Civic Intelligence

Chordoma Foundation

EIN 20-8423943 • 501(c)3 • Durham, NC

Profile

The mission of the chordoma foundation is to rapidly develop effective treatments and ultimately a cure for chordoma, and to help chordoma patients get the best care possible.

PO Box 2127Durham, NC 27702

www.chordomafoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

49th percentile

0.17x

Higher debt load relative to assets than 49% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2023

Liabilities / Revenue

52nd percentile

0.25x

Higher debt load relative to revenue than 52% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2023

Net Margin

85th percentile

38%

Higher net margin than 85% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2023

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

91st percentile

45%

Faster asset growth than 91% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Revenue Growth

87th percentile

52%

Faster revenue growth than 87% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets49th percentile

Assets

Up

$11,037,912

Up $3,438,401 (+45%) from 2022

Liabilities

Up

$1,830,024

Up $476,717 (+35%) from 2022

Net Assets

Up

$9,207,888

Up $2,961,684 (+47%) from 2022

Operations
Liabilities / Revenue52nd percentileNet Margin85th percentile

Revenue

Up

$7,442,618

Up $2,556,368 (+52%) from 2022

Expenses

Up

$4,597,074

Up $1,508,305 (+49%) from 2022

Net Income

Up

$2,845,544

Up $1,048,063 (+58%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth91st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023

Highlighted filing

2023

Assets$11,037,912
Liabilities$1,830,024
Net Assets$9,207,888
Open 2023 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023

Highlighted filing

2023

Revenue$7,442,618
Expenses$4,597,074
Net Income$2,845,544
Open 2023 Filing

Filings

Most recent year

2023 • Form 990Summary only. Only limited summary data is available for this year.

Open filing
Assets
$11,037,912
Liabilities
$1,830,024
Net assets
$9,207,888
Revenue
$7,442,618
Expenses
$4,597,074
Net income
$2,845,544
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.18$2.47$4.70$5.16$3.94$1.22
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$1.03$3.49$2.42$2.34$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40
Latest Detailed Filing

The latest 2023 filing currently has summary financial data only. Showing the latest detailed filing from 2022 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Aug 22, 2023
Return Version
2022v5.0
Gross Receipts
$4,886,250
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$5,065,451$6,102,120▲ $1,036,669
Pledges and Grants Receivable$584,490$1,123,782▲ $539,292
Cash and Non-Interest-Bearing Accounts$804,311$267,171▼ $537,140
Land, Buildings, and Equipment, Net$19,847$78,331▲ $58,484
Accounts Receivable$34,262--
Prepaid Expenses and Deferred Charges$21,334$28,107▲ $6,773
Total Assets$6,529,695$7,599,511▲ $1,069,816
Liabilities
Grants Payable$1,905,855$776,434▼ $1,129,421
Accounts Payable and Accrued Expenses$214,632$573,348▲ $358,716
Deferred Revenue$11,177$3,525▼ $7,652
Total Liabilities$2,131,664$1,353,307▼ $778,357
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,147,930$3,193,948▲ $2,046,018
Net Assets Without Donor Restrictions$3,250,101$3,052,256▼ $197,845
Total Net Assets Fund Balance$4,398,031$6,246,204▲ $1,848,173
Total Liabilities and Net Assets / Fund Balance$6,529,695$7,599,511▲ $1,069,816

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$63,560-$63,560
Equipment$14,344$41,998$56,342
Leasehold Improvements$427$7,113$7,540
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Daniel FreedHead of TargFT$153,838$13,647$167,485
Daniel FreedHead of Target Disco-$143,581$23,904$167,485
Kenny BrightonHead of PhilFT$153,136$5,603$158,739
Kenny BrightonHead of Philanthropy-$138,082$20,657$158,739
Josh SommerExec. Director &FT$132,248$12,084$144,332
Tammy SilverthorneDirector ofFT$100,001$15,355$115,356
Shannon LozinskyDirector ofFT$100,250$11,619$111,869
Sara NickHead of EngaFT$100,500$3,705$104,205

