Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
990 • Fiscal year 2022 • EIN 22-2762623
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
Liabilities / Revenue
88th percentile
Higher debt load relative to revenue than 88% of similar nonprofits.
Net Margin
19th percentile
Higher net margin than 19% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
27th percentile
Faster asset growth than 27% of similar nonprofits.
Revenue Growth
53rd percentile
Faster revenue growth than 53% of similar nonprofits.
Assets
Down$499,771
Down $116,071 (-19%) from 2021
Net Assets
Down$414,612
Down $184,935 (-31%) from 2021
Liabilities
Up$85,159
Up $68,864 (+423%) from 2021
Revenue
Up$395,403
Up $25,376 (+6.9%) from 2021
Expenses
Up$562,494
Up $100,332 (+22%) from 2021
Net Income
Down-$167,091
Down $74,956 (-81%) from 2021
The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.
Narcolepsy network is dedicated to improving the lives of men, women, and children with narcolepsy. The organization's goals include increasing public awareness to foster early diagnoses, advocating for all people with narcolepsy (pwns), promoting and supporting narcolepsy and related research, and providing education and resources both to people living with narcolepsy and the public at large.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $390,319 | $368,343 | ▼ $21,976 |
| Investments in Publicly Traded Securities | $109,700 | $92,896 | ▼ $16,804 |
| Cash and Non-Interest-Bearing Accounts | $90,760 | $31,111 | ▼ $59,649 |
| Prepaid Expenses and Deferred Charges | $18,528 | $4,921 | ▼ $13,607 |
| Pledges and Grants Receivable | $4,035 | - | - |
| Total Assets | $615,842 | $499,771 | ▼ $116,071 |
| Other Assets Total | $2,500 | $2,500 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $10,692 | $80,027 | ▲ $69,335 |
| Deferred Revenue | $5,603 | $5,132 | ▼ $471 |
| Total Liabilities | $16,295 | $85,159 | ▲ $68,864 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $442,972 | $397,236 | ▼ $45,736 |
| Net Assets With Donor Restrictions | $156,575 | $17,376 | ▼ $139,199 |
| Total Net Assets Fund Balance | $599,547 | $414,612 | ▼ $184,935 |
| Total Liabilities and Net Assets / Fund Balance | $615,842 | $499,771 | ▼ $116,071 |
| Name | Title |
|---|---|
| Keith Harper | President |
| Paul Reynolds | Vice President |
| SHARON O'SHAUGHNESSY | Board Member |
| Stephanie Fischer | Board Member |
| Rajeev Sachdeva | Secretary |
| John Ensminger | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Amy Kant | Management Consulting | 34 CYPRESS ST 2, Watertown, MA 02472 | $182,550 |
| Line Item | Amount |
|---|---|
| Other Expenses | $426,417 |
| Salaries, Compensation, and Employee Benefits | $136,077 |
| Total Fundraising Expense | $15,846 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $136,800 | $76,784 | $907 | $214,491 |
| Conferences and Meetings | $124,022 | - | - | $124,022 |
| Other Salaries and Wages | $96,975 | $10,342 | $10,155 | $117,472 |
| Office Expenses | $5,357 | $19,854 | $1,023 | $26,234 |
| Information Technology | $10,882 | $7,136 | $2,152 | $20,170 |
| Travel | $19,162 | $425 | - | $19,587 |
| Payroll Taxes | $8,973 | $957 | $940 | $10,870 |
| Fees for Services Accounting | - | $10,638 | - | $10,638 |
| Other Employee Benefits | $6,385 | $681 | $669 | $7,735 |
| Advertising | $2,871 | $1,113 | - | $3,984 |
| Insurance | - | $3,929 | - | $3,929 |
| Other Expenses | $3,362 | - | - | $3,362 |
| Total Functional Expenses | $414,789 | $131,859 | $15,846 | $562,494 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $562,494 |
| Total Expenses per Audited Statements | $562,494 |
| Total Expenses per Form 990 | $562,494 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $899 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Nyc Marathon 2022 | $30,093 | - | $899 | - |
| Total Events | $30,093 | - | $899 | $-899 |
“Amy kant is fulfilling the role of transition director/ceo.”
“Narcolepsy network is a membership organization.”
“Members vote for the board of directors annually.”
“Members vote for the board of directors annually.”
