Civic Intelligence

Pcdh19 Alliance

990EZ • Fiscal year 2018 • EIN 45-4020102

Jan 01, 2018 to Dec 31, 2018 • Filed on Nov 13, 2019

926 A 212 Diablo AveNovato, CA 94945

(925) 209-6307

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Net Margin

65th percentile

11%

Higher net margin than 65% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Asset Growth

68th percentile

15%

Faster asset growth than 68% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Revenue Growth

63rd percentile

10%

Faster revenue growth than 63% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Assets

Up

$103,474

Up $13,197 (+15%) from 2017

Net Assets

Up

$103,474

Up $13,197 (+15%) from 2017

Liabilities

Flat

$0

Flat from 2017

Revenue

Up

$122,017

Up $11,478 (+10%) from 2017

Expenses

Up

$108,820

Up $45,767 (+73%) from 2017

Net Income

Down

$13,197

Down $34,289 (-72%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2015: $49,633Liabilities 2015: $10,0002015Assets 2016: $42,791Liabilities 2016: $02016Assets 2017: $90,277Liabilities 2017: $0Net Assets 2017: $90,2772017Assets 2018: $103,474Liabilities 2018: $0Net Assets 2018: $103,4742018Assets 2019: $101,841Liabilities 2019: $0Net Assets 2019: $101,8412019Assets 2020: $156,014Liabilities 2020: $0Net Assets 2020: $156,0142020Assets 2021: $104,051Liabilities 2021: $0Net Assets 2021: $104,0512021Assets 2022: $107,230Liabilities 2022: $0Net Assets 2022: $107,2302022Assets 2023: $41,724Liabilities 2023: $0Net Assets 2023: $41,7242023Assets 2024: $279,203Liabilities 2024: $0Net Assets 2024: $279,2032024

Highlighted filing

2018

Assets$103,474
Liabilities$0
Net Assets$103,474

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KRevenue 2015: $96,311Expenses 2015: $116,422Net Income 2015: -$20,1112015Revenue 2016: $87,852Expenses 2016: $84,694Net Income 2016: $3,1582016Revenue 2017: $110,539Expenses 2017: $63,053Net Income 2017: $47,4862017Revenue 2018: $122,017Expenses 2018: $108,820Net Income 2018: $13,1972018Revenue 2019: $97,210Expenses 2019: $98,843Net Income 2019: -$1,6332019Revenue 2020: $73,830Expenses 2020: $19,657Net Income 2020: $54,1732020Revenue 2021: $115,807Expenses 2021: $167,770Net Income 2021: -$51,9632021Revenue 2022: $41,709Expenses 2022: $38,530Net Income 2022: $3,1792022Revenue 2023: $42,496Expenses 2023: $108,002Net Income 2023: -$65,5062023Revenue 2024: $285,419Expenses 2024: $47,940Net Income 2024: $237,4792024

Highlighted filing

2018

Revenue$122,017
Expenses$108,820
Net Income$13,197
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 13, 2019
Return Version
2018v3.1
Gross Receipts
$122,017
Mission and Program Overview

Mission

Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

Program Services

DescriptionGrantsExpenses
TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.$75,000$75,000
ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.$0$8,975
PATIENT ASSISTANCE GRANTS TO TRAVEL TO THE AMERICAN EPILEPSY SOCIETY CONFERENCE$6,918$6,918
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
JULIE WALTERSBoard President-$0--
KARIN WELLS-KILPATRICKBoard Vice President-$0--
LESLIE HENKELBoard Secretary-$0--
HEATHER FRYMANBoard CFO/Treasurer-$0--
JENNIFER HENDRIX HOLLANDBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
Pcdh19 Alliance
EIN
45-4020102
Phone
9252096307
Address
926 A 212 DIABLO AVE, NOVATO, CA 94945

Signing Officer

Name
Julie Walters
Title
Board President
Phone
9252096307
Signed
2019-11-13
Discuss with paid preparer
Yes

