Liabilities / Assets
52nd percentile
Higher debt load relative to assets than 52% of similar nonprofits.
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.12x
Liabilities / Revenue
31st percentile
Higher debt load relative to revenue than 31% of similar nonprofits.
Net Margin
62nd percentile
Higher net margin than 62% of similar nonprofits.
Top Officer Pay
86th percentile
Higher top officer pay than 86% of similar nonprofits.
Top officer pay equals 5.0% of source-year revenue.
Asset Growth
88th percentile
Faster asset growth than 88% of similar nonprofits.
Revenue Growth
90th percentile
Faster revenue growth than 90% of similar nonprofits.
Balance Sheet
Assets
Up$1,024,830
Up $280,385 (+38%) from 2014
Net Assets
Up$899,994
Up $233,724 (+35%) from 2014
Liabilities
Up$124,836
Up $46,661 (+60%) from 2014
Revenue And Expenses
Revenue
Up$3,381,807
Up $1,250,046 (+59%) from 2014
Expenses
Up$3,136,661
Up $1,311,436 (+72%) from 2014
Net Income
Down$245,146
Down $61,390 (-20%) from 2014
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2015 to Dec 31, 2015
- Signed
- Jun 13, 2016
- Return Version
- 2015v2.1
- Gross Receipts
- $3,584,868
Mission and Program Overview
Mission
To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.
To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $610,776 | $851,829 | ▲ $241,053 |
| Prepaid Expenses and Deferred Charges | $26,438 | $81,714 | ▲ $55,276 |
| Land, Buildings, and Equipment, Net | $78,353 | $55,329 | ▼ $23,024 |
| Inventories for Sale or Use | $24,869 | $26,949 | ▲ $2,080 |
| Accounts Receivable | - | $5,000 | - |
| Total Assets | $744,445 | $1,024,830 | ▲ $280,385 |
| Other Assets Total | $4,009 | $4,009 | → $0 |
| Liabilities | |||
| Other Liabilities | $5,986 | $68,423 | ▲ $62,437 |
| Accounts Payable and Accrued Expenses | $64,931 | $49,155 | ▼ $15,776 |
| Unsecured Notes Loans Payable | $7,258 | $7,258 | → $0 |
| Total Liabilities | $78,175 | $124,836 | ▲ $46,661 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $500,909 | $673,082 | ▲ $172,173 |
| Temporarily Rstr Net Assets | $165,361 | $226,912 | ▲ $61,551 |
| Total Net Assets Fund Balance | $666,270 | $899,994 | ▲ $233,724 |
| Total Liabilities and Net Assets / Fund Balance | $744,445 | $1,024,830 | ▲ $280,385 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $51,052 | $33,857 | $84,909 |
| Buildings | $4,277 | $271 | $4,548 |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2015 | $165,361 | - | - | - | $165,361 |
| 2014 | $107,722 | $57,639 | - | - | $165,361 |
| 2013 | - | $107,722 | - | - | $107,722 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Nicole Boice | President/CEO | FT | $168,000 | $168,000 |
| Angie Rowe | COO / Treasurer & Secretary | FT | $125,000 | $125,000 |
Board Members and Trustees
| Name | Title |
|---|---|
| Brad Margus | Director |
| Caroline Loewy | Director |
| Hugh Hempel | Director |
| John Crowley | Director |
| Matt Wilsey | Director |
| Natalie Douglas | Director |
| Peter Pellizzon | Director |
| Susan Stein | Director |
| Wendy White | Director |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $2,717,117
- Program Service Revenue
- $0
- Investment Income
- $0
- Other Revenue
- $664,690
- All Other Contributions
- $2,717,117
- Change in Net Assets
- $245,146
Audited Revenue Reconciliation
- Revenue per Audited Statements
- $3,381,808
- Revenue Not Reported on Financial Statements
- $0
- Revenue Not Reported on Form 990
- $203,061
- Total Revenue per Audited Statements
- $3,584,869
- Total Revenue per Form 990
- $3,381,808
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $2,360,252 |
| Salaries, Compensation, and Employee Benefits | $749,920 |
| Total Fundraising Expense | $133,984 |
| Grants and Similar Amounts Paid | $18,989 |
