Civic Intelligence

Global Genes

990 • Fiscal year 2019 • EIN 26-3331487

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 09, 2020

Organization Profileglobalgenes.org

View Organization Page

28 Argonaut Suite 140 150Aliso Viejo, CA 92656

(949) 248-7273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

74th percentile

0.44x

Higher debt load relative to assets than 74% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Liabilities / Revenue

53rd percentile

0.18x

Higher debt load relative to revenue than 53% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Net Margin

62nd percentile

7.5%

Higher net margin than 62% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Top Officer Pay

75th percentile

$197,997

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 2.8% of source-year revenue.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Asset Growth

95th percentile

67%

Faster asset growth than 95% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Revenue Growth

87th percentile

42%

Faster revenue growth than 87% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets74th percentile

Assets

Up

$2,925,050

Up $1,178,552 (+67%) from 2018

Net Assets

Up

$1,641,953

Up $226,015 (+16%) from 2018

Liabilities

Up

$1,283,097

Up $952,537 (+288%) from 2018

Revenue And Expenses
Liabilities / Revenue53rd percentileNet Margin62nd percentile

Revenue

Up

$6,988,193

Up $2,057,261 (+42%) from 2018

Expenses

Up

$6,464,707

Up $1,988,281 (+44%) from 2018

Net Income

Up

$523,486

Up $68,980 (+15%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth95th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2019

Assets$2,925,050
Liabilities$1,283,097
Net Assets$1,641,953
Open 2019 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2019

Revenue$6,988,193
Expenses$6,464,707
Net Income$523,486
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 9, 2020
Return Version
2019v5.0
Gross Receipts
$6,988,193
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,105,306$2,405,810▲ $1,300,504
Prepaid Expenses and Deferred Charges$240,056$196,590▼ $43,466
Land, Buildings, and Equipment, Net$204,722$150,625▼ $54,097
Pledges and Grants Receivable$155,964$147,808▼ $8,156
Inventories for Sale or Use$8,302$7,320▼ $982
Accounts Receivable$22,161$6,910▼ $15,251
Savings and Temporary Cash Investments-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Total Assets$1,746,498$2,925,050▲ $1,178,552
Other Assets Total$9,987$9,987→ $0
Liabilities
Deferred Revenue$2,501$725,611▲ $723,110
Accounts Payable and Accrued Expenses$209,819$322,199▲ $112,380
Other Liabilities$118,240$235,287▲ $117,047
Total Liabilities$330,560$1,283,097▲ $952,537
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$879,974$1,494,144▲ $614,170
Net Assets With Donor Restrictions$535,964$147,809▼ $388,155
Total Net Assets Fund Balance$1,415,938$1,641,953▲ $226,015
Total Liabilities and Net Assets / Fund Balance$1,746,498$2,925,050▲ $1,178,552

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$141,923$118,352$260,275
Other Land Buildings$7,295$18,077$25,372
Leasehold Improvements$1,407$8,907$10,314
Compensation and Service Providers
Top Officer Pay75th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Nicole BoiceFounderFT$197,997$197,997
Christian RubioVP Strategic AdvancementFT$163,935$163,935
Tiffany LeiteCOOFT$152,988$152,988
Craig MartinStrategic AdvisFT$135,000$135,000
Mary K O'ConnorDirector Corporate EngFT$125,375$125,375
Kimberly HaugstadCEOFT$112,838$112,838
Angie RoweInterim EDFT$101,258$101,258
Melissa StrodtbeckFin. DirectorFT$82,795$82,795

Board Members and Trustees

NameTitle
Wendy WhiteChairman
Natalie DouglasVice Chairman
Brad MarcusDirector
Caroline LoewyDirector
Hugh HempelDirector
John CrowleyDirector
Nauman ShahDirector
Susan SteinDirector
Peter PellizzonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Sheraton San Diego HotelMeeting Services1380 Harbor Island Dr, San Diego, CA 92101$646,142
Key EventsTravel Agency220 Montgomery St 1300, San Francisco, CA 94104$207,776
Rithm HealthStrategy Consultant54 Morton St, Andover, MA 01810$142,006
Korn FerryExecutive SearchPO Box 1450, Minneapolis, MN 55485$128,839
Levine MediaEditorial Services21 Kingston Rd, Kesington, CA 94707$112,705
Revenue and Support

Revenue Composition

Contributions and Grants
$5,297,898
Program Service Revenue
$1,667,194
Investment Income
$23,101
Other Revenue
$0
All Other Contributions
$5,297,898
Change in Net Assets
$523,486

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,988,193
Revenue Not Reported on Form 990
$114,129
Total Revenue per Audited Statements
$7,102,322
Total Revenue per Form 990
$6,988,193
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,731,996
Salaries, Compensation, and Employee Benefits$2,036,801
Grants and Similar Amounts Paid$695,910
Total Fundraising Expense$200,016
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$975,451$54,232$40,814$1,070,497
Current Officers, Directors, Trustees, and Key Employees$593,875$178,777$39,158$811,810
Conferences and Meetings$599,292-$1,605$600,897
Grants to Domestic Orgs$501,733--$501,733
All Other Expenses$281,582$85,435$20,684$387,701
Travel$213,885$49,210$27,281$290,376
Payroll Taxes$128,805$19,125$6,564$154,494
Other Expenses$129,770$575$5,196$129,770
Foreign Grants$124,806--$124,806
Occupancy$95,784$14,222$4,881$114,887
Fees for Services Other$15,435$79,849-$95,284
Grants to Domestic Individuals$69,371--$69,371
Depreciation Depletion$48,861$7,255$2,490$58,606
Fees for Services Legal$19,527$21,486-$41,013
Insurance$9,346$4,102$476$13,924
Total Functional Expenses$5,702,811$561,880$200,016$6,464,707

