Civic Intelligence

Pcdh19 Alliance

990EZ • Fiscal year 2022 • EIN 45-4020102

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 16, 2023

926 A 212 Diablo AveNovato, CA 94945

(925) 209-6307

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

55th percentile

7.6%

Higher net margin than 55% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

53rd percentile

3.1%

Faster asset growth than 53% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

8th percentile

-64%

Faster revenue growth than 8% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Assets

Up

$107,230

Up $3,179 (+3.1%) from 2021

Net Assets

Up

$107,230

Up $3,179 (+3.1%) from 2021

Liabilities

Flat

$0

Flat from 2021

Revenue

Down

$41,709

Down $74,098 (-64%) from 2021

Expenses

Down

$38,530

Down $129,240 (-77%) from 2021

Net Income

Up

$3,179

Up $55,142 (+106%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2015: $49,633Liabilities 2015: $10,0002015Assets 2016: $42,791Liabilities 2016: $02016Assets 2017: $90,277Liabilities 2017: $0Net Assets 2017: $90,2772017Assets 2018: $103,474Liabilities 2018: $0Net Assets 2018: $103,4742018Assets 2019: $101,841Liabilities 2019: $0Net Assets 2019: $101,8412019Assets 2020: $156,014Liabilities 2020: $0Net Assets 2020: $156,0142020Assets 2021: $104,051Liabilities 2021: $0Net Assets 2021: $104,0512021Assets 2022: $107,230Liabilities 2022: $0Net Assets 2022: $107,2302022Assets 2023: $41,724Liabilities 2023: $0Net Assets 2023: $41,7242023Assets 2024: $279,203Liabilities 2024: $0Net Assets 2024: $279,2032024

Highlighted filing

2022

Assets$107,230
Liabilities$0
Net Assets$107,230

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2015: $96,311Expenses 2015: $116,422Net Income 2015: -$20,1112015Revenue 2016: $87,852Expenses 2016: $84,694Net Income 2016: $3,1582016Revenue 2017: $110,539Expenses 2017: $63,053Net Income 2017: $47,4862017Revenue 2018: $122,017Expenses 2018: $108,820Net Income 2018: $13,1972018Revenue 2019: $97,210Expenses 2019: $98,843Net Income 2019: -$1,6332019Revenue 2020: $73,830Expenses 2020: $19,657Net Income 2020: $54,1732020Revenue 2021: $115,807Expenses 2021: $167,770Net Income 2021: -$51,9632021Revenue 2022: $41,709Expenses 2022: $38,530Net Income 2022: $3,1792022Revenue 2023: $42,496Expenses 2023: $108,002Net Income 2023: -$65,5062023Revenue 2024: $285,419Expenses 2024: $47,940Net Income 2024: $237,4792024

Highlighted filing

2022

Revenue$41,709
Expenses$38,530
Net Income$3,179
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 16, 2023
Return Version
2022v5.0
Gross Receipts
$41,709
Mission and Program Overview

Mission

Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

Program Services

DescriptionGrantsExpenses
ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEASRCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESESARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.$0$6,321
PROVIDED INFORMATION AND SUPPORT TO 20 NEWLY DIAGNOSED FAMILIES.$0$2,081
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
JULIE WALTERSBoard President-$0--
KARIN WELLS-KILPATRICKBoard Vice President-$0--
LESLIE HENKELBoard Secretary-$0--
HEATHER FRYMANBoard Member-$0--
JENNIFER HENDRIX HOLLANDBoard Member-$0--
CHRISTINE ROLLINSBoard CFO/Treasurer-$0--
Filing and Contact Details

Filer

Filer Name
Pcdh19 Alliance
EIN
45-4020102
Phone
9252096307
Address
926 A 212 DIABLO AVE, NOVATO, CA 94945

Signing Officer

Name
Julie Walters
Title
Board President
Phone
9252096307
Signed
2023-11-16
Discuss with paid preparer
Yes

Preparer

Firm
Ghirardo CPA
Address
7200 REDWOOD BLVD SUITE 403, NOVATO, CA 94945
Preparer
Michael Domecus
Phone
4158975678
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16 - Other Expenses

Description: conference costs . Amount: 6,321. Description: legal & professional services . Amount: 9,812. Description: office supplies . Amount: 3,950. Description: donation fees/expenses . Amount: 1,086. Description: insurance . Amount: 1,310. Description: bank charges & fees . Amount: 85. Description: advertising . Amount: 1,557. Description: taxes & licenses . Amount: 12,541. Description: educational resources . Amount: 1,624. Total to form 990-ez, line 16: 38,286.

Raw XML Appendix167 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0JULIE WALTERS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1KARIN WELLS-KILPATRICK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2LESLIE HENKEL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3HEATHER FRYMAN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4JENNIFER HENDRIX HOLLAND
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm5CHRISTINE ROLLINS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2BOARD SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4BOARD MEMBER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5BOARD CFO/TREASURER
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt038286
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.
IRS990EZ/PrintingPublicationsPostageAmt0244
IRS990EZ/ProgramServiceRevenueAmt00
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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1PROVIDED INFORMATION AND SUPPORT TO 20 NEWLY DIAGNOSED FAMILIES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt06321
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt12081
IRS990EZ/ProhibitedTaxShelterTransInd00
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IRS990EZ/SchoolOperatingInd00
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IRS990EZ/TanningServicesProvidedInd00
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IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
IRS990EZ/TaxImposedUnderIRC4955Amt00
IRS990EZ/TaxReimbursedByOrganizationAmt00
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IRS990EZ/TotalProgramServiceExpensesAmt08402
IRS990EZ/TotalRevenueAmt041709
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0WWW.PCDH19INFO.ORG
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt041709
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt073830
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt097210
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0122017
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IRS990ScheduleA/PublicOrganization170Ind0X
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0122017
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0445573
IRS990ScheduleA/TotalSupportAmt0445573
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0DESCRIPTION: CONFERENCE COSTS . AMOUNT: 6,321. DESCRIPTION: LEGAL & PROFESSIONAL SERVICES . AMOUNT: 9,812. DESCRIPTION: OFFICE SUPPLIES . AMOUNT: 3,950. DESCRIPTION: DONATION FEES/EXPENSES . AMOUNT: 1,086. DESCRIPTION: INSURANCE . AMOUNT: 1,310. DESCRIPTION: BANK CHARGES & FEES . AMOUNT: 85. DESCRIPTION: ADVERTISING . AMOUNT: 1,557. DESCRIPTION: TAXES & LICENSES . AMOUNT: 12,541. DESCRIPTION: EDUCATIONAL RESOURCES . AMOUNT: 1,624. TOTAL TO FORM 990-EZ, LINE 16: 38,286.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIE WALTERS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0BOARD PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09252096307
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-11-16
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ReturnHeader/Filer/EIN0454020102
ReturnHeader/Filer/PhoneNum09252096307
ReturnHeader/Filer/USAddress/AddressLine1Txt0926 A 212 DIABLO AVE
ReturnHeader/Filer/USAddress/CityNm0NOVATO
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd094945
ReturnHeader/IRSResponsiblePrtyInfoCurrInd00
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0680232047
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0GHIRARDO CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07200 REDWOOD BLVD SUITE 403
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0NOVATO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094945
ReturnHeader/PreparerPersonGrp/PhoneNum04158975678
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL DOMECUS
ReturnHeader/ReturnTs02023-11-16T17:54:14-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0JULIE
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0WALTERS
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

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Filings