Civic Intelligence

Narcolepsy Network Inc.

990 • Fiscal year 2014 • EIN 22-2762623

Jan 01, 2014 to Dec 31, 2014 • Filed on Jul 31, 2015

Organization Profilewww.narcolepsynetwork.org
46 Union Drive A212North Kingstown, RI 02852

(888) 292-6522

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

84th percentile

0.13x

Higher debt load relative to assets than 84% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Liabilities / Revenue

86th percentile

0.13x

Higher debt load relative to revenue than 86% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Net Margin

65th percentile

21%

Higher net margin than 65% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Top Officer Pay

95th percentile

$55,000

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 11.6% of source-year revenue.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Asset Growth

74th percentile

35%

Faster asset growth than 74% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Annualized from 2013 to 2014

Revenue Growth

72nd percentile

33%

Faster revenue growth than 72% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets84th percentile

Assets

Up

$484,874

Up $124,936 (+35%) from 2013

Net Assets

Up

$423,229

Up $97,653 (+30%) from 2013

Liabilities

Up

$61,645

Up $27,283 (+79%) from 2013

Revenue And Expenses
Liabilities / Revenue86th percentileNet Margin65th percentile

Revenue

Up

$473,870

Up $117,586 (+33%) from 2013

Expenses

Up

$376,217

Up $31,141 (+9.0%) from 2013

Net Income

Up

$97,653

Up $86,445 (+771%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $289,666Liabilities 2010: $16,332Net Assets 2010: $273,3342010Assets 2011: $311,453Liabilities 2011: $8,040Net Assets 2011: $303,4132011Assets 2012: $317,705Liabilities 2012: $3,337Net Assets 2012: $314,3682012Assets 2013: $359,938Liabilities 2013: $34,362Net Assets 2013: $325,5762013Assets 2014: $484,874Liabilities 2014: $61,645Net Assets 2014: $423,2292014Assets 2015: $391,466Liabilities 2015: $7,646Net Assets 2015: $383,8202015Assets 2016: $326,334Liabilities 2016: $38,007Net Assets 2016: $288,3272016Assets 2017: $305,453Liabilities 2017: $43,679Net Assets 2017: $261,7742017Assets 2018: $360,153Liabilities 2018: $18,013Net Assets 2018: $342,1402018Assets 2019: $534,942Liabilities 2019: $36,616Net Assets 2019: $498,3262019Assets 2020: $703,473Liabilities 2020: $22,256Net Assets 2020: $681,2172020Assets 2021: $615,842Liabilities 2021: $16,295Net Assets 2021: $599,5472021Assets 2022: $499,771Liabilities 2022: $85,159Net Assets 2022: $414,6122022Assets 2023: $383,865Liabilities 2023: $16,512Net Assets 2023: $367,3532023Assets 2024: $356,559Liabilities 2024: $10,586Net Assets 2024: $345,9732024

Highlighted filing

2014

Assets$484,874
Liabilities$61,645
Net Assets$423,229
Open 2014 Filing

Operations Trend

Revenue Growth72nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $201,8332010Revenue 2011: $307,386Expenses 2011: $276,521Net Income 2011: $30,8652011Expenses 2012: $269,1902012Revenue 2013: $356,284Expenses 2013: $345,076Net Income 2013: $11,2082013Revenue 2014: $473,870Expenses 2014: $376,217Net Income 2014: $97,6532014Revenue 2015: $375,868Expenses 2015: $415,277Net Income 2015: -$39,4092015Revenue 2016: $323,075Expenses 2016: $417,135Net Income 2016: -$94,0602016Revenue 2017: $396,493Expenses 2017: $423,046Net Income 2017: -$26,5532017Revenue 2018: $465,238Expenses 2018: $384,872Net Income 2018: $80,3662018Revenue 2019: $603,529Expenses 2019: $447,343Net Income 2019: $156,1862019Revenue 2020: $475,127Expenses 2020: $305,036Net Income 2020: $170,0912020Revenue 2021: $370,027Expenses 2021: $462,162Net Income 2021: -$92,1352021Revenue 2022: $395,403Expenses 2022: $562,494Net Income 2022: -$167,0912022Revenue 2023: $497,974Expenses 2023: $559,178Net Income 2023: -$61,2042023Revenue 2024: $455,706Expenses 2024: $489,101Net Income 2024: -$33,3952024

Highlighted filing

2014

Revenue$473,870
Expenses$376,217
Net Income$97,653
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Jul 31, 2015
Return Version
2014v5.0
Gross Receipts
$473,870
Mission and Program Overview

Mission

The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.

Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$320,898$418,424▲ $97,526
Cash and Non-Interest-Bearing Accounts$36,467$57,842▲ $21,375
Investments in Publicly Traded Securities-$5,519-
Land, Buildings, and Equipment, Net$2,500$2,500→ $0
Inventories for Sale or Use-$552-
Prepaid Expenses and Deferred Charges$73$37▼ $36
Accounts Receivable$0--
Total Assets$359,938$484,874▲ $124,936
Liabilities
Accounts Payable and Accrued Expenses$34,362$61,645▲ $27,283
Other Liabilities$0$0→ $0
Total Liabilities$34,362$61,645▲ $27,283
Net Assets / Fund Balance
Unrestricted Net Assets$325,576$423,229▲ $97,653
Permanently Rstr Net Assets$0$0→ $0
Temporarily Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$325,576$423,229▲ $97,653
Total Liabilities and Net Assets / Fund Balance$359,938$484,874▲ $124,936

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$0$0$0
Other Land Buildings$2,500$0$0
Land$0-$0
Equipment$0$0$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer Pay95th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Eveline V Honig MD MPHExecutive DirectorPT$55,000$55,000
Sara Kowalczyk MA MPHPresidentPT$750$750

Board Members and Trustees

NameTitle
Mark PattersonVice President
Mee WarrenVice President
Andrea PodolskyTrustee
Anthony TamTrustee
Ellen PowisTrustee
Rick O'BrienTrustee
Sarah DiDavideTrustee
Suporn SukprarutTrustee
Niss RyanTrustee Emerita
Rahul KakkarSecretary
Louise O'ConnellTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$390,044
Program Service Revenue
$82,388
Investment Income
$1,088
Other Revenue
$350
All Other Contributions
$329,700
Change in Net Assets
$97,653

Audited Revenue Reconciliation

Revenue per Audited Statements
$473,870
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$473,870
Total Revenue per Form 990
$473,870
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$242,768
Salaries, Compensation, and Employee Benefits$115,649
Grants and Similar Amounts Paid$17,800
Total Fundraising Expense$15,317
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$127,613$0$0$127,613
Current Officers, Directors, Trustees, and Key Employees$46,750$5,500$2,750$55,000
Other Salaries and Wages$39,909$10,910$893$51,712
Office Expenses$27,278$3,794$8,178$39,250
Fees for Services Other$18,354$0$0$18,354
Travel$11,090$4,917$0$16,007
Foreign Grants$10,000--$10,000
Payroll Taxes$7,511$1,110$316$8,937
Information Technology$7,503$708$0$8,211
Grants to Domestic Individuals$7,800--$7,800
Insurance$1,830$4,664$406$6,900
Fees for Services Accounting$0$3,717$0$3,717
Occupancy$385$3,039$0$3,424
Advertising$1,655$249$0$1,904
Other Expenses$682$436$261$1,379
Fees for Services Legal$250$0$0$250
Total Functional Expenses$318,553$42,347$15,317$376,217

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$376,217
Total Expenses per Audited Statements$376,217
Total Expenses per Form 990$376,217
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Other Expense Adjustments$0
International Activity

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Melissa PattersonDaughter of Mark Patterson, Vice PresidentEmploymentNo$11,175
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“Narcolepsy Network is membership organization.”

Form 990, Part VI, Section A, Line 7A

“Any person who supports the purpose of the corporation may become a member for each calendar year by paying the annual membership dues as required by the bylaws. Only those persons whose dues are current or have been granted complimentary membership shall be eligible to vote at membership meetings. There shall be no membership certificates of this corporation.”

Form 990, Part VI, Section A, Line 7B

“Any member may attend a membership meeting. Voting privileges shall be extended to any member whose dues are paid by the close of business on the day prior to giving notice of the meeting, which shall be the record date for determining the members entitled to vote at the meeting. Each voting member shall have (1) one vote. Membership standing in the name of a corporation may be voted on by any officer or agent, or by proxy appointed by any of them, unless some other person, by resolution of its board or pursuant to its bylaws, shall be appointed to vote the membership.”

Form 990, Part VI, Section B, Line 11B

“The Board of Trustees shall be called to review the annual Form 990 and accompanying schedules.”

Form 990, Part VI, Section C, Line 19

“The Narcolepsy Network governing documents, including the conflict of interest policy are available to the public upon request. The financial statements are published in the Narcolepsy Network Annual Report, which is available on the Narcolepsy Network website. Additionally, the bylaws are on the Narcolepsy Network website member's only section and are available upon request.”

Filing and Contact Details

Filer

Filer Name
Narcolepsy Network Inc
EIN
22-2762623
Phone
8882926522
Address
46 Union Drive A212, North Kingstown, RI 02852

Signing Officer

Name
Sarah DiDavide
Title
President
Phone
4016672523
Signed
2015-07-31

Organization Details

Principal Officer
Sarah DiDavide
Formed
1986
Legal Domicile
Nj
Voting Board Members
11
Independent Board Members
11
Employees
7
Volunteers
50
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“INDEPENDENT CONTRACTORS AND CONSULTANTS: Event Planning Services $10,000; Editing and Design Services $5,880; Professional Video and Information Technology (IT) $2,474.”

