Civic Intelligence

Chordoma Foundation

990 • Fiscal year 2024 • EIN 20-8423943

Jan 01, 2024 to Dec 31, 2024 • Filed on May 14, 2025

Organization ProfileWWW.CHORDOMAFOUNDATION.ORG

View Organization Page

PO Box 2127Durham, NC 27702

(919) 809-6779

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

65th percentile

0.32x

Higher debt load relative to assets than 65% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

75th percentile

0.68x

Higher debt load relative to revenue than 75% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

9th percentile

-27%

Higher net margin than 9% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

64th percentile

$229,617

Higher top officer pay than 64% of similar nonprofits.

Top officer pay equals 4.3% of source-year revenue.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

43rd percentile

3.1%

Faster asset growth than 43% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

9th percentile

-28%

Faster revenue growth than 9% of similar nonprofits.

2024 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets65th percentile

Assets

Up

$11,385,145

Up $347,233 (+3.1%) from 2023

Net Assets

Down

$7,719,849

Down $1,488,039 (-16%) from 2023

Liabilities

Up

$3,665,296

Up $1,835,272 (+100%) from 2023

Revenue And Expenses
Liabilities / Revenue75th percentileNet Margin9th percentile

Revenue

Down

$5,362,824

Down $2,079,794 (-28%) from 2023

Expenses

Up

$6,834,629

Up $2,237,555 (+49%) from 2023

Net Income

Down

-$1,471,805

Down $4,317,349 (-152%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth43rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023Assets 2024: $11,385,145Liabilities 2024: $3,665,296Net Assets 2024: $7,719,8492024

Highlighted filing

2024

Assets$11,385,145
Liabilities$3,665,296
Net Assets$7,719,849
Open 2024 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023Revenue 2024: $5,362,824Expenses 2024: $6,834,629Net Income 2024: -$1,471,8052024

Highlighted filing

2024

Revenue$5,362,824
Expenses$6,834,629
Net Income-$1,471,805
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 14, 2025
Return Version
2024v5.0
Gross Receipts
$5,362,824
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$6,083,749$8,881,876▲ $2,798,127
Pledges and Grants Receivable$1,064,570$1,422,306▲ $357,736
Cash and Non-Interest-Bearing Accounts$3,639,340$784,029▼ $2,855,311
Land, Buildings, and Equipment, Net$145,151$110,975▼ $34,176
Prepaid Expenses and Deferred Charges$15,041$51,767▲ $36,726
Total Assets$11,037,912$11,385,145▲ $347,233
Other Assets Total$90,061$134,192▲ $44,131
Liabilities
Grants Payable$1,319,374$2,832,055▲ $1,512,681
Accounts Payable and Accrued Expenses$510,650$833,241▲ $322,591
Total Liabilities$1,830,024$3,665,296▲ $1,835,272
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,158,191$4,104,641▼ $53,550
Net Assets With Donor Restrictions$5,049,697$3,615,208▼ $1,434,489
Total Net Assets Fund Balance$9,207,888$7,719,849▼ $1,488,039
Total Liabilities and Net Assets / Fund Balance$11,037,912$11,385,145▲ $347,233

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$89,787$87,264$177,051
Other Land Buildings$21,188$42,372$63,560
Compensation and Service Providers
Top Officer Pay64th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenny BrightonHead of PhilFT$216,428$13,189$229,617
Kenny BrightonHead of Philanthropy-$168,374$61,243$229,617
Daniel FreedChief ScientFT$204,345$23,214$227,559
Daniel FreedChief Scientific Off-$178,269$49,290$227,559
Josh SommerExec. Director &FT$174,183$28,553$202,736
Josh SommerExec. Director & Pres.-$148,519$54,217$202,736
Sara NickHead of EngaFT$142,821$9,699$152,520
Sara NickHead of Engagement-$124,062$28,458$152,520
Shannon LozinskyDirector ofFT$121,708$17,888$139,596
Lee DolatScientistFT$112,452$15,642$128,094
Sai Perveen ChemudupatiDirector ofFT$105,347$11,259$116,606
Jesse BongartzHead of FinaFT$100,921$11,209$112,130

Board Members and Trustees

NameTitle
David SandakChair
Alicia JeffreysDirector
Christopher HeeryDirector
John TherienDirector
Lauren MulhollandDirector
Leslie AdlerDirector
Megan StewartDirector
Paul FeldmanDirector
Shreyaskumar PatelDirector
Steven GolickDirector
Steven MandelDirector
Susan MahonyDirector

Highest Paid Contractors

ContractorServicesLocationCompensation
S Texas Accelerated Research TherapeResearch4383 MEDICAL DRIVE SUITE 4021, San Antonio, TX 78229$155,885
Revenue and Support

Revenue Composition

Contributions and Grants
$4,859,019
Program Service Revenue
$0
Investment Income
$445,749
Other Revenue
$58,056
All Other Contributions
$4,859,019
Change in Net Assets
$-1,471,805

