Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
990 • Fiscal year 2018 • EIN 22-2762623
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
Liabilities / Revenue
74th percentile
Higher debt load relative to revenue than 74% of similar nonprofits.
Net Margin
74th percentile
Higher net margin than 74% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
71st percentile
Faster asset growth than 71% of similar nonprofits.
Revenue Growth
71st percentile
Faster revenue growth than 71% of similar nonprofits.
Assets
Up$360,153
Up $54,700 (+18%) from 2017
Net Assets
Up$342,140
Up $80,366 (+31%) from 2017
Liabilities
Down$18,013
Down $25,666 (-59%) from 2017
Revenue
Up$465,238
Up $68,745 (+17%) from 2017
Expenses
Down$384,872
Down $38,174 (-9.0%) from 2017
Net Income
Up$80,366
Up $106,919 (+403%) from 2017
The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.
Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $74,247 | $175,806 | ▲ $101,559 |
| Cash and Non-Interest-Bearing Accounts | $27,077 | $87,260 | ▲ $60,183 |
| Investments in Publicly Traded Securities | $182,073 | $72,975 | ▼ $109,098 |
| Prepaid Expenses and Deferred Charges | $9,556 | $21,612 | ▲ $12,056 |
| Pledges and Grants Receivable | $10,000 | $0 | ▼ $10,000 |
| Accounts Receivable | $0 | $0 | → $0 |
| Other Notes and Loans Receivable, Net | $0 | $0 | → $0 |
| Receivable From Disqualified Prsn | $0 | $0 | → $0 |
| Receivables From Officers Etc | $0 | $0 | → $0 |
| Investments Other Securities | $0 | $0 | → $0 |
| Investments Program Related | $0 | $0 | → $0 |
| Intangible Assets | $0 | $0 | → $0 |
| Inventories for Sale or Use | $0 | $0 | → $0 |
| Loans From Officers Directors | $0 | $0 | → $0 |
| Total Assets | $305,453 | $360,153 | ▲ $54,700 |
| Other Assets Total | $2,500 | $2,500 | → $0 |
| Liabilities | |||
| Deferred Revenue | $11,657 | $12,578 | ▲ $921 |
| Accounts Payable and Accrued Expenses | $32,022 | $5,435 | ▼ $26,587 |
| Grants Payable | $0 | $0 | → $0 |
| Mortgage Notes Payable Secured by Investment Property | $0 | $0 | → $0 |
| Unsecured Notes Loans Payable | $0 | $0 | → $0 |
| Escrow Account Liability | $0 | $0 | → $0 |
| Tax Exempt Bond Liabilities | $0 | $0 | → $0 |
| Total Liabilities | $43,679 | $18,013 | ▼ $25,666 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $236,428 | $305,714 | ▲ $69,286 |
| Temporarily Rstr Net Assets | $25,346 | $36,426 | ▲ $11,080 |
| Permanently Rstr Net Assets | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $261,774 | $342,140 | ▲ $80,366 |
| Total Liabilities and Net Assets / Fund Balance | $305,453 | $360,153 | ▲ $54,700 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Eveline V Honig MD MPH | Executive Director | FT | $46,139 | $46,139 |
| Name | Title |
|---|---|
| Mark Patterson MD PhD | Former President |
| Keith Harper | President |
| Sharon O'Shaughnessy Link | Vice President |
| Cammie Farmer | Trustee |
| Luis Ortiz | Trustee |
| Mee Warren CFA CAIA | Trustee |
| Sarah DiDavide | Trustee |
| Niss Ryan | Trustee Emerita |
| Rajeev Sachdeva | Secretary |
| Louise O'Connell | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $211,787 |
| Salaries, Compensation, and Employee Benefits | $164,181 |
| Total Fundraising Expense | $19,733 |
| Grants and Similar Amounts Paid | $8,904 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $115,610 | $0 | $0 | $115,610 |
| Other Salaries and Wages | $57,741 | $25,259 | $766 | $83,766 |
| Current Officers, Directors, Trustees, and Key Employees | $40,800 | $14,254 | $9,113 | $64,167 |
| Fees for Services Other | $25,579 | - | - | $25,579 |
| Travel | $11,950 | $1,521 | $25 | $13,496 |
| Payroll Taxes | $6,249 | $3,425 | $574 | $10,248 |
| Information Technology | $8,836 | $785 | $0 | $9,621 |
| Grants to Domestic Individuals | $8,904 | - | - | $8,904 |
| Fees for Services Accounting | - | $7,654 | - | $7,654 |
| Other Employee Benefits | $4,817 | $757 | $426 | $6,000 |
| All Other Expenses | $3,180 | $1,713 | $968 | $5,861 |
| Insurance | $1,436 | $4,156 | - | $5,592 |
| Office Expenses | $1,887 | $1,245 | $0 | $3,132 |
| Other Expenses | $0 | $2,500 | $0 | $2,500 |
| Occupancy | - | $1,148 | - | $1,148 |
| Total Functional Expenses | $300,298 | $64,841 | $19,733 | $384,872 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $384,872 |
| Total Expenses per Audited Statements | $384,872 |
| Total Expenses per Form 990 | $384,872 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Other Expense Adjustments | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| TSC New York Marathon | $36,925 | $0 | $5,438 | $-5,438 |
| Total Events | $36,925 | $0 | $5,438 | $-5,438 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Melissa Patterson | Daughter of former board president | Employment | No | $10,277 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
| Receivables from Disqualified Persons | $0 | $0 | → $0 |
| Receivables from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
“Narcolepsy Network is a membership organization”
“Any person who supports the purpose of the corporation may become a member for each calendar year by paying the annual membership dues as required by the bylaws. Only those persons whose dues are current or have been granted complimentary membership shall be eligible to vote at the membership meetings. There shall be no membership certificates of this corporation.”
“Any member may attend a membership meeting. Voting privileges shall be extended to any member whose dues are paid by the close of business on the day prior to giving notice of the meeting, which shall be the record date for determining the members entitled to vote at the meeting. Each voting member shall have one (1) vote. Membership standing in the name of a corporation may be voted on by any officer or agent, or by proxy appointed by any of them, unless some other person, by resolution of its board or pursuant to its bylaws, shall be appointed to vote the membership.”
“The Board of Trustees shall be called to review the annual Form 990 and accompanying schedules.”
“All Board members are provided conflict of interest forms and asked to sign a statement of compliance annually. The President then follows up with each board member by email or phone until they are returned.”
“The Narcolepsy Network governing documents, including the conflict of interest policy, are available to the public upon request. The financial statements are published in the Narcolepsy Network Annual Report, which is available on the Narcolepsy Network website. Additionally, the bylaws are on the Narcolepsy Network website member's only section and are available upon request.”
