Civic Intelligence

Chordoma Foundation

990 • Fiscal year 2017 • EIN 20-8423943

Jan 01, 2017 to Dec 31, 2017 • Filed on Jul 12, 2018

Organization ProfileWWW.CHORDOMAFOUNDATION.ORG

View Organization Page

PO Box 2127Durham, NC 27702

(919) 809-6779

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

70th percentile

0.29x

Higher debt load relative to assets than 70% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

81st percentile

0.68x

Higher debt load relative to revenue than 81% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

7th percentile

-41%

Higher net margin than 7% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

80th percentile

$132,163

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 6.4% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

13th percentile

-8.8%

Faster asset growth than 13% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

4th percentile

-50%

Faster revenue growth than 4% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets70th percentile

Assets

Down

$4,843,261

Down $465,857 (-8.8%) from 2016

Net Assets

Down

$3,434,983

Down $643,171 (-16%) from 2016

Liabilities

Up

$1,408,278

Up $177,314 (+14%) from 2016

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin7th percentile

Revenue

Down

$2,076,272

Down $2,083,779 (-50%) from 2016

Expenses

Up

$2,919,635

Up $570,630 (+24%) from 2016

Net Income

Down

-$843,363

Down $2,654,409 (-147%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $579,247Liabilities 2010: $9,043Net Assets 2010: $570,2042010Assets 2011: $679,814Liabilities 2011: $96,208Net Assets 2011: $583,6062011Assets 2012: $833,861Liabilities 2012: $106,004Net Assets 2012: $727,8572012Assets 2013: $1,676,212Liabilities 2013: $242,484Net Assets 2013: $1,433,7282013Assets 2014: $2,379,674Liabilities 2014: $581,417Net Assets 2014: $1,798,2572014Assets 2015: $2,764,956Liabilities 2015: $497,848Net Assets 2015: $2,267,1082015Assets 2016: $5,309,118Liabilities 2016: $1,230,964Net Assets 2016: $4,078,1542016Assets 2017: $4,843,261Liabilities 2017: $1,408,278Net Assets 2017: $3,434,9832017Assets 2018: $4,518,951Liabilities 2018: $1,032,256Net Assets 2018: $3,486,6952018Assets 2019: $7,176,227Liabilities 2019: $2,472,648Net Assets 2019: $4,703,5792019Assets 2020: $6,345,825Liabilities 2020: $1,648,064Net Assets 2020: $4,697,7612020Assets 2021: $6,529,695Liabilities 2021: $2,131,664Net Assets 2021: $4,398,0312021Assets 2022: $7,599,511Liabilities 2022: $1,353,307Net Assets 2022: $6,246,2042022Assets 2023: $11,037,912Liabilities 2023: $1,830,024Net Assets 2023: $9,207,8882023

Highlighted filing

2017

Assets$4,843,261
Liabilities$1,408,278
Net Assets$3,434,983
Open 2017 Filing

Operations Trend

Revenue Growth4th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2010: $396,3132010Revenue 2011: $615,230Expenses 2011: $607,863Net Income 2011: $7,3672011Expenses 2012: $643,8832012Revenue 2013: $1,617,934Expenses 2013: $912,063Net Income 2013: $705,8712013Revenue 2014: $2,025,949Expenses 2014: $1,661,420Net Income 2014: $364,5292014Revenue 2015: $1,916,256Expenses 2015: $1,447,405Net Income 2015: $468,8512015Revenue 2016: $4,160,051Expenses 2016: $2,349,005Net Income 2016: $1,811,0462016Revenue 2017: $2,076,272Expenses 2017: $2,919,635Net Income 2017: -$843,3632017Revenue 2018: $2,421,189Expenses 2018: $2,338,881Net Income 2018: $82,3082018Revenue 2019: $5,155,658Expenses 2019: $3,937,221Net Income 2019: $1,218,4372019Revenue 2020: $2,495,845Expenses 2020: $2,520,685Net Income 2020: -$24,8402020Revenue 2021: $3,085,754Expenses 2021: $3,372,184Net Income 2021: -$286,4302021Revenue 2022: $4,886,250Expenses 2022: $3,088,769Net Income 2022: $1,797,4812022Revenue 2023: $7,442,618Expenses 2023: $4,597,074Net Income 2023: $2,845,5442023

