Civic Intelligence

Global Genes

990 • Fiscal year 2022 • EIN 26-3331487

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 13, 2023

28 Argonaut Suite 150Aliso Viejo, CA 92656

(949) 248-7273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

88th percentile

0.76x

Higher debt load relative to assets than 88% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Liabilities / Revenue

65th percentile

0.32x

Higher debt load relative to revenue than 65% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Net Margin

8th percentile

-39%

Higher net margin than 8% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Top Officer Pay

93rd percentile

$420,000

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 7.6% of source-year revenue.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Asset Growth

3rd percentile

-31%

Faster asset growth than 3% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Revenue Growth

32nd percentile

-5.5%

Faster revenue growth than 32% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Assets

Down

$2,294,462

Down $1,021,379 (-31%) from 2021

Net Assets

Down

$541,258

Down $1,827,570 (-77%) from 2021

Liabilities

Up

$1,753,204

Up $806,191 (+85%) from 2021

Revenue

Down

$5,557,435

Down $326,562 (-5.6%) from 2021

Expenses

Up

$7,700,189

Up $2,142,772 (+39%) from 2021

Net Income

Down

-$2,142,754

Down $2,469,334 (-756%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2022

Assets$2,294,462
Liabilities$1,753,204
Net Assets$541,258

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2022

Revenue$5,557,435
Expenses$7,700,189
Net Income-$2,142,754
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 13, 2023
Return Version
2022v5.0
Gross Receipts
$5,673,721
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,236,090$945,899▼ $290,191
Savings and Temporary Cash Investments$1,693,150$425,887▼ $1,267,263
Pledges and Grants Receivable-$372,750-
Prepaid Expenses and Deferred Charges$307,820$332,882▲ $25,062
Accounts Receivable$59,565$160,977▲ $101,412
Land, Buildings, and Equipment, Net$11,394$2,525▼ $8,869
Inventories for Sale or Use$1,246--
Total Assets$3,315,841$2,294,462▼ $1,021,379
Other Assets Total$6,576$53,542▲ $46,966
Liabilities
Accounts Payable and Accrued Expenses$439,509$1,228,794▲ $789,285
Deferred Revenue$507,504$473,927▼ $33,577
Other Liabilities$0$50,483▲ $50,483
Total Liabilities$947,013$1,753,204▲ $806,191
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,368,828$541,258▼ $1,827,570
Total Net Assets Fund Balance$2,368,828$541,258▼ $1,827,570
Total Liabilities and Net Assets / Fund Balance$3,315,841$2,294,462▼ $1,021,379

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,525$201,812$204,337
Other Land Buildings$0$3,196$3,196
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Craig MartinInterim CEOFT$420,000-$420,000
Lauren AlfordSenior Director, Marketing CommunicationsFT$160,475$78$160,553
Lauren AlfordSenior Director, Marketing Communica-$160,475$78$160,553
Tim EhrhardSenior Director, ItFT$158,312$78$158,390
MARY K O'CONNORSenior Director, DevelopmentFT$143,684$5,850$149,534
Maria Della RoccaSenior Director, Support & EducationFT$146,875$81$146,956
Shankar RamkellawanManager, Data Science & InsightsFT$111,064$4,847$115,911
Christopher NunesFinance DirectorFT$65,001-$65,001
Victoria WeissSenior Director, FinanceFT$23,750-$23,750

Board Members and Trustees

NameTitle
Peter PellizzonBoard Chairman
Hugh HempelDirector
Indu NavarDirector
John CrowleyDirector
Neil KumarDirector
Nicole BoiceFounder
Christina M HartmanSecretary
Caroline LoewyTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Rithm HealthConsulting Services54 MORTON STREET, Andover, MA 01810, Uk$420,000
Msg ConsultingConsulting Services838 DARLINGTON AVENUE, Mahwah, NJ 07430$206,281
Levine Media GroupEditorial Services21 KINGSTON RD, Kensington, CA 94707$154,900
Lcbi LtdConsulting Services-$118,238
Revenue and Support

Revenue Composition

Contributions and Grants
$3,865,176
Program Service Revenue
$1,690,520
Investment Income
$1,739
Other Revenue
$0
All Other Contributions
$3,865,176
Change in Net Assets
$-2,142,754