“Maureen D Garnier donated "The Dream," her original watercolor with black and metallic inks. The painting measures 26"x39". "The Dream" may be used in a variety of print images to further awareness of narcolepsy and its symptoms.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 32022 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 5435 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research. |
| IRS990/AllOtherContributionsAmt | 0 | 324863 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 968 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1713 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3180 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 5861 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BenefitsToMembersGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Michelle L Doherty CPA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4016672523 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO Box 2178 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Lynnwood |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | WA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 98036 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 1 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 27077 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 87260 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 1 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 9113 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 14254 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 40800 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 64167 |
| IRS990/CompDisqualPersonsGrp/FundraisingAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 115610 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 115610 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 36925 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 367418 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 8904 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1330 |
| IRS990/CYOtherExpensesAmt | 0 | 211787 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 96490 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 80366 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 164181 |
| IRS990/CYTotalExpensesAmt | 0 | 384872 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 19733 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 465238 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 1 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 11657 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 12578 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | CONFERENCE: Each year Narcolepsy Network (NN) hosts a conference in a different city, which creates a unique gathering for, support, education, awareness building, and networking among people affected by narcolepsy. A selection of workshops, lectures, support forums, energizers and creative activities are some of the offerings at the conference. Graduate students and professionals in health, education, science and government can get a unique perspective on narcolepsy and the effect it has on individuals and families. In 2018, NN hosted the annual conference in Indianapolis, IN. More than 350 people with narcolepsy and their supporters attended from all over the world. The conference offered special programming for children and young adults with narcolepsy as well as sessions on research treatment and advocacy. The annual membership meeting was held at the conference. In addition, the Youth Ambassador program held its annual training of new youth. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/EscrowAccountLiabilityGrp/BOYAmt | 0 | 0 |
| IRS990/EscrowAccountLiabilityGrp/EOYAmt | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 165327 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 5630 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7654 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7654 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 25579 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 25579 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 35 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Keith Harper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Sharon O'Shaughnessy Link |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Louise O'Connell |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Rajeev Sachdeva |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Cammie Farmer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Luis Ortiz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Sarah DiDavide |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Mee Warren CFA CAIA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Mark Patterson MD PhD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Niss Ryan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Eveline V Honig MD MPH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 46139 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Trustee |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Former President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Trustee Emerita |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Executive Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1986 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 36925 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GovernmentGrantsAmt | 0 | 0 |
| IRS990/GrantAmt | 0 | 0 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 0 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 8904 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 8904 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 465238 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 785 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 8836 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 9621 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 4156 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1436 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5592 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1330 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1330 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 182073 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 72975 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NJ |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 0 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of Chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt | 0 | 0 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 261774 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 342140 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1148 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 1148 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1245 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1887 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3132 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2500 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 2500 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 426 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 757 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4817 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 6000 |
