Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2016 • EIN 52-1375827

Jul 01, 2015 to Jun 30, 2016 • Filed on Mar 17, 2017

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.20x

Higher debt load relative to assets than 46% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Liabilities / Revenue

69th percentile

0.54x

Higher debt load relative to revenue than 69% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Net Margin

15th percentile

-14%

Higher net margin than 15% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Top Officer Pay

28th percentile

$117,957

Higher top officer pay than 28% of similar nonprofits.

Top officer pay equals 2.7% of source-year revenue.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Asset Growth

15th percentile

-5.8%

Faster asset growth than 15% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Revenue Growth

16th percentile

-17%

Faster revenue growth than 16% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets46th percentile

Assets

Down

$12,011,971

Down $743,139 (-5.8%) from 2015

Net Assets

Down

$9,651,497

Down $766,476 (-7.4%) from 2015

Liabilities

Up

$2,360,474

Up $23,337 (+1.0%) from 2015

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin15th percentile

Revenue

Down

$4,338,344

Down $884,464 (-17%) from 2015

Expenses

Down

$4,935,756

Down $691,464 (-12%) from 2015

Net Income

Down

-$597,412

Down $193,000 (-48%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth15th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2016

Assets$12,011,971
Liabilities$2,360,474
Net Assets$9,651,497
Open 2016 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2016

Revenue$4,338,344
Expenses$4,935,756
Net Income-$597,412
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
Mar 17, 2017
Return Version
2015v3.0
Gross Receipts
$7,960,031
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,937,157$9,586,594▼ $350,563
Cash and Non-Interest-Bearing Accounts$1,606,161$1,379,719▼ $226,442
Savings and Temporary Cash Investments$689,198$482,976▼ $206,222
Prepaid Expenses and Deferred Charges$127,911$165,547▲ $37,636
Pledges and Grants Receivable$69,920$75,000▲ $5,080
Accounts Receivable$31,422$24,166▼ $7,256
Land, Buildings, and Equipment, Net$8,758$10,714▲ $1,956
Total Assets$12,755,110$12,011,971▼ $743,139
Other Assets Total$284,583$287,255▲ $2,672
Liabilities
Grants Payable$2,044,417$2,012,112▼ $32,305
Accounts Payable and Accrued Expenses$148,528$180,399▲ $31,871
Deferred Revenue$73,045$84,851▲ $11,806
Other Liabilities$71,147$83,112▲ $11,965
Total Liabilities$2,337,137$2,360,474▲ $23,337
Net Assets / Fund Balance
Unrestricted Net Assets$8,298,303$7,834,454▼ $463,849
Permanently Rstr Net Assets$1,542,375$1,542,375→ $0
Temporarily Rstr Net Assets$577,295$274,668▼ $302,627
Total Net Assets Fund Balance$10,417,973$9,651,497▼ $766,476
Total Liabilities and Net Assets / Fund Balance$12,755,110$12,011,971▼ $743,139

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$8,714$66,387$75,101
Other Land Buildings$0$70,690$70,690
Leasehold Improvements$0$8,393$8,393
Land$2,000-$2,000

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$2,056,133-▲ $30,238$200,000$1,886,371
2014$2,051,305-▲ $4,828-$2,056,133
2013$1,885,727-▲ $165,578-$2,051,305
2012$1,819,237-▲ $66,490-$1,885,727
2011$1,814,793-▲ $4,444-$1,819,237
Compensation and Service Providers
Top Officer Pay28th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$106,255$11,702$117,957

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Bill MartinDirector
Katayun JaffariDirector
Lee Roy JonesDirector
Mary BladesDirector
Robert KacickDirector
Robert SlappeyDirector
Bruce CowanSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$128,500
Revenue and Support

Revenue Composition

Contributions and Grants
$3,939,641
Program Service Revenue
$91,015
Investment Income
$208,482
Other Revenue
$99,206
All Other Contributions
$3,305,915
Change in Net Assets
$-597,412

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$400,609Fair Market Value (FMV)
Total Noncash Contributions1$400,609-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,338,344
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-169,064
Total Revenue per Audited Statements
$4,169,280
Total Revenue per Form 990
$4,338,344
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,341,508
Grants and Similar Amounts Paid$1,649,990
Salaries, Compensation, and Employee Benefits$944,258
Total Fundraising Expense$221,285
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,594,018--$1,594,018
Other Salaries and Wages$474,143$168,217$50,956$693,316
Conferences and Meetings$517,834$8,595$343$526,772
Payments to Affiliates$441,097--$441,097
Fees for Services Other$227,939$3,274$12,811$244,024
Office Expenses$137,631$13,083$75,038$225,752
Information Technology$115,167$61,884$18,845$195,896
Occupancy$109,738$37,792$11,508$159,038
Current Officers, Directors, Trustees, and Key Employees$68,416$37,747$11,794$117,957
Travel$83,892$26,794$5,113$115,799
Insurance$39,253$21,092$6,423$66,768
Payroll Taxes$42,115$15,896$4,841$62,852
Other Employee Benefits$35,602$21,264$5,215$62,081
Grants to Domestic Individuals$55,972--$55,972
Other Expenses$29,007$6,323$1,926$37,256
Advertising$27,244--$27,244
Fees for Services Accounting-$25,154-$25,154
Depreciation Depletion$12,518$6,462$1,968$20,948
Fees for Services Legal-$13,640-$13,640
All Other Expenses$11,668--$11,668
Pension Plan Contributions$5,686$1,820$546$8,052
Total Functional Expenses$4,199,599$514,872$221,285$4,935,756

