Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2023 • EIN 52-1375827

Jul 01, 2022 to Jun 30, 2023 • Filed on Jan 16, 2024

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.24x

Higher debt load relative to assets than 56% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Liabilities / Revenue

65th percentile

0.45x

Higher debt load relative to revenue than 65% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Net Margin

57th percentile

6.6%

Higher net margin than 57% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Top Officer Pay

68th percentile

$243,412

Higher top officer pay than 68% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2023

Asset Growth

67th percentile

13%

Faster asset growth than 67% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Revenue Growth

87th percentile

51%

Faster revenue growth than 87% of similar nonprofits.

2023 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets56th percentile

Assets

Flat

$12,897,422

Flat from 2023

Net Assets

Flat

$9,811,236

Flat from 2023

Liabilities

Flat

$3,086,186

Flat from 2023

Revenue And Expenses
Liabilities / Revenue65th percentileNet Margin57th percentile

Revenue

Flat

$6,915,898

Flat from 2023

Expenses

Flat

$6,461,742

Flat from 2023

Net Income

Flat

$454,156

Flat from 2023

Historical Trend

Balance Sheet Trend

Asset Growth67th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2023

Assets$12,897,422
Liabilities$3,086,186
Net Assets$9,811,236
Open 2023 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2023

Revenue$6,915,898
Expenses$6,461,742
Net Income$454,156
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2022 to Jun 30, 2023
Signed
Jan 16, 2024
Return Version
2022v5.0
Gross Receipts
$8,832,555
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$7,887,043$9,588,217▲ $1,701,174
Cash and Non-Interest-Bearing Accounts$2,683,332$2,257,990▼ $425,342
Prepaid Expenses and Deferred Charges$185,646$348,601▲ $162,955
Pledges and Grants Receivable$635,411$270,820▼ $364,591
Land, Buildings, and Equipment, Net$29,987$31,708▲ $1,721
Total Assets$11,463,074$12,897,422▲ $1,434,348
Other Assets Total$41,655$400,086▲ $358,431
Liabilities
Grants Payable$2,620,835$2,416,673▼ $204,162
Accounts Payable and Accrued Expenses$208,675$315,680▲ $107,005
Other Liabilities$79,414$218,858▲ $139,444
Deferred Revenue$4,529$134,975▲ $130,446
Total Liabilities$2,913,453$3,086,186▲ $172,733
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,893,709$7,687,928▲ $794,219
Net Assets With Donor Restrictions$1,655,912$2,123,308▲ $467,396
Total Net Assets Fund Balance$8,549,621$9,811,236▲ $1,261,615
Total Liabilities and Net Assets / Fund Balance$11,463,074$12,897,422▲ $1,434,348

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$21,525$130,228$151,753
Other Land Buildings$6,235$80,793$87,028
Leasehold Improvements$3,948$17,218$21,166

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2022$1,655,912$395,455▲ $159,524$87,583$2,123,308
2021$1,881,204-▼ $155,307$69,985$1,655,912
2020$1,658,720-▲ $293,349$70,865$1,881,204
2019$1,627,038$31,682▲ $101,713$101,713$1,658,720
2018$1,662,877-▲ $115,953$151,792$1,627,038
Compensation and Service Providers
Top Officer Pay68th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary J WheatleyCEOFT$226,252$17,160$243,412
Michael B HydeCOO/CFOFT$150,589$31,671$182,260

Board Members and Trustees

NameTitle
Kevin BoyanowskiChair
Carol Feghali-bostwick Ph DVice Chair
Christina LocckeDirector
Cos MallozziDirector
Courtney CaliendoDirector
Jeanne TheissenDirector
Linda Bornstein Baum OdDirector
Marcia WalkerDirector
Mark Orozco Iii MbaDirector
Mary BladesDirector
Michael PurselDirector
Zeba HyderDirector
Mike Levengood EsqSecretary
Cyndy Besselievre CPATreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Markstein Consulting LLCStrategy & Communications1801 FIFTH AVENUE SUITE 200, Birmingham, AL 35203$116,415
Revenue and Support

Revenue Composition

Contributions and Grants
$6,057,608
Program Service Revenue
$0
Investment Income
$476,604
Other Revenue
$381,686
All Other Contributions
$5,207,246
Change in Net Assets
$454,156

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,871,745
Revenue Not Reported on Financial Statements
$44,153
Revenue Not Reported on Form 990
$807,459
Total Revenue per Audited Statements
$7,679,204
Total Revenue per Form 990
$6,915,898
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,783,041
Other Expenses$1,866,701
Grants and Similar Amounts Paid$1,812,000
Total Fundraising Expense$645,725
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,312,560$332,450$151,889$1,796,899
Grants to Domestic Orgs$1,600,000--$1,600,000
Current Officers, Directors, Trustees, and Key Employees$150,712$278,236$25,985$454,933
Fees for Services Other$346,560-$88,638$435,198
Information Technology$195,890$65,297$65,297$326,484
Other Employee Benefits$214,333$55,378$25,662$295,373
Occupancy$135,119$39,547$41,967$216,633
Payroll Taxes$134,278$52,898$16,276$203,452
Foreign Grants$200,000--$200,000
Office Expenses$69,939$17,232$89,750$176,921
Conferences and Meetings$111,068$10,365$19,193$140,626
Travel$82,972$22,150$22,150$127,272
Insurance$47,344$15,781$15,781$78,906
Fees for Services Legal$289$44,638-$44,927
Fees for Service Investment Mgmnt Fees-$44,153-$44,153
Fees for Services Accounting-$44,000-$44,000
Pension Plan Contributions$24,924$4,629$2,831$32,384
Depreciation Depletion$14,568$4,856$4,856$24,280
Other Expenses$1,790$895$16,338$19,023
Grants to Domestic Individuals$12,000--$12,000
Advertising$6,949$2,125$2,398$11,472
Payments to Affiliates$220--$220
Total Functional Expenses$4,750,681$1,065,336$645,725$6,461,742

