Civic Intelligence

Chordoma Foundation

990 • Fiscal year 2015 • EIN 20-8423943

Jan 01, 2015 to Dec 31, 2015 • Filed on May 13, 2016

PO Box 2127Durham, NC 27702

(919) 809-6779

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.18x

Higher debt load relative to assets than 59% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

66th percentile

0.26x

Higher debt load relative to revenue than 66% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

82nd percentile

24%

Higher net margin than 82% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

68th percentile

$97,785

Higher top officer pay than 68% of similar nonprofits.

Top officer pay equals 5.1% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

79th percentile

16%

Faster asset growth than 79% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

28th percentile

-5.4%

Faster revenue growth than 28% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Assets

Up

$2,764,956

Up $385,282 (+16%) from 2014

Net Assets

Up

$2,267,108

Up $468,851 (+26%) from 2014

Liabilities

Down

$497,848

Down $83,569 (-14%) from 2014

Revenue

Down

$1,916,256

Down $109,693 (-5.4%) from 2014

Expenses

Down

$1,447,405

Down $214,015 (-13%) from 2014

Net Income

Up

$468,851

Up $104,322 (+29%) from 2014

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023

Highlighted filing

2015

Assets$2,764,956
Liabilities$497,848
Net Assets$2,267,108

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023

Highlighted filing

2015

Revenue$1,916,256
Expenses$1,447,405
Net Income$468,851
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
May 13, 2016
Return Version
2015v2.1
Gross Receipts
$1,916,256
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$922,559$1,057,571▲ $135,012
Pledges and Grants Receivable$560,710$836,168▲ $275,458
Savings and Temporary Cash Investments$785,721$746,834▼ $38,887
Accounts Receivable$79,780$87,588▲ $7,808
Prepaid Expenses and Deferred Charges$22,368$22,892▲ $524
Land, Buildings, and Equipment, Net$6,071$11,438▲ $5,367
Total Assets$2,379,674$2,764,956▲ $385,282
Other Assets Total$2,465$2,465→ $0
Liabilities
Grants Payable$547,898$451,894▼ $96,004
Accounts Payable and Accrued Expenses$33,519$45,954▲ $12,435
Total Liabilities$581,417$497,848▼ $83,569
Net Assets / Fund Balance
Unrestricted Net Assets$1,436,159$1,672,666▲ $236,507
Temporarily Rstr Net Assets$362,098$594,442▲ $232,344
Total Net Assets Fund Balance$1,798,257$2,267,108▲ $468,851
Total Liabilities and Net Assets / Fund Balance$2,379,674$2,764,956▲ $385,282

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$11,438$17,504$28,942
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Josh SommerPresident, EFT$92,734$5,051$97,785

Board Members and Trustees

NameTitle
Andy SchoelkopfChair
Joel BeckmanVice Chair
Chandra SenDirector
Kerry ShadSecretary
Paula SongTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,915,121
Program Service Revenue
$0
Investment Income
$711
Other Revenue
$424
All Other Contributions
$1,915,121
Change in Net Assets
$468,851

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,916,256
Revenue Not Reported on Form 990
$144,756
Total Revenue per Audited Statements
$2,061,012
Total Revenue per Form 990
$1,916,256
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$513,870
Other Expenses$470,916
Grants and Similar Amounts Paid$462,619
Total Fundraising Expense$270,123
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$427,619--$427,619
Other Salaries and Wages$173,334$47,268$130,072$350,674
Current Officers, Directors, Trustees, and Key Employees$48,336$13,180$36,270$97,786
Conferences and Meetings$44,849$3,481$4,483$52,813
Information Technology$14,430$6,515$20,468$41,413
Payroll Taxes$17,796$4,853$13,354$36,003
Foreign Grants$35,000--$35,000
Travel$22,743$4,027$7,706$34,476
Other Employee Benefits$14,535$3,964$10,908$29,407
Occupancy$14,519$3,854$8,767$27,140
Advertising$12,938$102$13,227$26,267
Office Expenses$7,228$466$16,558$24,252
Fees for Services Other$10,812$5,482$4,343$20,637
Fees for Services Accounting$830$10,632$570$12,032
Insurance$6,578$1,355$2,698$10,631
Depreciation Depletion$1,432$273$569$2,274
Other Expenses$76,394$116$130$246
Total Functional Expenses$1,061,504$115,778$270,123$1,447,405