Board Members and Trustees

NameTitle
David SandakChair
Alicia JeffreysDirector
Christopher HeeryDirector
Christy ShafferDirector
John TherienDirector
Leslie AdlerDirector
Megan StewartDirector
Paul FeldmanDirector
Shreyaskumar PatelDirector
Steven GolickDirector
Steven MandelDirector
Susan MahonyDirector
Julie SongSecretary
Ingemar LaneviTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$4,812,417
Program Service Revenue
$0
Investment Income
$15,406
Other Revenue
$58,427
All Other Contributions
$4,812,417
Change in Net Assets
$1,797,481

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$435,045Fair Market Value (FMV)
Other Non Cash Contri Table1$157,142Fair Market Value (FMV)
Total Noncash Contributions7$592,187-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,886,250
Revenue Not Reported on Form 990
$97,886
Total Revenue per Audited Statements
$4,984,136
Total Revenue per Form 990
$4,886,250
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,199,415
Salaries, Compensation, and Employee Benefits$1,193,089
Other Expenses$696,265
Total Fundraising Expense$491,001
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$926,915--$926,915
Other Salaries and Wages$353,834$54,319$168,387$576,540
Current Officers, Directors, Trustees, and Key Employees$288,790$44,334$137,433$470,557
Foreign Grants$242,500--$242,500
Fees for Services Other$104,301$6,612$19,492$130,405
Information Technology$57,176$27,727$38,280$123,183
Payroll Taxes$44,805$6,878$21,323$73,006
Other Employee Benefits$38,865$5,966$18,496$63,327
Travel$16,743$8,392$36,172$61,307
Office Expenses$11,391$25,796$16,052$53,239
Occupancy$7,653$17,332$10,785$35,770
Grants to Domestic Individuals$30,000--$30,000
Other Expenses$17,249$50,000$8,000$25,249
Insurance$13,632$6,291$852$20,775
Advertising$8,716-$5,874$14,590
Fees for Services Accounting-$14,523-$14,523
Pension Plan Contributions$5,928$910$2,821$9,659
Depreciation Depletion-$9,104-$9,104
Fees for Services Legal$703$143$131$977
Total Functional Expenses$2,316,902$280,866$491,001$3,088,769

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,135,963
Expenses per Audited Statements$3,088,769
Total Expenses per Form 990$3,088,769
Expenses Not Reported on Form 990$47,194
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
StartSan Antonio, TX501c3Research Grant$300,762
Cancer Research InstituteNew York, NY501c3Research Grant$200,000
The Jackson LaboratoryBar Harbor, ME501c3Research Grant$125,720
Upmc Department of NeurosurgeryPittsburg, PA-Research Grant$100,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501c3Research Grant$75,019
University of Nc at Chapel HillChapel Hill, NC501c3Research Grant$21,133

International Summary

Spending
$242,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South AsiaGrantsResearch--$220,500
EuropeGrantsResearch--$22,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Board DirectorIn-kind Legal SvcsNo$47,194
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Financial reports and the form 990 are reviewed by the foundation's executive director, board chair, treasurer and finance committee before being distributed to the full board for review and approval.”

Form 990, Page 6, Part VI, Line 12C

“Each employee, director, or other agent of the foundation signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits. The board of directors decide on compensation of the executive director and key employees by vote.”

Form 990, Page 6, Part VI, Line 15B

“The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.”

Form 990, Page 6, Part VI, Line 19

“Governing documents including articles of incorporation, by-laws, policies, annual audits, and 990s are on file in the finance office and are available to the public upon request. Some of these documents are available on the foundation's website.”

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
Exec. Director & Pres.
Phone
9198096779
Signed
2023-08-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
15
Independent Board Members
14
Employees
11
Volunteers
120

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Susan Dean
Phone
9196621001
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Gain on foreign currency 50,692”

Financial Statement Notes

Schedule D, Page 3, Part X

“The foundation evaluates any uncertain tax positions. Accordingly, the foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position of management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination. Management does not believe any significant income tax uncertainties exist as of december 31, 2022 or 2021.”

Schedule D, Page 4, Part XI, Line 2D

“Gain on foreign currency 50,692”

Raw XML AppendixShowing 400 of 685 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1HEAD OF PHIL
IRS990/Form990PartVIISectionAGrp/TitleTxt2EXEC. DIR. &
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR OF
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR OF
IRS990/Form990PartVIISectionAGrp/TitleTxt5HEAD OF ENGA
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0CONFERENCE REGISTRATION FEES 15,437
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