Civic Intelligence

Global Genes

990 • Fiscal year 2018 • EIN 26-3331487

Jan 01, 2018 to Dec 31, 2018 • Filed on Nov 14, 2019

Organization Profileglobalgenes.org

View Organization Page

28 Argonaut Suite 140 150Aliso Viejo, CA 92656

(949) 248-7273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.19x

Higher debt load relative to assets than 63% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

43rd percentile

0.07x

Higher debt load relative to revenue than 43% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

64th percentile

9.2%

Higher net margin than 64% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

87th percentile

$172,811

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

91st percentile

47%

Faster asset growth than 91% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

81st percentile

30%

Faster revenue growth than 81% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Up

$1,746,498

Up $557,370 (+47%) from 2017

Net Assets

Up

$1,415,938

Up $454,506 (+47%) from 2017

Liabilities

Up

$330,560

Up $102,864 (+45%) from 2017

Revenue And Expenses
Liabilities / Revenue43rd percentileNet Margin64th percentile

Revenue

Up

$4,930,932

Up $1,147,553 (+30%) from 2017

Expenses

Up

$4,476,426

Up $489,680 (+12%) from 2017

Net Income

Up

$454,506

Up $657,873 (+323%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2018

Assets$1,746,498
Liabilities$330,560
Net Assets$1,415,938
Open 2018 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2018

Revenue$4,930,932
Expenses$4,476,426
Net Income$454,506
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 14, 2019
Return Version
2018v3.1
Gross Receipts
$4,958,850
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$987,903$1,105,306▲ $117,403
Prepaid Expenses and Deferred Charges$144,017$240,056▲ $96,039
Land, Buildings, and Equipment, Net$13,241$204,722▲ $191,481
Pledges and Grants Receivable-$155,964-
Accounts Receivable$22,119$22,161▲ $42
Inventories for Sale or Use$11,861$8,302▼ $3,559
Savings and Temporary Cash Investments-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Total Assets$1,189,128$1,746,498▲ $557,370
Other Assets Total$9,987$9,987→ $0
Liabilities
Accounts Payable and Accrued Expenses$74,939$209,819▲ $134,880
Other Liabilities$152,757$118,240▼ $34,517
Deferred Revenue-$2,501-
Total Liabilities$227,696$330,560▲ $102,864
Net Assets / Fund Balance
Unrestricted Net Assets$680,932$879,974▲ $199,042
Temporarily Rstr Net Assets$280,500$535,964▲ $255,464
Total Net Assets Fund Balance$961,432$1,415,938▲ $454,506
Total Liabilities and Net Assets / Fund Balance$1,189,128$1,746,498▲ $557,370

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$196,509$63,766$260,275
Other Land Buildings$5,973$14,890$20,863
Leasehold Improvements$2,240$8,074$10,314
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Nicole BoiceFounderFT$171,208$1,603$172,811
Angie RoweInterim EDFT$155,948$1,200$157,148
Tiffany LeiteCOOFT$139,167$1,200$140,367
Craig MartinDirectorPT$36,000-$36,000

Board Members and Trustees

NameTitle
Wendy WhiteChairman
Natalie DouglasVice Chairman
Brad MarcusDirector
Caroline LoewyDirector
Hugh HempelDirector
John CrowleyDirector
Nauman ShahDirector
Susan SteinDirector
Peter PellizzonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Community Counseling ServiceFundraising ConsultPO Box 824885, Philadelphia, PA 19182$173,618
Key EventsTravel Agency220 Montgomery St 1300, San Francisco, CA 94104$146,228
PSAV ServicesAudio/Visual Service24105 Frampton Ave, Harbor City, CA 90710$143,351
Revenue and Support

Revenue Composition

Contributions and Grants
$4,955,803
Program Service Revenue
$0
Investment Income
$1,250
Other Revenue
$-26,121
All Other Contributions
$4,955,803
Change in Net Assets
$454,506

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Drugs and Medical Supplies10$68,000Fair Market Value (FMV)
Total Noncash Contributions10$68,000-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,930,932
Revenue Not Reported on Form 990
$9,607
Total Revenue per Audited Statements
$4,940,539
Total Revenue per Form 990
$4,930,932
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,596,954
Salaries, Compensation, and Employee Benefits$1,499,844
Total Fundraising Expense$642,267
Grants and Similar Amounts Paid$379,628
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$591,820$75,068$156,750$823,638
Conferences and Meetings$568,750--$568,750
Current Officers, Directors, Trustees, and Key Employees$279,371$116,514$170,097$565,982
All Other Expenses$230,870$58,883$30,363$320,116
Grants to Domestic Orgs$243,496--$243,496
Advertising$75,558$17$158,643$234,218
Travel$103,320$6,002$36,030$145,352
Occupancy$73,416$16,688$24,438$114,542
Payroll Taxes$68,945$16,750$24,529$110,224
Fees for Services Other$59,245$29,891$12,583$101,719
Other Expenses$74,455$78,475$9,000$87,475
Foreign Grants$70,732--$70,732
Grants to Domestic Individuals$65,400--$65,400
Fees for Services Legal$6,758$10,002-$16,760
Insurance$4,445$4,019$1,552$10,016
Depreciation Depletion$3,145$764$1,119$5,028
Total Functional Expenses$3,408,908$425,251$642,267$4,476,426

