Civic Intelligence

Pcd Ks Foundation

990 • Fiscal year 2021 • EIN 20-0543474

Jan 01, 2021 to Dec 31, 2021 • Filed on Sep 20, 2022

10023 Morris RoadBloomington, MN 55437

(612) 386-1261

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.14x

Higher debt load relative to assets than 61% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

66th percentile

0.22x

Higher debt load relative to revenue than 66% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

90th percentile

58%

Higher net margin than 90% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

84th percentile

$149,000

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 7.4% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

92nd percentile

82%

Faster asset growth than 92% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

93rd percentile

181%

Faster revenue growth than 93% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$3,186,526

Up $1,434,125 (+82%) from 2020

Net Assets

Up

$2,747,149

Up $1,167,661 (+74%) from 2020

Liabilities

Up

$439,377

Up $266,464 (+154%) from 2020

Revenue

Up

$2,011,124

Up $1,294,530 (+181%) from 2020

Expenses

Up

$843,231

Up $517,886 (+159%) from 2020

Net Income

Up

$1,167,893

Up $776,644 (+199%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $43,665Liabilities 2011: $02011Assets 2012: $43,757Liabilities 2012: $02012Assets 2013: $96,840Liabilities 2013: $02013Assets 2014: $227,262Liabilities 2014: $0Net Assets 2014: $227,2622014Assets 2015: $310,262Liabilities 2015: $0Net Assets 2015: $310,2622015Assets 2016: $410,759Liabilities 2016: $0Net Assets 2016: $410,7592016Assets 2017: $828,964Liabilities 2017: $23,148Net Assets 2017: $805,8162017Assets 2018: $1,055,384Liabilities 2018: $23,747Net Assets 2018: $1,031,6372018Assets 2019: $1,212,358Liabilities 2019: $24,223Net Assets 2019: $1,188,1352019Assets 2020: $1,752,401Liabilities 2020: $172,913Net Assets 2020: $1,579,4882020Assets 2021: $3,186,526Liabilities 2021: $439,377Net Assets 2021: $2,747,1492021Assets 2022: $3,346,050Liabilities 2022: $316,853Net Assets 2022: $3,029,1972022Assets 2023: $3,268,548Liabilities 2023: $398,664Net Assets 2023: $2,869,8842023Assets 2024: $3,595,466Liabilities 2024: $382,179Net Assets 2024: $3,213,2872024

Highlighted filing

2021

Assets$3,186,526
Liabilities$439,377
Net Assets$2,747,149

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $118,693Expenses 2011: $78,419Net Income 2011: $40,2742011Revenue 2012: $74,767Expenses 2012: $90,002Net Income 2012: -$15,2352012Revenue 2013: $122,637Expenses 2013: $65,014Net Income 2013: $57,6232013Revenue 2014: $295,567Expenses 2014: $165,145Net Income 2014: $130,4222014Revenue 2015: $338,072Expenses 2015: $255,072Net Income 2015: $83,0002015Revenue 2016: $419,004Expenses 2016: $318,507Net Income 2016: $100,4972016Revenue 2017: $847,234Expenses 2017: $446,044Net Income 2017: $401,1902017Revenue 2018: $628,741Expenses 2018: $402,926Net Income 2018: $225,8152018Revenue 2019: $668,902Expenses 2019: $512,448Net Income 2019: $156,4542019Revenue 2020: $716,594Expenses 2020: $325,345Net Income 2020: $391,2492020Revenue 2021: $2,011,124Expenses 2021: $843,231Net Income 2021: $1,167,8932021Revenue 2022: $1,109,263Expenses 2022: $827,296Net Income 2022: $281,9672022Revenue 2023: $895,288Expenses 2023: $1,054,601Net Income 2023: -$159,3132023Revenue 2024: $1,994,370Expenses 2024: $1,650,828Net Income 2024: $343,5422024

Highlighted filing

2021

Revenue$2,011,124
Expenses$843,231
Net Income$1,167,893
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Sep 20, 2022
Return Version
2021v4.0
Gross Receipts
$2,026,184
Mission and Program Overview

Mission

To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,713,343$2,746,140▲ $1,032,797
Pledges and Grants Receivable$25,650$415,860▲ $390,210
Investments in Publicly Traded Securities$5,175$15,437▲ $10,262
Prepaid Expenses and Deferred Charges$8,233$9,089▲ $856
Total Assets$1,752,401$3,186,526▲ $1,434,125
Liabilities
Grants Payable-$274,957-
Mortgage Notes Payable Secured by Investment Property$150,000$150,000→ $0
Accounts Payable and Accrued Expenses$21,218$8,600▼ $12,618
Other Liabilities$1,695$5,820▲ $4,125
Total Liabilities$172,913$439,377▲ $266,464
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,579,488$2,156,289▲ $576,801
Net Assets With Donor Restrictions-$590,860-
Total Net Assets Fund Balance$1,579,488$2,747,149▲ $1,167,661
Total Liabilities and Net Assets / Fund Balance$1,752,401$3,186,526▲ $1,434,125
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Michele ManionExec Dir, PrFT$149,000$149,000
Lynn EhrneDirector, SeFT$54,750$54,750

