Civic Intelligence

Global Genes

EIN 26-3331487 • 501(c)3 • Washington, DC

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Profile

Global genes' mission is to drive change through the support of rare disease patients and families while equipping advocacy leaders with important tools, resources, mentoring, and connections to further advance awareness, education, and research.

1012 14th Street NW Suite 500Washington, DC 20005

globalgenes.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

91st percentile

0.88x

Higher debt load relative to assets than 91% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

54th percentile

0.19x

Higher debt load relative to revenue than 54% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

28th percentile

-3.8%

Higher net margin than 28% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

7th percentile

-18%

Faster asset growth than 7% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2024

Revenue Growth

62nd percentile

13%

Faster revenue growth than 62% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets91st percentile

Assets

Down

$1,538,482

Down $560,658 (-27%) from 2023

Liabilities

Down

$1,351,107

Down $290,296 (-18%) from 2023

Net Assets

Down

$187,375

Down $270,362 (-59%) from 2023

Operations
Liabilities / Revenue54th percentileNet Margin28th percentile

Revenue

Down

$7,145,531

Down $1,323,871 (-16%) from 2023

Expenses

Down

$7,415,893

Down $1,145,966 (-13%) from 2023

Net Income

Down

-$270,362

Down $177,905 (-192%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth7th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $27,918Liabilities 2011: $0Net Assets 2011: $27,9182011Assets 2012: $195,377Liabilities 2012: $7,512Net Assets 2012: $187,8652012Assets 2014: $744,445Liabilities 2014: $78,175Net Assets 2014: $666,2702014Assets 2015: $1,024,830Liabilities 2015: $124,836Net Assets 2015: $899,9942015Assets 2016: $1,211,444Liabilities 2016: $159,016Net Assets 2016: $1,052,4282016Assets 2017: $1,189,128Liabilities 2017: $227,696Net Assets 2017: $961,4322017Assets 2018: $1,746,498Liabilities 2018: $330,560Net Assets 2018: $1,415,9382018Assets 2019: $2,925,050Liabilities 2019: $1,283,097Net Assets 2019: $1,641,9532019Assets 2020: $3,087,118Liabilities 2020: $1,044,513Net Assets 2020: $2,042,6052020Assets 2021: $3,315,841Liabilities 2021: $947,013Net Assets 2021: $2,368,8282021Assets 2022: $2,294,462Liabilities 2022: $1,753,204Net Assets 2022: $541,2582022Assets 2023: $2,099,140Liabilities 2023: $1,641,403Net Assets 2023: $457,7372023Assets 2024: $1,538,482Liabilities 2024: $1,351,107Net Assets 2024: $187,3752024

Highlighted filing

2024

Assets$1,538,482
Liabilities$1,351,107
Net Assets$187,375
Open 2024 Filing

Operations Trend

Revenue Growth62nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $243,6502011Expenses 2012: $573,5462012Revenue 2014: $2,131,761Expenses 2014: $1,825,225Net Income 2014: $306,5362014Revenue 2015: $3,381,807Expenses 2015: $3,136,661Net Income 2015: $245,1462015Revenue 2016: $3,565,642Expenses 2016: $3,413,356Net Income 2016: $152,2862016Revenue 2017: $3,783,379Expenses 2017: $3,986,746Net Income 2017: -$203,3672017Revenue 2018: $4,930,932Expenses 2018: $4,476,426Net Income 2018: $454,5062018Revenue 2019: $6,988,193Expenses 2019: $6,464,707Net Income 2019: $523,4862019Revenue 2020: $5,567,077Expenses 2020: $5,166,425Net Income 2020: $400,6522020Revenue 2021: $5,883,997Expenses 2021: $5,557,417Net Income 2021: $326,5802021Revenue 2022: $5,557,435Expenses 2022: $7,700,189Net Income 2022: -$2,142,7542022Revenue 2023: $8,469,402Expenses 2023: $8,561,859Net Income 2023: -$92,4572023Revenue 2024: $7,145,531Expenses 2024: $7,415,893Net Income 2024: -$270,3622024