Highlighted filing

2017

Revenue$2,076,272
Expenses$2,919,635
Net Income-$843,363
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jul 12, 2018
Return Version
2017v2.3
Gross Receipts
$2,076,272
Mission and Program Overview

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$1,951,840$2,431,372▲ $479,532
Cash and Non-Interest-Bearing Accounts$2,769,921$1,828,573▼ $941,348
Savings and Temporary Cash Investments$460,995$343,035▼ $117,960
Accounts Receivable$84,970$176,155▲ $91,185
Prepaid Expenses and Deferred Charges$28,393$37,935▲ $9,542
Land, Buildings, and Equipment, Net$10,534$23,214▲ $12,680
Total Assets$5,309,118$4,843,261▼ $465,857
Other Assets Total$2,465$2,977▲ $512
Liabilities
Grants Payable$1,145,141$1,279,067▲ $133,926
Accounts Payable and Accrued Expenses$85,823$117,401▲ $31,578
Deferred Revenue-$11,810-
Total Liabilities$1,230,964$1,408,278▲ $177,314
Net Assets / Fund Balance
Temporarily Rstr Net Assets$2,472,247$2,087,034▼ $385,213
Unrestricted Net Assets$1,605,907$1,347,949▼ $257,958
Total Net Assets Fund Balance$4,078,154$3,434,983▼ $643,171
Total Liabilities and Net Assets / Fund Balance$5,309,118$4,843,261▼ $465,857

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$20,046$18,775$38,821
Leasehold Improvements$3,168$1,295$4,463
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Josh SommerPresidentFT$119,636$12,527$132,163

Board Members and Trustees

NameTitle
Andy SchoelkopfChair
Joel BeckmanVice Chair
Christy ShafferDirector
David DrewryDirector
David SandakDirector
Paula SongDirector
Shreyas PatelDirector
Steven MandelDirector
Kerry ShadSecretary
Ingemar LaneviTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,013,420
Program Service Revenue
$4,345
Investment Income
$3,685
Other Revenue
$54,822
All Other Contributions
$2,013,420
Change in Net Assets
$-843,363

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$34,584Fair Market Value (FMV)
Securities Publicly Traded1$8,017Fair Market Value (FMV)
Total Noncash Contributions2$42,601-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,076,272
Revenue Not Reported on Form 990
$305,001
Total Revenue per Audited Statements
$2,381,273
Total Revenue per Form 990
$2,076,272
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,343,996
Salaries, Compensation, and Employee Benefits$880,506
Other Expenses$695,133
Total Fundraising Expense$510,740
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$883,746--$883,746
Other Salaries and Wages$344,555$79,255$173,566$597,376
Foreign Grants$460,250--$460,250
Fees for Services Other$100,044$15,969$74,137$190,150
Information Technology$78,679$16,327$83,434$178,440
Current Officers, Directors, Trustees, and Key Employees$76,315$17,625$38,224$132,164
Other Employee Benefits$55,517$13,308$26,303$95,128
Payroll Taxes$31,489$8,167$16,182$55,838
Travel$27,831$8,588$18,489$54,908
Office Expenses$17,081$4,853$22,508$44,442
Advertising$9,093$9,697$18,749$37,539
Occupancy$12,536$3,581$16,497$32,614
Insurance$7,434$5,082$958$13,474
Fees for Services Accounting$140$12,367$61$12,568
Other Expenses$7,698$6,528$13,396$7,698
Fees for Services Legal--$6,724$6,724
Depreciation Depletion$3,469$745$1,512$5,726
Total Functional Expenses$2,206,803$202,092$510,740$2,919,635

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,024,444
Expenses per Audited Statements$2,919,635
Total Expenses per Form 990$2,919,635
Expenses Not Reported on Form 990$104,809
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
StartSan Antonio, TX501c3Research Grant$200,612
Massachusetts Gen HospitalBoston, MA501c3Research Grant$200,431
Baylor College of MedicineHouston, TX501c3Research Grant$165,000
Memorial Sloan Kettering CancerNew York, NY501c3Research Grant$137,500
The Broad InstituteCambridge, MA501c3Research Grant$71,140
Jackson LaboratoryBar Harbor, ME-Research Grant$58,881
American Type Culture CollectionManassas, VA-Research Grant$28,682
Vala SciencesSan Diego, CA501c3Research Grant$21,500

