Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
47th percentile
Higher debt load relative to revenue than 47% of similar nonprofits.
Net Margin
91st percentile
Higher net margin than 91% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
95th percentile
Faster asset growth than 95% of similar nonprofits.
Revenue Growth
93rd percentile
Faster revenue growth than 93% of similar nonprofits.
Assets
Up$828,964
Up $418,205 (+102%) from 2016
Net Assets
Up$805,816
Up $395,057 (+96%) from 2016
Liabilities
Up$23,148
Up $23,148 from 2016
Revenue
Up$847,234
Up $428,230 (+102%) from 2016
Expenses
Up$446,044
Up $127,537 (+40%) from 2016
Net Income
Up$401,190
Up $300,693 (+299%) from 2016
To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $410,759 | $828,964 | ▲ $418,205 |
| Total Assets | $410,759 | $828,964 | ▲ $418,205 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $23,148 | - |
| Total Liabilities | $0 | $23,148 | ▲ $23,148 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $90,000 | $528,186 | ▲ $438,186 |
| Unrestricted Net Assets | $320,759 | $277,630 | ▼ $43,129 |
| Total Net Assets Fund Balance | $410,759 | $805,816 | ▲ $395,057 |
| Total Liabilities and Net Assets / Fund Balance | $410,759 | $828,964 | ▲ $418,205 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michele Manion | Exec. Dir., | FT | $102,000 | $102,000 |
| Lynn Ehrne | Secretary | FT | $40,000 | $40,000 |
| Name | Title |
|---|---|
| Vicki Bailey | Chair |
| Gary Joyner | Chair Emerit |
| Bill Anton | Director |
| Carrie Willis | Director |
| Heidi Bjornson-pennell | Director |
| Richard Vassar | Director |
| Tori Eastvold | Director |
| Carey Kauffman | Director, Vi |
| Amy Kovler | Treas., Vice |
| Line Item | Amount |
|---|---|
| Other Expenses | $191,308 |
| Salaries, Compensation, and Employee Benefits | $154,736 |
| Grants and Similar Amounts Paid | $100,000 |
| Total Fundraising Expense | $10,182 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $145,823 | - | $4,284 | $150,107 |
| Current Officers, Directors, Trustees, and Key Employees | $107,625 | $35,875 | - | $143,500 |
| Grants to Domestic Orgs | $100,000 | - | - | $100,000 |
| Payroll Taxes | $8,427 | $2,809 | - | $11,236 |
| Fees for Services Accounting | $3,829 | $7,398 | - | $11,227 |
| Information Technology | $584 | $194 | $2,388 | $3,166 |
| Office Expenses | $2,290 | $763 | - | $3,053 |
| Insurance | $1,972 | $657 | - | $2,629 |
| Other Expenses | $1,712 | $625 | $3,510 | $1,712 |
| Advertising | $1,064 | - | - | $1,064 |
| All Other Expenses | $276 | - | - | $276 |
| Travel | $264 | - | - | $264 |
| Total Functional Expenses | $386,211 | $49,651 | $10,182 | $446,044 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $446,044 |
| Total Expenses per Audited Statements | $446,044 |
| Total Expenses per Form 990 | $446,044 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| American Thoracic Society Foundatio | New York, NY | 501c-3 | Fund Research Grant | $100,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“No committee minutes are prepared as the board of directors makes the final decision on any committee recommendations.”
“Gary joyner 64 lawton road hilton head, sc 29928 vicki bailey 11326 14th street n lake elmo, mn 55042 amy kovler 540 w stratford chicago, il 60657 lynn ehrne 61 lake meadow drive rochester, ny 14612 carey kauffman 1026 adams st decatur, ga 30030 bill anton 1907 n milwaukee ave chicago, il 60647 heidi bjornson-pennell 442 arlington st san francisco, ca 94131 tori eastvold 123 woodland dr forest city, ia 50436 richard vassar 627 springer ter los altos, ca 94024 carrie willis 387 kamnic street pierz, mn 56364”
“Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.”
“Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.”
“No documents available to the public”
“Taxpayer is changing their method of accounting to the accrual basis due to state registration requirement to report under the accrual method of accounting.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 23148 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1064 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1064 |
| IRS990/AllOtherContributionsAmt | 0 | 834950 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 276 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 276 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LYNN EHRNE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5856218915 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 61 LAKE MEADOW DR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCHESTER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 14612 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 410759 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 828964 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 35875 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 107625 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 143500 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 4284 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 145823 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 150107 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 834950 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 100000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 34 |
| IRS990/CYOtherExpensesAmt | 0 | 191308 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 12250 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 401190 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 154736 |
| IRS990/CYTotalExpensesAmt | 0 | 446044 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 10182 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 847234 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | CONDUCTED REGIONAL SUPPORT MEETINGS TO PROVIDE INFORMATION TO INDIVIDUALS AFFLICTED WITH PCD. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | PCD FOUNDATION |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 113523 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7398 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 3829 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 11227 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 7.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MICHELE MANION |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | GARY JOYNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | VICKI BAILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | AMY KOVLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LYNN EHRNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | CAREY KAUFFMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | BILL ANTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HEIDI BJORNSON-PENNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TORI EASTVOLD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | RICHARD VASSAR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CARRIE WILLIS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 102000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 40000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXEC. DIR., |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR EMERIT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREAS., VICE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR, VI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2004 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 100000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 847234 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 2388 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 194 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 584 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 3166 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 657 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1972 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2629 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 34 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 34 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MN |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 410759 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 805816 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 763 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 2290 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3053 |
| IRS990/OfficerMailingAddressInd | 0 | true |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | CHARITABLE REGISTRATIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK SERVICE CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3510 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1330 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 625 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 8353 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 3992 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1712 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 8353 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5322 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4135 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1712 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2809 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8427 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 11236 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | MICHELE MANION |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | -6133 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REGISTRATION FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 12250 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 12250 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMAITON AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 220261 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 100000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 52427 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 407275 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 2000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 29 |
| IRS990/PYOtherExpensesAmt | 0 | 171411 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 11700 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 100497 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 145096 |
| IRS990/PYTotalExpensesAmt | 0 | 318507 |
| IRS990/PYTotalRevenueAmt | 0 | 419004 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 401190 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 12250 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 834950 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 407275 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 327001 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 295557 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 122627 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1987410 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 34 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 29 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 19 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 10 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 10 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | NO COMMITTEE MINUTES ARE PREPARED AS THE BOARD OF DIRECTORS MAKES THE FINAL DECISION ON ANY COMMITTEE RECOMMENDATIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 VICKI BAILEY 11326 14TH STREET N LAKE ELMO, MN 55042 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 CAREY KAUFFMAN 1026 ADAMS ST DECATUR, GA 30030 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 HEIDI BJORNSON-PENNELL 442 ARLINGTON ST SAN FRANCISCO, CA 94131 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 RICHARD VASSAR 627 SPRINGER TER LOS ALTOS, CA 94024 CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | NO DOCUMENTS AVAILABLE TO THE PUBLIC |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | TAXPAYER IS CHANGING THEIR METHOD OF ACCOUNTING TO THE ACCRUAL BASIS DUE TO STATE REGISTRATION REQUIREMENT TO REPORT UNDER THE ACCRUAL METHOD OF ACCOUNTING. |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PAGE 12, PART XII, LINE 1 |
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| IRS990/USAddress/CityNm | 0 | MINNEAPOLIS |
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| ReturnHeader/BuildTS | 0 | 2018-06-14 16:35:46Z |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.