Civic Intelligence

Global Genes

990 • Fiscal year 2023 • EIN 26-3331487

Jan 01, 2023 to Dec 31, 2023 • Filed on Sep 23, 2024

1012 14th Street NW Suite 500Washington, DC 20005

(949) 248-7273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

89th percentile

0.78x

Higher debt load relative to assets than 89% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

52nd percentile

0.19x

Higher debt load relative to revenue than 52% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

35th percentile

-1.1%

Higher net margin than 35% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

90th percentile

$322,617

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 3.8% of source-year revenue.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Asset Growth

11th percentile

-8.5%

Faster asset growth than 11% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

86th percentile

52%

Faster revenue growth than 86% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Assets

Down

$2,099,140

Down $195,322 (-8.5%) from 2022

Net Assets

Down

$457,737

Down $83,521 (-15%) from 2022

Liabilities

Down

$1,641,403

Down $111,801 (-6.4%) from 2022

Revenue

Up

$8,469,402

Up $2,911,967 (+52%) from 2022

Expenses

Up

$8,561,859

Up $861,670 (+11%) from 2022

Net Income

Up

-$92,457

Up $2,050,297 (+96%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2023

Assets$2,099,140
Liabilities$1,641,403
Net Assets$457,737

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2023

Revenue$8,469,402
Expenses$8,561,859
Net Income-$92,457
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Sep 23, 2024
Return Version
2023v5.1
Gross Receipts
$8,469,402
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Global genes strives to connect, empower and inspire the rare disease community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$945,899$1,157,502▲ $211,603
Accounts Receivable$160,977$466,406▲ $305,429
Pledges and Grants Receivable$372,750--
Savings and Temporary Cash Investments$425,887$251,643▼ $174,244
Prepaid Expenses and Deferred Charges$332,882$194,808▼ $138,074
Land, Buildings, and Equipment, Net$2,525$0▼ $2,525
Total Assets$2,294,462$2,099,140▼ $195,322
Other Assets Total$53,542$28,781▼ $24,761
Liabilities
Accounts Payable and Accrued Expenses$1,228,794$804,996▼ $423,798
Deferred Revenue$473,927$645,000▲ $171,073
Other Liabilities$50,483$191,407▲ $140,924
Total Liabilities$1,753,204$1,641,403▼ $111,801
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$541,258$457,737▼ $83,521
Total Net Assets Fund Balance$541,258$457,737▼ $83,521
Total Liabilities and Net Assets / Fund Balance$2,294,462$2,099,140▼ $195,322

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$204,339$204,339
Other Land Buildings$0$3,196$3,196
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Charlene RigbyCEOFT$322,542$75$322,617
Nicole R BoiceFounder & Chief Mission OfficerFT$257,792$72$257,864
Timothy R EhrhardSenior Director, ItFT$170,000$78$170,078
Karmen TrzupekSenior Director, Scientific ProgramsFT$162,097$6,378$168,475
Lauren AlfordSenior Director, Marketing CommunicationFT$165,000$78$165,078
Lauren AlfordSenior Director, Marketing Communica-$165,000$78$165,078
Maria Della RoccaSenior Director, Support & EducationFT$160,779$72$160,851
Vanessa Vogel-farleySenior Director, Research Data Analytics & GovernaFT$160,000$72$160,072
Vanessa Vogel-farleySenior Director, Research Data Analy-$160,000$72$160,072
Victoria WeissSenior Director, FinancePT$124,450-$124,450

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Assured SpcConsulting Services4211 SW CHESAPEAK AVE, Portland, OR 97239$197,420
Adjuvant Partners LLCConsulting Services1340 SMITH AVENUE SUITE 200, Baltimore, MD 21209$180,000
Levine Media GroupEditorial Services21 KINGSTON ROAD, Kensington, CA 94707$158,000
Msg Consulting Group LLCConsulting Services838 DARLINGTON AVENUE, Mahwah, NJ 07430$155,588
Revenue and Support

Revenue Composition

Contributions and Grants
$6,410,826
Program Service Revenue
$2,055,089
Investment Income
$3,487
Other Revenue
$0
All Other Contributions
$6,410,826
Change in Net Assets
$-92,457

