Civic Intelligence

Global Genes

990 • Fiscal year 2014 • EIN 26-3331487

Jan 01, 2014 to Dec 31, 2014 • Filed on May 13, 2015

Organization ProfileWWW.GLOBALGENES.ORG

View Organization Page

28 Argonaut Suite 140 150Aliso Viejo, CA 92656

(949) 248-7273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.11x

Higher debt load relative to assets than 49% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

30th percentile

0.04x

Higher debt load relative to revenue than 30% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

73rd percentile

14%

Higher net margin than 73% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

85th percentile

$157,600

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 7.4% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

95th percentile

95%

Faster asset growth than 95% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2014

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Balance Sheet
Liabilities / Assets49th percentile

Assets

Up

$744,445

Up $549,068 (+281%) from 2012

Net Assets

Up

$666,270

Up $478,405 (+255%) from 2012

Liabilities

Up

$78,175

Up $70,663 (+941%) from 2012

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin73rd percentile

Revenue

$2,131,761

No earlier filing loaded for comparison.

Expenses

Up

$1,825,225

Up $1,251,679 (+218%) from 2012

Net Income

$306,536

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth95th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2014

Assets$744,445
Liabilities$78,175
Net Assets$666,270
Open 2014 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2014

Revenue$2,131,761
Expenses$1,825,225
Net Income$306,536
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
May 13, 2015
Return Version
2014v5.0
Gross Receipts
$2,131,761
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

To create greater public awareness for rare diseases, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$368,210$610,776▲ $242,566
Land, Buildings, and Equipment, Net$12,258$78,353▲ $66,095
Prepaid Expenses and Deferred Charges$12,614$26,438▲ $13,824
Inventories for Sale or Use$4,418$24,869▲ $20,451
Accounts Receivable$5,000--
Total Assets$406,509$744,445▲ $337,936
Other Assets Total$4,009$4,009→ $0
Liabilities
Accounts Payable and Accrued Expenses$44,992$64,931▲ $19,939
Unsecured Notes Loans Payable$4,116$7,258▲ $3,142
Other Liabilities$0$5,986▲ $5,986
Total Liabilities$49,108$78,175▲ $29,067
Net Assets / Fund Balance
Unrestricted Net Assets$249,679$500,909▲ $251,230
Temporarily Rstr Net Assets$107,722$165,361▲ $57,639
Total Net Assets Fund Balance$357,401$666,270▲ $308,869
Total Liabilities and Net Assets / Fund Balance$406,509$744,445▲ $337,936

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$63,766-$63,766
Equipment$10,193$9,208$19,401
Buildings$4,394$154$4,548

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$107,722$57,639--$165,361
2013-$107,722--$107,722
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Nicole BoicePresident/CEOFT$146,725$10,875$157,600
Andrea EpsteinExecutive DirectorFT$127,000-$127,000
Amy GroverTreasurer/secretaryFT$61,000-$61,000

Board Members and Trustees

NameTitle
Barbara LaveryDirector
Brad MargusDirector
Caroline LoewyDirector
Hugh HempelDirector
John CrowleyDirector
Matt WilseyDirector
Natalie DouglasDirector
Norman SchmeltzerDirector
Peter PellizzonDirector
Wendy WhiteDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$2,131,761
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$1,138,000
Change in Net Assets
$306,536

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,131,761
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$2,131,761
Total Revenue per Form 990
$2,131,761
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,302,388
Salaries, Compensation, and Employee Benefits$402,139
Total Fundraising Expense$256,697
Grants and Similar Amounts Paid$120,698
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$330,816$30,508$105,318$466,642
Current Officers, Directors, Trustees, and Key Employees$207,360$69,120$69,120$345,600
Conferences and Meetings$231,860--$231,860
Travel$149,867$4,613$2,501$156,981
Advertising$109,169$1,634$14,217$125,020
Grants to Domestic Orgs$120,698--$120,698
Occupancy$37,036$12,345$12,345$61,726
All Other Expenses$24,897$24,756$6,307$55,960
Information Technology$22,245$11,831$3,000$37,076
Other Salaries and Wages$17,880$5,960$5,960$29,800
Fees for Services Accounting-$27,298-$27,298
Payroll Taxes$16,043$5,348$5,348$26,739
Other Expenses$9,229$5,076$1,864$16,169
Fees for Services Legal$3,500$7,084-$10,584
Depreciation Depletion-$5,766-$5,766
Insurance$1,812$604$604$3,020
Total Functional Expenses$1,342,993$225,535$256,697$1,825,225

