Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2022 • EIN 52-1375827

Jul 01, 2021 to Jun 30, 2022 • Filed on Dec 14, 2022

300 Rosewood Drive 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.25x

Higher debt load relative to assets than 59% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Liabilities / Revenue

73rd percentile

0.64x

Higher debt load relative to revenue than 73% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Net Margin

8th percentile

-36%

Higher net margin than 8% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Top Officer Pay

44th percentile

$159,380

Higher top officer pay than 44% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Asset Growth

11th percentile

-15%

Faster asset growth than 11% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Revenue Growth

59th percentile

9.4%

Faster revenue growth than 59% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Assets

Flat

$11,463,074

Flat from 2022

Net Assets

Flat

$8,549,621

Flat from 2022

Liabilities

Flat

$2,913,453

Flat from 2022

Revenue

Flat

$4,581,467

Flat from 2022

Expenses

Flat

$6,210,712

Flat from 2022

Net Income

Flat

-$1,629,245

Flat from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2022

Assets$11,463,074
Liabilities$2,913,453
Net Assets$8,549,621

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2022

Revenue$4,581,467
Expenses$6,210,712
Net Income-$1,629,245
Jump To
Filing Snapshot
Filing Period
Jul 1, 2021 to Jun 30, 2022
Signed
Dec 14, 2022
Return Version
2021v4.2
Gross Receipts
$6,739,391
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$10,105,147$7,887,043▼ $2,218,104
Cash and Non-Interest-Bearing Accounts$2,533,564$2,683,332▲ $149,768
Pledges and Grants Receivable$406,750$635,411▲ $228,661
Prepaid Expenses and Deferred Charges$215,013$185,646▼ $29,367
Savings and Temporary Cash Investments$156,814--
Land, Buildings, and Equipment, Net$21,456$29,987▲ $8,531
Total Assets$13,492,271$11,463,074▼ $2,029,197
Other Assets Total$53,527$41,655▼ $11,872
Liabilities
Grants Payable$1,525,000$2,620,835▲ $1,095,835
Unsecured Notes Loans Payable$249,960--
Accounts Payable and Accrued Expenses$235,306$208,675▼ $26,631
Other Liabilities$72,264$79,414▲ $7,150
Deferred Revenue$11,051$4,529▼ $6,522
Total Liabilities$2,093,581$2,913,453▲ $819,872
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$9,261,793$6,893,709▼ $2,368,084
Net Assets With Donor Restrictions$2,136,897$1,655,912▼ $480,985
Total Net Assets Fund Balance$11,398,690$8,549,621▼ $2,849,069
Total Liabilities and Net Assets / Fund Balance$13,492,271$11,463,074▼ $2,029,197

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$18,582$118,804$137,386
Other Land Buildings$7,975$79,053$87,028
Leasehold Improvements$3,430$8,913$12,343

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2021$1,881,204-▼ $155,307$69,985$1,655,912
2020$1,658,720-▲ $293,349$70,865$1,881,204
2019$1,627,038$31,682▲ $101,713$101,713$1,658,720
2018$1,662,877-▲ $115,953$151,792$1,627,038
2017$1,916,225-▲ $65,063$318,411$1,662,877
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael B HydeCOO/CFOFT$129,165$30,215$159,380
Mary J WheatleyCEO (since July 1, 2021)FT$101,145$6,901$108,046
Robert J RiggsCEO (until Dec 2021)FT$83,028$11,946$94,974

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Christina LocckeDirector
Courtney CaliendoDirector
Kevin BoyanowskiDirector
Linda BaumDirector
Marcia WalkerDirector
Mark OrozcoDirector
Mary BladesDirector
Jeanne TheissenDirector (since Jul 2021)
Mike LevengoodSecretary
Cyndy BesselievreTreasurer (since Jul 2021)
Greg MarionTreasurer (until Jul 2021)

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$205,065
Robert HalfaccountempsTemporary Staffing Services12400 COLLECTIONS CENTER DRIVE, Chicago, IL 60693$132,631
Revenue and Support

Revenue Composition

Contributions and Grants
$4,462,430
Program Service Revenue
$0
Investment Income
$119,037
Other Revenue
$0
All Other Contributions
$3,769,199
Change in Net Assets
$-1,629,245

