Civic Intelligence

Chordoma Foundation

990 • Fiscal year 2019 • EIN 20-8423943

Jan 01, 2019 to Dec 31, 2019 • Filed on Aug 01, 2020

Organization ProfileWWW.CHORDOMAFOUNDATION.ORG

View Organization Page

PO Box 2127Durham, NC 27702

(919) 809-6779

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

67th percentile

0.34x

Higher debt load relative to assets than 67% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Liabilities / Revenue

72nd percentile

0.48x

Higher debt load relative to revenue than 72% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Net Margin

80th percentile

24%

Higher net margin than 80% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Top Officer Pay

74th percentile

$190,544

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 3.7% of source-year revenue.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Asset Growth

94th percentile

59%

Faster asset growth than 94% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Revenue Growth

95th percentile

113%

Faster revenue growth than 95% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets67th percentile

Assets

Up

$7,176,227

Up $2,657,276 (+59%) from 2018

Net Assets

Up

$4,703,579

Up $1,216,884 (+35%) from 2018

Liabilities

Up

$2,472,648

Up $1,440,392 (+140%) from 2018

Revenue And Expenses
Liabilities / Revenue72nd percentileNet Margin80th percentile

Revenue

Up

$5,155,658

Up $2,734,469 (+113%) from 2018

Expenses

Up

$3,937,221

Up $1,598,340 (+68%) from 2018

Net Income

Up

$1,218,437

Up $1,136,129 (+1380%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023

Highlighted filing

2019

Assets$7,176,227
Liabilities$2,472,648
Net Assets$4,703,579
Open 2019 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023

Highlighted filing

2019

Revenue$5,155,658
Expenses$3,937,221
Net Income$1,218,437
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Aug 1, 2020
Return Version
2019v5.0
Gross Receipts
$5,395,696
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,056,355$3,531,358▲ $1,475,003
Pledges and Grants Receivable$2,144,523$2,701,029▲ $556,506
Savings and Temporary Cash Investments$185,825$261,026▲ $75,201
Prepaid Expenses and Deferred Charges$24,136$20,989▼ $3,147
Land, Buildings, and Equipment, Net$19,329$16,616▼ $2,713
Accounts Receivable$85,806$11,782▼ $74,024
Total Assets$4,518,951$7,176,227▲ $2,657,276
Other Assets Total$2,977$633,427▲ $630,450
Liabilities
Grants Payable$844,782$2,335,214▲ $1,490,432
Accounts Payable and Accrued Expenses$180,424$135,144▼ $45,280
Deferred Revenue$7,050$2,290▼ $4,760
Total Liabilities$1,032,256$2,472,648▲ $1,440,392
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,969,731$2,669,018▲ $699,287
Net Assets Without Donor Restrictions$1,516,964$2,034,561▲ $517,597
Total Net Assets Fund Balance$3,486,695$4,703,579▲ $1,216,884
Total Liabilities and Net Assets / Fund Balance$4,518,951$7,176,227▲ $2,657,276

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$16,111$24,403$40,514
Leasehold Improvements$505$3,958$4,463
Other Assets Org$2,977--
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joan LevyDirector ofFT$168,919$21,625$190,544
Joan LevyDirector of Research-$158,919$31,625$190,544
Josh SommerPresidentFT$92,141$8,389$100,530

Board Members and Trustees

NameTitle
David SandakChair
Joel BeckmanVice Chair
Andy SchoelkopfDirector
Christopher HeeryDirector
Christy ShafferDirector
Ed LesDirector
John TherienDirector
Steven GolickDirector
Steven MandelDirector
Julie SongSecretary
Ingemar LaneviTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,151,081
Program Service Revenue
$2,512
Investment Income
$-19,166
Other Revenue
$21,231
All Other Contributions
$5,151,081
Change in Net Assets
$1,218,437

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$33,223Fair Market Value (FMV)
Securities Publicly Traded1$3,467Fair Market Value (FMV)
Total Noncash Contributions2$36,690-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,155,658
Revenue Not Reported on Form 990
$105,666
Total Revenue per Audited Statements
$5,261,324
Total Revenue per Form 990
$5,155,658
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,298,076
Salaries, Compensation, and Employee Benefits$873,401
Other Expenses$729,744
Total Fundraising Expense$465,151
Professional Fundraising Fees$36,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,298,076--$2,298,076
Other Salaries and Wages$258,557$73,284$128,719$460,560
Current Officers, Directors, Trustees, and Key Employees$163,408$46,315$81,351$291,074
Information Technology$54,970$59,232$44,028$158,230
Fees for Services Other$88,365$18,473$24,962$131,800
Travel$38,900$9,817$21,885$70,602
Other Employee Benefits$39,061$11,071$19,446$69,578
Payroll Taxes$29,299$8,304$14,586$52,189
Office Expenses$22,582$4,489$22,348$49,419
Fees for Services Professional Fundraising--$36,000$36,000
Occupancy$15,182$3,018$15,025$33,225
Advertising$8,454$3,186$12,264$23,904
Insurance$9,284$6,701$2,044$18,029
Other Expenses$13,559$806$35,931$13,559
Fees for Services Accounting$4,668$1,988$6,562$13,218
Depreciation Depletion-$5,539-$5,539
Total Functional Expenses$3,059,847$412,223$465,151$3,937,221

