Civic Intelligence

Narcolepsy Network Inc.

990 • Fiscal year 2021 • EIN 22-2762623

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 02, 2022

Organization Profilewww.narcoplepsynetwork.org
3242 NE 3rd Ave 1101Camas, WA 98607

(888) 292-6522

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

51st percentile

0.03x

Higher debt load relative to assets than 51% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

55th percentile

0.04x

Higher debt load relative to revenue than 55% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

10th percentile

-25%

Higher net margin than 10% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

52nd percentile

$0

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

10th percentile

-12%

Faster asset growth than 10% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

15th percentile

-22%

Faster revenue growth than 15% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets51st percentile

Assets

Down

$615,842

Down $87,631 (-12%) from 2020

Net Assets

Down

$599,547

Down $81,670 (-12%) from 2020

Liabilities

Down

$16,295

Down $5,961 (-27%) from 2020

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin10th percentile

Revenue

Down

$370,027

Down $105,100 (-22%) from 2020

Expenses

Up

$462,162

Up $157,126 (+52%) from 2020

Net Income

Down

-$92,135

Down $262,226 (-154%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth10th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $289,666Liabilities 2010: $16,332Net Assets 2010: $273,3342010Assets 2011: $311,453Liabilities 2011: $8,040Net Assets 2011: $303,4132011Assets 2012: $317,705Liabilities 2012: $3,337Net Assets 2012: $314,3682012Assets 2013: $359,938Liabilities 2013: $34,362Net Assets 2013: $325,5762013Assets 2014: $484,874Liabilities 2014: $61,645Net Assets 2014: $423,2292014Assets 2015: $391,466Liabilities 2015: $7,646Net Assets 2015: $383,8202015Assets 2016: $326,334Liabilities 2016: $38,007Net Assets 2016: $288,3272016Assets 2017: $305,453Liabilities 2017: $43,679Net Assets 2017: $261,7742017Assets 2018: $360,153Liabilities 2018: $18,013Net Assets 2018: $342,1402018Assets 2019: $534,942Liabilities 2019: $36,616Net Assets 2019: $498,3262019Assets 2020: $703,473Liabilities 2020: $22,256Net Assets 2020: $681,2172020Assets 2021: $615,842Liabilities 2021: $16,295Net Assets 2021: $599,5472021Assets 2022: $499,771Liabilities 2022: $85,159Net Assets 2022: $414,6122022Assets 2023: $383,865Liabilities 2023: $16,512Net Assets 2023: $367,3532023Assets 2024: $356,559Liabilities 2024: $10,586Net Assets 2024: $345,9732024

Highlighted filing

2021

Assets$615,842
Liabilities$16,295
Net Assets$599,547
Open 2021 Filing

Operations Trend

Revenue Growth15th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $201,8332010Revenue 2011: $307,386Expenses 2011: $276,521Net Income 2011: $30,8652011Expenses 2012: $269,1902012Revenue 2013: $356,284Expenses 2013: $345,076Net Income 2013: $11,2082013Revenue 2014: $473,870Expenses 2014: $376,217Net Income 2014: $97,6532014Revenue 2015: $375,868Expenses 2015: $415,277Net Income 2015: -$39,4092015Revenue 2016: $323,075Expenses 2016: $417,135Net Income 2016: -$94,0602016Revenue 2017: $396,493Expenses 2017: $423,046Net Income 2017: -$26,5532017Revenue 2018: $465,238Expenses 2018: $384,872Net Income 2018: $80,3662018Revenue 2019: $603,529Expenses 2019: $447,343Net Income 2019: $156,1862019Revenue 2020: $475,127Expenses 2020: $305,036Net Income 2020: $170,0912020Revenue 2021: $370,027Expenses 2021: $462,162Net Income 2021: -$92,1352021Revenue 2022: $395,403Expenses 2022: $562,494Net Income 2022: -$167,0912022Revenue 2023: $497,974Expenses 2023: $559,178Net Income 2023: -$61,2042023Revenue 2024: $455,706Expenses 2024: $489,101Net Income 2024: -$33,3952024

Highlighted filing

2021

Revenue$370,027
Expenses$462,162
Net Income-$92,135
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 2, 2022
Return Version
2021v4.0
Gross Receipts
$378,292
Mission and Program Overview

Mission

The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.