| IRS990/OtherExpensesGrp/Desc | 0 | Printing & Publication |
| IRS990/OtherExpensesGrp/Desc | 1 | Bank, Payroll, CC Fees |
| IRS990/OtherExpensesGrp/Desc | 2 | Fundraising Event Expenses |
| IRS990/OtherExpensesGrp/Desc | 3 | State registration fees |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 940 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1483 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 5438 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 146 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 278 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 2500 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 9222 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 4087 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 10308 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5848 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5438 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2500 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 766 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 25259 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 57741 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 83766 |
| IRS990/OthNotesLoansReceivableNetGrp/BOYAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 574 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3425 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6249 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 10248 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 10000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 9556 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 21612 |
| IRS990/PrincipalOfficerNm | 0 | Keith Harper |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 2 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 3 | 900099 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 4 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Annual Conference |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | Membership Dues |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | Dream Big Walk |
| IRS990/ProgramServiceRevenueGrp/Desc | 3 | Youth Ambassador Training |
| IRS990/ProgramServiceRevenueGrp/Desc | 4 | Publication Sales |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 1 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 2 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 3 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 4 | 0 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 66824 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 27396 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 2 | 1700 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 3 | 495 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 4 | 75 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 66824 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 27396 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 2 | 1700 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 3 | 495 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 4 | 75 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 1 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 2 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 3 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 4 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PUBLIC INFORMATION: Information provided for public, academic, medical, and other persons interested in obtaining information about narcolepsy, its causes, symptoms and treatments. Creation and distribution of educational materials and brochures, maintenance of website, interactive forum discussion and social media outreach. NN's Facebook and Twitter pages, with more than 6,000 followers, and an active Facebook support group with more than 7,500 members continued to bring narcolepsy news and information to people around the world. Fun awareness events continued, including The New York Dream Big Walk, which helped raise awareness along the Hudson River in New York City. The Sixth Annual Narcolepsy Bed Race in Virginia also spread awareness in Southwest Virginia. The Youth Ambassador program continued with more youth trained and increasing awareness with presentations for teachers, school nurses and other community members. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 78223 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 31420 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | NEWSLETTER, MEMBERSHIP & SCHOLARSHIPS: Our quarterly newsletter, "The Network" is for many people the only source of information about narcolepsy. The newsletter is distributed to the membership as well as many non-member sleep centers and professionals. Each newsletter provides information on diagnosis, effective treatments, resources, updates detailing new narcolepsy research, ideas for coping, personal stories and interviews, industry news, legal and insurance guidance and much more. Approximately 1,000 newsletters are printed quarterly. As part of its mission to provide support to people with narcolepsy, Narcolepsy Network encourages the formation of support groups. There are more than 40 active in-person groups in the U.S. 23 conference scholarships were provided to members in need. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 56748 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 8904 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 31746 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 280360 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 16822 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5672 |
| IRS990/PYOtherExpensesAmt | 0 | 236963 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 110461 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -26553 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 169261 |
| IRS990/PYTotalExpensesAmt | 0 | 423046 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 396493 |
| IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt | 0 | 0 |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt | 0 | 0 |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 80366 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/PersonalAmt | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/RealAmt | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.