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,592,161
Expenses per Audited Statements$1,447,405
Total Expenses per Form 990$1,447,405
Expenses Not Reported on Form 990$144,756
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Broad InstituteCambridge, MA501c3Research Grant$191,783
Memorial Sloan Kettering Cancer CtrNew York, NY501c3Research Grant$100,000
Massachusetts Gen HospitalBoston, MA501c3Research Grant$56,336
Duke University Medical CtrDurham, NC501c3Research Grant$49,500
Johns Hopkins University Sch of MedBaltimore, MD501c3Research Grant$30,000

International Summary

Spending
$35,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantsResearch--$35,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Joel BeckmanBoard DirectorContributionNo$130,100
Smith Anderson LlpFormer Bd Dir.In-kind Legal SvcsNo$49,911
Chandra SenBoard DirectorContributionNo$15,000
Heather LeeFormer Bd Dir.ContributionNo$11,500
Andrew SchoelkopfBoard DirectorContributionNo$10,100
Kerry ShadBoard DirectorContributionNo$10,000
Developmental AssociatesBoard DirectorEmployee RecruitmentNo$2,625
Josh SommerOfficerContributionNo$1,200
Hans KeulenFormer Bd Dir.ContributionNo$500
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

Financial reports and the form 990 are reviewed by the foundation's executive director, board chair and finance committee before being distributed to the full board for review and approval.

Form 990, Page 6, Part VI, Line 12C

Each employee, director, or other agent of the foundation annually signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.

Form 990, Page 6, Part VI, Line 15A

The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits. The board of directors decide on compensation of the executive director and key employees by vote.

Form 990, Page 6, Part VI, Line 15B

The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.

Form 990, Page 6, Part VI, Line 19

Governing documents, disclosure explanation, articles of incorporation, by-laws, policies and procedures manual, conflict of interest policy and other governing policies, annual audits and 990's are on file in the finance office, available on the foundation's website and available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
President, Exec. Director
Phone
9198096779
Signed
2016-05-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
6
Independent Board Members
5
Employees
10
Volunteers
45

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Kendall Tyson
Phone
9196621001
Supplemental Narrative

Financial Statement Notes

Schedule D, Page 3, Part X

The foundation evaluates any uncertain tax positions. Accordingly, the foundations policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position of management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination. Management does not believe any significant income tax uncertainties exist as of december 31, 2015 or 2014.