Narcolepsy Network is dedicated to improving the lives of men, women, and children with narcolepsy. The organizations goals include increasing public awareness to foster early diagnoses, advocating for all people with narcolepsy (PWNs), promoting and supporting narcolepsy and related research, and providing education and resources both to people living with narcolepsy and the public at large.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$427,643$390,319▼ $37,324
Investments in Publicly Traded Securities$98,663$109,700▲ $11,037
Cash and Non-Interest-Bearing Accounts$138,635$90,760▼ $47,875
Prepaid Expenses and Deferred Charges$31,032$18,528▼ $12,504
Accounts Receivable$5,000$0▼ $5,000
Pledges and Grants Receivable-$4,035-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$703,473$615,842▼ $87,631
Other Assets Total$2,500$2,500→ $0
Liabilities
Accounts Payable and Accrued Expenses$9,668$10,692▲ $1,024
Deferred Revenue$12,588$5,603▼ $6,985
Total Liabilities$22,256$16,295▼ $5,961
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$422,881$442,972▲ $20,091
Net Assets With Donor Restrictions$258,336$156,575▼ $101,761
Total Net Assets Fund Balance$681,217$599,547▼ $81,670
Total Liabilities and Net Assets / Fund Balance$703,473$615,842▼ $87,631
Compensation and Service Providers
Top Officer Pay52nd percentile

Board Members and Trustees

NameTitle
Keith HarperPresident
Luis E Ortiz MDPresident
Cynthia ZornVice President
Sharon OShaughnessyVice President
Carol ArnetteBoard member
Emily KreuzigerBoard member
Paul ReynoldsBoard member
Piper Paul JDBoard member
Rajeev SachdevaSecretary
Stephanie FischerSecretary
Mee WarrenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$355,184
Program Service Revenue
$21,861
Investment Income
$1,247
Other Revenue
$-8,265
All Other Contributions
$320,481
Change in Net Assets
$-92,135

Audited Revenue Reconciliation

Revenue per Audited Statements
$370,027
Revenue Not Reported on Form 990
$10,465
Total Revenue per Audited Statements
$380,492
Total Revenue per Form 990
$370,027
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$356,355
Salaries, Compensation, and Employee Benefits$105,807
Total Fundraising Expense$18,680
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$165,441$92,087$5,116$262,644
Other Salaries and Wages$57,479$38,427$2,095$98,001
Information Technology$11,834$13,396-$25,230
Conferences and Meetings$22,390--$22,390
Fees for Services Accounting--$9,225$9,225
Payroll Taxes$4,578$3,061$167$7,806
Advertising$3,896$1,465-$5,361
Insurance-$4,500-$4,500
Other Expenses$520$1,412$614$2,546
All Other Expenses$366$1,518$82$1,966
Travel$200--$200
Total Functional Expenses$269,248$174,234$18,680$462,162

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$462,162
Total Expenses per Audited Statements$462,162
Total Expenses per Form 990$462,162
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$8,265
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Marathon$29,720-$8,265-
Total Events$29,720-$8,265$-8,265
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“Narcolepsy Network is a membership organization.”

Form 990, Part VI, Line 7A: How Members or Shareholders Elect Governing Body

“Members vote for the Board of Directors annually.”

Form 990, Part VI, Line 7B: Describe Decisions of Governing Body Approval by Members or Shareholders

“Members vote for the Board of Directors annually.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Board of Directors are given a copy of the IRS Form 990 to review before it is filed with the IRS.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“All Board members are provided conflict of interest forms and asked to sign a statement of compliance annually. The President then follows up with each Board member by email or phone until they are all returned.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The President and Treasurer meet and review performance evaluations in conjunction with reasonable compensation data, such as The Nonprofit Times Salary & Benefits report, to determine appropriate salary levels, annual increase and employee benefits.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“There are no other officers or key employees identified.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Upon request.”

Filing and Contact Details

Filer

Filer Name
Narcolepsy Network
EIN
22-2762623
Phone
8882926522
Address
3242 NE 3rd Ave 1101, Camas, WA 98607

Signing Officer

Name
Keith Harper
Title
President
Signed
2022-11-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Keith Harper
Formed
1986
Legal Domicile
Nj
Voting Board Members
10
Independent Board Members
10
Employees
4
Volunteers
12

Preparer

Firm
Jones & Associates PLLC CPAS
Address
17544 Midvale Ave N Ste 100, Shoreline, WA 98133
Preparer
Judy C Jones CPA
Phone
2065255186
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2: New Services

“A Clinical Update Webinar series has been added, as well as additional education webinars.”