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,825,225
Total Expenses per Audited Statements$1,822,892
Expenses per Audited Statements$1,819,459
Expenses Not Reported on Financial Statements$5,766
Other Expense Adjustments$5,766
Expenses Not Reported on Form 990$3,433
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
National Institute of Arthritis and Muskuloskeletal and Skin DiseasesBethesda, MD-Research for Arthritis and Muskuloskeletal and Skin Diseases$27,500
CystosolveCambridge, MA-Investigative Research in Innovation/technology to Improve Patient Diagnosis.$10,000
Trust Center for Mit EntrepeneurshipCambridge, MA-Grant Prizes for a Hack-a-thon They Put on for the Facial Recognition Software.$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising$993,761---
Total Events$993,761---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Liabilities$3,388
Credit Card Payable$2,598
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The organization provides a copy of form 990 to the governing body before the form is filed.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
28 ARGONAUT SUITE 140 150, ALISO VIEJO, CA 92656

Signing Officer

Name
Nicole Boice
Title
President
Phone
9492487273
Signed
2015-05-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Nicole Boice
Formed
2008
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
0

Preparer

Firm
Hall & Company Cpas Inc
Address
111 PACIFICA SUITE 320, IRVINE, CA 92618
Preparer
Bradford L Hall
Phone
9499104255
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Outside contract services : program service expenses 330,816. Management and general expenses 30,508. Fundraising expenses 105,318. Total expenses 466,642.”

FORM 990, PART XI, LINE 9:

“Depreciation on return not on books 2,333.”

Financial Statement Notes

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“BOOK DEPRECIATION”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“TAX DEPRECIATION”