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,488,152
Expenses per Audited Statements$6,464,707
Total Expenses per Form 990$6,464,707
Expenses Not Reported on Form 990$23,445
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Rare XAliso Viejo, CA-General Assistance$118,018
Organization for Rare DiseaseCalabasas, CA-General donation$37,500
Congenital HyperinsulinismGlen Ridge, NJ-Rare Patient Impact Grant$15,000
Cure CMDLakewood, CA-Rare Patient Impact Grant$15,000
National PKU NewsSeattle, WA-Rare Patient Impact Grant$15,000
TN PKU FoundationOrange, CA-Rare Patient Impact Grant$15,000
The Myositis AssocAlexandria, VA-Rare Patient Impact Grant$15,000
The Brain Recovery ProjectLos Angeles, CA-Rare Patient Impact Grant$14,200
The Global FDN for PeroxisomaTulsa, OK-Rare Patient Impact Grant$13,000
Lipodystrophy UnitedLos Lunas, NM-Rare Patient Impact Grant$12,875
Foundation for Sarcoidosis ReChicago, IL-Rare Patient Impact Grant$12,000
Angel Aid CaresFairfax, CA-Rare Patient Impact Grant$10,000
CFC IntlChicago Heights, IL-Rare Patient Impact Grant$10,000
Champ1 Research FoundationSpring Hill, FL-Rare Patient Impact Grant$10,000
Cold Agglutinin Disease FoundCherry Hill, NJ-Rare Patient Impact Grant$10,000
Global Impact for Mission CurAlexandria, VA-Rare Patient Impact Grant$10,000
Ints Fibrod Ossificans ProgOrange, CA-Rare Patient Impact Grant$10,000
Mast Cell Hope IncSouthington, CT-Rare Patient Impact Grant$10,000
Mickies MiraclesLas Vegas, NV-Sponsorship$10,000
Our OdysseyNew York, NY-Rare Patient Impact Grant$10,000
Prog Familial Intrahepatic ChAliso Viejo, CA-Rare Patient Impact Grant$10,000
SATB2 Gene FoundationLilburn, GA-Rare Patient Impact Grant$10,000
Scleroderma FDNLos Angeles, CA-Rare Patient Impact Grant$10,000
Stone Soup GroupAnchorage, AK-Rare Patient Impact Grant$10,000
TEAM 4 TravisLitchfield Park, AZ-Rare Patient Impact Grant$10,000
Turner Syndrome Global AllianOverland Park, KS-Rare Patient Impact Grant$10,000
Fibrous Dysplacia FoundationGrandville, MI-Rare Patient Impact Grant$8,640
Team TelomereNew York, NY-Rare Patient Impact Grant$8,500
Childrens Cardiomyopathy FdnTenafly, NJ-Rare Patient Impact Grant$8,000
Littlest tumor FoundationAppleton, WI-Rare Patient Impact Grant$8,000
Koolen-de Vries SyndromeFort Worth, TX-Rare Patient Impact Grant$6,000

International Summary

Spending
$124,806

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaContribution/ ScholarshipTravel Assistance00$52,695
EuropeProgram Service/ AssistanceTravel Assistance00$42,011
Australia/New ZelandProgram Service/ AssistanceTravel Assistance00$14,500
AsiaProgram Service/ AssistanceTravel Assistance00$11,300
South AmericaProgram Service/ Assistance-00$4,300
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Liabilities$235,287
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“Form 990 is sent to all Board of Directors members for their review and approval before filing.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Board of Directors members are required to file a signed conflict of interest agreement annually.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Board reviews and approves by vote all executive salaries on an annual basis during closed session of the first Board of Directors meeting of the year”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Board reviews and approves by vote all other officer's salaries on an annual basis during closed session of the first Board of Directors meeting of the year”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization makes its governing documents and financial statements available on its own website.”

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
28 Argonaut Suite 140 150, Aliso Viejo, CA 92656

Signing Officer

Name
Peter Pellizzon
Title
Chairman
Signed
2020-11-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kimberly Haugstad
Formed
2008
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
9
Employees
24
Volunteers
50

Preparer

Firm
Cliftonlarsonallen Llp
Address
2875 MICHELLE STE 300, IRVINE, CA 92606-1020
Preparer
Christina M Wenk CPA
Phone
7149781300
Supplemental Narrative

Additional Explanations

Other Changes In Net Assets Or Fund Balances - Other Decreases

“Adjustment on adoption of new accounting standard = -$305000”

Financial Statement Notes

Part X : FIN48 Footnote

“The organization does not believe there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Net Assets released from restrictions $83155”

Raw XML AppendixShowing 400 of 1,076 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt2COO
IRS990/Form990PartVIISectionAGrp/TitleTxt3Strategic Advis
IRS990/Form990PartVIISectionAGrp/TitleTxt4Dir. Corporate Eng
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IRS990/Form990PartVIISectionAGrp/TitleTxt6Interim ED
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IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
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IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990PartVIISectionAGrp/TitleTxt14Chairman
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,925,050
Liabilities
$1,283,097
Net assets
$1,641,953
Revenue
$6,988,193
Expenses
$6,464,707
Net income
$523,486
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24