Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2021 • EIN 52-1375827

Jul 01, 2020 to Jun 30, 2021 • Filed on Jan 26, 2022

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

48th percentile

0.16x

Higher debt load relative to assets than 48% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Liabilities / Revenue

69th percentile

0.50x

Higher debt load relative to revenue than 69% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Net Margin

14th percentile

-6.7%

Higher net margin than 14% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Top Officer Pay

41st percentile

$147,177

Higher top officer pay than 41% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2021

Asset Growth

64th percentile

16%

Faster asset growth than 64% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Revenue Growth

46th percentile

9.9%

Faster revenue growth than 46% of similar nonprofits.

2021 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets48th percentile

Assets

Up

$13,492,271

Up $1,880,258 (+16%) from 2020

Net Assets

Up

$11,398,690

Up $1,884,311 (+20%) from 2020

Liabilities

Down

$2,093,581

Down $4,053 (-0.2%) from 2020

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin14th percentile

Revenue

Up

$4,188,631

Up $376,924 (+9.9%) from 2020

Expenses

Down

$4,468,676

Down $543,385 (-11%) from 2020

Net Income

Up

-$280,045

Up $920,309 (+77%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2021

Assets$13,492,271
Liabilities$2,093,581
Net Assets$11,398,690
Open 2021 Filing

Operations Trend

Revenue Growth46th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2021

Revenue$4,188,631
Expenses$4,468,676
Net Income-$280,045
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Jan 26, 2022
Return Version
2020v4.1
Gross Receipts
$10,199,282
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,726,153$10,105,147▲ $1,378,994
Cash and Non-Interest-Bearing Accounts$2,170,807$2,533,564▲ $362,757
Pledges and Grants Receivable$58,410$406,750▲ $348,340
Prepaid Expenses and Deferred Charges$135,016$215,013▲ $79,997
Savings and Temporary Cash Investments$205,356$156,814▼ $48,542
Land, Buildings, and Equipment, Net$28,142$21,456▼ $6,686
Total Assets$11,612,013$13,492,271▲ $1,880,258
Other Assets Total$288,129$53,527▼ $234,602
Liabilities
Grants Payable$1,587,500$1,525,000▼ $62,500
Unsecured Notes Loans Payable$249,962$249,960▼ $2
Accounts Payable and Accrued Expenses$185,509$235,306▲ $49,797
Other Liabilities$74,663$72,264▼ $2,399
Deferred Revenue-$11,051-
Total Liabilities$2,097,634$2,093,581▼ $4,053
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$7,711,504$9,600,665▲ $1,889,161
Net Assets With Donor Restrictions$1,802,875$1,798,025▼ $4,850
Total Net Assets Fund Balance$9,514,379$11,398,690▲ $1,884,311
Total Liabilities and Net Assets / Fund Balance$11,612,013$13,492,271▲ $1,880,258

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$21,456$104,348$125,804
Other Land Buildings$0$78,328$78,328
Leasehold Improvements$0$8,393$8,393

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2020$1,658,720$222,527▲ $293,349$293,349$1,881,247
2019$1,627,038$31,682▲ $101,713$101,713$1,658,720
2018$1,662,877-▲ $115,953$151,792$1,627,038
2017$1,916,225-▲ $65,063$318,411$1,662,877
2016$1,886,371-▲ $114,671$84,817$1,916,225
Compensation and Service Providers
Top Officer Pay41st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael B HydeCOO/CFOFT$119,808$27,369$147,177
Robert J RiggsCEOFT$119,708$14,323$134,031
Kerri ConnollyNat. Director of Programs & Serv.FT$102,480$13,093$115,573

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Christina LocckeDirector
Courtney CaliendoDirector
Cyndy BesselievreDirector
Kevin BoyanowskiDirector
Linda BaumDirector
Marcia WalkerDirector
Mark OrozcoDirector
Mary BladesDirector
Mary Beth TourbinDIRECTOR (UNTIL NOV '20)
Mike LevengoodSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Copley RaffOrganizational Consultants164 BROOK FARM ROAD 164, Boston, MA 02132$181,409
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$175,471
Brogan & PartnersEvent & Education Services800 N OLD WOODWARD AVE SUITE 100, Birmingham, MI 48009$129,167
Revenue and Support