| Professional Fundraising Fees | $7,500 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $583,880 | - | - | $583,880 |
| Other Salaries and Wages | $292,167 | $82,007 | $28,088 | $402,262 |
| All Other Expenses | $336,545 | $42,486 | $18,280 | $397,311 |
| Current Officers, Directors, Trustees, and Key Employees | $243,600 | $41,600 | $7,800 | $293,000 |
| Fees for Services Other | $247,329 | $5,225 | $25,000 | $277,554 |
| Travel | $116,937 | $7,983 | $2,394 | $127,314 |
| Other Expenses | $111,425 | $8,863 | $6,331 | $126,619 |
| Occupancy | $60,497 | $9,523 | $2,000 | $72,020 |
| Information Technology | $56,980 | $8,055 | $5,080 | $70,115 |
| Payroll Taxes | $44,719 | $8,745 | $1,194 | $54,658 |
| Advertising | $43,975 | $5,058 | $4,787 | $53,820 |
| Fees for Services Accounting | - | $16,069 | $16,068 | $32,137 |
| Grants to Domestic Orgs | $18,989 | - | - | $18,989 |
| Depreciation Depletion | - | $13,343 | - | $13,343 |
| Fees for Services Legal | - | $5,047 | $5,047 | $10,094 |
| Fees for Services Professional Fundraising | - | - | $7,500 | $7,500 |
| Insurance | $1,131 | $2,455 | - | $3,586 |
| Total Functional Expenses | $2,743,275 | $259,402 | $133,984 | $3,136,661 |
Audited Expense Reconciliation
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $3,351,145 |
| Total Expenses per Form 990 | $3,136,661 |
| Expenses per Audited Statements | $3,123,318 |
| Expenses Not Reported on Form 990 | $227,827 |
| Expenses Not Reported on Financial Statements | $13,343 |
| Other Expense Adjustments | $13,343 |
International Activity
Grant and Assistance Recipients
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Cure Gm1 Foundation | Albany, CA | - | Funding Research for a Cure for Gm1 Gangliosidosis | $41,437 |
| Kcnq2 Cure Alliance | Denver, CO | - | Educate and to Advance Research Leading to Treatments or a Cure for Patients Living With the Genetic Disorder Kcnq2 | $32,459 |
| The Grace Wilsey Foundation | Menlo Park, CA | - | Development of a Life-saving Treatment for Patients That Are Deficient in the N-glycanese Enzyme and Those Suffering From Related Genetic Diseases | $32,459 |
| Pitt Hopkins Research Foundation | Winstonsalem, NC | - | Support Research Dedicated to Finding a Treatment, and Hopefully an Eventual Cure of Pitt Hopkins and Support Research Dedicated to Finding a Treatment, and Hopefully an Eventual Cure of Pitt Hopkins and Support Research Dedicated to Finding Treatment and Eventual Cure of Pitt Hopkins and Other Similar Disorders | $15,500 |
| Fmdsa | Rocky River, OH | - | Awareness and Developing Funds to Promote Research Towards New Medical Treatments and Diagnostic Tools | $15,250 |
Fundraising, Events, and Gaming
- Fundraising activities
- Yes
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $867,751 |
| Fundraising Direct Expenses | $203,061 |
| Professional Fundraising Fees | $7,500 |
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising | $867,751 | $867,751 | $607,756 | $259,995 |
| Total Events | $867,751 | $867,751 | $607,756 | $259,995 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Debt and Bond Financing
Other Reported Liabilities
| Liability | Amount |
|---|---|
| Payroll Liabilities | $47,399 |
| Credit Card Payable | $21,024 |
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Audit committee
- Yes
- Backup withholding compliance
- Yes
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- No
- Other officer compensation reviewed
- No
- Conflict-of-interest policy
- No
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Part VI, Section B, Line 11
“The organization provides a copy of form 990 to the governing body before the form is filed.”
Form 990, Part VI, Section C, Line 19
“The organization makes its governing documents and financial statements available to the public upon request.”