“The board of directors are given a copy of the irs form 990 to review before it is filed with the irs.”
“All board members are provided conflict of interest forms and asked to sign a statement of compliance annually. The president then follows up with each board member by email or phone until they are all returned.”
“There are no other officers or key employees identified. The president and treasurer meet and review performance evaluations in conjunction with reasonable compensation data, such as the nonprofit times salary & benefits report, to determine appropriate salary levels, annual increase and employee benefits.”
“UPON REQUEST.”
“Other: program service expenses 136,800. Management and general expenses 76,784. Fundraising expenses 907. Total expenses 214,491.”
“Use image on merchandise for further awareness.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 10692 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 80027 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | NARCOLEPSY NETWORK IS DEDICATED TO IMPROVING THE LIVES OF MEN, WOMEN, AND CHILDREN WITH NARCOLEPSY. THE ORGANIZATION'S GOALS INCLUDE INCREASING PUBLIC AWARENESS TO FOSTER EARLY DIAGNOSES, ADVOCATING FOR ALL PEOPLE WITH NARCOLEPSY (PWNS), PROMOTING AND SUPPORTING NARCOLEPSY AND RELATED RESEARCH, AND PROVIDING EDUCATION AND RESOURCES BOTH TO PEOPLE LIVING WITH NARCOLEPSY AND THE PUBLIC AT LARGE. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1113 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 2871 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 3984 |
| IRS990/AllOtherContributionsAmt | 0 | 303067 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | EBCFO LLC |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8163928425 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 5550 TECH CENTER DR 203 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | COLORADO SPRINGS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 80919 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 90760 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 31111 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 1 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 124022 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 124022 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 182550 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 34 CYPRESS ST 2 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | WATERTOWN |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 02472 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | AMY KANT |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | MANAGEMENT CONSULTING |
| IRS990/ContriRptFundraisingEventAmt | 0 | 30093 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 336318 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 4065 |
| IRS990/CYOtherExpensesAmt | 0 | 426417 |
| IRS990/CYOtherRevenueAmt | 0 | -899 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 55919 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -167091 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 136077 |
| IRS990/CYTotalExpensesAmt | 0 | 562494 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 15846 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 395403 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 1 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 5603 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 5132 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 1 |
| IRS990/Desc | 0 | ANNUAL CONFERENCE. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 156575 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 17376 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 246444 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 3158 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 10638 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 10638 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 907 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 76784 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 136800 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 214491 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | KEITH HARPER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | PAUL REYNOLDS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | RAJEEV SACHDEVA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JOHN ENSMINGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | SHARON O'SHAUGHNESSY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | STEPHANIE FISCHER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1986 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 30093 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 899 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 396302 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 2152 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 7136 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 10882 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 20170 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3929 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3929 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 4065 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 4065 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 109700 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 92896 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NJ |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE NETWORK IS ORGANIZED TO EDUCATE THE PUBLIC ABOUT NARCOLEPSY, SUPPORT INDIVIDUALS WITH NARCOLEPSY, PROMOTE EFFICIENT DIAGNOSIS, ENCOURAGE AND PROMOTE SCIENTIFIC RESEARCH FOR CAUSE, TREATMENTS, PREVENTION AND CURE OF NARCOLEPSY, PROVIDE THE FORMATION OF CHAPTERS, PROVIDE FUNDING THROUGH SOLICITATION AND FUND-RAISING ACTIVITIES FOR THESE PURPOSES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 599547 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 414612 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -899 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -899 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -17844 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 442972 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 397236 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1023 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 19854 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 5357 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 26234 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2500 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 2500 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 669 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 681 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 6385 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 7735 |
| IRS990/OtherExpensesGrp/Desc | 0 | SUPPLIES |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 3362 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 3362 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 10155 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 10342 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 96975 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 117472 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 940 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 957 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8973 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 10870 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 4035 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 18528 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4921 |
| IRS990/PrincipalOfficerNm | 0 | KEITH HARPER |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | MEMBERSHIP DUES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 43135 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 12784 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 43135 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 12784 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | SUPPORT AND ADVOCACY - PROVIDE WEEKLY VIRTUAL SUPPORT GROUPS AND FINANICAL ASSISTANCE TO IN-PERSON SUPPORT GROUPS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 60062 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 12784 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | AWARENESS AND EDUCATION - VIRTUAL CLINICAL UPDATE WEBINAR SERIES. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 108283 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 355184 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1247 |