Financial Statement Notes

Part III, Line 4: Description of organization'S collections and how it furthers its purpose.

“Use image on merchandise for further awareness”

Raw XML AppendixShowing 400 of 557 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt09668
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt010692
IRS990/AccountsReceivableGrp/BOYAmt05000
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Narcolepsy Network is dedicated to improving the lives of men, women, and children with narcolepsy. The organizations goals include increasing public awareness to foster early diagnoses, advocating for all people with narcolepsy (PWNs), promoting and supporting narcolepsy and related research, and providing education and resources both to people living with narcolepsy and the public at large.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01465
IRS990/AdvertisingGrp/ProgramServicesAmt03896
IRS990/AdvertisingGrp/TotalAmt05361
IRS990/AllOtherContributionsAmt0320481
IRS990/AllOtherExpensesGrp/FundraisingAmt082
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt01518
IRS990/AllOtherExpensesGrp/ProgramServicesAmt0366
IRS990/AllOtherExpensesGrp/TotalAmt01966
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Dan Schmidt
IRS990/BooksInCareOfDetail/PhoneNum08163928425
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt01828 Walnut 3rd Floor
IRS990/BooksInCareOfDetail/USAddress/CityNm0Kansas City
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd064108
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0138635
IRS990/CashNonInterestBearingGrp/EOYAmt090760
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0true
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt022390
IRS990/ConferencesMeetingsGrp/TotalAmt022390
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt029720
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0355184
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt01247
IRS990/CYOtherExpensesAmt0356355
IRS990/CYOtherRevenueAmt0-8265
IRS990/CYProgramServiceRevenueAmt021861
IRS990/CYRevenuesLessExpensesAmt0-92135
IRS990/CYSalariesCompEmpBnftPaidAmt0105807
IRS990/CYTotalExpensesAmt0462162
IRS990/CYTotalFundraisingExpenseAmt018680
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0370027
IRS990/DecisionsSubjectToApprovaInd0true
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DeferredRevenueGrp/BOYAmt012588
IRS990/DeferredRevenueGrp/EOYAmt05603
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0Annual Conference
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0258336
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0156575
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0true
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0153354
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FederatedCampaignsAmt04983
IRS990/FeesForServicesAccountingGrp/FundraisingAmt09225
IRS990/FeesForServicesAccountingGrp/TotalAmt09225
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/FundraisingAmt05116
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt092087
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt0165441
IRS990/FeesForServicesManagementGrp/TotalAmt0262644
IRS990/FeesForServicesOtherGrp/TotalAmt00
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt020.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt115.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/PersonNm0Keith Harper
IRS990/Form990PartVIISectionAGrp/PersonNm1Sharon OShaughnessy
IRS990/Form990PartVIISectionAGrp/PersonNm2Rajeev Sachdeva
IRS990/Form990PartVIISectionAGrp/PersonNm3Luis E Ortiz MD
IRS990/Form990PartVIISectionAGrp/PersonNm4Cynthia Zorn
IRS990/Form990PartVIISectionAGrp/PersonNm5Mee Warren
IRS990/Form990PartVIISectionAGrp/PersonNm6Stephanie Fischer
IRS990/Form990PartVIISectionAGrp/PersonNm7Piper Paul JD
IRS990/Form990PartVIISectionAGrp/PersonNm8Paul Reynolds
IRS990/Form990PartVIISectionAGrp/PersonNm9Emily Kreuziger
IRS990/Form990PartVIISectionAGrp/PersonNm10Carol Arnette
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt5Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt7Board member
IRS990/Form990PartVIISectionAGrp/TitleTxt8Board member
IRS990/Form990PartVIISectionAGrp/TitleTxt9Board member
IRS990/Form990PartVIISectionAGrp/TitleTxt10Board member
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01986
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt029720
IRS990/FundraisingDirectExpensesAmt08265
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0378292
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt013396
IRS990/InformationTechnologyGrp/ProgramServicesAmt011834
IRS990/InformationTechnologyGrp/TotalAmt025230
IRS990/InsuranceGrp/ManagementAndGeneralAmt04500
IRS990/InsuranceGrp/TotalAmt04500
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt01247
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01247
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt098663
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0109700
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0true
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0681217
IRS990/NetAssetsOrFundBalancesEOYAmt0599547
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-8265
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-8265
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt010465
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0422881
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0442972
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/TotalAmt00
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02500
IRS990/OtherAssetsTotalGrp/EOYAmt02500
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0Bank, State and Fundraising
IRS990/OtherExpensesGrp/Desc1Printing and Publications
IRS990/OtherExpensesGrp/Desc2Supplies
IRS990/OtherExpensesGrp/Desc3Miscellaneous
IRS990/OtherExpensesGrp/FundraisingAmt01345
IRS990/OtherExpensesGrp/FundraisingAmt136
IRS990/OtherExpensesGrp/FundraisingAmt2614
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt014687
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12701
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2980
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31412
IRS990/OtherExpensesGrp/ProgramServicesAmt0624
IRS990/OtherExpensesGrp/ProgramServicesAmt11920
IRS990/OtherExpensesGrp/ProgramServicesAmt2520
IRS990/OtherExpensesGrp/TotalAmt016032
IRS990/OtherExpensesGrp/TotalAmt13325
IRS990/OtherExpensesGrp/TotalAmt22936
IRS990/OtherExpensesGrp/TotalAmt32546
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt02095
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt038427
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt057479
IRS990/OtherSalariesAndWagesGrp/TotalAmt098001
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0167
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03061
IRS990/PayrollTaxesGrp/ProgramServicesAmt04578
IRS990/PayrollTaxesGrp/TotalAmt07806
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt04035
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt031032
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt018528
IRS990/PrincipalOfficerNm0Keith Harper
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0Conference
IRS990/ProgramServiceRevenueGrp/Desc1Membership Dues
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0575
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt121286
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0575
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt121286
IRS990/ProgSrvcAccomActy2Grp/Desc0Awareness and Education - Virtual Clinical Update Webinar Series
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt086047
IRS990/ProgSrvcAccomActy3Grp/Desc0Support and Advocacy - Provide weekly virtual support groups and finanical assistance to in-person support groups.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt029847
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt021286
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0415674
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt03815
IRS990/PYInvestmentIncomeAmt01973
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0100032
IRS990/PYProgramServiceRevenueAmt057480
IRS990/PYRevenuesLessExpensesAmt0170091
IRS990/PYSalariesCompEmpBnftPaidAmt0201189
IRS990/PYTotalExpensesAmt0305036
IRS990/PYTotalRevenueAmt0475127
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-92135
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0575
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0427643
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0390319
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0355184
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0415674
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0474621
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0367418
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0280360
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01893257
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01247
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01973
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt015651
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01330
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt05672
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt025873
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0399549
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.37650
IRS990ScheduleA/PublicSupportPY170Pct00.38760
IRS990ScheduleA/PublicSupportTotal170Amt0722517
IRS990ScheduleA/SubstantialContributorsTotAmt01170740
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0355184
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0415674
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0474621
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0367418
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0280360
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01893257
IRS990ScheduleA/TotalSupportAmt01919130
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/ArtPublicExhibitionAmountsGrp/AssetsIncludedAmt02500
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/CollectionUsedOtherPurposesInd0X
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/OtherPurposesDesc0Image
IRS990ScheduleD/CollectionUsedPreservationInd0X
IRS990ScheduleD/CollectionUsedPubExhibitionInd0X
IRS990ScheduleD/ExpensesSubtotalAmt0462162
IRS990ScheduleD/NetUnrealizedGainsInvstAmt010465

