Civic Intelligence

Pcdh19 Alliance

990EZ • Fiscal year 2017 • EIN 45-4020102

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 14, 2018

Organization ProfileWWW.PCDH19INFO.ORG
926 A 212 Diablo AveNovato, CA 94945

(925) 209-6307

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

89th percentile

43%

Higher net margin than 89% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

92nd percentile

111%

Faster asset growth than 92% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

76th percentile

26%

Faster revenue growth than 76% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$90,277

Up $47,486 (+111%) from 2016

Net Assets

$90,277

No earlier filing loaded for comparison.

Liabilities

Flat

$0

Flat from 2016

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin89th percentile

Revenue

Up

$110,539

Up $22,687 (+26%) from 2016

Expenses

Down

$63,053

Down $21,641 (-26%) from 2016

Net Income

Up

$47,486

Up $44,328 (+1404%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2015: $49,633Liabilities 2015: $10,0002015Assets 2016: $42,791Liabilities 2016: $02016Assets 2017: $90,277Liabilities 2017: $0Net Assets 2017: $90,2772017Assets 2018: $103,474Liabilities 2018: $0Net Assets 2018: $103,4742018Assets 2019: $101,841Liabilities 2019: $0Net Assets 2019: $101,8412019Assets 2020: $156,014Liabilities 2020: $0Net Assets 2020: $156,0142020Assets 2021: $104,051Liabilities 2021: $0Net Assets 2021: $104,0512021Assets 2022: $107,230Liabilities 2022: $0Net Assets 2022: $107,2302022Assets 2023: $41,724Liabilities 2023: $0Net Assets 2023: $41,7242023Assets 2024: $279,203Liabilities 2024: $0Net Assets 2024: $279,2032024

Highlighted filing

2017

Assets$90,277
Liabilities$0
Net Assets$90,277
Open 2017 Filing

Operations Trend

Revenue Growth76th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2015: $96,311Expenses 2015: $116,422Net Income 2015: -$20,1112015Revenue 2016: $87,852Expenses 2016: $84,694Net Income 2016: $3,1582016Revenue 2017: $110,539Expenses 2017: $63,053Net Income 2017: $47,4862017Revenue 2018: $122,017Expenses 2018: $108,820Net Income 2018: $13,1972018Revenue 2019: $97,210Expenses 2019: $98,843Net Income 2019: -$1,6332019Revenue 2020: $73,830Expenses 2020: $19,657Net Income 2020: $54,1732020Revenue 2021: $115,807Expenses 2021: $167,770Net Income 2021: -$51,9632021Revenue 2022: $41,709Expenses 2022: $38,530Net Income 2022: $3,1792022Revenue 2023: $42,496Expenses 2023: $108,002Net Income 2023: -$65,5062023Revenue 2024: $285,419Expenses 2024: $47,940Net Income 2024: $237,4792024

Highlighted filing

2017

Revenue$110,539
Expenses$63,053
Net Income$47,486
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 14, 2018
Return Version
2017v2.3
Gross Receipts
$110,539
Mission and Program Overview

Mission

Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

Program Services

DescriptionGrantsExpenses
TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.$50,000$0
ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.$0$2,669
Compensation and Service Providers
Top Officer Pay76th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
JULIE WALTERSBoard President-$0--
KARIN WELLS-KILPATRICKBoard Vice President-$0--
LESLIE HENKELBoard Secretary-$0--
HEATHER FRYMANBoard CFO/Treasurer-$0--
SUSAN TAYLORBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
Pcdh19 Alliance
EIN
45-4020102
Phone
9252096307
Address
926 A 212 DIABLO AVE, NOVATO, CA 94945

Signing Officer

Name
Julie Walters
Title
Board President
Phone
9252096307
Signed
2018-11-14
Discuss with paid preparer
Yes

Preparer

Firm
Ghirardo CPA
Address
7200 REDWOOD BLVD SUITE 403, NOVATO, CA 94945
Preparer
Michael Domecus
Phone
4158975678
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity classification: research grant. Grantee name: cardiff university . Grantee address: 30-36 newport rd. Cardiff, wales, united kingdom. Date of gift: 11/13/17. Amount given: 50,000.”

Form 990-ez, Part I, Line 16 - Other Expenses

“Description: awareness advocacy. Amount: 500. Description: bank charges & fees. Amount: 94. Description: conference costs. Amount: 2,169. Description: donation fees/expenses. Amount: 2,548. Description: insurance. Amount: 650. Description: administrative expenses. Amount: 4,473. Description: office supplies. Amount: 879. Description: fundraining fees. Amount: 552. Total to form 990-ez, line 16: 11,865.”