International Summary

Spending
$460,250

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantsResearch--$460,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Joel BeckmanBoard DirectorContributionNo$1,002,500
Smith Anderson LlpBoard DirectorIn-kind Legal SvcsNo$56,208
Steven MandelBoard DirectorContributionNo$9,181
Christy ShafferBoard DirectorContributionNo$5,000
Kerry ShadBoard DirectorContributionNo$2,868
Andrew SchoelkopfBoard DirectorContributionNo$1,500
Josh SommerOfficerContributionNo$1,317
David SandakBoard DirectorContributionNo$1,000
Ingemar LaneviBoard DirectorContributionNo$300
David DrewryBoard DirectorContributionNo$250
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Financial reports and the form 990 are reviewed by the foundation's executive director, board chair and finance committee before being distributed to the full board for review and approval.”

Form 990, Page 6, Part VI, Line 12C

“Each employee, director, or other agent of the foundation annually signs a statement that affirms they have received a copy of the policy, read and understand the policy, agreed to comply with the policy, and understand the foundation must engage primarily in activities that accomplish one or more of its tax-exempt purposes in order to maintain their federal tax exemption.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee of the board of directors recommends compensation of the executive director and key employees that is (i) within the budget approved by the board of directors, and (ii) comparable to industry norms for similarly sized nonprofits. The board of directors decide on compensation of the executive director and key employees by vote.”

Form 990, Page 6, Part VI, Line 15B

“The executive director, along with the board of directors, determine the compensation of the organization's employees after carefully reviewing the employee credentials and the organization's budget. All positions and compensations are approved and funded through the annual budget, which requires board review and approval. In addition, personnel issues may be brought before the executive committee of the board of directors by the executive director.”

Form 990, Page 6, Part VI, Line 19

“Governing documents, disclosure explanation, articles of incorporation, by-laws, policies and procedures manual, conflict of interest policy and other governing policies, annual audits and 990's are on file in the finance office, available on the foundation's website and available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Chordoma Foundation
EIN
20-8423943
Phone
9198096779
Address
PO BOX 2127, DURHAM, NC 27702

Signing Officer

Name
Josh Sommer
Title
President
Phone
9198096779
Signed
2018-07-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Sommer
Formed
2007
Legal Domicile
Nc
Voting Board Members
11
Independent Board Members
10
Employees
11
Volunteers
75

Preparer

Firm
Langdon & Company Llp
Address
223 US HIGHWAY 70 EAST SUITE 100, GARNER, NC 27529-4051
Preparer
Kendall Tyson
Phone
9196621001
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“Other program service accomplishments”

Form 990, Part XI, Line 9

“Gain on foreign currency transacation 200,192 reclass of negative grant expense -54,822 reclass of negative grant expense 54,822 total 200,192”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 2D

“Gain on foreign currency transacation 200,192 reclass of negative grant expense -54,822”

Schedule D, Page 4, Part XII, Line 2D

“Reclass of negative grant expense -54,822”