Revenue Composition

Contributions and Grants
$3,976,045
Program Service Revenue
$0
Investment Income
$211,246
Other Revenue
$1,340
All Other Contributions
$3,398,212
Change in Net Assets
$-280,045

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,136,678
Revenue Not Reported on Financial Statements
$51,953
Revenue Not Reported on Form 990
$2,164,356
Total Revenue per Audited Statements
$6,301,034
Total Revenue per Form 990
$4,188,631
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,720,265
Salaries, Compensation, and Employee Benefits$1,531,865
Grants and Similar Amounts Paid$1,216,546
Total Fundraising Expense$226,189
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,066,546--$1,066,546
Other Salaries and Wages$781,338$154,321$87,241$1,022,900
Fees for Services Other$284,768$67,123$29,957$381,848
Payments to Affiliates$366,743--$366,743
Information Technology$177,394$95,321$29,028$301,743
Current Officers, Directors, Trustees, and Key Employees$78,406$206,689$13,518$298,613
Occupancy$123,386$38,178$11,626$173,190
Foreign Grants$150,000--$150,000
Office Expenses$83,210$21,633$17,629$122,472
Other Employee Benefits$76,452$12,534$11,863$100,849
Payroll Taxes$64,453$24,691$7,519$96,663
Insurance$38,358$20,612$6,277$65,247
Fees for Service Investment Mgmnt Fees-$51,953-$51,953
Conferences and Meetings$45,083$1,166$20$46,269
Fees for Services Accounting-$31,238-$31,238
Depreciation Depletion$8,826$3,615$1,103$13,544
Pension Plan Contributions$9,997$1,311$1,532$12,840
Advertising$7,178$2,184-$9,362
Travel$5,562$2,777-$8,339
Other Expenses$2,630$3,555$1,082$2,630
Fees for Services Legal-$12-$12
Total Functional Expenses$3,477,980$764,507$226,189$4,468,676

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,468,676
Expenses per Audited Statements$4,416,723
Total Expenses per Audited Statements$4,416,723
Expenses Not Reported on Financial Statements$51,953
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cleveland Clinic Lerner Research InstituteCleveland, OH501(c)3Research$150,000
Hospital for Special SurgeryNew York, NY501(c)3Research$150,000
The University of Texas Health Science Center at HoustonHouston, TX501(c)3Research$150,000
Trustees of Boston University BumcBoston, MA501(c)3Research$150,000
Tufts UniversityBoston, MA501(c)3Research$150,000
University of California San DiegoLa Jolla, CA501(c)3Research$150,000
University of PittsburghPittsburgh, PA501(c)3Research$150,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$78,598
Fundraising Gross Income$78,598
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Imagine Campaign -rocky Mtn. Chaptr$32,910$16,993$16,993$0
Detroit Stepping Out Walk$17,948$9,268$9,268$0
Total Events$152,217$78,598$78,598$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$72,264
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 4

“The organization changed its name from scleroderma foundation, inc. To national scleroderma foundation, inc. On september 23, 2021.”

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“All members of the board of directors submit annual disclosure statements, which are then reviewed by the committee on corporate governance and nominations and filed with legal counsel. Any member who gives notice of potential conflict is advised to abstain from participating in any item of business related to that conflict(s) which may come before the board.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
National Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Mary J Wheatley Iom Cae
Title
Chief Executive Officer
Phone
8007224673
Signed
2022-01-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary J Wheatley
Formed
1993
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
12
Employees
24
Volunteers
450

Preparer

Firm
Baker Tilly US Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support scleroderma research .”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2021, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2021. The organization does not expect any material change in uncertain tax benefits within the next 12 months.”

