
Mark Orozco Iii MbaDirector
Mary BladesDirector
Nancy WaltermireDirector
Peggy CollinsDirector
Scott Ceresnak MdDirector
Tera CarterDirector
Tracy Porter Med SphrDirector
Zeba HyderDirector
Marcia WalkerSecretary
Blake EmbreeTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
1path Managed Services LLCIt Services2300 WINDY RIDGE PKWY SE 685 S, Atlanta, GA 30339$154,829
Revenue and Support

Revenue Composition

Contributions and Grants
$5,597,175
Program Service Revenue
$0
Investment Income
$1,165,141
Other Revenue
$-133,664
All Other Contributions
$4,650,472
Change in Net Assets
$-154,622

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,561,000
Revenue Not Reported on Financial Statements
$67,652
Revenue Not Reported on Form 990
$134,040
Total Revenue per Audited Statements
$6,695,040
Total Revenue per Form 990
$6,628,652
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,255,131
Other Expenses$2,328,155
Total Fundraising Expense$1,297,685
Grants and Similar Amounts Paid$1,199,988
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,505,378$380,079$171,288$2,056,745
Grants to Domestic Orgs$1,199,988--$1,199,988
Current Officers, Directors, Trustees, and Key Employees$186,921$330,662$32,228$549,811
Conferences and Meetings$64,351$18,660$465,860$548,871
Information Technology$248,420$82,807$82,807$414,034
Other Employee Benefits$279,647$74,538$32,747$386,932
Fees for Services Other$173,944$36,663$136,836$347,443
Payroll Taxes$142,027$56,165$17,000$215,192
Travel$117,696$37,510$37,510$192,716
Office Expenses$27,889$9,045$141,192$178,126
Occupancy$101,509$33,284$42,569$177,362
Insurance$50,823$16,941$16,941$84,705
Fees for Service Investment Mgmnt Fees-$67,652-$67,652
Fees for Services Accounting$28,680$9,560$9,560$47,800
Pension Plan Contributions$34,414$8,145$3,892$46,451
Other Expenses$86,701$29,441$32,254$32,254
Depreciation Depletion$17,222$5,741$5,741$28,704
Fees for Services Legal$15,694$5,232$5,232$26,158
Advertising$1,620$540$1,428$3,588
Total Functional Expenses$4,282,924$1,202,665$1,297,685$6,783,274

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,783,274
Expenses per Audited Statements$6,715,622
Total Expenses per Audited Statements$6,715,622
Expenses Not Reported on Financial Statements$67,652
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
John Hopkins UniversityChicago, IL501(c)3Research$199,998
The Regents of the University of MichiganPittsburgh, PA501(c)3Research$199,998
Trustees of Dartmouth CollegeHanover, NH501(c)3Research$199,998
University of WashingtonChicago, IL501(c)3Research$199,998
Yale UniversityNew Haven, CT501(c)3Research$199,998
Yale UniversityNew Haven, CT501(c)3Research$199,998
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$274,356
Fundraising Gross Income$140,692
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Sf New England Golf Tourny$146,724$65,170$6,561$58,609
Rocky Mountain Food Fight$61,785$21,265$24,575$-3,310
Total Events$1,087,395$140,692$274,356$-133,664
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$297,034
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Before it is filed with the irs, the form 990 is reviewed and approved by management. The form 990 is then given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“All members of the board of directors submit annual disclosure statements, which are then reviewed by the committee on corporate governance and nominations and filed with legal counsel. Any member who gives notice of potential conflict is advised to abstain from participating in any item of business related to that conflict(s) which may come before the board.”

Form 990, Part VI, Section B, Line 15

“The executive committee votes and approves the compensation of the chief executive officer (ceo) and informs the board of directors of the results during an executive session. The ceo establishes the compensation for all other employees of the organization. All decisions regarding compensation are documented in writing. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
National Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
55 FERNCROFT ROAD 315, DANVERS, MA 01923

Signing Officer

Name
Mary J Wheatley Iom Cae
Title
Chief Executive Officer
Phone
8007224673
Signed
2026-02-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary J Wheatley
Formed
1993
Legal Domicile
Il
Voting Board Members
19
Independent Board Members
19
Employees
33
Volunteers
275

Preparer

Firm
Baker Tilly Advisory Group Lp
Address
1500 RXR PLAZA WEST TOWER, UNIONDALE, NY 11556
Preparer
Catherine Petercsak
Phone
5167472000
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Return of prior year grant funds given 246,051.”

FORM 990, PART XI, LINE 9:

“The organization received refunds during the fiscal year ending june 30, 2025 in the amount of $246,051 for prior year grant monies that were returned.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support scleroderma research.”

PART X, LINE 2:

“The organization is a nonprofit organization as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2025, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2025. The organization does not expect any material change in uncertain tax benefits within the next 12 months.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Returned grant awards from prior years 246,051.”

Raw XML AppendixShowing 400 of 828 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0377001
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0826364
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
IRS990/AddressChangeInd0X
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IRS990/BooksInCareOfDetail/PersonNm0MICHAEL B HYDE VP OF FINANCE
IRS990/BooksInCareOfDetail/PhoneNum08007224673
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IRS990/BooksInCareOfDetail/USAddress/CityNm0DANVERS
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
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IRS990/ContractorCompensationGrp/ServicesDesc0IT SERVICES
IRS990/ContriRptFundraisingEventAmt0946703
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IRS990/Desc0A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWING MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCE ATTRACTS MORE THAN 400 PARTICIPANTS ANNUALLY AND PROVIDES COMMUNITY SUPPORT, WORLD CLASS EDUCATION, AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS. THE SEMINARS SERVE AS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE.
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