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,044,440
Expenses per Audited Statements$3,937,221
Total Expenses per Form 990$3,937,221
Expenses Not Reported on Form 990$107,219
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Nc at Chapel HillChapel Hill, NC-Research Grant$1,438,875
The Broad Institute IncCambridge, MA501c3Research Grant$300,000
StartSan Antonio, TX501c3Research Grant$268,406
John Wayne Cancer Institute AuxilSanta Monica, CA501c3Research Grant$140,000
Dana-farber Cancer Institute IncBoston, MA-Research Grant$80,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501c3Research Grant$32,398
Jackson LaboratoryBar Harbor, ME501c3Research Grant$21,523
Vala SciencesSan Diego, CA501c3Research Grant$5,150
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$36,000
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Joel BeckmanBoard DirectorContributionNo$503,000
Joel BeckmanBoard DirectorPledge ReceivableNo$250,000
Andrew SchoelkopfBoard DirectorPledge ReceivableNo$57,500
Smith Anderson LlpBoard DirectorIn-kind Legal SvcsNo$19,374
Christy ShafferBoard DirectorContributionNo$10,000
Paul FeldmanBoard DirectorContributionNo$10,000
Steven MandelBoard DirectorPledge ReceivableNo$8,500
Julie SongBoard DirectorContributionNo$4,050
Steven MandelBoard DirectorContributionNo$3,492
David SandakBoard DirectorContributionNo$1,500
Ingemar LaneviBoard DirectorPledge ReceivableNo$1,500
Josh SommerBoard DirectorContributionNo$1,200
John TherienBoard DirectorContributionNo$1,000
Ingemar LaneviBoard DirectorContributionNo$563
Andrew SchoelkopfBoard DirectorContributionNo$521
Edward LesBoard DirectorContributionNo$500
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 4

“The organization's bylaws were updated and adopted by the board of directors on april 12, 2019.”

Form 990, Page 6, Part VI, Line 11B

“Financial reports and the form 990 are reviewed by the foundation's executive director, board chair and finance committee before being distributed to the full board for review and approval.”

Form 990, Page 6, Part VI, Line 12C

“Each employee, director, or other agent of the foundation annually signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits. The board of directors decide on compensation of the executive director and key employees by vote. .”

Form 990, Page 6, Part VI, Line 15B

“The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.”

Form 990, Page 6, Part VI, Line 19

“Governing documents, disclosure explanation, articles of incorporation, by-laws, policies and procedures manual, conflict of interest policy and other governing policies, annual audits and 990's are on file in the finance office, available on the foundation's website and available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
President
Phone
9198096779
Signed
2020-08-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
12
Independent Board Members
11
Employees
11
Volunteers
124

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Susan Dean
Phone
9196621001
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Loss on currency translation -1,553 reclass negative grant expense -21,231 reclass negative grant expense 21,231 total -1,553”

Financial Statement Notes

Schedule D, Page 3, Part X

“The foundation evaluates any uncertain tax positions. Accordingly, the foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position of management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination. Management does not believe any significant income tax uncertainties exist as of december 31, 2019 or 2018.”

Schedule D, Page 4, Part XI, Line 2D

“Loss on currency translation -1,553 reclass negative grant expense -21,231”

Schedule D, Page 4, Part XII, Line 2D

“Reclass negative grant expense -21,231”

Raw XML AppendixShowing 400 of 757 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0CONFERENCE REGISTRATION FEES 33,051
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2019 OR 2018.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2RECLASS NEGATIVE GRANT EXPENSE -21,231
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XII, LINE 2D
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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,176,227
Liabilities
$2,472,648
Net assets
$4,703,579
Revenue
$5,155,658
Expenses
$3,937,221
Net income
$1,218,437
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Detailed filing. Detailed filing data is available for this year.$7.18$2.47$4.70$5.16$3.94$1.22
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$1.03$3.49$2.42$2.34$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40