Financial Statement Notes

Schedule D, Part III, Line 4

“Maureen D Garnier donated "The Dream", her original watercolor with black and metallic inks. The painting measures 26" x 39". "The Dream" may be used in a variety of print images to further awareness of narcolepsy and its symptoms.”

Schedule D, Part X, Line 2

“The organization has adopted the accounting standard related to uncertainty in income taxes. For the periods ended December 31, 2014 and 2013 respectively, the organization did not identify any uncertain tax positions taken in an income tax return that would require adjustment to or disclosure in its financial statements. In addition, the organization believes that its tax status as a tax exempt entity would be sustained under federal and state tax examination. The organization is subject to federal and state tax examination for three years.”

Raw XML AppendixShowing 400 of 794 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm1Rick O'Brien
IRS990/Form990PartVIISectionAGrp/PersonNm2Andrea Podolsky
IRS990/Form990PartVIISectionAGrp/PersonNm3Ellen Powis
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IRS990/Form990PartVIISectionAGrp/TitleTxt1Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt2Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt3Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt4Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt5Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt6Trustee Emerita
IRS990/Form990PartVIISectionAGrp/TitleTxt7Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8President
IRS990/Form990PartVIISectionAGrp/TitleTxt9Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt10Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt11Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt12Treasurer
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IRS990/MissionDesc0The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of Chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes.
IRS990/MoreThan5000KToIndividualsInd01
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IRS990/OfficeExpensesGrp/TotalAmt039250
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IRS990/OtherExpensesGrp/Desc2State Registration Fees
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IRS990/OtherExpensesGrp/FundraisingAmt12450
IRS990/OtherExpensesGrp/FundraisingAmt20
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22997
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IRS990/OtherExpensesGrp/TotalAmt16195
IRS990/OtherExpensesGrp/TotalAmt22997
IRS990/OtherExpensesGrp/TotalAmt31379
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IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0893
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IRS990/PayrollTaxesGrp/TotalAmt08937
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IRS990/PrincipalOfficerNm0Sarah DiDavide
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IRS990/ProgSrvcAccomActy2Grp/Desc0PUBLIC INFORMATION: Information provided for public, academic, medical, and other persons interested in obtaining information about narcolepsy, its causes, symptoms and treatments. Creation and distribution of educational materials and brochures, maintenance of website, interactive forum discussion and social media outreach. NN's Facebook and Twitter pages, with more than 6,000 followers, and an active Facebook support group with nearly 5,000 members continued to bring narcolepsy news and information to people around the world. Fun awareness events continued, including The New York Dream Big Walk, which had more than 145 walkers raise awareness along the Hudson River in New York City. The Second Annual Narcolepsy Bed Race in Virginia also reached more than 60,000 in Southwest Virginia. Narcolepsy Network continued outreach to healthcare providers and educators in 2014, including an initiative to educate medical professionals with two posters that were presented at the SLEEP 2014 meeting, which is attended, by approximately 5,000 sleep professionals.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0112803
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0NEWSLETTER, MEMBERSHIP & SCHOLARSHIPS: Our quarterly newsletter, "The Network" is for many people the only source of information about narcolepsy. The newsletter is distributed to the membership as well as many non-member sleep centers and professionals. Each newsletter provides information on diagnosis, effective treatments, resources, updates detailing new narcolepsy research, ideas for coping, personal stories and interviews, industry news, legal and insurance guidance and much more. Approximately 2,000 newsletters are printed quarterly. As part of its mission to provide support to people with narcolepsy, Narcolepsy Network encourages the formation of support groups. In 2014, that network of groups increased dramatically with 12 new groups starting up in cities across the country. There are now more than 30 active in-person groups in the U.S. Approximately 30 full and partial membership, and 25 conference scholarships were provided to members in need.
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$484,874
Liabilities
$61,645
Net assets
$423,229
Revenue
$473,870
Expenses
$376,217
Net income
$97,653
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.57$0.11$3.46$4.56$4.89$0.33
2023Summary only. Only limited summary data is available for this year.$3.84$0.17$3.67$4.98$5.59$0.61
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.00$0.85$4.15$3.95$5.62$1.67
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.16$0.16$6.00$3.70$4.62$0.92
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.03$0.22$6.81$4.75$3.05$1.70
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.37$4.98$6.04$4.47$1.56
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.60$0.18$3.42$4.65$3.85$0.80
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.44$2.62$3.96$4.23$0.27
2016Summary only. Only limited summary data is available for this year.$3.26$0.38$2.88$3.23$4.17$0.94
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.08$3.84$3.76$4.15$0.39
2014Detailed filing. Detailed filing data is available for this year.$4.85$0.62$4.23$4.74$3.76$0.98
2013Detailed filing. Detailed filing data is available for this year.$3.60$0.34$3.26$3.56$3.45$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.03$3.14$2.69
2011Summary only. Only limited summary data is available for this year.$3.11$0.08$3.03$3.07$2.77$0.31
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.90$0.16$2.73$2.02