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,469,402
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$8,936
Total Revenue per Audited Statements
$8,478,338
Total Revenue per Form 990
$8,469,402
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$4,277,732
Other Expenses$4,009,247
Total Fundraising Expense$441,938
Grants and Similar Amounts Paid$274,880
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,621,058$429,934$116,916$3,167,908
Conferences and Meetings$932,847--$932,847
Current Officers, Directors, Trustees, and Key Employees$422,958$70,493$211,479$704,930
Information Technology$561,715$109,321$11,523$682,559
Payroll Taxes$241,992$40,949$35,025$317,966
Grants to Domestic Orgs$274,880--$274,880
All Other Expenses$159,104$49,710$7,039$215,853
Travel$142,298$6,132$5,584$154,014
Fees for Services Accounting$2,679$97,188-$99,867
Other Expenses$49,550$48,952$1,363$99,865
Other Employee Benefits$67,897$11,491$7,540$86,928
Fees for Services Legal$60,125$11,690-$71,815
Occupancy$36,899$12,299-$49,198
Insurance$13,847$7,415$2,004$23,266
Office Expenses$14,033$3,967-$18,000
Depreciation Depletion-$2,525-$2,525
Total Functional Expenses$6,822,737$1,297,184$441,938$8,561,859

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$8,561,859
Total Expenses per Audited Statements$8,561,859
Total Expenses per Form 990$8,561,859
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Angelman Syndrome FoundationAurora, IL501(c)(3)Mental Health Grant$15,000
Beautiful You Mrkh Foundation IncSilver Spring, MD501(c)(3)Mental Health Grant$15,000
Dreamsickle Kids FoundationincVegas, NV501(c)(3)Mental Health Grant$15,000
Ecd Global AllianceDeridder, LA501(c)(3)Mental Health Grant$15,000
LYMPHANGIOMATOSIS & GORHAM'S DISEASE ALLIANCEBoca Raton, FL501(c)(3)Mental Health Grant$15,000
Our OdysseySaddle Brook, NJ501(c)(3)Mental Health Grant$15,000
Phelan-mcdermid Syndrome FoundationOsprey, FL501(c)(3)Mental Health Grant$15,000
The Marfan FoundationPort Washington, NY501(c)(3)Fair Grant$15,000
Usher Syndrome CoalitionWestford, ME501(c)(3)Mental Health Grant$15,000
The Cute Syndrome FoundationTroy, NY501(c)(3)Mental Health Grant$14,973
New England Hemophilia AssociationDedham, MA501(c)(3)Mental Health Grant$14,179
Alliance to Cure Cavernous MalformationCharlottesville, VA501(c)(3)Health Equity Grant$8,600
Hereditary Neuropathy FoundationNew York, NY501(c)(3)Fair Grant$8,600
Immune Deficiency FoundationHanover, MD501(c)(3)Health Equity Grant$8,600
Nr2f1 FoundationRoyal Oak, MI501(c)(3)Health Equity Grant$8,600
Team TelomereCoeur D Alene, ID501(c)(3)Health Equity Grant$8,600
The Runx1 Research ProgramSanta Barbara, CA501(c)(3)Health Equity Grant$8,600
Charcot-marie-tooth AssociationGlenolden, PW501(c)(3)Meet-ups Grant$5,100
Coffin-siris Syndrome FoundationKirkland, WA501(c)(3)Fair Grant$5,100
National Ataxia FoundationMinneapolis, MN501(c)(3)Meet-ups Grant$5,100
Nec SocietyDavis, CA501(c)(3)Meet-ups Grant$5,100
Yellow Brick Road ProjectNew York City, NY501(c)(3)Meet-ups Grant$5,100

International Summary

Offices
0
Employees
0
Spending
$49,830

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Sub-saharan AfricaGrants to Recipients---$19,000
North AmericaGrants to Recipients---$15,600
Europe (including Iceland & Greenland)Grants to Recipients---$11,230
South AsiaGrants to Recipients---$2,500
East Asia and the PacificGrants to Recipients---$1,500
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Compensation$165,700
Long Term Operating Lease Liabilities$25,707
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

The finance & audit committee has authority to choose auditor and review and approve audited financials.

Form 990, Part VI, Section A, Line 2

Tim o'connor/npss corporation - husband of mary k. O'connor, employee ray soto/npss corporation - ex-husband of kristin soto, employee

Form 990, Part VI, Section A, Line 4

On december 30, 2022, global genes and rare-x merged. The surviving organization is global genes. Rare-x provided a collaborative platform for global data sharing and analysis to accelerate treatments for rare disease. With the merger, global genes seeks to further its charitable mission of empowering next-generation advocates to drive progress within and across rare diseases, providing rare disease advocates with a continuum of services, resources and connections to accelerate the path from initial support and awareness through diagnosis, drug development and access to treatments, using a collaborative approach that involves biopharma, clinicians, researchers and funders, and facilitating access to information and resources to those affected by rare diseases around the globe. The combined organization will also benefit from complementary programming, talent, global brand recognition, and reach of each party. The parties believe that their respective missions will be achieved best by creating a single, integrated organization to provide for the community as outlined above. There were no material adjustments to conform the accounting policies of the combining organizations.

