Civic Intelligence

Chordoma Foundation

990 • Fiscal year 2018 • EIN 20-8423943

Jan 01, 2018 to Dec 31, 2018 • Filed on Jun 27, 2019

Organization ProfileWWW.CHORDOMAFOUNDATION.ORG

View Organization Page

PO Box 2127Durham, NC 27702

(919) 809-6779

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

66th percentile

0.23x

Higher debt load relative to assets than 66% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

76th percentile

0.43x

Higher debt load relative to revenue than 76% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

51st percentile

3.4%

Higher net margin than 51% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

87th percentile

$176,377

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 7.3% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

19th percentile

-6.7%

Faster asset growth than 19% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

71st percentile

17%

Faster revenue growth than 71% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets66th percentile

Assets

Down

$4,518,951

Down $324,310 (-6.7%) from 2017

Net Assets

Up

$3,486,695

Up $51,712 (+1.5%) from 2017

Liabilities

Down

$1,032,256

Down $376,022 (-27%) from 2017

Revenue And Expenses
Liabilities / Revenue76th percentileNet Margin51st percentile

Revenue

Up

$2,421,189

Up $344,917 (+17%) from 2017

Expenses

Down

$2,338,881

Down $580,754 (-20%) from 2017

Net Income

Up

$82,308

Up $925,671 (+110%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth19th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023

Highlighted filing

2018

Assets$4,518,951
Liabilities$1,032,256
Net Assets$3,486,695
Open 2018 Filing

Operations Trend

Revenue Growth71st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023

Highlighted filing

2018

Revenue$2,421,189
Expenses$2,338,881
Net Income$82,308
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Jun 27, 2019
Return Version
2018v3.1
Gross Receipts
$2,901,266
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$2,431,372$2,144,523▼ $286,849
Cash and Non-Interest-Bearing Accounts$1,828,573$2,056,355▲ $227,782
Savings and Temporary Cash Investments$343,035$185,825▼ $157,210
Accounts Receivable$176,155$85,806▼ $90,349
Prepaid Expenses and Deferred Charges$37,935$24,136▼ $13,799
Land, Buildings, and Equipment, Net$23,214$19,329▼ $3,885
Total Assets$4,843,261$4,518,951▼ $324,310
Other Assets Total$2,977$2,977→ $0
Liabilities
Grants Payable$1,279,067$844,782▼ $434,285
Accounts Payable and Accrued Expenses$117,401$180,424▲ $63,023
Deferred Revenue$11,810$7,050▼ $4,760
Total Liabilities$1,408,278$1,032,256▼ $376,022
Net Assets / Fund Balance
Temporarily Rstr Net Assets$2,087,034$1,969,731▼ $117,303
Unrestricted Net Assets$1,347,949$1,516,964▲ $169,015
Total Net Assets Fund Balance$3,434,983$3,486,695▲ $51,712
Total Liabilities and Net Assets / Fund Balance$4,843,261$4,518,951▼ $324,310

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$17,456$20,951$38,407
Leasehold Improvements$1,873$2,590$4,463
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joan LevyDirector ofFT$155,977$20,400$176,377
Joan LevyDirector of Research-$155,977-$155,977
Josh SommerPresidentFT$99,097$7,377$106,474

Board Members and Trustees

NameTitle
David SandakChair
Joel BeckmanVice Chair
Andy SchoelkopfDirector
Christy ShafferDirector
David DrewryDirector
Paula SongDirector
Shreyas PatelDirector
Steven MandelDirector
Kerry ShadSecretary
Ingemar LaneviTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,350,245
Program Service Revenue
$11,150
Investment Income
$1,988
Other Revenue
$57,806
All Other Contributions
$2,350,245
Change in Net Assets
$82,308

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$35,462Fair Market Value (FMV)
Securities Publicly Traded1$29,949Fair Market Value (FMV)
Total Noncash Contributions2$65,411-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,421,189
Revenue Not Reported on Form 990
$42,542
Total Revenue per Audited Statements
$2,463,731
Total Revenue per Form 990
$2,421,189
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$930,791
Grants and Similar Amounts Paid$699,940
Other Expenses$662,150
Total Fundraising Expense$439,268
Professional Fundraising Fees$46,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$401,160$102,974$162,035$666,169
Grants to Domestic Orgs$549,940--$549,940
Foreign Grants$150,000--$150,000
Information Technology$64,636$25,396$42,822$132,854
Current Officers, Directors, Trustees, and Key Employees$63,888$16,750$35,247$115,885
Other Employee Benefits$50,221$21,011$20,635$91,867
Fees for Services Other$31,461$22,552$36,120$90,133
Travel$40,817$19,642$18,298$78,757
Payroll Taxes$32,630$9,872$14,368$56,870
Fees for Services Professional Fundraising--$46,000$46,000
Office Expenses$15,591$4,330$19,228$39,149
Occupancy$12,721$3,533$15,688$31,942
Other Expenses$21,875$39,250$11,287$21,875
Advertising$2,215$4,428$10,342$16,985
Insurance$8,118$6,745$1,262$16,125
Fees for Services Accounting$9,510$1,742$2,674$13,926
Depreciation Depletion$3,216$911$1,233$5,360
Fees for Services Legal--$2,029$2,029
Total Functional Expenses$1,614,312$285,301$439,268$2,338,881