Raw XML AppendixShowing 400 of 535 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt044992
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt064931
IRS990/AccountsReceivableGrp/BOYAmt05000
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO CREATE GREATER PUBLIC AWARENESS FOR RARE DISEASES, WHILE CONNECTING, EDUCATING AND EMPOWERING THE MILLIONS OF FAMILIES AND CAREGIVERS AFFECTED, THROUGH AN ONLINE COMMUNITY AND COLLABORATIVE PORTAL.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/FundraisingAmt014217
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01634
IRS990/AdvertisingGrp/ProgramServicesAmt0109169
IRS990/AdvertisingGrp/TotalAmt0125020
IRS990/AllOtherContributionsAmt01138000
IRS990/AllOtherExpensesGrp/FundraisingAmt06307
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt024756
IRS990/AllOtherExpensesGrp/ProgramServicesAmt024897
IRS990/AllOtherExpensesGrp/TotalAmt055960
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0GILLAMS & JONES
IRS990/BooksInCareOfDetail/PhoneNum09492180517
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03551 CAMINO MIRA COSTA SUITE J
IRS990/BooksInCareOfDetail/USAddress/CityNm0SAN CLEMENTE
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd092672
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0368210
IRS990/CashNonInterestBearingGrp/EOYAmt0610776
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt069120
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt069120
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0207360
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0345600
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0231860
IRS990/ConferencesMeetingsGrp/TotalAmt0231860
IRS990/ConflictOfInterestPolicyInd00
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0993761
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt02131761
IRS990/CYGrantsAndSimilarPaidAmt0120698
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt01302388
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0306536
IRS990/CYSalariesCompEmpBnftPaidAmt0402139
IRS990/CYTotalExpensesAmt01825225
IRS990/CYTotalFundraisingExpenseAmt0256697
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt02131761
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt05766
IRS990/DepreciationDepletionGrp/TotalAmt05766
IRS990/Desc0CREATE PUBLIC AWARENESS FOR RARE DISEASE AND CONNECT, EDUCATE, AND EMPOWER FAMILIES AND CAREGIVERS AFFECTED
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt01342993
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt027298
IRS990/FeesForServicesAccountingGrp/TotalAmt027298
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt07084
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt03500
IRS990/FeesForServicesLegalGrp/TotalAmt010584
IRS990/FeesForServicesOtherGrp/FundraisingAmt0105318
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt030508
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0330816
IRS990/FeesForServicesOtherGrp/TotalAmt0466642
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt245.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt93.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1240.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/PersonNm0CAROLINE LOEWY
IRS990/Form990PartVIISectionAGrp/PersonNm1JOHN CROWLEY
IRS990/Form990PartVIISectionAGrp/PersonNm2NICOLE BOICE
IRS990/Form990PartVIISectionAGrp/PersonNm3NATALIE DOUGLAS
IRS990/Form990PartVIISectionAGrp/PersonNm4HUGH HEMPEL
IRS990/Form990PartVIISectionAGrp/PersonNm5PETER PELLIZZON
IRS990/Form990PartVIISectionAGrp/PersonNm6BRAD MARGUS
IRS990/Form990PartVIISectionAGrp/PersonNm7WENDY WHITE
IRS990/Form990PartVIISectionAGrp/PersonNm8MATT WILSEY
IRS990/Form990PartVIISectionAGrp/PersonNm9BARBARA LAVERY
IRS990/Form990PartVIISectionAGrp/PersonNm10ANDREA EPSTEIN
IRS990/Form990PartVIISectionAGrp/PersonNm11NORMAN SCHMELTZER
IRS990/Form990PartVIISectionAGrp/PersonNm12AMY GROVER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2157600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10127000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1261000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2PRESIDENT/CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12TREASURER/SECRETARY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0993761
IRS990/FundraisingDirectExpensesAmt00
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantAmt0120698
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0120698
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0120698
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02131761
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt03000
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt011831
IRS990/InformationTechnologyGrp/ProgramServicesAmt022245
IRS990/InformationTechnologyGrp/TotalAmt037076
IRS990/InsuranceGrp/FundraisingAmt0604
IRS990/InsuranceGrp/ManagementAndGeneralAmt0604
IRS990/InsuranceGrp/ProgramServicesAmt01812
IRS990/InsuranceGrp/TotalAmt03020
IRS990/InventoriesForSaleOrUseGrp/BOYAmt04418
IRS990/InventoriesForSaleOrUseGrp/EOYAmt024869
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt021
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt09362
IRS990/LandBldgEquipBasisNetGrp/BOYAmt012258
IRS990/LandBldgEquipBasisNetGrp/EOYAmt078353
IRS990/LandBldgEquipCostOrOtherBssAmt087715
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO CREATE GREATER PUBLIC AWARENESS FOR RARE DISEASE, WHILE CONNECTING, EDUCATING AND EMPOWERING THE MILLIONS OF FAMILIES AND CAREGIVERS AFFECTED, THROUGH AN ONLINE COMMUNITY AND COLLABORATIVE PORTAL.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0357401
IRS990/NetAssetsOrFundBalancesEOYAmt0666270
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt05574
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt012345
IRS990/OccupancyGrp/ManagementAndGeneralAmt012345
IRS990/OccupancyGrp/ProgramServicesAmt037036
IRS990/OccupancyGrp/TotalAmt061726
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt04009
IRS990/OtherAssetsTotalGrp/EOYAmt04009
IRS990/OtherChangesInNetAssetsAmt02333
IRS990/OtherExpensesGrp/Desc0PRINTING AND REPRODUCTI
IRS990/OtherExpensesGrp/Desc1SUPPLIES
IRS990/OtherExpensesGrp/Desc2GIFT PRODUCTS
IRS990/OtherExpensesGrp/Desc3POSTAGE & SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt019902
IRS990/OtherExpensesGrp/FundraisingAmt110211