Form 990, Part VI, Section B, Line 11B

Line 11b explanation - form 990 is sent to all board of directors members for their review and approval before filing.

Form 990, Part VI, Section B, Line 12C

Board of directors members are required to disclose any conflict of interest annually.

Form 990, Part VI, Section B, Line 15

As a result of the merged organization, the newly formed compensation committee met in q2 24 and reviewed market research on non-profit executive salaries and approved increases and an executive bonus structure. Officers do not receive salaries and therefore there is no need to vote to approve. The process described here was last completed in 2024.

Form 990, Part VI, Section C, Line 19

Global genes' financial statements, conflict of interest policy, and governing documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
1012 14TH STREET NW SUITE 500, WASHINGTON, DC 20005

Signing Officer

Name
Charlene Son Rigby
Title
CEO
Phone
9492487273
Signed
2024-09-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Charlene Son Rigby
Formed
2008
Legal Domicile
CA
Voting Board Members
18
Independent Board Members
16
Employees
41
Volunteers
17

Preparer

Firm
Cliftonlarsonallen Llp
Address
2875 MICHELLE DRIVE 300, IRVINE, CA 92606
Preparer
Lisa Ryssel
Phone
7149781300
Supplemental Narrative

Additional Explanations

Supporting Next-generation Advocacy

Supporting next-generation advocacy our mission is to provide patient advocates with a continuum of services to accelerate their path from early support and awareness through research readiness, using a collaborative approach that involves biopharma, researchers and funders, with data as a central core.

Form 990, Part III, Line 2

As a result of the merger with rare-x on december 30, 2022, global genes remained the primary operating entity and rare-x became a program of global genes. The rare-x program provides an accessible data platform to facilitate sharing large, high-quality data sets to accelerate early research, discovery, future therapies, and cures across diseases.

FORM 990, PART XII, LINE 2C:

The process has not changed from the prior year.

Financial Statement Notes

PART X, LINE 2:

The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code (the code) and corresponding state code as a charitable organization whereby only unrelated business income, as identified by section 509(a)(1) of the code, is subject to income tax. The organization had no unrelated business income during the year ended december 31, 2022. Accordingly, no provision for income taxes has been recorded in the accompanying financial statements. The organization adheres to the provisions of fasb asc 740-10-25, accounting for uncertainty in income taxes. In accordance with fasb asc 740-10-25, an organization must recognize the tax benefit associated with tax taken for tax return purposes when it is more likely than not that the position will be sustained. The organization does not believe that there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties. Years prior to 2019 are no longer subject to u.s. Federal income tax examination, and the organization is no longer subject to state income tax examinations for years before 2018.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
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IRS990/Form990PartVIISectionAGrp/OfficerInd4X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1875
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2078
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2178
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt226378
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2372
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2472
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IRS990/Form990PartVIISectionAGrp/PersonNm1BETSY BOGARD
IRS990/Form990PartVIISectionAGrp/PersonNm2KHRYSTAL DAVIS
IRS990/Form990PartVIISectionAGrp/PersonNm3ILANA FOGELMAN
IRS990/Form990PartVIISectionAGrp/PersonNm4SIMON FROST
IRS990/Form990PartVIISectionAGrp/PersonNm5PETER GOODHAND
IRS990/Form990PartVIISectionAGrp/PersonNm6CHRISTINA HARTMAN
IRS990/Form990PartVIISectionAGrp/PersonNm7HUGH HEMPEL
IRS990/Form990PartVIISectionAGrp/PersonNm8RAM IYER
IRS990/Form990PartVIISectionAGrp/PersonNm9WALT KOWTONIUK
IRS990/Form990PartVIISectionAGrp/PersonNm10NEIL KUMAR
IRS990/Form990PartVIISectionAGrp/PersonNm11CAROLINE LOEWY
IRS990/Form990PartVIISectionAGrp/PersonNm12KATHERINE MAYNARD
IRS990/Form990PartVIISectionAGrp/PersonNm13INDU NAVAR
IRS990/Form990PartVIISectionAGrp/PersonNm14DAVID PEARCE
IRS990/Form990PartVIISectionAGrp/PersonNm15JOHN REYNDERS
IRS990/Form990PartVIISectionAGrp/PersonNm16MORRIE RUFFIN
IRS990/Form990PartVIISectionAGrp/PersonNm17ALVIN SHIH
IRS990/Form990PartVIISectionAGrp/PersonNm18CHARLENE RIGBY
IRS990/Form990PartVIISectionAGrp/PersonNm19VICTORIA WEISS
IRS990/Form990PartVIISectionAGrp/PersonNm20TIMOTHY R EHRHARD
IRS990/Form990PartVIISectionAGrp/PersonNm21LAUREN ALFORD
IRS990/Form990PartVIISectionAGrp/PersonNm22KARMEN TRZUPEK
IRS990/Form990PartVIISectionAGrp/PersonNm23VANESSA VOGEL-FARLEY
IRS990/Form990PartVIISectionAGrp/PersonNm24MARIA DELLA ROCCA
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0257792
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18322542
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19124450
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20170000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21165000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22162097
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23160000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt24160779
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/TitleTxt0FOUNDER & CHIEF MISSION OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt19SENIOR DIRECTOR, FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt20SENIOR DIRECTOR, IT
IRS990/Form990PartVIISectionAGrp/TitleTxt21SENIOR DIRECTOR, MARKETING COMMUNICATION
IRS990/Form990PartVIISectionAGrp/TitleTxt22SENIOR DIRECTOR, SCIENTIFIC PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt23SENIOR DIRECTOR, RESEARCH DATA ANALYTICS & GOVERNA
IRS990/Form990PartVIISectionAGrp/TitleTxt24SENIOR DIRECTOR, SUPPORT & EDUCATION
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd01
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt0274880
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0274880
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0274880
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt08469402
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt015
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt011523
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0109321
IRS990/InformationTechnologyGrp/ProgramServicesAmt0561715
IRS990/InformationTechnologyGrp/TotalAmt0682559
IRS990/InsuranceGrp/FundraisingAmt02004
IRS990/InsuranceGrp/ManagementAndGeneralAmt07415
IRS990/InsuranceGrp/ProgramServicesAmt013847
IRS990/InsuranceGrp/TotalAmt023266
IRS990/InvestmentIncomeGrp/ExclusionAmt03487
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt03487
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt034
IRS990/IRPDocumentW2GCnt00
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IRS990/LandBldgEquipBasisNetGrp/BOYAmt02525
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0207535
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
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IRS990/NetAssetsOrFundBalancesEOYAmt0457737
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt08936
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IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0457737
IRS990/NondeductibleContributionsInd00
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IRS990/OccupancyGrp/ProgramServicesAmt036899
IRS990/OccupancyGrp/TotalAmt049198
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03967
IRS990/OfficeExpensesGrp/ProgramServicesAmt014033
IRS990/OfficeExpensesGrp/TotalAmt018000
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt053542
IRS990/OtherAssetsTotalGrp/EOYAmt028781
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07540
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011491
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt067897
IRS990/OtherEmployeeBenefitsGrp/TotalAmt086928
IRS990/OtherExpensesGrp/Desc0OUTSIDE SERVICES
IRS990/OtherExpensesGrp/Desc1PROGRAM AWARENESS
IRS990/OtherExpensesGrp/Desc2FEES AND TAXES
IRS990/OtherExpensesGrp/Desc3BANK CHARGES
IRS990/OtherExpensesGrp/FundraisingAmt032797
IRS990/OtherExpensesGrp/FundraisingAmt1687
IRS990/OtherExpensesGrp/FundraisingAmt29981
IRS990/OtherExpensesGrp/FundraisingAmt31363
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0392155
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12698
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2265
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt348952
IRS990/OtherExpensesGrp/ProgramServicesAmt0867207
IRS990/OtherExpensesGrp/ProgramServicesAmt1220109
IRS990/OtherExpensesGrp/ProgramServicesAmt2133539
IRS990/OtherExpensesGrp/ProgramServicesAmt349550
IRS990/OtherExpensesGrp/TotalAmt01292159
IRS990/OtherExpensesGrp/TotalAmt1223494
IRS990/OtherExpensesGrp/TotalAmt2143785
IRS990/OtherExpensesGrp/TotalAmt399865
IRS990/OtherLiabilitiesGrp/BOYAmt050483
IRS990/OtherLiabilitiesGrp/EOYAmt0191407
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0116916
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0429934
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt02621058
IRS990/OtherSalariesAndWagesGrp/TotalAmt03167908
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24