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,486,033
Expenses per Audited Statements$4,476,426
Total Expenses per Form 990$4,476,426
Expenses Not Reported on Form 990$9,607
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Koolen-de Vries Syndrome FNDFort Worth, TX-Festival of Children Foundation$36,554
Helping Hands for GAND IncOviedo, FL-Festival of Children Foundation$22,985
ALD Connect IncMiddleton, MA-Festival of Children Foundation$16,998
SETBP1 SocietyAustin, TX-Festival of Children Foundation$16,329
KIF1AorgNew York, NY-Festival of Children Foundation$16,240
Cystic Fibrosis Research IncPalo Alto, CA-Rare Patient Impact Grant$15,000
The LAM FoundationCincinnati, OH-Rare Patient Impact Grant$15,000
VHL AllianceBoston, MA-Rare Patient Impact Grant$15,000
Bridge the Gap - SYNGAP EduCypress, TX-Festival of Children Foundation$11,493
Connecting Familites UCD FNDMurritea, CA-Festival of Children Foundation$11,286
Alagille Syndrome AllianceWilsonville, OR-Festival of Children Foundation$10,279
The Progeria Research FoundatPeabody, MA-Rare Patient Impact Grant$10,000
Usher Syndrome CoalitionMaynard, MA-Rare Patient Impact Grant$10,000
STXBP1 Disorders FoundationPhiladelphia, PA-Festival of Children Foundation$7,299
PTEN FoundationHampton Cove, AL-Festival of Children Foundation$6,706
Chordoma FoundationDurham, NC-Rare Patient Impact Grant$6,000
Translational Genomics ResearPhoenix, AZ-Rare Patient Impact Grant$5,825

International Summary

Spending
$70,732

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram Service/ AssistanceTravel Assistance00$28,001
CanadaContribution/ ScholarshipTravel Assistance00$22,231
Australia/New ZelandProgram Service/ AssistanceTravel Assistance00$8,500
South AmericaProgram Service/ Assistance-00$6,000
AsiaProgram Service/ AssistanceTravel Assistance00$6,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$27,918
Fundraising Gross Income$1,797
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Liabilities$118,240
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“Form 990 is sent to all Board of Directors members for their review and approval before filing.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Board of Directors members are required to file a signed conflict of interest agreement annually.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Board reviews and approves by vote all executive salaries on an annual basis during closed session of the first Board of Directors meeting of the year”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Board reviews and approves by vote all other officer's salaries on an annual basis during closed session of the first Board of Directors meeting of the year”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization makes its governing documents and financial statements available on its own website.”

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
28 Argonaut Suite 140 150, Aliso Viejo, CA 92656

Signing Officer

Name
Peter Pellizzon
Title
Treasurer
Signed
2019-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Peter Pellizzon
Formed
2008
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
9
Employees
24
Volunteers
50

Preparer

Firm
White Nelson Diehl Evans LLP
Address
2875 Michelle Drive Suite 300, Irvine, CA 92606
Preparer
Christina M Wenk CPA
Phone
7149781300
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“The organization does not believe there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties.”

Raw XML AppendixShowing 400 of 834 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm0Caroline Loewy
IRS990/Form990PartVIISectionAGrp/PersonNm1John Crowley
IRS990/Form990PartVIISectionAGrp/PersonNm2Nicole Boice
IRS990/Form990PartVIISectionAGrp/PersonNm3Natalie Douglas
IRS990/Form990PartVIISectionAGrp/PersonNm4Hugh Hempel
IRS990/Form990PartVIISectionAGrp/PersonNm5Peter Pellizzon
IRS990/Form990PartVIISectionAGrp/PersonNm6Brad Marcus
IRS990/Form990PartVIISectionAGrp/PersonNm7Wendy White
IRS990/Form990PartVIISectionAGrp/PersonNm8Susan Stein
IRS990/Form990PartVIISectionAGrp/PersonNm9Nauman Shah
IRS990/Form990PartVIISectionAGrp/PersonNm10Craig Martin
IRS990/Form990PartVIISectionAGrp/PersonNm11Angie Rowe
IRS990/Form990PartVIISectionAGrp/PersonNm12Tiffany Leite
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IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Chairman
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
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IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0Global Genes mission is to connect, empower and inspire the rare disease community.
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IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
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IRS990/OtherExpensesGrp/Desc2Computer and Software
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IRS990/OtherExpensesGrp/TotalAmt1202892
IRS990/OtherExpensesGrp/TotalAmt295876
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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,746,498
Liabilities
$330,560
Net assets
$1,415,938
Revenue
$4,930,932
Expenses
$4,476,426
Net income
$454,506
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24