Schedule D, Page 4, Part XIII

“Part x - fin 48 footnote the organization evaluates its uncertain tax positions using the provisions of asc 740-10-25, recognition of a tax position. Accordingly, the organization's policy is to record a liability for any tax position taken that is beneficial to the organization, including any related interest and penalties, when it is more likely than not the position of management, with respect to a transaction or class of transactions, will be overturned by a taxing authority upon examination. Management believes there are no such positions as of december 31, 2017.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
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IRS990/FormationYr02007
IRS990/FormerOfcrEmployeesListedInd0false
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IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
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IRS990/GrantAmt01343996
IRS990/GrantsPayableGrp/BOYAmt01145141
IRS990/GrantsPayableGrp/EOYAmt01279067
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0883746
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0883746
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt02076272
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
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IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt083434
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt016327
IRS990/InformationTechnologyGrp/ProgramServicesAmt078679
IRS990/InformationTechnologyGrp/TotalAmt0178440
IRS990/InsuranceGrp/FundraisingAmt0958
IRS990/InsuranceGrp/ManagementAndGeneralAmt05082
IRS990/InsuranceGrp/ProgramServicesAmt07434
IRS990/InsuranceGrp/TotalAmt013474
IRS990/InvestmentIncomeGrp/ExclusionAmt03685
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt03685
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt020070
IRS990/LandBldgEquipBasisNetGrp/BOYAmt010534
IRS990/LandBldgEquipBasisNetGrp/EOYAmt023214
IRS990/LandBldgEquipCostOrOtherBssAmt043284
IRS990/LegalDomicileStateCd0NC
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
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IRS990/NetAssetsOrFundBalancesEOYAmt03434983
IRS990/NoncashContributionsAmt042601
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IRS990/OccupancyGrp/FundraisingAmt016497
IRS990/OccupancyGrp/ManagementAndGeneralAmt03581
IRS990/OccupancyGrp/ProgramServicesAmt012536
IRS990/OccupancyGrp/TotalAmt032614
IRS990/OfficeExpensesGrp/FundraisingAmt022508
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04853
IRS990/OfficeExpensesGrp/ProgramServicesAmt017081
IRS990/OfficeExpensesGrp/TotalAmt044442
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02465
IRS990/OtherAssetsTotalGrp/EOYAmt02977
IRS990/OtherChangesInNetAssetsAmt0200192
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt026303
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt013308
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt055517
IRS990/OtherEmployeeBenefitsGrp/TotalAmt095128
IRS990/OtherExpensesGrp/Desc0BIOREPOSITORY
IRS990/OtherExpensesGrp/Desc1EVENTS
IRS990/OtherExpensesGrp/Desc2CONTRACT RESEARCH
IRS990/OtherExpensesGrp/FundraisingAmt013396
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt06528
IRS990/OtherExpensesGrp/ProgramServicesAmt087798
IRS990/OtherExpensesGrp/ProgramServicesAmt13128
IRS990/OtherExpensesGrp/ProgramServicesAmt27698
IRS990/OtherExpensesGrp/TotalAmt087798
IRS990/OtherExpensesGrp/TotalAmt123052
IRS990/OtherExpensesGrp/TotalAmt27698
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt054822
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt054822
IRS990/OtherRevenueTotalAmt054822
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0173566
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt079255
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0344555
IRS990/OtherSalariesAndWagesGrp/TotalAmt0597376
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt016182
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08167
IRS990/PayrollTaxesGrp/ProgramServicesAmt031489
IRS990/PayrollTaxesGrp/TotalAmt055838
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01951840
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02431372
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt028393
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt037935
IRS990/PrincipalOfficerNm0JOSH SOMMER
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0COMMUNITY CONFERENCE
IRS990/ProgramServiceRevenueGrp/ExclusionAmt04345
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt04345
IRS990/ProgSrvcAccomActy2Grp/Desc0(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0325417
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt04345
IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER PROGRAM SERVICE ACCOMPLISHMENTS
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt04144568
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0751345
IRS990/PYInvestmentIncomeAmt0439
IRS990/PYOtherExpensesAmt0930341
IRS990/PYProgramServiceRevenueAmt015044
IRS990/PYRevenuesLessExpensesAmt01811046
IRS990/PYSalariesCompEmpBnftPaidAmt0667319
IRS990/PYTotalExpensesAmt02349005
IRS990/PYTotalRevenueAmt04160051
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-843363
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0460995
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0343035
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 19,389
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02013420
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt04144568
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01915121
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02011406
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01609663
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt011694178
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt03685
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0439
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0711
