Civic Intelligence

Pcdh19 Alliance

990EZ • Fiscal year 2019 • EIN 45-4020102

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 16, 2020

926 A 212 Diablo AveNovato, CA 94945

(925) 209-6307

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

36th percentile

-1.7%

Higher net margin than 36% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

41st percentile

-1.6%

Faster asset growth than 41% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

24th percentile

-20%

Faster revenue growth than 24% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Assets

Down

$101,841

Down $1,633 (-1.6%) from 2018

Net Assets

Down

$101,841

Down $1,633 (-1.6%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue

Down

$97,210

Down $24,807 (-20%) from 2018

Expenses

Down

$98,843

Down $9,977 (-9.2%) from 2018

Net Income

Down

-$1,633

Down $14,830 (-112%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2015: $49,633Liabilities 2015: $10,0002015Assets 2016: $42,791Liabilities 2016: $02016Assets 2017: $90,277Liabilities 2017: $0Net Assets 2017: $90,2772017Assets 2018: $103,474Liabilities 2018: $0Net Assets 2018: $103,4742018Assets 2019: $101,841Liabilities 2019: $0Net Assets 2019: $101,8412019Assets 2020: $156,014Liabilities 2020: $0Net Assets 2020: $156,0142020Assets 2021: $104,051Liabilities 2021: $0Net Assets 2021: $104,0512021Assets 2022: $107,230Liabilities 2022: $0Net Assets 2022: $107,2302022Assets 2023: $41,724Liabilities 2023: $0Net Assets 2023: $41,7242023Assets 2024: $279,203Liabilities 2024: $0Net Assets 2024: $279,2032024

Highlighted filing

2019

Assets$101,841
Liabilities$0
Net Assets$101,841

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2015: $96,311Expenses 2015: $116,422Net Income 2015: -$20,1112015Revenue 2016: $87,852Expenses 2016: $84,694Net Income 2016: $3,1582016Revenue 2017: $110,539Expenses 2017: $63,053Net Income 2017: $47,4862017Revenue 2018: $122,017Expenses 2018: $108,820Net Income 2018: $13,1972018Revenue 2019: $97,210Expenses 2019: $98,843Net Income 2019: -$1,6332019Revenue 2020: $73,830Expenses 2020: $19,657Net Income 2020: $54,1732020Revenue 2021: $115,807Expenses 2021: $167,770Net Income 2021: -$51,9632021Revenue 2022: $41,709Expenses 2022: $38,530Net Income 2022: $3,1792022Revenue 2023: $42,496Expenses 2023: $108,002Net Income 2023: -$65,5062023Revenue 2024: $285,419Expenses 2024: $47,940Net Income 2024: $237,4792024

Highlighted filing

2019

Revenue$97,210
Expenses$98,843
Net Income-$1,633
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 16, 2020
Return Version
2019v5.1
Gross Receipts
$97,210
Mission and Program Overview

Mission

Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

Program Services

DescriptionGrantsExpenses
TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.$74,560$74,560
ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.$0$6,391
PATIENCE ASSISTANCE GRANT TO PURCHASE IPAD$351$351
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
JULIE WALTERSBoard President-$0--
KARIN WELLS-KILPATRICKBoard Vice President-$0--
LESLIE HENKELBoard Secretary-$0--
HEATHER FRYMANBoard CFO/Treasurer-$0--
JENNIFER HENDRIX HOLLANDBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
Pcdh19 Alliance
EIN
45-4020102
Phone
9252096307
Address
926 A 212 DIABLO AVE, NOVATO, CA 94945

Signing Officer

Name
Julie Walters
Title
Board President
Phone
9252096307
Signed
2020-11-16
Discuss with paid preparer
Yes

Preparer

Firm
Ghirardo CPA
Address
7200 REDWOOD BLVD SUITE 403, NOVATO, CA 94945
Preparer
Michael Domecus
Phone
4158975678
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: research grant. Grantee name: the university of adelaide. Grantee address: north terrace campus adelaide, south australia , austria 5005. Date of gift: 11/06/19. Amount given: 74,560.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: patient assistance grant. Grantee name: faith bullis. Date of gift: 08/19/19. Amount given: 351. Total included on form 990-ez, line 10: 74,911.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: awareness advocacy. Amount: 488. Description: bank charges & fees. Amount: 40. Description: conference costs. Amount: 5,903. Description: donation fees/expenses. Amount: 425. Description: insurance. Amount: 1,310. Description: office supplies. Amount: 3,916. Description: fundraining fees. Amount: 77. Description: voulunteer gifts. Amount: 617. Description: compliance assisstance. Amount: 7,941. Total to form 990-ez, line 16: 20,717.

Raw XML Appendix169 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2BOARD SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD CFO/TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4BOARD MEMBER
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IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.
IRS990EZ/PrintingPublicationsPostageAmt00
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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: THE UNIVERSITY OF ADELAIDE. GRANTEE ADDRESS: NORTH TERRACE CAMPUS ADELAIDE, SOUTH AUSTRALIA , AUSTRIA 5005. DATE OF GIFT: 11/06/19. AMOUNT GIVEN: 74,560.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ACTIVITY CLASSIFICATION: PATIENT ASSISTANCE GRANT. GRANTEE NAME: FAITH BULLIS. DATE OF GIFT: 08/19/19. AMOUNT GIVEN: 351. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 74,911.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DESCRIPTION: AWARENESS ADVOCACY. AMOUNT: 488. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 40. DESCRIPTION: CONFERENCE COSTS. AMOUNT: 5,903. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 425. DESCRIPTION: INSURANCE. AMOUNT: 1,310. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 3,916. DESCRIPTION: FUNDRAINING FEES. AMOUNT: 77. DESCRIPTION: VOULUNTEER GIFTS. AMOUNT: 617. DESCRIPTION: COMPLIANCE ASSISSTANCE. AMOUNT: 7,941. TOTAL TO FORM 990-EZ, LINE 16: 20,717.
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
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ReturnHeader/FilingSecurityInformation/IPTm011:21:38
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ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL DOMECUS
ReturnHeader/ReturnTs02020-11-16T16:40:57-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

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Filings