Highlighted filing

2024

Revenue$7,145,531
Expenses$7,415,893
Net Income-$270,362
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$1,538,482
Liabilities
$1,351,107
Net assets
$187,375
Revenue
$7,145,531
Expenses
$7,415,893
Net income
-$270,362
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$1.35$0.19$7.15$7.42$0.27
2023Detailed filing. Detailed filing data is available for this year.$2.10$1.64$0.46$8.47$8.56$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.29$1.75$0.54$5.56$7.70$2.14
2021Detailed filing. Detailed filing data is available for this year.$3.32$0.95$2.37$5.88$5.56$0.33
2020Detailed filing. Detailed filing data is available for this year.$3.09$1.04$2.04$5.57$5.17$0.40
2019Detailed filing. Detailed filing data is available for this year.$2.93$1.28$1.64$6.99$6.46$0.52
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.33$1.42$4.93$4.48$0.45
2017Detailed filing. Detailed filing data is available for this year.$1.19$0.23$0.96$3.78$3.99$0.20
2016Detailed filing. Detailed filing data is available for this year.$1.21$0.16$1.05$3.57$3.41$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.12$0.90$3.38$3.14$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.67$2.13$1.83$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.01$0.19$0.57
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.03$0.00$0.03$0.24
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 24, 2025
Return Version
2024v5.2
Gross Receipts
$7,145,531
Mission and Program Overview

Mission

To create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.

Global genes strives to connect, empower and inspire the rare disease community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Accounts Receivable$466,406$853,682▲ $387,276
Cash and Non-Interest-Bearing Accounts$1,157,502$554,935▼ $602,567
Prepaid Expenses and Deferred Charges$194,808$126,862▼ $67,946
Savings and Temporary Cash Investments$251,643$2,003▼ $249,640
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,099,140$1,538,482▼ $560,658
Other Assets Total$28,781$1,000▼ $27,781
Liabilities
Accounts Payable and Accrued Expenses$804,996$718,207▼ $86,789
Deferred Revenue$645,000$437,000▼ $208,000
Other Liabilities$191,407$195,900▲ $4,493
Total Liabilities$1,641,403$1,351,107▼ $290,296
Net Assets / Fund Balance
Net Assets With Donor Restrictions-$1,505,689-
Net Assets Without Donor Restrictions$457,737$-1,318,314▼ $1,776,051
Total Net Assets Fund Balance$457,737$187,375▼ $270,362
Total Liabilities and Net Assets / Fund Balance$2,099,140$1,538,482▼ $560,658

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$204,337$204,337
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Charlene Son RigbyCEOFT$319,125$836$319,961
Nicole R BoiceFounder & Chief Mission OfficerFT$254,375$86$254,461
Karmen TrzupekSenior Director, Scientific ProgramsFT$179,287$6,386$185,673
Zohreh TalebizadehSenior Director, Rare-x Research ProgramFT$180,000$86$180,086
Zohreh TalebizadehSenior Director, Rare-x Research Pro-$180,000$86$180,086
Lauren AlfordSenior Director, MarketingFT$168,506$86$168,592
Chwenwoan KuanDirector, Program OperationsFT$146,285$6,062$152,347
Timothy EhrhardSenior Director, It (term 12/24)FT$151,746$86$151,832
Victoria WeissSenior Director, FinancePT$136,800$86$136,886

Board Members and Trustees

NameTitle
Walt KowtoniukChair
Katherine MaynardVice Chair
Alvin ShihDirector
Betsy BogardDirector
Caroline LoewyDirector
David PearceDirector
Hugh HempelDirector
Ilana FogelmanDirector
Indu NavarDirector
John ReyndersDirector
Kelly McvearryDirector
Khrystal DavisDirector
Morrie RuffinDirector
Neil KumarDirector
Peter GoodhandDirector
Ram IyerDirector
Simon FrostCFO
Christina HartmanSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Adjuvant Partners LLCConsulting Services1340 SMITH AVENUE SUITE 200, Baltimore, MD 21209$180,000
Msg Consulting Group LLCConsulting Services838 DARLINGTON AVENUE, Mahwah, NJ 07430$161,606
T3 Dynamics LLCConsulting Services5739 KANAN ROAD SUITE 288, Agoura Hills, CA 91301$142,500
Levine Media GroupEditorial Services21 KINGSTON ROAD, Kensington, CA 94707$112,500
Revenue and Support

Revenue Composition

Contributions and Grants
$5,686,341
Program Service Revenue
$1,449,717
Investment Income
$9,473
Other Revenue
$0
All Other Contributions
$5,686,341
Change in Net Assets
$-270,362

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,145,531
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$7,145,531
Total Revenue per Form 990
$7,145,531
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,960,600
Other Expenses$3,280,029
Total Fundraising Expense$600,190
Grants and Similar Amounts Paid$175,264
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,209,500$281,085$358,190$2,848,775
Fees for Services Other$833,088$298,207$17,250$1,148,545
Conferences and Meetings$986,427$2$12,675$999,104
Current Officers, Directors, Trustees, and Key Employees$583,324$31,995$95,989$711,308
Information Technology$320,181$95,951$12,366$428,498
Payroll Taxes$223,803$25,372$38,192$287,367
Travel$126,129$4,729$7,082$137,940
Other Employee Benefits$67,821$11,333$33,996$113,150
Grants to Domestic Individuals$95,514--$95,514
Occupancy$27,970$50,939-$78,909
Grants to Domestic Orgs$70,750--$70,750
Fees for Services Accounting-$61,310-$61,310
Advertising$34,115$4,713$134$38,962
Insurance$16,777$7,781$2,805$27,363
All Other Expenses$1,114$10,414$13$11,541
Foreign Grants$9,000--$9,000
Office Expenses$3,589$4,287$36$7,912
Fees for Services Legal$5,549$1,868-$7,417
Other Expenses$4,675$661$764$6,100
Total Functional Expenses$5,861,349$954,354$600,190$7,415,893