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0513
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0622
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt05970
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt054822
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt04345
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt015044
IRS990ScheduleA/OtherIncome170Grp/TotalAmt019389
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.54530
IRS990ScheduleA/PublicSupportPY170Pct00.56350
IRS990ScheduleA/PublicSupportTotal170Amt06390443
IRS990ScheduleA/SubstantialContributorsTotAmt05303735
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02013420
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt04144568
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01915121
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02011406
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01609663
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt011694178
IRS990ScheduleA/TotalSupportAmt011719537
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0159631
IRS990ScheduleD/DonatedServicesUseFcltsAmt0159631
IRS990ScheduleD/EquipmentGrp/BookValueAmt020046
IRS990ScheduleD/EquipmentGrp/DepreciationAmt018775
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt038821
IRS990ScheduleD/ExpensesNotReportedAmt0104809
IRS990ScheduleD/ExpensesSubtotalAmt02919635
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt03168
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt01295
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt04463
IRS990ScheduleD/OtherExpensesIncludedAmt0-54822
IRS990ScheduleD/OtherRevenueAmt0145370
IRS990ScheduleD/RevenueNotReportedAmt0305001
IRS990ScheduleD/RevenueSubtotalAmt02076272
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0GAIN ON FOREIGN CURRENCY TRANSACATION 200,192 RECLASS OF NEGATIVE GRANT EXPENSE -54,822
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1RECLASS OF NEGATIVE GRANT EXPENSE -54,822
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2PART X - FIN 48 FOOTNOTE THE ORGANIZATION EVALUATES ITS UNCERTAIN TAX POSITIONS USING THE PROVISIONS OF ASC 740-10-25, RECOGNITION OF A TAX POSITION. ACCORDINGLY, THE ORGANIZATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE ORGANIZATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT, WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS, WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT BELIEVES THERE ARE NO SUCH POSITIONS AS OF DECEMBER 31, 2017.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XIII
IRS990ScheduleD/TotalBookValueLandBuildingsAmt023214
IRS990ScheduleD/TotalExpensesPerForm990Amt02919635
IRS990ScheduleD/TotalRevenuePerForm990Amt02076272
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02381273
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt03024444
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0460250
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt075000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt1350000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt231750
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt2WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt2RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt0460250
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1EUROPE 460,250 0
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt250,000 WAS AWARDED TO DR. KEVIN MELLERT AND DR. PETER MOLLER AT THE UNIVERSITY OF ULM IN GERMANY TO BE USED FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 15,000 WAS AWARDED AS AN UNRESTRICTED PRIZE TO BE USED BY DR. KEVIN MELLERT AND DR. PETER MOLLER AT THE UNIVERSITY OF ULM IN GERMANY TO BE USED FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 10,000 WAS ALSO AWARDED TO THE UNIVERSITY OF ULM TO BE USED FOR CHORDOMA PEDIATRIC CELL LINE DEVELOPMENT. 31,750 WAS AWARDED TO ISG ASSOCIAZIONE DI VOLONTARIATO TO SUPPORT CHORDOMA CLINICAL RESEARCH MEETINGS IN MILAN, ITALY. 350,000 WAS AWARDED TO DR. ADRIENNE FLANAGAN AT THE UNIVERSITY COLLEGE OF LONDON CANCER INSTITUTE TO BE USED FOR A STUDY OF CHORDOMA FOCUSING ON HOW THE EPIGENETIC LANDSCAPE CAN BE TARGETED FOR DEVELOPMENT OF NEW THERAPIES. 3,500 WAS AWARDED TO THE INSTITUTE NAZIONALE DEI TUMORI; HOWEVER, SINCE THE GRANT AMOUNT FALLS BELOW THE REPORTING THRESHOLD, THIS GRANT IS NOT REPORTED ON SCHEDULE F, PART II.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE F, PAGE 1, PART I, LINE 3
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE F, PAGE 5, PART V
IRS990ScheduleF/Total501c3OrgCnt03
IRS990ScheduleF/TotalSpentAmt0460250
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0165000
IRS990ScheduleI/RecipientTable/CashGrantAmt1137500

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,843,261
Liabilities
$1,408,278
Net assets
$3,434,983
Revenue
$2,076,272
Expenses
$2,919,635
Net income
-$843,363
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$11.0$1.83$9.21$7.44$4.60$2.85
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.60$1.35$6.25$4.89$3.09$1.80
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.53$2.13$4.40$3.09$3.37$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.35$1.65$4.70$2.50$2.52$0.02
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.18$2.47$4.70$5.16$3.94$1.22
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$1.03$3.49$2.42$2.34$0.08
2017Detailed filing. Detailed filing data is available for this year.$4.84$1.41$3.43$2.08$2.92$0.84
2016Summary only. Only limited summary data is available for this year.$5.31$1.23$4.08$4.16$2.35$1.81
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.50$2.27$1.92$1.45$0.47
2014Detailed filing. Detailed filing data is available for this year.$2.38$0.58$1.80$2.03$1.66$0.36
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.24$1.43$1.62$0.91$0.71
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.11$0.73$0.64
2011Summary only. Only limited summary data is available for this year.$0.68$0.10$0.58$0.62$0.61$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.01$0.57$0.40