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,412,019
Expenses per Audited Statements$2,338,881
Total Expenses per Form 990$2,338,881
Expenses Not Reported on Form 990$73,138
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
StartSan Antonio, TX501c3Research Grant$183,901
Yale UniversityNew Haven, CTLLCResearch Grant$150,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA-Research Grant$60,916
Massachusetts Gen HospitalBoston, MA501c3Research Grant$50,000
University of MichiganAnn Arbor, MI501c3Research Grant$25,000
Jackson LaboratoryBar Harbor, ME501c3Research Grant$20,032
Clinical Research SequencingCambridge, MA-Research Grant$18,750
Vala SciencesSan Diego, CA501c3Research Grant$14,900
University of California SfSan Francisco, CA501c3Research Grant$10,000

International Summary

Spending
$150,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantsResearch--$150,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$46,000
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Andrew SchoelkopfBoard DirectorContributionNo$65,000
Steven MandelBoard DirectorContributionNo$21,437
Smith Anderson LlpBoard DirectorIn-kind Legal SvcsNo$20,729
Ingemar LaneviBoard DirectorContributionNo$4,563
David DrewryBoard DirectorContributionNo$1,109
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Financial reports and the form 990 are reviewed by the foundation's executive director, board chair and finance committee before being distributed to the full board for review and approval.”

Form 990, Page 6, Part VI, Line 12C

“Each employee, director, or other agent of the foundation annually signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits. The board of directors decide on compensation of the executive director and key employees by vote.”

Form 990, Page 6, Part VI, Line 15B

“The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.”

Form 990, Page 6, Part VI, Line 19

“Governing documents, disclosure explanation, articles of incorporation, by-laws, policies and procedures manual, conflict of interest policy and other governing policies, annual audits and 990's are on file in the finance office, available on the foundation's website and available to the public upon request.”

Form 990, Part VII

“Board member, kerry shad, resigned from her position of secretary on november 4, 2018. The position has not been filled since then.”

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
President
Phone
9198096779
Signed
2019-06-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
11
Independent Board Members
10
Employees
10
Volunteers
108

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Anthony T Pandiscia
Phone
9196621001
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“Other program service accomplishments”

Form 990, Part XI, Line 9

“Loss on currency translation -30,596 reclass of negative grant expense -57,806 reclass of negative grant expense 57,806 total -30,596”

Financial Statement Notes

Schedule D, Page 3, Part X

“The organization evaluates its uncertain tax positions using the provisions of asc 740-10-25, recognition of a tax position. Accordingly, the organization policy is to record a liability for any tax position taken that is beneficial to the organization, including any related interest and penalties, when it is more likely than not the position of management, with respect to a transaction or class of transactions, will be overturned by a taxing authority upon examination. Management believes there are no such positions as of decemebr 31, 2018.”

Schedule D, Page 4, Part XI, Line 2D

“Loss on currency translation -30,596 reclass of negative grant expense -57,806”

Schedule D, Page 4, Part XII, Line 2D

“Reclass of negative grant expense -57,806”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgramServiceRevenueGrp/ExclusionAmt011150
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IRS990/ProgSrvcAccomActy2Grp/Desc0(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER PROGRAM SERVICE ACCOMPLISHMENTS
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 23,569
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION EVALUATES ITS UNCERTAIN TAX POSITIONS USING THE PROVISIONS OF ASC 740-10-25, RECOGNITION OF A TAX POSITION. ACCORDINGLY, THE ORGANIZATION POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE ORGANIZATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT, WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS, WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT BELIEVES THERE ARE NO SUCH POSITIONS AS OF DECEMEBR 31, 2018.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1LOSS ON CURRENCY TRANSLATION -30,596 RECLASS OF NEGATIVE GRANT EXPENSE -57,806
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2RECLASS OF NEGATIVE GRANT EXPENSE -57,806
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XII, LINE 2D
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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,518,951
Liabilities
$1,032,256
Net assets
$3,486,695
Revenue
$2,421,189
Expenses
$2,338,881
Net income
$82,308
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.18$2.47$4.70$5.16$3.94$1.22
2018Detailed filing. Detailed filing data is available for this year.$4.52$1.03$3.49$2.42$2.34$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40