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$615,842
Liabilities
$16,295
Net assets
$599,547
Revenue
$370,027
Expenses
$462,162
Net income
-$92,135
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.57$0.11$3.46$4.56$4.89$0.33
2023Summary only. Only limited summary data is available for this year.$3.84$0.17$3.67$4.98$5.59$0.61
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.00$0.85$4.15$3.95$5.62$1.67
2021Detailed filing. Detailed filing data is available for this year.$6.16$0.16$6.00$3.70$4.62$0.92
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.03$0.22$6.81$4.75$3.05$1.70
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.37$4.98$6.04$4.47$1.56
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.60$0.18$3.42$4.65$3.85$0.80
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.44$2.62$3.96$4.23$0.27
2016Summary only. Only limited summary data is available for this year.$3.26$0.38$2.88$3.23$4.17$0.94
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.08$3.84$3.76$4.15$0.39
2014Detailed filing. Detailed filing data is available for this year.$4.85$0.62$4.23$4.74$3.76$0.98
2013Detailed filing. Detailed filing data is available for this year.$3.60$0.34$3.26$3.56$3.45$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.03$3.14$2.69
2011Summary only. Only limited summary data is available for this year.$3.11$0.08$3.03$3.07$2.77$0.31
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.90$0.16$2.73$2.02