| IRS990/PYOtherExpensesAmt | 0 | 356355 |
| IRS990/PYOtherRevenueAmt | 0 | -8265 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 21861 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -92135 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 105807 |
| IRS990/PYTotalExpensesAmt | 0 | 462162 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 370027 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -167091 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 43135 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 390319 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 368343 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 336318 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 355184 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 415674 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 474621 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 367418 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1949215 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 4065 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1247 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1973 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 15651 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1330 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 24266 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 345007 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.39040 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.37650 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 770380 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1178835 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 336318 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 355184 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 415674 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 474621 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 367418 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1949215 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1973481 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ArtPublicExhibitionAmountsGrp/AssetsIncludedAmt | 0 | 2500 |
| IRS990ScheduleD/CollectionUsedOtherPurposesGrp/CollectionUsedOtherPurposesInd | 0 | X |
| IRS990ScheduleD/CollectionUsedOtherPurposesGrp/OtherPurposesDesc | 0 | IMAGE |
| IRS990ScheduleD/CollectionUsedPreservationInd | 0 | X |
| IRS990ScheduleD/CollectionUsedPubExhibitionInd | 0 | X |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 562494 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -17844 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -17844 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 395403 |
| IRS990ScheduleD/SolicitedAssetsSaleInd | 0 | 0 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | USE IMAGE ON MERCHANDISE FOR FURTHER AWARENESS. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART III, LINE 4: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 562494 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 395403 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 377559 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 562494 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 30093 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 30093 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 899 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | NYC MARATHON 2022 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 30093 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 30093 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -899 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 899 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 899 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | AMY KANT IS FULFILLING THE ROLE OF TRANSITION DIRECTOR/CEO. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | NARCOLEPSY NETWORK IS A MEMBERSHIP ORGANIZATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | MEMBERS VOTE FOR THE BOARD OF DIRECTORS ANNUALLY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | MEMBERS VOTE FOR THE BOARD OF DIRECTORS ANNUALLY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE BOARD OF DIRECTORS ARE GIVEN A COPY OF THE IRS FORM 990 TO REVIEW BEFORE IT IS FILED WITH THE IRS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | ALL BOARD MEMBERS ARE PROVIDED CONFLICT OF INTEREST FORMS AND ASKED TO SIGN A STATEMENT OF COMPLIANCE ANNUALLY. THE PRESIDENT THEN FOLLOWS UP WITH EACH BOARD MEMBER BY EMAIL OR PHONE UNTIL THEY ARE ALL RETURNED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THERE ARE NO OTHER OFFICERS OR KEY EMPLOYEES IDENTIFIED. THE PRESIDENT AND TREASURER MEET AND REVIEW PERFORMANCE EVALUATIONS IN CONJUNCTION WITH REASONABLE COMPENSATION DATA, SUCH AS THE NONPROFIT TIMES SALARY & BENEFITS REPORT, TO DETERMINE APPROPRIATE SALARY LEVELS, ANNUAL INCREASE AND EMPLOYEE BENEFITS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | OTHER: PROGRAM SERVICE EXPENSES 136,800. MANAGEMENT AND GENERAL EXPENSES 76,784. FUNDRAISING EXPENSES 907. TOTAL EXPENSES 214,491. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 3 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION A, LINE 6 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION A, LINE 7A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION A, LINE 7B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART VI, SECTION B, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | AL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | AK |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 2 | AR |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 3 | CA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 4 | CO |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 5 | CT |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 6 | DC |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 7 | FL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 8 | GA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 9 | HI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 10 | IL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 11 | KS |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 12 | KY |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 13 | MA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 14 | MD |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 15 | ME |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 16 | MI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 17 | MN |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 18 | MO |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 19 | MS |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 20 | NC |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 21 | ND |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 22 | NH |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 23 | NJ |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 24 | NM |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 25 | NY |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 26 | OH |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 27 | OK |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 28 | OR |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 29 | PA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 30 | RI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 31 | SC |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 32 | TN |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 33 | UT |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 34 | VA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 35 | WI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 36 | WV |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 615842 |
| IRS990/TotalAssetsEOYAmt | 0 | 499771 |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.