Liabilities / Assets
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
4th percentile
Higher net margin than 4% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
8th percentile
Faster asset growth than 8% of similar nonprofits.
Revenue Growth
47th percentile
Faster revenue growth than 47% of similar nonprofits.
Assets
Down$41,724
Down $65,506 (-61%) from 2022
Net Assets
Down$41,724
Down $65,506 (-61%) from 2022
Liabilities
Flat$0
Flat from 2022
Revenue
Up$42,496
Up $787 (+1.9%) from 2022
Expenses
Up$108,002
Up $69,472 (+180%) from 2022
Net Income
Down-$65,506
Down $68,685 (-2161%) from 2022
Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.
| Description | Grants | Expenses |
|---|---|---|
| TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY. | $68,000 | $68,000 |
| ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES. | $0 | $514 |
| PROVIDED INFORMATION AND SUPPORT TO NEWLY DIAGNOSED FAMILIES. | $0 | $320 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| JULIE WALTERS | Board President | - | $0 | - | - |
| KARIN WELLS-KILPATRICK | Board Vice President | - | $0 | - | - |
| JENNIFER HENDRIX HOLLAND | Board Secretary | - | $0 | - | - |
| HEATHER FRYMAN | Board Member | - | $0 | - | - |
| CHRISTINE ROLLINS | Treasurer | - | $0 | - | - |
“Activity classification: research grant. Grantee name: irccs bambino gesu pediatric hospital. Grantee address: piazza s. Onofrio rome, rome, italy 4-00165. Date of gift: 04/14/23. Amount given: 68,000.”
“Description: conference costs. Amount: 514. Description: legal & professional services. Amount: 21,290. Description: office supplies. Amount: 7,246. Description: donation fees/expenses. Amount: 2,165. Description: insurance. Amount: 1,310. Description: bank charges & fees. Amount: 86. Description: taxes & licenses. Amount: 7,391. Total to form 990-ez, line 16: 40,002.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990EZ/ActivitiesNotPreviouslyRptInd | 0 | 0 |
| IRS990EZ/BooksInCareOfDetail/PersonNm | 0 | NANCY HROMALIK |
| IRS990EZ/BooksInCareOfDetail/PhoneNum | 0 | 4155994637 |
| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 7200 REDWOOD BLVD SUITE 403 |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | NOVATO |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94945 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt | 0 | 107230 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 41724 |
| IRS990EZ/ChgMadeToOrgnzngDocNotRptInd | 0 | 0 |
| IRS990EZ/ContributionsGiftsGrantsEtcAmt | 0 | 42496 |
| IRS990EZ/DirectIndirectPltclExpendAmt | 0 | 0 |
| IRS990EZ/DonorAdvisedFndsInd | 0 | 0 |
| IRS990EZ/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990EZ/ExcessOrDeficitForYearAmt | 0 | -65506 |
| IRS990EZ/FiledScheduleAInd | 0 | 1 |
| IRS990EZ/ForeignFinancialAccountInd | 0 | 0 |
| IRS990EZ/ForeignOfficeInd | 0 | 0 |
| IRS990EZ/Form990TotalAssetsGrp/BOYAmt | 0 | 107230 |
| IRS990EZ/Form990TotalAssetsGrp/EOYAmt | 0 | 41724 |
| IRS990EZ/GrantsAndSimilarAmountsPaidAmt | 0 | 68000 |
| IRS990EZ/GrossReceiptsAmt | 0 | 42496 |
| IRS990EZ/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartVInd | 0 | X |
| IRS990EZ/LobbyingActivitiesInd | 0 | 0 |
| IRS990EZ/MadeLoansToFromOfficersInd | 0 | 0 |
| IRS990EZ/MethodOfAccountingCashInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 107230 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 41724 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt | 0 | 107230 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt | 0 | 41724 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 0 | 3.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 1 | 2.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 2 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 3 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 4 | 1.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | JULIE WALTERS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | KARIN WELLS-KILPATRICK |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | JENNIFER HENDRIX HOLLAND |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | HEATHER FRYMAN |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | CHRISTINE ROLLINS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | BOARD PRESIDENT |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | BOARD VICE PRESIDENT |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | BOARD SECRETARY |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | TREASURER |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 40002 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | PROVIDED INFORMATION AND SUPPORT TO NEWLY DIAGNOSED FAMILIES. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ForeignGrantsInd | 0 | X |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 1 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 2 | 68000 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 514 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 320 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 2 | 68000 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 108002 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 68834 |
| IRS990EZ/TotalRevenueAmt | 0 | 42496 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | WWW.PCDH19INFO.ORG |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 42496 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 41709 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 110807 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 73830 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 97210 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 366052 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 5000 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 366052 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 42496 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 41709 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 110807 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 73830 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 97210 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 366052 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 366052 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: IRCCS BAMBINO GESU PEDIATRIC HOSPITAL. GRANTEE ADDRESS: PIAZZA S. ONOFRIO ROME, ROME, ITALY 4-00165. DATE OF GIFT: 04/14/23. AMOUNT GIVEN: 68,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | DESCRIPTION: CONFERENCE COSTS. AMOUNT: 514. DESCRIPTION: LEGAL & PROFESSIONAL SERVICES. AMOUNT: 21,290. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 7,246. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 2,165. DESCRIPTION: INSURANCE. AMOUNT: 1,310. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 86. DESCRIPTION: TAXES & LICENSES. AMOUNT: 7,391. TOTAL TO FORM 990-EZ, LINE 16: 40,002. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 2 |
| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JULIE WALTERS |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | BOARD PRESIDENT |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 9252096307 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2024-05-31 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | PCDH19 ALLIANCE |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PCDH |
| ReturnHeader/Filer/EIN | 0 | 454020102 |
| ReturnHeader/Filer/PhoneNum | 0 | 9252096307 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 926 A 212 DIABLO AVE |
| ReturnHeader/Filer/USAddress/CityNm | 0 | NOVATO |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 94945 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 680232047 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | GHIRARDO CPA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 7200 REDWOOD BLVD SUITE 403 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | NOVATO |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 94945 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4158975678 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | MICHAEL DOMECUS |
| ReturnHeader/ReturnTs | 0 | 2024-05-31T14:38:03-05:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | JULIE |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | WALTERS |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2023-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2023-12-31 |
| ReturnHeader/TaxYr | 0 | 2023 |
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Displayed year
2023 • Form 990EZDetailed filing. Detailed filing data is available for this year.