Civic Intelligence

Narcolepsy Network Inc.

990 • Fiscal year 2020 • EIN 22-2762623

Jan 01, 2020 to Dec 31, 2020 • Filed on Aug 25, 2021

Organization Profilewww.narcoplepsynetwork.org

View Organization Page

PO Box 2178Lynnwood, WA 98036

(888) 292-6522

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.03x

Higher debt load relative to assets than 46% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

48th percentile

0.05x

Higher debt load relative to revenue than 48% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

83rd percentile

36%

Higher net margin than 83% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

80th percentile

$79,244

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 16.7% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

76th percentile

32%

Faster asset growth than 76% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

26th percentile

-21%

Faster revenue growth than 26% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets46th percentile

Assets

Up

$703,473

Up $168,531 (+32%) from 2019

Net Assets

Up

$681,217

Up $182,891 (+37%) from 2019

Liabilities

Down

$22,256

Down $14,360 (-39%) from 2019

Revenue And Expenses
Liabilities / Revenue48th percentileNet Margin83rd percentile

Revenue

Down

$475,127

Down $128,402 (-21%) from 2019

Expenses

Down

$305,036

Down $142,307 (-32%) from 2019

Net Income

Up

$170,091

Up $13,905 (+8.9%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $289,666Liabilities 2010: $16,332Net Assets 2010: $273,3342010Assets 2011: $311,453Liabilities 2011: $8,040Net Assets 2011: $303,4132011Assets 2012: $317,705Liabilities 2012: $3,337Net Assets 2012: $314,3682012Assets 2013: $359,938Liabilities 2013: $34,362Net Assets 2013: $325,5762013Assets 2014: $484,874Liabilities 2014: $61,645Net Assets 2014: $423,2292014Assets 2015: $391,466Liabilities 2015: $7,646Net Assets 2015: $383,8202015Assets 2016: $326,334Liabilities 2016: $38,007Net Assets 2016: $288,3272016Assets 2017: $305,453Liabilities 2017: $43,679Net Assets 2017: $261,7742017Assets 2018: $360,153Liabilities 2018: $18,013Net Assets 2018: $342,1402018Assets 2019: $534,942Liabilities 2019: $36,616Net Assets 2019: $498,3262019Assets 2020: $703,473Liabilities 2020: $22,256Net Assets 2020: $681,2172020Assets 2021: $615,842Liabilities 2021: $16,295Net Assets 2021: $599,5472021Assets 2022: $499,771Liabilities 2022: $85,159Net Assets 2022: $414,6122022Assets 2023: $383,865Liabilities 2023: $16,512Net Assets 2023: $367,3532023Assets 2024: $356,559Liabilities 2024: $10,586Net Assets 2024: $345,9732024

Highlighted filing

2020

Assets$703,473
Liabilities$22,256
Net Assets$681,217
Open 2020 Filing

Operations Trend

Revenue Growth26th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $201,8332010Revenue 2011: $307,386Expenses 2011: $276,521Net Income 2011: $30,8652011Expenses 2012: $269,1902012Revenue 2013: $356,284Expenses 2013: $345,076Net Income 2013: $11,2082013Revenue 2014: $473,870Expenses 2014: $376,217Net Income 2014: $97,6532014Revenue 2015: $375,868Expenses 2015: $415,277Net Income 2015: -$39,4092015Revenue 2016: $323,075Expenses 2016: $417,135Net Income 2016: -$94,0602016Revenue 2017: $396,493Expenses 2017: $423,046Net Income 2017: -$26,5532017Revenue 2018: $465,238Expenses 2018: $384,872Net Income 2018: $80,3662018Revenue 2019: $603,529Expenses 2019: $447,343Net Income 2019: $156,1862019Revenue 2020: $475,127Expenses 2020: $305,036Net Income 2020: $170,0912020Revenue 2021: $370,027Expenses 2021: $462,162Net Income 2021: -$92,1352021Revenue 2022: $395,403Expenses 2022: $562,494Net Income 2022: -$167,0912022Revenue 2023: $497,974Expenses 2023: $559,178Net Income 2023: -$61,2042023Revenue 2024: $455,706Expenses 2024: $489,101Net Income 2024: -$33,3952024

Highlighted filing

2020

Revenue$475,127
Expenses$305,036
Net Income$170,091
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Aug 25, 2021
Return Version
2020v4.0
Gross Receipts
$475,127
Mission and Program Overview

Mission

Narcolepsy network is dedicated to improving the lives of men. Women, and children with narcolepsy.

Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$269,212$427,643▲ $158,431
Cash and Non-Interest-Bearing Accounts$166,516$138,635▼ $27,881
Investments in Publicly Traded Securities$84,896$98,663▲ $13,767
Prepaid Expenses and Deferred Charges$11,673$31,032▲ $19,359
Accounts Receivable$145$5,000▲ $4,855
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$534,942$703,473▲ $168,531
Other Assets Total$2,500$2,500→ $0
Liabilities
Deferred Revenue$19,681$12,588▼ $7,093
Accounts Payable and Accrued Expenses$16,935$9,668▼ $7,267
Total Liabilities$36,616$22,256▼ $14,360
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$402,134$422,881▲ $20,747
Net Assets With Donor Restrictions$96,192$258,336▲ $162,144
Total Net Assets Fund Balance$498,326$681,217▲ $182,891
Total Liabilities and Net Assets / Fund Balance$534,942$703,473▲ $168,531
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Eveline HonigExecutive DirectorFT$66,630$12,614$79,244