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$7,415,893
Total Expenses per Audited Statements$7,415,893
Total Expenses per Form 990$7,415,893
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Lhon CollectiveSan Diego, CA501(c)(3)Mental Health Impact Grant$9,000
National Foundation for Ectodermal DysplasiasFairview Heights, IL501(c)(3)Mental Health Impact Grant$9,000
Oxalosis & Hyperoxaluria FoundationNew Paltz, NY501(c)(3)Mental Health Impact Grant$9,000
Pediatric Brain Tumor FoundationWinston Salem, NC501(c)(3)Mental Health Impact Grant$9,000
The Allo Hope FoundationTuscaloosa, AL501(c)(3)Mental Health Impact Grant$9,000
The Sumaira FoundationSomerville, MA501(c)(3)Mental Health Impact Grant$9,000
Cure Jm FoundationLeesburg, VA501(c)(3)Mental Health Impact Grant$6,750

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Morrie RuffinBoard MemberConsulting Fees to Adjuvant Partners, LLC for Finance and Operation ServicesNo$180,000
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Compensation$195,900
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

“The finance & audit committee has authority to choose auditor and review and approve audited financials.”

Form 990, Part VI, Section B, Line 11B

“Draft form 990 is sent to the members of the board for their review before filing.”

Form 990, Part VI, Section B, Line 12

“Board of directors members are required to disclose any conflict of interest annually.”

Form 990, Part VI, Section B, Line 15

“The compensation committee met in q2 2024 and reviewed market research on non-profit executive salaries and approved increases and an executive bonus structure. Officers do not receive salaries and therefore there is no need to vote to approve. The process described here was last completed in 2024.”

Form 990, Part VI, Section C, Line 19

“Global genes' financial statements, conflict of interest policy, and governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Global Genes
EIN
26-3331487
Phone
9492487273
Address
1012 14TH STREET NW SUITE 500, WASHINGTON, DC 20005

Signing Officer

Name
Charlene Son Rigby
Title
CEO
Phone
9492487273
Signed
2025-10-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Charlene Son Rigby
Formed
2008
Legal Domicile
CA
Voting Board Members
18
Independent Board Members
17
Employees
38
Volunteers
42

Preparer

Firm
Cliftonlarsonallen Llp
Address
2875 MICHELLE DRIVE 300, IRVINE, CA 92606
Preparer
Lisa Ryssel
Phone
7149781300
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Rare-x data collection program: program service expenses 98,820. Management and general expenses 0. Fundraising expenses 0. Total expenses 98,820. Outside services: program service expenses 734,268. Management and general expenses 298,207. Fundraising expenses 17,250. Total expenses 1,049,725.”

FORM 990, PART XII, LINE 2C:

“The process for oversight and selection of an independent accountant has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code (irc) and corresponding state code as a charitable organization whereby only unrelated business income, as identified by section 509(a)(1) of the irc, is subject to income tax. The organization had no unrelated business income during the year ended december 31, 2024. Accordingly, no provision for income taxes has been recorded in the accompanying financial statements. The organization adheres to the provisions of fasb asc 740-10-25, accounting for uncertainty in income taxes. In accordance with fasb asc 740-10-25, an organization must recognize the tax benefit associated with tax taken for tax return purposes when it is more likely than not that the position will be sustained. The organization does not believe that there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties. Years prior to 2021 are no longer subject to u.s. Federal income tax examination, and the organization is no longer subject to state income tax examinations for years before 2020.”

Raw XML AppendixShowing 400 of 877 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/Form990PartVIISectionAGrp/TitleTxt0FOUNDER & CHIEF MISSION OFFICER
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IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt20SENIOR DIRECTOR, FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt21SENIOR DIRECTOR, SCIENTIFIC PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt22SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM
IRS990/Form990PartVIISectionAGrp/TitleTxt23SENIOR DIRECTOR, MARKETING
IRS990/Form990PartVIISectionAGrp/TitleTxt24SENIOR DIRECTOR, IT (TERM 12/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR, PROGRAM OPERATIONS
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IRS990/MissionDesc0GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
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