Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
990 • Fiscal year 2013 • EIN 22-2762623
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
Liabilities / Revenue
84th percentile
Higher debt load relative to revenue than 84% of similar nonprofits.
Net Margin
47th percentile
Higher net margin than 47% of similar nonprofits.
Top Officer Pay
97th percentile
Higher top officer pay than 97% of similar nonprofits.
Top officer pay equals 13.8% of source-year revenue.
Asset Growth
63rd percentile
Faster asset growth than 63% of similar nonprofits.
Revenue Growth
54th percentile
Faster revenue growth than 54% of similar nonprofits.
Assets
Up$359,938
Up $42,233 (+13%) from 2012
Net Assets
Up$325,576
Up $11,208 (+3.6%) from 2012
Liabilities
Up$34,362
Up $31,025 (+930%) from 2012
Revenue
$356,284
No earlier filing loaded for comparison.
Expenses
Up$345,076
Up $75,886 (+28%) from 2012
Net Income
$11,208
No earlier filing loaded for comparison.
The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.
Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $289,580 | $320,898 | ▲ $31,318 |
| Cash and Non-Interest-Bearing Accounts | $25,494 | $36,467 | ▲ $10,973 |
| Land, Buildings, and Equipment, Net | $2,500 | $2,500 | → $0 |
| Accounts Receivable | $82 | $0 | ▼ $82 |
| Prepaid Expenses and Deferred Charges | $49 | $73 | ▲ $24 |
| Total Assets | $317,705 | $359,938 | ▲ $42,233 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $3,337 | $34,362 | ▲ $31,025 |
| Other Liabilities | $0 | $0 | → $0 |
| Total Liabilities | $3,337 | $34,362 | ▲ $31,025 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $314,368 | $325,576 | ▲ $11,208 |
| Permanently Rstr Net Assets | $0 | $0 | → $0 |
| Temporarily Rstr Net Assets | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $314,368 | $325,576 | ▲ $11,208 |
| Total Liabilities and Net Assets / Fund Balance | $317,705 | $359,938 | ▲ $42,233 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $0 | $0 | $0 |
| Other Land Buildings | $2,500 | $0 | $0 |
| Land | $0 | - | $0 |
| Equipment | $0 | $0 | $0 |
| Leasehold Improvements | $0 | $0 | $0 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Eveline V Honig MD MPH | Executive Director | PT | $49,167 | $49,167 |
| Sara Kowalczyk MA MPH | President | PT | $1,300 | $1,300 |
| Name | Title |
|---|---|
| Mark Patterson | Vice President |
| Mee Warren | Vice President |
| Sue Brockway Carella | Founding Trustee (passed 4/13) |
| Andrea Podolsky | Trustee |
| Anthony Tam | Trustee |
| Patricia Higgins | Trustee |
| Sarah DiDavide | Trustee |
| Suporn Sukprarut | Trustee |
| Ayelet Gneezy | Trustee (resigned 2013) |
| Jessica O'Leary | Trustee (resigned 3/13) |
| Heidi Shilensky | Trustee (resigned 6/13) |
| Niss Ryan | Trustee Emerita |
| Rahul Kakkar | Secretary |
| Louise O'Connell | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $225,622 |
| Salaries, Compensation, and Employee Benefits | $95,207 |
| Grants and Similar Amounts Paid | $24,247 |
| Total Fundraising Expense | $13,452 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $104,568 | $0 | $0 | $104,568 |
| Current Officers, Directors, Trustees, and Key Employees | $39,882 | $2,531 | $8,054 | $50,467 |
| Office Expenses | $32,478 | $3,742 | $4,197 | $40,417 |
| Fees for Services Other | $37,515 | $0 | $0 | $37,515 |
| Other Salaries and Wages | $31,266 | $5,767 | $340 | $37,373 |
| Grants to Domestic Individuals | $24,247 | - | - | $24,247 |
| Travel | $8,151 | $4,720 | $29 | $12,900 |
| Insurance | $1,369 | $6,062 | $0 | $7,431 |
| Payroll Taxes | $6,047 | $651 | $669 | $7,367 |
| Information Technology | $6,921 | $40 | $0 | $6,961 |
| Fees for Services Accounting | $0 | $3,726 | $0 | $3,726 |
| Occupancy | $0 | $3,108 | $0 | $3,108 |
| Advertising | $828 | $650 | $0 | $1,478 |
| Other Expenses | $743 | $464 | $0 | $1,207 |
| Fees for Services Legal | $0 | $250 | $0 | $250 |
| Total Functional Expenses | $296,934 | $34,690 | $13,452 | $345,076 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $345,076 |
| Total Expenses per Audited Statements | $345,076 |
| Total Expenses per Form 990 | $345,076 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Other Expense Adjustments | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Two Changes were adopted to the Bylaws: 1) Increased the range of the required number of Trustees to between 5 and 25 (previously it was between 9 and 15 Trustees); and 2) Lengthen the term limits on holding a Trustee position by one term, or three years (previously Trustees could serve two 3-year terms or 6 years total, and it has adopted to extend this term limit to three 3-year terms or 9 years total).”
“Narcolepsy Network is membership organization.”
“Any person who supports the purpose of the corporation may become a member for each calendar year by paying the annual membership dues as required by the bylaws. Only those persons whose dues are current or have been granted complimentary membership shall be eligible to vote at membership meetings. There shall be no shares or membership certificates of this corporation.”