Preparer

Firm
Ghirardo CPA
Address
7200 REDWOOD BLVD SUITE 403, NOVATO, CA 94945
Preparer
Michael Domecus
Phone
4158975678
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: research grant. Grantee name: regents of university of michigan. Grantee address: 503 thompson st ann arbor , mi 48109. Date of gift: 10/31/18. Amount given: 75,000.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: travel grant. Grantee name: maggie lucchini. Date of gift: 03/19/18. Amount given: 409.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: travel grant. Grantee name: sara green otero . Date of gift: 03/21/18. Amount given: 1,956.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: travel grant. Grantee name: hillari pendergraft. Date of gift: 03/21/18. Amount given: 756.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: travel grant. Grantee name: brenda lentz. Date of gift: 03/23/18. Amount given: 1,797.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: travel grant. Grantee name: kathryn waddington. Date of gift: 05/08/18. Amount given: 2,000. Total included on form 990-ez, line 10: 81,918.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: awareness advocacy. Amount: 243. Description: bank charges & fees. Amount: 64. Description: conference costs. Amount: 8,731. Description: donation fees/expenses. Amount: 799. Description: insurance. Amount: 1,313. Description: advertising & promotional . Amount: 435. Description: office supplies. Amount: 3,265. Description: fundraining fees. Amount: 160. Description: state registrations. Amount: 164. Description: pag-bear program expenses. Amount: 1,584. Description: penalties. Amount: 50. Description: compliance assisstance . Amount: 8,143. Total to form 990-ez, line 16: 24,951.

Raw XML Appendix177 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0JULIE WALTERS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1KARIN WELLS-KILPATRICK
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3HEATHER FRYMAN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4JENNIFER HENDRIX HOLLAND
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0BOARD PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD VICE PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2BOARD SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3BOARD CFO/TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4BOARD MEMBER
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IRS990EZ/OtherExpensesTotalAmt024951
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
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IRS990EZ/PrimaryExemptPurposeTxt0OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.
IRS990EZ/PrintingPublicationsPostageAmt026
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1ATTENDED THE AMERICAN EPILEPSY SOCIETY CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2PATIENT ASSISTANCE GRANTS TO TRAVEL TO THE AMERICAN EPILEPSY SOCIETY CONFERENCE
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt075000
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt26918
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt075000
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt18975
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt26918
IRS990EZ/ProhibitedTaxShelterTransInd00
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IRS990ScheduleA/TotalSupportAmt0493803
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: REGENTS OF UNIVERSITY OF MICHIGAN. GRANTEE ADDRESS: 503 THOMPSON ST ANN ARBOR , MI 48109. DATE OF GIFT: 10/31/18. AMOUNT GIVEN: 75,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ACTIVITY CLASSIFICATION: TRAVEL GRANT. GRANTEE NAME: MAGGIE LUCCHINI. DATE OF GIFT: 03/19/18. AMOUNT GIVEN: 409.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ACTIVITY CLASSIFICATION: TRAVEL GRANT. GRANTEE NAME: SARA GREEN OTERO . DATE OF GIFT: 03/21/18. AMOUNT GIVEN: 1,956.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3ACTIVITY CLASSIFICATION: TRAVEL GRANT. GRANTEE NAME: HILLARI PENDERGRAFT. DATE OF GIFT: 03/21/18. AMOUNT GIVEN: 756.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ACTIVITY CLASSIFICATION: TRAVEL GRANT. GRANTEE NAME: BRENDA LENTZ. DATE OF GIFT: 03/23/18. AMOUNT GIVEN: 1,797.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5ACTIVITY CLASSIFICATION: TRAVEL GRANT. GRANTEE NAME: KATHRYN WADDINGTON. DATE OF GIFT: 05/08/18. AMOUNT GIVEN: 2,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 81,918.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6DESCRIPTION: AWARENESS ADVOCACY. AMOUNT: 243. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 64. DESCRIPTION: CONFERENCE COSTS. AMOUNT: 8,731. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 799. DESCRIPTION: INSURANCE. AMOUNT: 1,313. DESCRIPTION: ADVERTISING & PROMOTIONAL . AMOUNT: 435. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 3,265. DESCRIPTION: FUNDRAINING FEES. AMOUNT: 160. DESCRIPTION: STATE REGISTRATIONS. AMOUNT: 164. DESCRIPTION: PAG-BEAR PROGRAM EXPENSES. AMOUNT: 1,584. DESCRIPTION: PENALTIES. AMOUNT: 50. DESCRIPTION: COMPLIANCE ASSISSTANCE . AMOUNT: 8,143. TOTAL TO FORM 990-EZ, LINE 16: 24,951.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02020-03-31 21:24:44Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0JULIE WALTERS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0BOARD PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09252096307
ReturnHeader/BusinessOfficerGrp/SignatureDt02019-11-13
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ReturnHeader/FilingSecurityInformation/IPDt02019-11-13
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ReturnHeader/FilingSecurityInformation/IPTm013:00:54
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0680232047
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0GHIRARDO CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07200 REDWOOD BLVD SUITE 403
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0NOVATO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094945
ReturnHeader/PreparerPersonGrp/PhoneNum04158975678
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL DOMECUS
ReturnHeader/ReturnTs02019-11-14T11:56:11-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02018-01-01
ReturnHeader/TaxPeriodEndDt02018-12-31
ReturnHeader/TaxYr02018

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