Board Members and Trustees

NameTitle
Bill AntonChair
Gary JoynerVice Chair
Dr Margaret LeighDirector
Tori EastvoldDirector
Amy KovlerDirector, Tr
Carrie WillisDirector, Vi
Revenue and Support

Revenue Composition

Contributions and Grants
$2,000,374
Program Service Revenue
$10,057
Investment Income
$693
Other Revenue
$0
All Other Contributions
$1,969,272
Change in Net Assets
$1,167,893

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported Amount
Securities Publicly Traded2$25,554
Total Noncash Contributions2$25,554

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,011,124
Revenue Not Reported on Form 990
$-232
Total Revenue per Audited Statements
$2,010,892
Total Revenue per Form 990
$2,011,124
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$345,057
Salaries, Compensation, and Employee Benefits$326,180
Other Expenses$171,994
Total Fundraising Expense$34,174
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$315,057--$315,057
Current Officers, Directors, Trustees, and Key Employees$152,813$50,937-$203,750
Other Salaries and Wages$74,250$24,750-$99,000
Conferences and Meetings$28,502-$17,290$45,792
Fees for Services Other$42,445--$42,445
Foreign Grants$30,000--$30,000
Payroll Taxes$17,573$5,857-$23,430
Fees for Services Accounting$1,281$9,027-$10,308
Insurance$5,481$1,827-$7,308
Office Expenses$4,094$1,364-$5,458
Interest-$4,125-$4,125
Information Technology$1,086$362$2,513$3,961
Other Expenses$4,085$1,362$3,419$3,419
All Other Expenses$119--$119
Advertising$10--$10
Total Functional Expenses$709,446$99,611$34,174$843,231

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$843,231
Total Expenses per Audited Statements$843,231
Total Expenses per Form 990$843,231
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Vanderbilt University Medical CenteDallas, TX-Registry Support$304,957

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Interest$5,820
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 9

Carrie willis 387 kamnic street pierz, mn 56364 amy kovler 540 w stratford chicago, il 60657 lynn ehrne 61 lake meadow drive rochester, ny 14612 bill anton 1907 n milwaukee ave chicago, il 60647 gary joyner 64 lawton road hilton head, sc 29928 tori eastvold 123 woodland dr forest city, ia 50436 dr. Margaret leigh 904 monterey valley drive chapel hill, nc 27516-9132

Form 990, Page 6, Part VI, Line 11B

Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.

Form 990, Page 6, Part VI, Line 12C

Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.

Form 990, Page 6, Part VI, Line 19

No documents available to the public

Filing and Contact Details

Filer

Filer Name
Pcd Ks Foundation
EIN
20-0543474
Phone
6123861261
Address
10023 MORRIS ROAD, BLOOMINGTON, MN 55437
Doing Business As
Pcd Foundation

Signing Officer

Name
Michele Manion
Title
Exec Dir, President
Phone
6123861261
Signed
2022-09-20

Organization Details

Principal Officer
Michele Manion
Formed
2004
Legal Domicile
Mn
Voting Board Members
8
Independent Board Members
6
Employees
3
Volunteers
20

Preparer

Firm
Olson Clough & Leblanc Ltd
Address
10580 WAYZATA BLVD STE 200, MINNETONKA, MN 55305-1525
Preparer
Michael P Amberson
Phone
9525449600
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IRS990/ProgSrvcAccomActy3Grp/Desc0PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 DR. MARGARET LEIGH 904 MONTEREY VALLEY DRIVE CHAPEL HILL, NC 27516-9132
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 9
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
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Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.60$0.38$3.21$1.99$1.65$0.34
2023Detailed filing. Detailed filing data is available for this year.$3.27$0.40$2.87$0.90$1.05$0.16
2022Detailed filing. Detailed filing data is available for this year.$3.35$0.32$3.03$1.11$0.83$0.28
2021Detailed filing. Detailed filing data is available for this year.$3.19$0.44$2.75$2.01$0.84$1.17
2020Detailed filing. Detailed filing data is available for this year.$1.75$0.17$1.58$0.72$0.33$0.39
2019Detailed filing. Detailed filing data is available for this year.$1.21$0.02$1.19$0.67$0.51$0.16
2018Detailed filing. Detailed filing data is available for this year.$1.06$0.02$1.03$0.63$0.40$0.23
2017Detailed filing. Detailed filing data is available for this year.$0.83$0.02$0.81$0.85$0.45$0.40
2016Detailed filing. Detailed filing data is available for this year.$0.41$0.00$0.41$0.42$0.32$0.10
2015Detailed filing. Detailed filing data is available for this year.$0.31$0.00$0.31$0.34$0.26$0.08
2014Summary only. Only limited summary data is available for this year.$0.23$0.00$0.23$0.30$0.17$0.13
2013Summary only. Only limited summary data is available for this year.$0.10$0.00$0.12$0.07$0.06
2012Summary only. Only limited summary data is available for this year.$0.04$0.00$0.07$0.09$0.02
2011Summary only. Only limited summary data is available for this year.$0.04$0.00$0.12$0.08$0.04