“Any member may attend a membership meeting. Voting privileges shall be extended to any member whose dues are paid by the close of business on the day prior to giving notice of the meeting, which shall be the record date for determining the members entitled to vote at the meeting. Each voting member shall have one (1) vote. Membership standing in the name of a corporation may be voted on by any officer or agent, or by proxy appointed by any of them, unless some other person, by resolution of its board or pursuant to its by-laws, shall be appointed to vote the membership.”
“The Board of Trustees shall be called to review the annual Form 990 and accompanying schedules.”
“The Narcolepsy Network Governing Documents, including the conflict of interest policy are available to the public upon request. The financial statements are published in the Narcolepsy Network Annual report, which is available on the Narcolepsy Network website. Additionally, the bylaws are on the Narcolepsy Network website member's only section, and are available upon request.”
“INDEPENDENT CONTRACTORS AND CONSULTANTS: Conference Planner $ 8960; Newsletter Editing and design $7287.50; Video and Audio Visual Services $ 9980; IT support $987.50; Professional Consulting Services $10,000”
“Maureen D. Garnier donated "The Dream" , her original watercolor with black and metallic inks. The painting measures 26" x 39". "The Dream" may be used in a variety of print images to further awareness of narcolepsy and its symptoms.”
“The Organization adopted the new accounting standard related to uncertainty in income taxes. For the periods ended December 31, 2013 and 2012 respectively, the organization did not identify any uncertain tax positions taken in an income tax return that would require adjustment to or disclosure in its financial statements. In addition, the organization believes that its tax status as a tax exempt entity would be sustained under federal and state tax examination. The Organization is subject to federal and state income tax examination for all periods generally subsequent to 2009.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3337 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 34362 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 82 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 650 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 828 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1478 |
| IRS990/AllOtherContributionsAmt | 0 | 234919 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BenefitsToMembersGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Kathleen L Randell |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4016672523 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 129 Waterwheel Lane |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | North Kingstown |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | RI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 02852 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 25494 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 36467 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 1 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 8054 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 2531 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 39882 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 50467 |
| IRS990/CompDisqualPersonsGrp/FundraisingAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
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| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 104568 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 104568 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 0 |
| IRS990/CostOfGoodsSoldAmt | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 286552 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 24247 |
| IRS990/CYInvestmentIncomeAmt | 0 | 196 |
| IRS990/CYOtherExpensesAmt | 0 | 225622 |
| IRS990/CYOtherRevenueAmt | 0 | 191 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 69345 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 11208 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 95207 |
| IRS990/CYTotalExpensesAmt | 0 | 345076 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 13452 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 356284 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 1 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | CONFERENCE: Each year Narcolepsy Network (NN) hosts a conference in a different city which creates a unique gathering for, support, education, awareness building, and networking among people affected by narcolepsy, A selection of workshops, lectures, support forums, energizers and creative activities are some of the offerings at the conference. Graduate students and professionals in health, education, science and government can get a unique perspective on narcolepsy and the effect it has on individuals and families. In 2013, NN hosted the 28th annual conference in Atlanta, Georgia. Over 400 people attended from all over the world. The conference offered special programming for children and young adults with narcolepsy as well as sessions on research treatment and advocacy. The annual membership meeting was held on Saturday, October 19, in Atlanta Georgia. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 126693 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 11603 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 3726 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 3726 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 250 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 250 |
| IRS990/FeesForServicesLobbyingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 0 |
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| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 0 |
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| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 37515 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 37515 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/FundraisingAmt | 0 | 0 |
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| IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 30 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 15 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 5 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Eveline V Honig MD MPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Sue Brockway Carella |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Sarah DiDavide |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Ayelet Gneezy |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Patricia Higgins |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Jessica O'Leary |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Andrea Podolsky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Niss Ryan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Heidi Shilensky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Suporn Sukprarut |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Anthony Tam |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Sara Kowalczyk MA MPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Mark Patterson |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | Mee Warren |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Louise O'Connell |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | Rahul Kakkar |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 49167 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 1300 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Founding Trustee (passed 4/13) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Trustee (resigned 2013) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Trustee (resigned 3/13) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Trustee Emerita |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Trustee (resigned 6/13) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | Secretary |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1986 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/FundraisingAmt | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GovernmentGrantsAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 24247 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 24247 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 356284 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 191 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 40 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 6921 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6961 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 6062 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1369 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7431 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 196 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 196 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 11 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2500 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 2500 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 2500 |
| IRS990/LegalDomicileStateCd | 0 | NJ |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 40030 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of Chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 314368 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 325576 |
| IRS990/NetIncomeOrLossGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 191 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 191 |
| IRS990/NetIncomeOrLossGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3108 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 3108 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 4197 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3742 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 32478 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 40417 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Business Registrations and Fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Credit card Discounts and Bank fees |
| IRS990/OtherExpensesGrp/Desc | 2 | Membership Dues and Miscellaneous |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 163 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2786 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 193 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 464 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 82 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 2837 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 743 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 2868 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3193 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1207 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 340 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 5767 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 31266 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 37373 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/FundraisingAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 669 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 651 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6047 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 7367 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 49 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 73 |
| IRS990/PrincipalOfficerNm | 0 | Sara Kowalczyk |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Annual Conference |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 69345 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 69345 |
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Displayed year
2013 • Form 990Detailed filing. Detailed filing data is available for this year.