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IRS990/Desc0EDUCATION AND SUPPORT:THE NATIONAL SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL PROGRAMS FOR THOSE AFFECTED BY SCLERODERMA, AND THEIR HEALTHCARE PROVIDERS. THESE INCLUDE CHAPTER EDUCATIONAL EVENTS HELD IN PARTNERSHIP WITH LOCAL ACADEMIC CENTERS, AS WELL AS ONLINE WEBINARS AND OTHER VIRTUAL OPPORTUNITIES. THE FOUNDATION'S SIGNATURE NATIONAL SCLERODERMA CONFERENCE AND KIDS GET SCLERODERMA, TOO! CONFERENCE PROVIDE ACCESS TO WORLD-RENOWNED SCLERODERMA EXPERTS AND ARE THE CENTRAL MEETING GROUND OF THE SCLERODERMA COMMUNITY. IN ADDITION TO EDUCATIONAL PROGRAMS, THE NATIONAL SCLERODERMA FOUNDATION HOSTS 160 SUPPORT GROUPS ACROSS THE COUNTRY WHERE PEOPLE DIAGNOSED WITH SCLERODERMA, AND THEIR FRIENDS AND FAMILIES CAN COME TOGETHER IN A PEER SUPPORT NETWORK AND LEARN FROM ONE ANOTHER'S EXPERIENCES WITH THE DISEASE. THIS TYPE OF SUPPORT IS CRITICAL TO SUCCESSFULLY NAVIGATING DIAGNOSIS, PROGNOSIS AND TREATMENT IN A COMPLEX DISEASE LIKE SCLERODERMA. HAVING A STRONG SUPPORT SYSTEM IMPROVES OUTCOMES FOR THOSE LIVING WITH CHRONIC ILLNESS, AND IS AN IMPORTANT PART OF LIVING WELL WITH SCLERODERMA.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
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IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1314323
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1427369
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1513093
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN BOYANOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm1COURTNEY CALIENDO
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTINA LOCCKE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4MARY BETH TOURBIN
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BAUM
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8CYNDY BESSELIEVRE
IRS990/Form990PartVIISectionAGrp/PersonNm9COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm10CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11MIKE LEVENGOOD
IRS990/Form990PartVIISectionAGrp/PersonNm12GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm13ROBERT J RIGGS
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHAEL B HYDE
IRS990/Form990PartVIISectionAGrp/PersonNm15KERRI CONNOLLY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13119708
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14119808
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15102480
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR (UNTIL NOV '20)
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt11SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt12TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt13CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt14COO/CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt15NAT. DIRECTOR OF PROGRAMS & SERV.
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt073619
IRS990/FundraisingDirectExpensesAmt078598
IRS990/FundraisingGrossIncomeAmt078598
IRS990/GainOrLossGrp/SecuritiesAmt043495
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GovernmentGrantsAmt0504214
IRS990/GrantsPayableGrp/BOYAmt01587500
IRS990/GrantsPayableGrp/EOYAmt01525000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01066546
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01066546
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt05975548
IRS990/GrossReceiptsAmt010199282
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt029028
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt095321
IRS990/InformationTechnologyGrp/ProgramServicesAmt0177394
IRS990/InformationTechnologyGrp/TotalAmt0301743
IRS990/InsuranceGrp/FundraisingAmt06277
IRS990/InsuranceGrp/ManagementAndGeneralAmt020612
IRS990/InsuranceGrp/ProgramServicesAmt038358
IRS990/InsuranceGrp/TotalAmt065247
IRS990/InvestmentIncomeGrp/ExclusionAmt0167751
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0167751
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt08726153
IRS990/InvestmentsPubTradedSecGrp/EOYAmt010105147
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0191069
IRS990/LandBldgEquipBasisNetGrp/BOYAmt028142
IRS990/LandBldgEquipBasisNetGrp/EOYAmt021456
IRS990/LandBldgEquipCostOrOtherBssAmt0212525
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt05932053
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NameChangeInd0X
IRS990/NetAssetsOrFundBalancesBOYAmt09514379
IRS990/NetAssetsOrFundBalancesEOYAmt011398690
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt043495
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt043495