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,557,435
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$6,163
Total Revenue per Audited Statements
$5,563,598
Total Revenue per Form 990
$5,557,435
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,658,743
Salaries, Compensation, and Employee Benefits$2,572,193
Grants and Similar Amounts Paid$469,253
Total Fundraising Expense$435,787
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,442,206$248,224$122,396$1,812,826
Travel$614,398$4,234-$618,632
Information Technology$491,150$120,469-$611,619
Current Officers, Directors, Trustees, and Key Employees$305,251$50,875$152,625$508,751
Foreign Grants$247,994--$247,994
Grants to Domestic Orgs$221,259--$221,259
Payroll Taxes$151,713$26,297$24,274$202,284
Fees for Services Accounting-$99,185-$99,185
Occupancy-$84,772-$84,772
Advertising$57,420--$57,420
All Other Expenses$11,553$42,336$3,082$56,971
Other Expenses$679$55,593$126,000$56,272
Other Employee Benefits$36,380$6,227$5,725$48,332
Office Expenses$22,042$3,071-$25,113
Insurance$10,531$6,509$1,685$18,725
Fees for Services Legal-$12,155-$12,155
Depreciation Depletion-$10,917-$10,917
Conferences and Meetings$1,149--$1,149
Total Functional Expenses$6,222,906$1,041,496$435,787$7,700,189

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$7,700,189
Total Expenses per Audited Statements$7,700,189
Total Expenses per Form 990$7,700,189
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Bleeding Disorders Alliance of IllinoisChicago, IL501(c)(3)Meet-ups Grants$15,000
Combinedbrain IncBrentwood, TN501(c)(3)Health Equity Grant$15,000
Helping Hands for Gand IncHuntsville, AL501(c)(3)Meet-ups Grants$15,000
Pfic Network IncStanton, KY501(c)(3)Health Equity Grant$15,000
Scn2a Asia PacificAllison Park, PA501(c)(3)Health Equity Grant$15,000
Team Telomere IncCoeur Dalene, ID501(c)(3)Health Equity Grant$15,000
Myhre Syndrome FoundationRichardson, TX501(c)(3)Health Equity Grant$14,865
Phelan-mcdermid Syndrome FoundationOsprey, FL501(c)(3)Meet-ups Grants$14,000
Raymond a Wood FoundationOcean City, MD501(c)(3)Health Equity Grant$13,921
Congenital Hyperinsulinism InternationalGlen Ridge, NJ501(c)(3)Meet-ups Grants$11,137
Cystic Fibrosis Research Inc (18)Palo Alto, CA501(c)(3)Health Equity Grant$10,000
Youngtimers IncNewport Beach, CA501(c)(3)Meet-ups Grants$8,276
ALAAFIA WOMEN'S CORPORATIONMilwaukee, WI501(c)(3)Fair Grant$7,500
Dreamsickle Kids Foundation IncLas Vegas, NV501(c)(3)Fair Grant$7,500
Foundation for Sarcoidosis Research (19)Chicago, IL501(c)(3)Fair Grant$7,500
Indo US Organization for Rare DiseasesHerndon, VA501(c)(3)Fair Grant$7,500
Prader-willi Syndrome Association USABrandon, FL501(c)(3)Fair Grant$7,500
Team Telomere IncCoeur Dalene, ID501(c)(3)Fair Grant$7,500
The Global Foundation for Peroxisomal DisTulsa, OK501(c)(3)Fair Grant$7,500
Fibrous Dysplasia FoundationBethesda, MD501(c)(3)Fair Grant$6,560

International Summary

Offices
0
Employees
0
Spending
$247,994

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients---$240,494
Sub-saharan AfricaGrants to Recipients---$7,500
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Interim CEOConsulting ServicesNo$420,000
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Long Term Operating Lease Liabilities$50,483
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Tim o'connor/npss corporation - husband of mary k. O'onnor, employee ray soto/npss corporation - ex-husband of kristin soto, employee

Form 990, Part VI, Section A, Line 4

On december 30, 2022, global genes and rare-x merged. The surviving organization is global genes. Rare-x provided a collaborative platform for global data sharing and analysis to accelerate treatments for rare disease. With the merger, global genes seeks to further its charitable mission of empowering next-generation advocates to drive progress within and across rare diseases, providing rare disease advocates with a continuum of services, resources and connections to accelerate the path from initial support and awareness through diagnosis, drug development and access to treatments, using a collaborative approach that involves biopharma, clinicians, researchers and funders, and facilitating access to information and resources to those affected by rare diseases around the globe. The combined organization will also benefit from complementary programming, talent, global brand recognition, and reach of each party. The parties believe that their respective missions will be achieved best by creating a single, integrated organization to provide for the community as outlined above. There were no material adjustments to conform the accounting policies of the combining organizations.