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,556,264
Revenue Not Reported on Financial Statements
$25,203
Revenue Not Reported on Form 990
$-1,219,824
Total Revenue per Audited Statements
$3,336,440
Total Revenue per Form 990
$4,581,467
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,425,000
Salaries, Compensation, and Employee Benefits$2,012,197
Other Expenses$1,773,515
Total Fundraising Expense$552,920
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,425,000--$2,425,000
Other Salaries and Wages$999,695$235,225$113,408$1,348,328
Fees for Services Other$353,887-$102,127$456,014
Current Officers, Directors, Trustees, and Key Employees$145,067$249,564$25,011$419,642
Information Technology$223,060$74,353$74,353$371,766
Occupancy$116,058$38,342$38,342$192,742
Office Expenses$81,553$13,857$76,767$172,177
Payroll Taxes$91,018$35,983$10,958$137,959
Conferences and Meetings$107,013$3,488$3,362$113,863
Other Employee Benefits$77,337$2,919$8,867$89,123
Insurance$46,267$15,422$15,422$77,111
Travel$39,500$13,154$13,154$65,808
Fees for Services Legal$7,923$52,077-$60,000
Fees for Services Accounting-$47,550-$47,550
Fees for Service Investment Mgmnt Fees-$25,203-$25,203
Advertising$11,756$1,910$7,371$21,037
Pension Plan Contributions$14,428$1,137$1,580$17,145
Depreciation Depletion$9,421$3,140$3,140$15,701
Other Expenses$4,445$0$9,851$14,296
Total Functional Expenses$4,821,708$836,084$552,920$6,210,712

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,210,712
Expenses per Audited Statements$6,185,509
Total Expenses per Audited Statements$6,185,509
Expenses Not Reported on Financial Statements$25,203
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Johns Hopkins UniversityChicago, IL501(c)3Research$200,000
Medical University of South CarolinaCharleston, SC501(c)3Research$200,000
Regents of the University of MichiganPittsburgh, PA501(c)3Research$200,000
Rochester Institute of TechnologyRochester, NY501(c)3Research$200,000
Trustees of Boston University BumcNew York, NY501(c)3Research$200,000
University of Kansas Medical Center Research InstituteKansas City, KS501(c)3Research$200,000
University of New Mexico Health Sciences CenterAlbuquerque, NM501(c)3Research$200,000
University of PittsburghPittsburgh, PA501(c)3Research$200,000
University of PittsburghPittsburgh, PA501(c)3Research$200,000
University of PittsburghPittsburgh, PA501(c)3Research$200,000
University of ToledoCleveland, OH501(c)3Research$200,000
Weill Medical College of Cornell UniversityNew York, NY501(c)3Research$200,000
International Workshop on Scleroderma Research CorporationArlington, MA501(c)3Support for 17th International Workshop on Scleroderma Research$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$85,687
Fundraising Gross Income$85,687
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Coconut Creek Fl Stepping Out Walk$50,192$8,131$8,131$0
Detroit Stepping Out Walk$36,398$5,896$5,896$0
Total Events$528,958$85,687$85,687$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$79,414
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.

Form 990, Part VI, Section B, Line 12C

All members of the board of directors submit annual disclosure statements, which are then reviewed by the committee on corporate governance and nominations and filed with legal counsel. Any member who gives notice of potential conflict is advised to abstain from participating in any item of business related to that conflict(s) which may come before the board.

Form 990, Part VI, Section B, Line 15

The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.

Filing and Contact Details

Filer

Filer Name
National Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE 105, DANVERS, MA 01923

Signing Officer

Name
Mary J Wheatley Iom Cae
Title
Chief Executive Officer
Phone
8007224673
Signed
2022-12-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary J Wheatley
Formed
1993
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
12
Employees
0
Volunteers
0

Preparer

Firm
Baker Tilly US Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

Form 990, Part X, Column A, Line 27 and Line 28

Prior year net assets without donor restrictions were restated for the year ending june 30, 2022 from $9,600,665 to $9,261,793. Prior year net assets with donor restrictions were restated for the year ending june 30, 2022 from $1,798,025 to $2,136,897.

FORM 990, PART XII, LINE 2C:

The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.

Financial Statement Notes

PART V, LINE 4:

The endowment consists of funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support scleroderma research .

PART X, LINE 2:

The organization is a nonprofit organization as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2022, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2022. The organization does not expect any material change in uncertain tax benefits within the next 12 months.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
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IRS990/Desc0A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWINGN FOR MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCEATTRACTS MORE THAN 500 PARTICIPANTS ANNUALLY. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, PROVIDING WORLD CLASS EDUCATION AND NETWORKING OPPORTUNITIES FOR THE COMMUNITY VIA A NATIONAL WEBINAR SERIES THAT WAS, FOR THE FIRST TIME, OFFERED VIRTUALLY. THE WEBINARS OFFERED EDUCATION AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS AND FRIENDS. IT ALSO WAS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt136901
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1411946
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1530215
IRS990/Form990PartVIISectionAGrp/PersonNm0KEVIN BOYANOWSKI
IRS990/Form990PartVIISectionAGrp/PersonNm1COURTNEY CALIENDO
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTINA LOCCKE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4JEANNE THEISSEN
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BAUM
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm9CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm10MIKE LEVENGOOD
IRS990/Form990PartVIISectionAGrp/PersonNm11CYNDY BESSELIEVRE
IRS990/Form990PartVIISectionAGrp/PersonNm12GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm13MARY J WHEATLEY
IRS990/Form990PartVIISectionAGrp/PersonNm14ROBERT J RIGGS
IRS990/Form990PartVIISectionAGrp/PersonNm15MICHAEL B HYDE
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13101145
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1483028
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15129165
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR (SINCE JUL 2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER (SINCE JUL 2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt12TREASURER (UNTIL JUL 2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt13CEO (SINCE JULY 1, 2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt14CEO (UNTIL DEC 2021)
IRS990/Form990PartVIISectionAGrp/TitleTxt15COO/CFO
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0443271
IRS990/FundraisingDirectExpensesAmt085687
IRS990/FundraisingGrossIncomeAmt085687
IRS990/GainOrLossGrp/SecuritiesAmt0-56394
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GovernmentGrantsAmt0249960
IRS990/GrantsPayableGrp/BOYAmt01525000
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IRS990/InfoInScheduleOPartXInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt074353
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt074353
IRS990/InformationTechnologyGrp/ProgramServicesAmt0223060
IRS990/InformationTechnologyGrp/TotalAmt0371766
IRS990/InsuranceGrp/FundraisingAmt015422
IRS990/InsuranceGrp/ManagementAndGeneralAmt015422
IRS990/InsuranceGrp/ProgramServicesAmt046267
IRS990/InsuranceGrp/TotalAmt077111
IRS990/InvestmentIncomeGrp/ExclusionAmt0175431
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0175431
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt010105147
IRS990/InvestmentsPubTradedSecGrp/EOYAmt07887043
IRS990/IRPDocumentCnt010
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0206770
IRS990/LandBldgEquipBasisNetGrp/BOYAmt021456
IRS990/LandBldgEquipBasisNetGrp/EOYAmt029987
IRS990/LandBldgEquipCostOrOtherBssAmt0236757
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt02072237
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt011398690
IRS990/NetAssetsOrFundBalancesEOYAmt08549621
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-56394
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-56394
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-1219824
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt09261793
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt06893709
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt038342
IRS990/OccupancyGrp/ManagementAndGeneralAmt038342
IRS990/OccupancyGrp/ProgramServicesAmt0116058
IRS990/OccupancyGrp/TotalAmt0192742
IRS990/OfficeExpensesGrp/FundraisingAmt076767
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt013857
IRS990/OfficeExpensesGrp/ProgramServicesAmt081553
IRS990/OfficeExpensesGrp/TotalAmt0172177
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt053527
IRS990/OtherAssetsTotalGrp/EOYAmt041655
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08867
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02919
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt077337
IRS990/OtherEmployeeBenefitsGrp/TotalAmt089123
IRS990/OtherExpensesGrp/Desc0FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc1OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt049207
IRS990/OtherExpensesGrp/FundraisingAmt19851
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt022760
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt068280
IRS990/OtherExpensesGrp/ProgramServicesAmt14445
IRS990/OtherExpensesGrp/TotalAmt0140247
IRS990/OtherExpensesGrp/TotalAmt114296
IRS990/OtherLiabilitiesGrp/BOYAmt072264
IRS990/OtherLiabilitiesGrp/EOYAmt079414
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0113408
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0235225
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0999695
IRS990/OtherSalariesAndWagesGrp/TotalAmt01348328
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt010958
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt035983
IRS990/PayrollTaxesGrp/ProgramServicesAmt091018
IRS990/PayrollTaxesGrp/TotalAmt0137959
IRS990/PensionPlanContributionsGrp/FundraisingAmt01580
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01137
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt014428
IRS990/PensionPlanContributionsGrp/TotalAmt017145
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0406750
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0635411
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0215013
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0185646
IRS990/PrincipalOfficerNm0MARY J WHEATLEY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:IN 2021, THE FOUNDATION MADE A COMMITMENT TO MORE THAN DOUBLE ITS RESEARCH FUNDING, (ITS SINGLE LARGEST EXPENSE) COMITTING $2.4 MILLION IN FY 2022. THIS FUNDING AIMS TO STIMULATE AND SUPPORT RESEARCH TO BETTER UNDERSTAND THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVER MULTIPLE YEARS. IN FY 2022, FIVE AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND SEVEN AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW BY HIGHLY RESPECTED SCIENTIFIC EXPERTS IN THE FIELD. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE RECOMMENDED FOR FUNDING. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL AND FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02747437
IRS990/ProgSrvcAccomActy2Grp/GrantAmt02425000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03976045
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01216546
IRS990/PYInvestmentIncomeAmt0211246
IRS990/PYOtherExpensesAmt01720265
IRS990/PYOtherRevenueAmt01340
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-280045
IRS990/PYSalariesCompEmpBnftPaidAmt01531865
IRS990/PYTotalExpensesAmt04468676
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04188631
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-1629245
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0156814
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt04462430
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03721793
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03405450
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04326448
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt04193403
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt020109524
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0175431
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0167751
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0180407
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0175015
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0169963
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0868567
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0332742
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.87220
IRS990ScheduleA/PublicSupportPY170Pct00.87280
IRS990ScheduleA/PublicSupportTotal170Amt018297855

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Detailed filing. Detailed filing data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80