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt02164356
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt07711504
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt09600665
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011626
IRS990/OccupancyGrp/ManagementAndGeneralAmt038178
IRS990/OccupancyGrp/ProgramServicesAmt0123386
IRS990/OccupancyGrp/TotalAmt0173190
IRS990/OfficeExpensesGrp/FundraisingAmt017629
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt021633
IRS990/OfficeExpensesGrp/ProgramServicesAmt083210
IRS990/OfficeExpensesGrp/TotalAmt0122472
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0288129
IRS990/OtherAssetsTotalGrp/EOYAmt053527
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt011863
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt012534
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt076452
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0100849
IRS990/OtherExpensesGrp/Desc0FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc1ADVOCACY
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt07794
IRS990/OtherExpensesGrp/FundraisingAmt11082
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt025594
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13555
IRS990/OtherExpensesGrp/ProgramServicesAmt048911
IRS990/OtherExpensesGrp/ProgramServicesAmt150468
IRS990/OtherExpensesGrp/ProgramServicesAmt28271
IRS990/OtherExpensesGrp/ProgramServicesAmt32630
IRS990/OtherExpensesGrp/TotalAmt082299
IRS990/OtherExpensesGrp/TotalAmt150468
IRS990/OtherExpensesGrp/TotalAmt212908
IRS990/OtherExpensesGrp/TotalAmt32630
IRS990/OtherLiabilitiesGrp/BOYAmt074663
IRS990/OtherLiabilitiesGrp/EOYAmt072264
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01340
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01340
IRS990/OtherRevenueTotalAmt01340
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt087241
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0154321
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0781338
IRS990/OtherSalariesAndWagesGrp/TotalAmt01022900
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0366743
IRS990/PaymentsToAffiliatesGrp/TotalAmt0366743
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt07519
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt024691
IRS990/PayrollTaxesGrp/ProgramServicesAmt064453
IRS990/PayrollTaxesGrp/TotalAmt096663
IRS990/PensionPlanContributionsGrp/FundraisingAmt01532
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01311
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt09997
IRS990/PensionPlanContributionsGrp/TotalAmt012840
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt058410
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0406750
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0135016
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0215013
IRS990/PrincipalOfficerNm0MARY J WHEATLEY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:THE FOUNDATION IS THE LEADING NONPROFIT FUNDING SCLERODERMA RESEARCH IN THE UNITED STATES. THROUGH ITS PEER REVIEWED RESEARCH GRANTS PROGRAM, THE NATIONAL SCLERODERMA FOUNDATION FOSTERS THE DEVELOPMENT OF INNOVATIVE, HIGH-QUALITY RESEARCH BY NEW AND ESTABLISHED INVESTIGATORS IN FIELDS RELATED TO SCLERODERMA. THROUGH THIS PROGRAM, THE FOUNDATION IS COMMITTED TO DISCOVERING THE CAUSE OF THIS DISEASE, UNDERSTANDING THE MECHANISMS BEHIND IT, AND OVERCOMING SCLERODERMA FOREVER. SINCE ITS INCEPTION, THE FOUNDATION HAS COMMITTED $30 MILLION TO THIS MISSION PRIORITY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01267100
IRS990/ProgSrvcAccomActy2Grp/GrantAmt01216546
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt01340
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03405450
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01200545
IRS990/PYInvestmentIncomeAmt0247976
IRS990/PYOtherExpensesAmt02395570
IRS990/PYOtherRevenueAmt029435
IRS990/PYProgramServiceRevenueAmt0128846
IRS990/PYRevenuesLessExpensesAmt0-1200354
IRS990/PYSalariesCompEmpBnftPaidAmt01415946
IRS990/PYTotalExpensesAmt05012061
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03811707
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-280045
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$13,492,271
Liabilities
$2,093,581
Net assets
$11,398,690
Revenue
$4,188,631
Expenses
$4,468,676
Net income
-$280,045
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021Detailed filing. Detailed filing data is available for this year.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80