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,935,756
Total Expenses per Audited Statements$4,935,756
Total Expenses per Form 990$4,935,756
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OF PITTSBURGH UPMCPittsburgh, PA501(c)3Research$500,000
Northwestern UniversityChicago, IL501(c)3Research$300,000
Yale University School of MedicineNew Haven, CT501(c)3Research$300,000
Baylor College of MedicineHouston, TX501(c)3Research$150,000
Medical University of ScarolinaCharleston, SC501(c)3Research$150,000
University of Michigan Medical SchoolAnn Arbor, MI501(c)3Research$150,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$220,647
Fundraising Gross Income$220,647
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Ohio Stepping Out Walks$121,759$23,184$23,184$0
Iowa Stepping Out Walk$49,149$5,880$5,880$0
Total Events$854,373$220,647$220,647$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$83,112
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2017-03-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
10
Independent Board Members
10
Employees
24
Volunteers
625

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Joyce Ripianzi CPA
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of its independent accountants. This process has not changed during the current year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a permanently restricted fund established in 2007. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from unrelated trade or business income. The organization has determined that it does not have any liabilities associated with unrelated trade or business income and as a result, no provision for income taxes is presented in these financial statements. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities.”

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IRS990/ActivityOrMissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
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IRS990/Form990PartVIISectionAGrp/PersonNm2MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm3KATAYUN JAFFARI
IRS990/Form990PartVIISectionAGrp/PersonNm4ROBERT SLAPPEY
IRS990/Form990PartVIISectionAGrp/PersonNm5BILL MARTIN
IRS990/Form990PartVIISectionAGrp/PersonNm6COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm7CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm8BRUCE COWAN
IRS990/Form990PartVIISectionAGrp/PersonNm9GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm10ROBERT J RIGGS
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10CEO
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
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IRS990/GrantsToOrganizationsInd01
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IRS990/LobbyingActivitiesInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NetAssetsOrFundBalancesEOYAmt09651497
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
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IRS990/NoncashContributionsAmt0400609
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011508
IRS990/OccupancyGrp/ManagementAndGeneralAmt037792
IRS990/OccupancyGrp/ProgramServicesAmt0109738
IRS990/OccupancyGrp/TotalAmt0159038
IRS990/OfficeExpensesGrp/FundraisingAmt075038
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt013083
IRS990/OfficeExpensesGrp/ProgramServicesAmt0137631
IRS990/OfficeExpensesGrp/TotalAmt0225752
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05215
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt021264
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt062081
IRS990/OtherExpensesGrp/Desc0ADVOCACY
IRS990/OtherExpensesGrp/Desc1BANK CHARGES AND WEB DO
IRS990/OtherExpensesGrp/Desc2BAD DEBT
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt07232
IRS990/OtherExpensesGrp/FundraisingAmt16726
IRS990/OtherExpensesGrp/FundraisingAmt21926
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt023747
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt122088
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt26323
IRS990/OtherExpensesGrp/ProgramServicesAmt083900
IRS990/OtherExpensesGrp/ProgramServicesAmt145653
IRS990/OtherExpensesGrp/ProgramServicesAmt241106
IRS990/OtherExpensesGrp/ProgramServicesAmt329007
IRS990/OtherExpensesGrp/TotalAmt083900
IRS990/OtherExpensesGrp/TotalAmt176632
IRS990/OtherExpensesGrp/TotalAmt269920
IRS990/OtherExpensesGrp/TotalAmt337256
IRS990/OtherLiabilitiesGrp/BOYAmt071147
IRS990/OtherLiabilitiesGrp/EOYAmt083112
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt099206
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt099206
IRS990/OtherRevenueTotalAmt099206
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt050956
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0168217
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0474143
IRS990/OtherSalariesAndWagesGrp/TotalAmt0693316
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0441097
IRS990/PaymentsToAffiliatesGrp/TotalAmt0441097
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04841
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt015896
IRS990/PayrollTaxesGrp/ProgramServicesAmt042115
IRS990/PayrollTaxesGrp/TotalAmt062852
IRS990/PensionPlanContributionsGrp/FundraisingAmt0546
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01820
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt05686
IRS990/PensionPlanContributionsGrp/TotalAmt08052
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01542375
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01542375
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt069920
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt075000
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0127911
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0165547
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt091015
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt091015
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT:1. SUPPORT: A. THE SCLERODERMA FOUNDATION PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I. A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII. A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII. REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERTS IN SCLERODERMA-RELATED ISSUESIV. ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV. WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITY2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDCIAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02565604
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt091015
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04662117
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02145957
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IRS990/PYOtherExpensesAmt02512657
IRS990/PYOtherRevenueAmt0113091
IRS990/PYProgramServiceRevenueAmt095672
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IRS990/PYTotalExpensesAmt05627220
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt05222808
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-597412
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt099206
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0689198
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0482976
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04202914
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,011,971
Liabilities
$2,360,474
Net assets
$9,651,497
Revenue
$4,338,344
Expenses
$4,935,756
Net income
-$597,412
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016Detailed filing. Detailed filing data is available for this year.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80