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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03964
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt014535
IRS990/OtherEmployeeBenefitsGrp/TotalAmt029407
IRS990/OtherExpensesGrp/Desc0CONTRACT RESEARCH
IRS990/OtherExpensesGrp/Desc1BIOREPOSITORY
IRS990/OtherExpensesGrp/Desc2BAD DEBT EXPENSE
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS EXPENSE
IRS990/OtherExpensesGrp/FundraisingAmt0130
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt010210
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1116
IRS990/OtherExpensesGrp/ProgramServicesAmt0132131
IRS990/OtherExpensesGrp/ProgramServicesAmt176394
IRS990/OtherExpensesGrp/TotalAmt0132131
IRS990/OtherExpensesGrp/TotalAmt176394
IRS990/OtherExpensesGrp/TotalAmt210210
IRS990/OtherExpensesGrp/TotalAmt3246
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0424
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0424
IRS990/OtherRevenueTotalAmt0424
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0130072
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt047268
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0173334
IRS990/OtherSalariesAndWagesGrp/TotalAmt0350674
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt013354
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04853
IRS990/PayrollTaxesGrp/ProgramServicesAmt017796
IRS990/PayrollTaxesGrp/TotalAmt036003
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0560710
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0836168
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt022368
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt022892
IRS990/PrincipalOfficerNm0JOSH SOMMER
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0108092
IRS990/ProgSrvcAccomActy2Grp/GrantAmt07500
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt02011406
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0870478
IRS990/PYInvestmentIncomeAmt0-163
IRS990/PYOtherExpensesAmt0422585
IRS990/PYOtherRevenueAmt014706
IRS990/PYRevenuesLessExpensesAmt0364529
IRS990/PYSalariesCompEmpBnftPaidAmt0368357
IRS990/PYTotalExpensesAmt01661420
IRS990/PYTotalRevenueAmt02025949
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0468851
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0785721
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0746834
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01915121
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02011406
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01609663
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0780659
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0584425
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt06901274
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0711
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0513
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0622
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01075
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt03820
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt06741
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0424
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.86410
IRS990ScheduleA/PublicSupportPY170Pct00.66160
IRS990ScheduleA/PublicSupportTotal170Amt05969332
IRS990ScheduleA/SubstantialContributorsTotAmt0931942
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01915121
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02011406
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01609663
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0780659
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0584425
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt06901274
IRS990ScheduleA/TotalSupportAmt06908015
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0144756
IRS990ScheduleD/DonatedServicesUseFcltsAmt0144756
IRS990ScheduleD/EquipmentGrp/BookValueAmt011438
IRS990ScheduleD/EquipmentGrp/DepreciationAmt017504
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt028942
IRS990ScheduleD/ExpensesNotReportedAmt0144756
IRS990ScheduleD/ExpensesSubtotalAmt01447405
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/RevenueNotReportedAmt0144756
IRS990ScheduleD/RevenueSubtotalAmt01916256
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATIONS POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2015 OR 2014.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/TotalBookValueLandBuildingsAmt011438
IRS990ScheduleD/TotalExpensesPerForm990Amt01447405
IRS990ScheduleD/TotalRevenuePerForm990Amt01916256
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02061012
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01592161
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt035000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt015000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt110000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt210000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt2WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt2RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt035000
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1EUROPE 35,000 0
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt215,000 WAS AWARDED TO THE EUROPEAN SOCIETY OF MEDICAL ONCOLOGY IN SWITZERLAND AS SUPPORT FOR A PROFESSIONAL MEETING ON A CONSENSUS APPROACH TO CHORDOMA AND A CHORDOMA COMMUNITY CONFERENCE. 10,000 WAS AWARDED TO THE ROYAL NATIONAL ORTHOPAEDICS HOSPITAL AS AN UNRESTRICTED PRIZE TO BE USED BY DR. ADRIENNE FLANAGAN FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 10,000 WAS AWARDED TO THE MEDICAL UNIVERSITY OF GRAZ IN AUSTRIA AS AN UNRESTRICTED PRIZE TO BE USED BY DR. BEATE RINNER FOR SCIENTIFIC AND EDUCATIONAL PURPOSES.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE F, PAGE 1, PART I, LINE 3
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE F, PAGE 5, PART V
IRS990ScheduleF/Total501c3OrgCnt03
IRS990ScheduleF/TotalSpentAmt035000
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0100000
IRS990ScheduleI/RecipientTable/CashGrantAmt156336
IRS990ScheduleI/RecipientTable/CashGrantAmt249500
IRS990ScheduleI/RecipientTable/CashGrantAmt330000
IRS990ScheduleI/RecipientTable/CashGrantAmt4191783
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501C3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501C3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4RESEARCH GRANT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0MEMORIAL SLOAN KETTERING CANCER CTR
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1MASSACHUSETTS GEN HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2DUKE UNIVERSITY MEDICAL CTR
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3JOHNS HOPKINS UNIVERSITY SCH OF MED
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4THE BROAD INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientEIN0131924236
IRS990ScheduleI/RecipientTable/RecipientEIN1041564655
IRS990ScheduleI/RecipientTable/RecipientEIN2562070036
IRS990ScheduleI/RecipientTable/RecipientEIN3900329755
IRS990ScheduleI/RecipientTable/RecipientEIN4263428781
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01275 YORK AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1100 BLOSSOM CT JACKSON 1115
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2615 DOUGLAS STREET NO 700
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3733 N BROADWAY STE 117
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4415 MAIN STREET
IRS990ScheduleI/RecipientTable/USAddress/CityNm0NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BOSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm2DURHAM
IRS990ScheduleI/RecipientTable/USAddress/CityNm3BALTIMORE
IRS990ScheduleI/RecipientTable/USAddress/CityNm4CAMBRIDGE
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2NC
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010065
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102114
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd227705
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd321205
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd402142

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.18$2.47$4.70$5.16$3.94$1.22
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$1.03$3.49$2.42$2.34$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015Detailed filing. Detailed filing data is available for this year.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40