Raw XML Appendix155 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt042791
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IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt090277
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt12.00
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt00
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt10
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0JULIE WALTERS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1KARIN WELLS-KILPATRICK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2LESLIE HENKEL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3HEATHER FRYMAN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4SUSAN TAYLOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2BOARD SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD CFO/TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4BOARD MEMBER
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt011865
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/ForeignGrantsInd0X
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt050000
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt12669
IRS990EZ/ProhibitedTaxShelterTransInd00
IRS990EZ/RelatedOrganizationCtrlEntInd00
IRS990EZ/SchoolOperatingInd00
IRS990EZ/StatesWhereCopyOfReturnIsFldCd0CA
IRS990EZ/SubjectToProxyTaxInd00
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd00
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
IRS990EZ/TaxImposedUnderIRC4955Amt00
IRS990EZ/TaxReimbursedByOrganizationAmt00
IRS990EZ/TotalExpensesAmt063053
IRS990EZ/TotalProgramServiceExpensesAmt02669
IRS990EZ/TotalRevenueAmt0110539
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0WWW.PCDH19INFO.ORG
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0110539
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt087852
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt096311
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt077084
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt019654
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0391440
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct01.00000
IRS990ScheduleA/PublicSupportTotal170Amt0391440
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0110539
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt087852
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt096311
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt077084
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt019654
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0391440
IRS990ScheduleA/TotalSupportAmt0391440
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: CARDIFF UNIVERSITY . GRANTEE ADDRESS: 30-36 NEWPORT RD. CARDIFF, WALES, UNITED KINGDOM. DATE OF GIFT: 11/13/17. AMOUNT GIVEN: 50,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: AWARENESS ADVOCACY. AMOUNT: 500. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 94. DESCRIPTION: CONFERENCE COSTS. AMOUNT: 2,169. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 2,548. DESCRIPTION: INSURANCE. AMOUNT: 650. DESCRIPTION: ADMINISTRATIVE EXPENSES. AMOUNT: 4,473. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 879. DESCRIPTION: FUNDRAINING FEES. AMOUNT: 552. TOTAL TO FORM 990-EZ, LINE 16: 11,865.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIE WALTERS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0BOARD PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09252096307
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-11-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0PCDH19 ALLIANCE
ReturnHeader/Filer/BusinessNameControlTxt0PCDH
ReturnHeader/Filer/EIN0454020102
ReturnHeader/Filer/PhoneNum09252096307
ReturnHeader/Filer/USAddress/AddressLine1Txt0926 A 212 DIABLO AVE
ReturnHeader/Filer/USAddress/CityNm0NOVATO
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd094945
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId00F7063228C14C046C228EB11DE5AD40CE1BEAA03
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId00F7063228C14C046C228EB11DE5AD40CE1BEAA03
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0104.210.37.10
ReturnHeader/FilingSecurityInformation/IPDt02018-11-14
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0PS
ReturnHeader/FilingSecurityInformation/IPTm015:05:31
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0680232047
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0GHIRARDO CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07200 REDWOOD BLVD SUITE 403
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0NOVATO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094945
ReturnHeader/PreparerPersonGrp/PhoneNum04158975678
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL DOMECUS
ReturnHeader/ReturnTs02018-11-14T17:05:54-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$90,277
Liabilities
$0
Net assets
$90,277
Revenue
$110,539
Expenses
$63,053
Net income
$47,486
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.79$0.00$2.79$2.85$0.48$2.37
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.42$0.00$0.42$0.42$1.08$0.66
2022Detailed filing. Detailed filing data is available for this year.$1.07$0.00$1.07$0.42$0.39$0.03
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.04$0.00$1.04$1.16$1.68$0.52
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.56$0.00$1.56$0.74$0.20$0.54
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.02$0.00$1.02$0.97$0.99$0.02
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.03$0.00$1.03$1.22$1.09$0.13
2017Detailed filing. Detailed filing data is available for this year.$0.90$0.00$0.90$1.11$0.63$0.47
2016Summary only. Only limited summary data is available for this year.$0.43$0.00$0.88$0.85$0.03
2015Summary only. Only limited summary data is available for this year.$0.50$0.10$0.96$1.16$0.20
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2017 filings • 501(c)3 • <$500k nonprofits