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,461,742
Expenses per Audited Statements$6,417,589
Total Expenses per Audited Statements$6,417,589
Expenses Not Reported on Financial Statements$44,153
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Benaroya Research Institute at Virginia MasonSeattle, WA501(c)3Research$200,000
Boston Childrens HospitalBoston, MA501(c)3Research$200,000
Boston UniversityNew York, NH501(c)3Research$200,000
Boston UniversityNew York, NY501(c)3Research$200,000
Fnih Biomarkers Consortium ProjectDanvers, MA501(c)3Research$200,000
Hackensack University Medical CenterPhiladelpha, PA501(c)3Research$200,000
Medical University of South CarolinaCharleston, SC501(c)3Research$200,000
University of MinnesotaMinneapolis, MN501(c)3Research$200,000

International Summary

Offices
0
Employees
0
Spending
$200,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrant AwardResearch00$200,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$142,546
Fundraising Gross Income$142,546
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Food Fight - Rocky Mountain$86,614$12,435$12,435$0
Denver Co Stepping Out Walk$71,637$10,285$10,285$0
Total Events$992,908$142,546$142,546$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$218,858
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“All members of the board of directors submit annual disclosure statements, which are then reviewed by the committee on corporate governance and nominations and filed with legal counsel. Any member who gives notice of potential conflict is advised to abstain from participating in any item of business related to that conflict(s) which may come before the board.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
National Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE 105, DANVERS, MA 01923

Signing Officer

Name
Mary J Wheatley Iom Cae
Title
Chief Executive Officer
Phone
8007224673
Signed
2024-01-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary J Wheatley
Formed
1993
Legal Domicile
Il
Voting Board Members
14
Independent Board Members
14
Employees
33
Volunteers
300

Preparer

Firm
Baker Tilly US Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support scleroderma research .”

PART X, LINE 2:

“The organization is a nonprofit organization as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2023, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2023. The organization does not expect any material change in uncertain tax benefits within the next 12 months.”

Raw XML AppendixShowing 400 of 801 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
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IRS990/Desc0A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWING FOR MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCE ATTRACTS MORE THAN 500 PARTICIPANTS ANNUALLY. DUE TO THE ONGOING PANDEMIC, THE FOUNDATION HELD A VIRTUAL CONFERENCE IN FY 2023, WHICH PROVIDED COMMUNITY SUPPORT, WORLD CLASS EDUCATION, AND NETWORKING OPPORTUNITIES FOR THE COMMUNITY VIA WEBINARS. THE WEBINARS OFFERED EDUCATION AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS. IN ADDITION, THE WEBINARS SERVE AS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE.
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IRS990/Form990PartVIISectionAGrp/PersonNm1COURTNEY CALIENDO
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTINA LOCCKE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4JEANNE THEISSEN
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO III MBA
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BORNSTEIN BAUM OD
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8ZEBA HYDER
IRS990/Form990PartVIISectionAGrp/PersonNm9MICHAEL PURSEL
IRS990/Form990PartVIISectionAGrp/PersonNm10KEVIN BOYANOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm11CAROL FEGHALI-BOSTWICK PH D
IRS990/Form990PartVIISectionAGrp/PersonNm12MIKE LEVENGOOD ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm13CYNDY BESSELIEVRE CPA
IRS990/Form990PartVIISectionAGrp/PersonNm14MARY J WHEATLEY
IRS990/Form990PartVIISectionAGrp/PersonNm15MICHAEL B HYDE
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IRS990/Form990PartVIISectionAGrp/TitleTxt10CHAIR
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IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
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IRS990/MissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
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IRS990/OfficeExpensesGrp/FundraisingAmt089750
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IRS990/OperateHospitalInd00
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IRS990/OtherExpensesGrp/FundraisingAmt116338
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt030706
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1895
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IRS990/OtherExpensesGrp/ProgramServicesAmt11790
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IRS990/OtherExpensesGrp/TotalAmt119023
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0348601
IRS990/PrincipalOfficerNm0MARY J WHEATLEY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:IN FY 2023, THE FOUNDATION MADE A COMMITMENT OF $1.8 MILLION TO FUND RESEARCH. THIS FUNDING AIMS TO STIMULATE AND SUPPORT INVESTIGATIONS INTO BETTER UNDERSTANDING THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVER MULTIPLE YEARS. IN FY 2023, SIX AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND THREE AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.THE PEER-REVIEW RESEARCH COMMITTEE IS COMPOSED OF HIGHLY RESPECTED SCIENTIFIC EXPERTS WHO REVIEW, CRITIQUE, AND RANK ALL APPLICATIONS BASED ON THE NATIONAL INSTITUTES OF HEALTH'S RANKING SYSTEM. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE FUNDED. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL OF FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS.
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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,897,422
Liabilities
$3,086,186
Net assets
$9,811,236
Revenue
$6,915,898
Expenses
$6,461,742
Net income
$454,156
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Detailed filing. Detailed filing data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80