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$144,756Fair Market Value (FMV)
Other Non Cash Contri Table1$121,572Fair Market Value (FMV)
Total Noncash Contributions8$266,328-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,346,242
Revenue Not Reported on Financial Statements
$16,582
Revenue Not Reported on Form 990
$41,605
Total Revenue per Audited Statements
$5,387,847
Total Revenue per Form 990
$5,362,824
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,731,199
Salaries, Compensation, and Employee Benefits$2,131,135
Other Expenses$972,295
Total Fundraising Expense$609,870
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,715,621--$2,715,621
Other Salaries and Wages$643,375$110,012$216,786$970,173
Foreign Grants$940,010--$940,010
Current Officers, Directors, Trustees, and Key Employees$613,127$104,839$206,594$924,560
Information Technology$164,572$22,958$35,918$223,448
Fees for Services Other$143,706$367$8,176$152,249
Travel$81,179$14,062$42,728$137,969
Payroll Taxes$86,925$14,863$29,290$131,078
Other Employee Benefits$63,602$10,875$21,431$95,908
Fees for Services Accounting-$80,469-$80,469
Grants to Domestic Individuals$75,568--$75,568
Depreciation Depletion$49,805$2,160$3,238$55,203
Office Expenses$10,704$14,480$22,133$47,317
Fees for Services Legal$28,797$73$1,638$30,508
Insurance$13,216$8,197$583$21,996
Other Expenses$33,345$20,000$11,649$20,000
Advertising$11,807-$5,504$17,311
Fees for Service Investment Mgmnt Fees-$16,582-$16,582
Pension Plan Contributions$6,244$1,068$2,104$9,416
Occupancy$606$819$1,253$2,678
Total Functional Expenses$5,802,372$422,387$609,870$6,834,629

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,875,886
Total Expenses per Form 990$6,834,629
Expenses per Audited Statements$6,818,047
Expenses Not Reported on Form 990$57,839
Expenses Not Reported on Financial Statements$16,582
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Memorial Sloan Kettering CancerNew York, NY501c3Research Grant$407,935
University of Texas Md Anderson CanHouston, TX501c3Research Grant$400,000
Nyu Grossman School of MedicineNew York, NY501c3Research Grant$325,000
The Broad Institute IncCambridge, MA501c3Research Grant$299,789
StartSan Antonio, TX501c3Research Grant$275,562
Cancer Research InstituteNew York, NY501c3Research Grant$250,000
American Assn for Cancer ResearchPhiladelphia, PA-Research Grant$138,060
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501c3Research Grant$84,723
Massachusetts Gen HospitalBoston, MA501c3Research Grant$56,500
Cedars Sinai Medical CenterLos Angeles, CA-Research Grant$50,000
The Medical College of WisconsinMilwaukee, WI-Research Grant$50,000
Upmc Department of NeurosurgeryPittsburg, PA501c3Research Grant$50,000
Redesign Science IncNew York, NY-Research Grant$15,000

International Summary

Spending
$940,010

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantsResearch--$745,876
South AsiaGrantsResearch--$194,134
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Board DirectorIn-kind Legal SvcsNo$57,839
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Financial reports and the form 990 are reviewed by the foundation's executive director, board chair, treasurer and finance committee before being distributed to the full board for review and approval.”

Form 990, Page 6, Part VI, Line 12C

“Each employee, director, or other agent of the foundation signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits.”

Form 990, Page 6, Part VI, Line 15B

“The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.”

Form 990, Page 6, Part VI, Line 19

“Governing documents including articles of incorporation, by-laws, policies, annual audits, and 990s are on file in the finance office and are available to the public upon request. Some of these documents are available on the foundation's website.”

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
Exec. Director & Pres.
Phone
9198096779
Signed
2025-05-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
13
Independent Board Members
12
Employees
16
Volunteers
45

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Susan Dean
Phone
9196621001
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Loss on foreign currency -47,276”

Financial Statement Notes

Schedule D, Page 3, Part X

“The foundation evaluates any uncertain tax positions. Accordingly, the foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position of management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination. Management does not believe any significant income tax uncertainties exist as of december 31, 2024 or 2023.”

Schedule D, Page 4, Part XI, Line 2D

“Loss on foreign currency -47,276”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt2EXEC. DIR. &
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IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
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IRS990/OtherExpensesGrp/FundraisingAmt111649
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IRS990/ProgSrvcAccomActy2Grp/Desc0(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.
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Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,385,145
Liabilities
$3,665,296
Net assets
$7,719,849
Revenue
$5,362,824
Expenses
$6,834,629
Net income
-$1,471,805
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$11.4$3.67$7.72$5.36$6.83$1.47
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.18$2.47$4.70$5.16$3.94$1.22
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$1.03$3.49$2.42$2.34$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40