Filing and Contact Details
Filer
- Filer Name
- Global Genes
- EIN
- 26-3331487
- Phone
- 9492487273
- Address
- 28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA 92656
Signing Officer
- Name
- Nicole Boice
- Title
- President
- Phone
- 9492487273
- Signed
- 2016-06-13
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Nicole Boice
- Formed
- 2008
- Legal Domicile
- CA
- Voting Board Members
- 10
- Independent Board Members
- 10
- Employees
- 14
- Volunteers
- 0
Preparer
- Firm
- Hall & Company Cpas Inc
- Address
- 111 PACIFICA SUITE 300, IRVINE, CA 92618
- Preparer
- Bradford L Hall
- Phone
- 9499104255
Supplemental Narrative
Additional Explanations
Form 990, Part IX, Line 24E
“Meals & entertainment: program service expenses 90,578. Management and general expenses 5,469. Fundraising expenses 4,606. Total expenses 100,653. Promotional products: program service expenses 86,406. Management and general expenses 3,539. Fundraising expenses 1,009. Total expenses 90,954. Printing and reproduction: program service expenses 42,455. Management and general expenses 4,823. Fundraising expenses 4,028. Total expenses 51,306. Fees: program service expenses 27,248. Management and general expenses 4,301. Fundraising expenses 1,681. Total expenses 33,230. Supplies: program service expenses 20,758. Management and general expenses 9,440. Fundraising expenses 1,976. Total expenses 32,174. Postage & shipping: program service expenses 22,153. Management and general expenses 4,500. Fundraising expenses 1,038. Total expenses 27,691. Science and discovery: program service expenses 25,384. Management and general expenses 0. Fundraising expenses 0. Total expenses 25,384. Telephone: program service expenses 9,015. Management and general expenses 1,717. Fundraising expenses 0. Total expenses 10,732. Utilities: program service expenses 8,208. Management and general expenses 1,000. Fundraising expenses 813. Total expenses 10,021. Workers compensation: program service expenses 4,340. Management and general expenses 600. Fundraising expenses 227. Total expenses 5,167. Business registration fees: program service expenses 0. Management and general expenses 2,439. Fundraising expenses 2,439. Total expenses 4,878. Repairs & maintenance: program service expenses 0. Management and general expenses 3,392. Fundraising expenses 0. Total expenses 3,392. Bank fees: program service expenses 0. Management and general expenses 704. Fundraising expenses 92. Total expenses 796. Dues & subscriptions: program service expenses 0. Management and general expenses 371. Fundraising expenses 371. Total expenses 742. Business taxes: program service expenses 0. Management and general expenses 191. Fundraising expenses 0. Total expenses 191.”
FORM 990, PART XI, LINE 9:
“Depreciation on books not on return -11,422.”
Financial Statement Notes
PART XI, LINE 2D - OTHER ADJUSTMENTS:
“Direct fundraising expeses”
PART XII, LINE 2D - OTHER ADJUSTMENTS:
“Book depreciation direct financing expenses”
PART XII, LINE 4B - OTHER ADJUSTMENTS:
“TAX DEPRECIATION”
Raw XML AppendixShowing 400 of 542 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | COO / TREASURER & SECRETARY |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 203061 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 867751 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantAmt | 0 | 18989 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 18989 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 18989 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3584868 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5080 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 8055 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 56980 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 70115 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2455 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1131 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3586 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 24869 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 26949 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 39 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 34128 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 78353 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 55329 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 89457 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO CREATE GREATER PUBLIC AWARENESS FOR RARE DISEASE, WHILE CONNECTING, EDUCATING AND EMPOWERING THE MILLIONS OF FAMILIES AND CAREGIVERS AFFECTED, THROUGH AN ONLINE COMMUNITY AND COLLABORATIVE PORTAL. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 666270 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 899994 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 664690 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 664690 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 6608 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2000 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 9523 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 60497 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 72020 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 4009 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 4009 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -11422 |
| IRS990/OtherExpensesGrp/Desc | 0 | FUNDED TRAVEL FOR PATIE |
| IRS990/OtherExpensesGrp/Desc | 1 | DONATIONS |
| IRS990/OtherExpensesGrp/Desc | 2 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 3 | ADVOCACY |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 4415 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 6331 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2943 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 8863 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 310098 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 139797 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 135206 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 111425 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 310098 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 147155 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 135206 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 126619 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 5986 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 68423 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 28088 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 82007 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 292167 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 402262 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1194 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 8745 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 44719 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 54658 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 26438 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 81714 |
