Civic Intelligence

Pcdh19 Alliance

990EZ • Fiscal year 2023 • EIN 45-4020102

Jan 01, 2023 to Dec 31, 2023 • Filed on May 31, 2024

926 A 212 Diablo AveNovato, CA 94945

(925) 209-6307

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

4th percentile

-154%

Higher net margin than 4% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

8th percentile

-61%

Faster asset growth than 8% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

47th percentile

1.9%

Faster revenue growth than 47% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Assets

Down

$41,724

Down $65,506 (-61%) from 2022

Net Assets

Down

$41,724

Down $65,506 (-61%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue

Up

$42,496

Up $787 (+1.9%) from 2022

Expenses

Up

$108,002

Up $69,472 (+180%) from 2022

Net Income

Down

-$65,506

Down $68,685 (-2161%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2015: $49,633Liabilities 2015: $10,0002015Assets 2016: $42,791Liabilities 2016: $02016Assets 2017: $90,277Liabilities 2017: $0Net Assets 2017: $90,2772017Assets 2018: $103,474Liabilities 2018: $0Net Assets 2018: $103,4742018Assets 2019: $101,841Liabilities 2019: $0Net Assets 2019: $101,8412019Assets 2020: $156,014Liabilities 2020: $0Net Assets 2020: $156,0142020Assets 2021: $104,051Liabilities 2021: $0Net Assets 2021: $104,0512021Assets 2022: $107,230Liabilities 2022: $0Net Assets 2022: $107,2302022Assets 2023: $41,724Liabilities 2023: $0Net Assets 2023: $41,7242023Assets 2024: $279,203Liabilities 2024: $0Net Assets 2024: $279,2032024

Highlighted filing

2023

Assets$41,724
Liabilities$0
Net Assets$41,724

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2015: $96,311Expenses 2015: $116,422Net Income 2015: -$20,1112015Revenue 2016: $87,852Expenses 2016: $84,694Net Income 2016: $3,1582016Revenue 2017: $110,539Expenses 2017: $63,053Net Income 2017: $47,4862017Revenue 2018: $122,017Expenses 2018: $108,820Net Income 2018: $13,1972018Revenue 2019: $97,210Expenses 2019: $98,843Net Income 2019: -$1,6332019Revenue 2020: $73,830Expenses 2020: $19,657Net Income 2020: $54,1732020Revenue 2021: $115,807Expenses 2021: $167,770Net Income 2021: -$51,9632021Revenue 2022: $41,709Expenses 2022: $38,530Net Income 2022: $3,1792022Revenue 2023: $42,496Expenses 2023: $108,002Net Income 2023: -$65,5062023Revenue 2024: $285,419Expenses 2024: $47,940Net Income 2024: $237,4792024

Highlighted filing

2023

Revenue$42,496
Expenses$108,002
Net Income-$65,506
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
May 31, 2024
Return Version
2023v5.0
Gross Receipts
$42,496
Mission and Program Overview

Mission

Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

Program Services

DescriptionGrantsExpenses
TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.$68,000$68,000
ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.$0$514
PROVIDED INFORMATION AND SUPPORT TO NEWLY DIAGNOSED FAMILIES.$0$320
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
JULIE WALTERSBoard President-$0--
KARIN WELLS-KILPATRICKBoard Vice President-$0--
JENNIFER HENDRIX HOLLANDBoard Secretary-$0--
HEATHER FRYMANBoard Member-$0--
CHRISTINE ROLLINSTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Pcdh19 Alliance
EIN
45-4020102
Phone
9252096307
Address
926 A 212 DIABLO AVE, NOVATO, CA 94945

Signing Officer

Name
Julie Walters
Title
Board President
Phone
9252096307
Signed
2024-05-31
Discuss with paid preparer
Yes

Preparer

Firm
Ghirardo CPA
Address
7200 REDWOOD BLVD SUITE 403, NOVATO, CA 94945
Preparer
Michael Domecus
Phone
4158975678
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: research grant. Grantee name: irccs bambino gesu pediatric hospital. Grantee address: piazza s. Onofrio rome, rome, italy 4-00165. Date of gift: 04/14/23. Amount given: 68,000.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: conference costs. Amount: 514. Description: legal & professional services. Amount: 21,290. Description: office supplies. Amount: 7,246. Description: donation fees/expenses. Amount: 2,165. Description: insurance. Amount: 1,310. Description: bank charges & fees. Amount: 86. Description: taxes & licenses. Amount: 7,391. Total to form 990-ez, line 16: 40,002.

Raw XML Appendix167 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0JULIE WALTERS
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2JENNIFER HENDRIX HOLLAND
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3HEATHER FRYMAN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4CHRISTINE ROLLINS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2BOARD SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4TREASURER
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt040002
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.
IRS990EZ/PrintingPublicationsPostageAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1PROVIDED INFORMATION AND SUPPORT TO NEWLY DIAGNOSED FAMILIES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.
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IRS990EZ/ProhibitedTaxShelterTransInd00
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IRS990EZ/TotalRevenueAmt042496
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0110807
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IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0366052
IRS990ScheduleA/TotalSupportAmt0366052
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: IRCCS BAMBINO GESU PEDIATRIC HOSPITAL. GRANTEE ADDRESS: PIAZZA S. ONOFRIO ROME, ROME, ITALY 4-00165. DATE OF GIFT: 04/14/23. AMOUNT GIVEN: 68,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: CONFERENCE COSTS. AMOUNT: 514. DESCRIPTION: LEGAL & PROFESSIONAL SERVICES. AMOUNT: 21,290. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 7,246. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 2,165. DESCRIPTION: INSURANCE. AMOUNT: 1,310. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 86. DESCRIPTION: TAXES & LICENSES. AMOUNT: 7,391. TOTAL TO FORM 990-EZ, LINE 16: 40,002.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIE WALTERS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0BOARD PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09252096307
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-05-31
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0PCDH19 ALLIANCE
ReturnHeader/Filer/BusinessNameControlTxt0PCDH
ReturnHeader/Filer/EIN0454020102
ReturnHeader/Filer/PhoneNum09252096307
ReturnHeader/Filer/USAddress/AddressLine1Txt0926 A 212 DIABLO AVE
ReturnHeader/Filer/USAddress/CityNm0NOVATO
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd094945
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0680232047
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0GHIRARDO CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07200 REDWOOD BLVD SUITE 403
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0NOVATO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094945
ReturnHeader/PreparerPersonGrp/PhoneNum04158975678
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL DOMECUS
ReturnHeader/ReturnTs02024-05-31T14:38:03-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0JULIE
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0WALTERS
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

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