Form 990, Part VI, Section B, Line 11B

Line 11b explanation - form 990 is sent to all board of directors members for their review and approval before filing.

Form 990, Part VI, Section B, Line 12C

Board of directors members are required to file a signed conflict of interest agreement annually.

Form 990, Part VI, Section B, Line 15

Board reviews and approves by vote all other officer's salaries on an annual basis during closed session of the first board of directors meeting of the year. Board reviews and approves by vote all executive salaries on an annual basis during closed session of the first board of directors meeting of the year. The process described here was last completed in 2022.

Form 990, Part VI, Section C, Line 19

The organization makes its financial statements available on its own website. Governing documents and conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
28 ARGONAUT SUITE 150, ALISO VIEJO, CA 92656

Signing Officer

Name
Peter Pellizzon
Title
Board Chairman
Phone
9492487273
Signed
2023-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Craig Martin
Formed
2008
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
8
Employees
36
Volunteers
12

Preparer

Firm
Cliftonlarsonallen Llp
Address
2875 MICHELLE DRIVE 300, IRVINE, CA 92606
Preparer
Lisa Ryssel
Phone
7149781300
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Merger - rare - x net assets 309,021.

FORM 990, PART XII, LINE 2C:

The process has not changed from the prior year.

Financial Statement Notes

PART X, LINE 2:

The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code (the code) and corresponding state code as a charitable organization whereby only unrelated business income, as identified by section 509(a)(1) of the code, is subject to income tax. The organization had no unrelated business income during the year ended december 31, 2022. Accordingly, no provision for income taxes has been recorded in the accompanying financial statements. The organization adheres to the provisions of fasb asc 740-10-25, accounting for uncertainty in income taxes. In accordance with fasb asc 740-10-25, an organization must recognize the tax benefit associated with tax taken for tax return purposes when it is more likely than not that the position will be sustained. The organization does not believe that there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties. Years prior to 2019 are no longer subject to u.s. Federal income tax examination, and the organization is no longer subject to state income tax examinations for years before 2018.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt278
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt45850
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt581
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt678
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt74847
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0CRAIG MARTIN
IRS990/Form990PartVIISectionAGrp/PersonNm1CHRISTOPHER NUNES
IRS990/Form990PartVIISectionAGrp/PersonNm2LAUREN ALFORD
IRS990/Form990PartVIISectionAGrp/PersonNm3VICTORIA WEISS
IRS990/Form990PartVIISectionAGrp/PersonNm4MARY K O'CONNOR
IRS990/Form990PartVIISectionAGrp/PersonNm5MARIA DELLA ROCCA
IRS990/Form990PartVIISectionAGrp/PersonNm6TIM EHRHARD
IRS990/Form990PartVIISectionAGrp/PersonNm7SHANKAR RAMKELLAWAN
IRS990/Form990PartVIISectionAGrp/PersonNm8NICOLE BOICE
IRS990/Form990PartVIISectionAGrp/PersonNm9PETER PELLIZZON
IRS990/Form990PartVIISectionAGrp/PersonNm10CAROLINE LOEWY
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN CROWLEY
IRS990/Form990PartVIISectionAGrp/PersonNm12CHRISTINA M HARTMAN
IRS990/Form990PartVIISectionAGrp/PersonNm13HUGH HEMPEL
IRS990/Form990PartVIISectionAGrp/PersonNm14NEIL KUMAR
IRS990/Form990PartVIISectionAGrp/PersonNm15INDU NAVAR
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0420000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt165001
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2160475
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt323750
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4143684
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt5146875
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt6158312
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt7111064
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0INTERIM CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1FINANCE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SENIOR DIRECTOR, MARKETING COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt3SENIOR DIRECTOR, FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt4SENIOR DIRECTOR, DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5SENIOR DIRECTOR, SUPPORT & EDUCATION
IRS990/Form990PartVIISectionAGrp/TitleTxt6SENIOR DIRECTOR, IT
IRS990/Form990PartVIISectionAGrp/TitleTxt7MANAGER, DATA SCIENCE & INSIGHTS
IRS990/Form990PartVIISectionAGrp/TitleTxt8FOUNDER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt10TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/OtherAmt0-477
IRS990/GainOrLossGrp/SecuritiesAmt0619
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GrantAmt0469253
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0221259
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0221259
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt065522
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt050906
IRS990/GrossReceiptsAmt05673721
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt06
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0120469
IRS990/InformationTechnologyGrp/ProgramServicesAmt0491150
IRS990/InformationTechnologyGrp/TotalAmt0611619
IRS990/InsuranceGrp/FundraisingAmt01685
IRS990/InsuranceGrp/ManagementAndGeneralAmt06509
IRS990/InsuranceGrp/ProgramServicesAmt010531
IRS990/InsuranceGrp/TotalAmt018725
IRS990/InventoriesForSaleOrUseGrp/BOYAmt01246
IRS990/InvestmentIncomeGrp/ExclusionAmt01597
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01597
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt027
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0205008
IRS990/LandBldgEquipBasisNetGrp/BOYAmt011394
IRS990/LandBldgEquipBasisNetGrp/EOYAmt02525
IRS990/LandBldgEquipCostOrOtherBssAmt0207533
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt065999
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt050287
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0GLOBAL GENES' MISSION IS TO CONNECT, EMPOWER AND INSPIRE THE RARE DISEASE COMMUNITY.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt02368828
IRS990/NetAssetsOrFundBalancesEOYAmt0541258
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0142
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0142
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt06163
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02368828
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0541258
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt084772
IRS990/OccupancyGrp/TotalAmt084772
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03071
IRS990/OfficeExpensesGrp/ProgramServicesAmt022042
IRS990/OfficeExpensesGrp/TotalAmt025113
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06576
IRS990/OtherAssetsTotalGrp/EOYAmt053542
IRS990/OtherChangesInNetAssetsAmt0309021
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05725
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt06227
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt036380
IRS990/OtherEmployeeBenefitsGrp/TotalAmt048332
IRS990/OtherExpensesGrp/Desc0SUPPLIES
IRS990/OtherExpensesGrp/Desc1OUTSIDE SERVICES
IRS990/OtherExpensesGrp/Desc2PROGRAM AWARENESS
IRS990/OtherExpensesGrp/Desc3FEES AND TAXES
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt1126000
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt012761
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1257871
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt255593
IRS990/OtherExpensesGrp/ProgramServicesAmt01277756
IRS990/OtherExpensesGrp/ProgramServicesAmt1843800
IRS990/OtherExpensesGrp/ProgramServicesAmt2487625
IRS990/OtherExpensesGrp/ProgramServicesAmt3679
IRS990/OtherExpensesGrp/TotalAmt01290517
IRS990/OtherExpensesGrp/TotalAmt11227671
IRS990/OtherExpensesGrp/TotalAmt2487625
IRS990/OtherExpensesGrp/TotalAmt356272
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt050483
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0122396
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0248224
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01442206
IRS990/OtherSalariesAndWagesGrp/TotalAmt01812826
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt024274
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt026297
IRS990/PayrollTaxesGrp/ProgramServicesAmt0151713
IRS990/PayrollTaxesGrp/TotalAmt0202284
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0372750
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0307820
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0332882
IRS990/PrincipalOfficerNm0CRAIG MARTIN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/BusinessCd2900099
IRS990/ProgramServiceRevenueGrp/Desc0MEMBERSHIP FEES
IRS990/ProgramServiceRevenueGrp/Desc1CONFERENCE SPONSORSHIP
IRS990/ProgramServiceRevenueGrp/Desc2EXHIBIT BOOTHS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01230634
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1445400
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt214486
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01230634
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1445400
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt214486
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04169975
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0268030
IRS990/PYInvestmentIncomeAmt0-1882
IRS990/PYOtherExpensesAmt03174164
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt01715904
IRS990/PYRevenuesLessExpensesAmt0326580
IRS990/PYSalariesCompEmpBnftPaidAmt02115223
IRS990/PYTotalExpensesAmt05557417
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt05883997
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-2142754
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt01690520
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01693150
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0425887
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03865176
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt04169975
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03581873
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt05297898
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt04955803
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt021870725
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01597
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0940

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24