Board Members and Trustees

NameTitle
Luis E Ortiz MDPresident
Cynthia ZornVice President
Carol ArnetteBoard member
Emily KreuzigerBoard member
Keith HarperBoard member
Louise O'Connell MNMBoard member
Niss RyanBoard member
Paul ReynoldsBoard member
Piper Paul JDBoard member
Rajeev SachdevaBoard member
Sharon OShaughnessyBoard member
Stephanie FischerSecretary
Mee WarrenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$415,674
Program Service Revenue
$57,480
Investment Income
$1,973
Other Revenue
$0
All Other Contributions
$409,469
Change in Net Assets
$170,091

Audited Revenue Reconciliation

Revenue per Audited Statements
$475,127
Revenue Not Reported on Form 990
$12,800
Total Revenue per Audited Statements
$487,927
Total Revenue per Form 990
$475,127
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$201,189
Other Expenses$100,032
Total Fundraising Expense$27,149
Grants and Similar Amounts Paid$3,815
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$81,589$24,685$1,507$107,781
Current Officers, Directors, Trustees, and Key Employees$49,924$12,679$16,641$79,244
Fees for Services Other$19,605--$19,605
Payroll Taxes$9,207$3,541$1,416$14,164
Information Technology$11,073$1,851$89$13,013
Advertising$11,357--$11,357
Office Expenses$5,107$2,844$407$8,358
Fees for Services Accounting-$7,175-$7,175
Insurance$1,197$4,468-$5,665
Travel$3,967--$3,967
Grants to Domestic Individuals$3,815--$3,815
Other Expenses$1,658$298$92$2,048
Fees for Services Legal-$155-$155
Total Functional Expenses$216,769$61,118$27,149$305,036

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$305,036
Total Expenses per Audited Statements$305,036
Total Expenses per Form 990$305,036
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“Narcolepsy Network is a membership organization.”

Form 990, Part VI, Line 7A: How Members or Shareholders Elect Governing Body

“Members vote for the Board of Directors annually.”

Form 990, Part VI, Line 7B: Describe Decisions of Governing Body Approval by Members or Shareholders

“Members vote for the Board of Directors annually.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Board of Directors are given a copy of the IRS Form 990 to review before it is filed with the IRS.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“All Board members are provided conflict of interest forms and asked to sign a statement of compliance annually. The President then follows up with each Board member by email or phone until they are all returned.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The President and Treasurer meet and review performance evaluations in conjunction with reasonable compensation data, such as The Nonprofit Times Salary & Benefits report, to determine appropriate salary levels, annual increase and employee benefits.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“There are no other officers or key employees identified.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Upon request.”

Filing and Contact Details

Filer

Filer Name
Narcolepsy Network
EIN
22-2762623
Phone
8882926522
Address
PO Box 2178, Lynnwood, WA 98036

Signing Officer

Name
Keith Harper
Title
Board member
Signed
2021-08-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Keith Harper
Formed
1986
Legal Domicile
Nj
Voting Board Members
10
Independent Board Members
10
Employees
4
Volunteers
20

Preparer

Firm
Jones & Associates PLLC CPAS
Address
17544 Midvale Ave N Ste 100, Shoreline, WA 98133
Preparer
Judy C Jones CPA
Phone
2065255186
Supplemental Narrative

Financial Statement Notes

Part III, Line 4: Description of organization'S collections and how it furthers its purpose.

“Use image on merchandise for further awareness”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm4Mee Warren
IRS990/Form990PartVIISectionAGrp/PersonNm5Carol Arnette
IRS990/Form990PartVIISectionAGrp/PersonNm6Keith Harper
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IRS990/Form990PartVIISectionAGrp/TitleTxt2Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
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IRS990/Form990PartVIISectionAGrp/TitleTxt5Board member
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IRS990/MissionDesc0The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Newsletter and Membership:Our quarterly newsletter, "The Network," is, for many people, the only source of information about narcolepsy. The newsletter is distributed to the membership as well as to many non-member sleep centers and professionals. Each newsletter provides information on diagnosis, effective treatments, resources, updates detailing new narcolepsy research, ideas for coping, personal stories and interviews, industry news, legal and insurance guidance and much more. Approximately 600 newsletters are printed quarterly. the Network also distributes a weekly e-News report to both members and non-members. As part of its mission to provide support to people with narcolepsy, the Network encourages the formation of support groups. There are more than 30 active in-person groups in the US.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Virtual Conferences: Due to COVID, the Network did not host its typical annual conference. Instead it presented mini on-line virtual events. 839 attended these virtual events.
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Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$703,473
Liabilities
$22,256
Net assets
$681,217
Revenue
$475,127
Expenses
$305,036
Net income
$170,091
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.57$0.11$3.46$4.56$4.89$0.33
2023Summary only. Only limited summary data is available for this year.$3.84$0.17$3.67$4.98$5.59$0.61
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.00$0.85$4.15$3.95$5.62$1.67
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.16$0.16$6.00$3.70$4.62$0.92
2020Detailed filing. Detailed filing data is available for this year.$7.03$0.22$6.81$4.75$3.05$1.70
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.37$4.98$6.04$4.47$1.56
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.60$0.18$3.42$4.65$3.85$0.80
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.44$2.62$3.96$4.23$0.27
2016Summary only. Only limited summary data is available for this year.$3.26$0.38$2.88$3.23$4.17$0.94
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.08$3.84$3.76$4.15$0.39
2014Detailed filing. Detailed filing data is available for this year.$4.85$0.62$4.23$4.74$3.76$0.98
2013Detailed filing. Detailed filing data is available for this year.$3.60$0.34$3.26$3.56$3.45$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.03$3.14$2.69
2011Summary only. Only limited summary data is available for this year.$3.11$0.08$3.03$3.07$2.77$0.31
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.90$0.16$2.73$2.02
Peer Organizations

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