| IRS990/PrincipalOfficerNm | 0 | NICOLE BOICE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2131761 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 120698 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 1302388 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 306536 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 402139 |
| IRS990/PYTotalExpensesAmt | 0 | 1825225 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2131761 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 245146 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 3381807 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 3585077 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1147373 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 582784 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 623312 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 271673 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6210219 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 993761 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 541925 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 68215 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 1603901 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.79470 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.65860 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6210219 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 3585077 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1147373 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 582784 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 623312 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 271673 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 6210219 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 7814120 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/BuildingsGrp/BookValueAmt | 0 | 4277 |
| IRS990ScheduleD/BuildingsGrp/DepreciationAmt | 0 | 271 |
| IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 4548 |
| IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 165361 |
| IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt | 0 | 165361 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt | 0 | 107722 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/ContributionsAmt | 0 | 57639 |
| IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 165361 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/ContributionsAmt | 0 | 107722 |
| IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt | 0 | 107722 |
| IRS990ScheduleD/EndowmentsHeldRelatedOrgInd | 0 | 0 |
| IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd | 0 | 0 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 227827 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 13343 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 3123318 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 227827 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | 13343 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 51052 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 33857 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 84909 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 21024 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 47399 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | CREDIT CARD PAYABLE |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | PAYROLL LIABILITIES |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 203061 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 203061 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 3381808 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | DIRECT FUNDRAISING EXPESES |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | BOOK DEPRECIATION DIRECT FINANCING EXPENSES |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | TAX DEPRECIATION |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XII, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 55329 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 3136661 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 68423 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 3381808 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 3584869 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 3351145 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 607756 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | FUNDRAISING |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 867751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 867751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 867751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 867751 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 259995 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 607756 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 607756 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 15250 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 15500 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 41437 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 32459 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 32459 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | AWARENESS AND DEVELOPING FUNDS TO PROMOTE RESEARCH TOWARDS NEW MEDICAL TREATMENTS AND DIAGNOSTIC TOOLS |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | SUPPORT RESEARCH DEDICATED TO FINDING A TREATMENT, AND HOPEFULLY AN EVENTUAL CURE OF PITT HOPKINS AND SUPPORT RESEARCH DEDICATED TO FINDING A TREATMENT, AND HOPEFULLY AN EVENTUAL CURE OF PITT HOPKINS AND SUPPORT RESEARCH DEDICATED TO FINDING TREATMENT AND EVENTUAL CURE OF PITT HOPKINS AND OTHER SIMILAR DISORDERS |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | FUNDING RESEARCH FOR A CURE FOR GM1 GANGLIOSIDOSIS |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | EDUCATE AND TO ADVANCE RESEARCH LEADING TO TREATMENTS OR A CURE FOR PATIENTS LIVING WITH THE GENETIC DISORDER KCNQ2 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | DEVELOPMENT OF A LIFE-SAVING TREATMENT FOR PATIENTS THAT ARE DEFICIENT IN THE N-GLYCANESE ENZYME AND THOSE SUFFERING FROM RELATED GENETIC DISEASES |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | FMDSA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | PITT HOPKINS RESEARCH FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | CURE GM1 FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | KCNQ2 CURE ALLIANCE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | THE GRACE WILSEY FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 010771966 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 460770142 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 473154419 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 471810644 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 465727883 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 20325 CENTER RIDGE ROAD SUITE 360 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 200 HARMON COURT |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2015 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $1,024,830
- Liabilities
- $124,836
- Net assets
- $899,994
- Revenue
- $3,381,807
- Expenses
- $3,136,661
- Net income
- $245,146