IRS990/OtherExpensesGrp/FundraisingAmt21864
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02325
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt111267
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt25076
IRS990/OtherExpensesGrp/ProgramServicesAmt022509
IRS990/OtherExpensesGrp/ProgramServicesAmt115258
IRS990/OtherExpensesGrp/ProgramServicesAmt222814
IRS990/OtherExpensesGrp/ProgramServicesAmt39229
IRS990/OtherExpensesGrp/TotalAmt044736
IRS990/OtherExpensesGrp/TotalAmt136736
IRS990/OtherExpensesGrp/TotalAmt222814
IRS990/OtherExpensesGrp/TotalAmt316169
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt05986
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt05960
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05960
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt017880
IRS990/OtherSalariesAndWagesGrp/TotalAmt029800
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05348
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05348
IRS990/PayrollTaxesGrp/ProgramServicesAmt016043
IRS990/PayrollTaxesGrp/TotalAmt026739
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt012614
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt026438
IRS990/PrincipalOfficerNm0NICOLE BOICE
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01234195
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt021414
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0841682
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0169536
IRS990/PYSalariesCompEmpBnftPaidAmt0201563
IRS990/PYTotalExpensesAmt01064659
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01234195
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0306536
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01147373
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0582784
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0623312
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0271673
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0468810
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt03093952
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0993761
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0541925
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt068215
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01603901
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.65860
IRS990ScheduleA/PublicSupportPY170Pct00.77640
IRS990ScheduleA/PublicSupportTotal170Amt03093952
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01147373
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0582784
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0623312
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0271673
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0468810
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03093952
IRS990ScheduleA/TotalSupportAmt04697853
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BuildingsGrp/BookValueAmt04394
IRS990ScheduleD/BuildingsGrp/DepreciationAmt0154
IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt04548
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt0107722
IRS990ScheduleD/CYEndwmtFundGrp/ContributionsAmt057639
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt0165361
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/ContributionsAmt0107722
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt0107722
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd00
IRS990ScheduleD/EquipmentGrp/BookValueAmt010193
IRS990ScheduleD/EquipmentGrp/DepreciationAmt09208
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt019401
IRS990ScheduleD/ExpensesNotReportedAmt03433
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt05766
IRS990ScheduleD/ExpensesSubtotalAmt01819459
IRS990ScheduleD/OtherExpensesIncludedAmt03433
IRS990ScheduleD/OtherExpensesNotIncludedAmt05766
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt063766
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt063766
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt02598
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt13388
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARD PAYABLE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1PAYROLL LIABILITIES
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt02131761
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0BOOK DEPRECIATION
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1TAX DEPRECIATION
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TermEndowmentBalanceEOYPct01.00000
IRS990ScheduleD/TotalBookValueLandBuildingsAmt078353
IRS990ScheduleD/TotalExpensesPerForm990Amt01825225
IRS990ScheduleD/TotalLiabilityAmt05986
IRS990ScheduleD/TotalRevenuePerForm990Amt02131761
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02131761
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01822892
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0993761
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0993761
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0FUNDRAISING
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0993761
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0993761
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt010000
IRS990ScheduleI/RecipientTable/CashGrantAmt127500
IRS990ScheduleI/RecipientTable/CashGrantAmt25000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0INVESTIGATIVE RESEARCH IN INNOVATION/TECHNOLOGY TO IMPROVE PATIENT DIAGNOSIS.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH FOR ARTHRITIS AND MUSKULOSKELETAL AND SKIN DISEASES
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2GRANT PRIZES FOR A HACK-A-THON THEY PUT ON FOR THE FACIAL RECOGNITION SOFTWARE.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CYSTOSOLVE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NATIONAL INSTITUTE OF ARTHRITIS AND MUSKULOSKELETAL AND SKIN DISEASES
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2TRUST CENTER FOR MIT ENTREPENEURSHIP
IRS990ScheduleI/RecipientTable/RecipientEIN0275488897
IRS990ScheduleI/RecipientTable/RecipientEIN1520858115
IRS990ScheduleI/RecipientTable/RecipientEIN2042103594
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0701 CONCORD AVE

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$744,445
Liabilities
$78,175
Net assets
$666,270
Revenue
$2,131,761
Expenses
$1,825,225
Net income
$306,536
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24