Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Liabilities / Revenue
35th percentile
Higher debt load relative to revenue than 35% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
75th percentile
Higher top officer pay than 75% of similar nonprofits.
Top officer pay equals 17.5% of source-year revenue.
Asset Growth
74th percentile
Faster asset growth than 74% of similar nonprofits.
Revenue Growth
56th percentile
Faster revenue growth than 56% of similar nonprofits.
Assets
Up$1,212,358
Up $156,974 (+15%) from 2018
Net Assets
Up$1,188,135
Up $156,498 (+15%) from 2018
Liabilities
Up$24,223
Up $476 (+2.0%) from 2018
Revenue
Up$668,902
Up $40,161 (+6.4%) from 2018
Expenses
Up$512,448
Up $109,522 (+27%) from 2018
Net Income
Down$156,454
Down $69,361 (-31%) from 2018
To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,022,101 | $1,199,982 | ▲ $177,881 |
| Pledges and Grants Receivable | $20,250 | - | - |
| Investments in Publicly Traded Securities | $10,061 | $10,154 | ▲ $93 |
| Prepaid Expenses and Deferred Charges | $2,972 | $2,222 | ▼ $750 |
| Total Assets | $1,055,384 | $1,212,358 | ▲ $156,974 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $23,747 | $24,223 | ▲ $476 |
| Total Liabilities | $23,747 | $24,223 | ▲ $476 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $669,963 | $1,098,613 | ▲ $428,650 |
| Net Assets With Donor Restrictions | $361,674 | $89,522 | ▼ $272,152 |
| Total Net Assets Fund Balance | $1,031,637 | $1,188,135 | ▲ $156,498 |
| Total Liabilities and Net Assets / Fund Balance | $1,055,384 | $1,212,358 | ▲ $156,974 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michele Manion | Exec. Dir., | FT | $117,000 | $117,000 |
| Carey Kauffman | Director | - | $68,538 | $68,538 |
| Lynn Ehrne | Secretary | FT | $46,264 | $46,264 |
| Name | Title |
|---|---|
| Gary Joyner | Chair Emerit |
| Amy Kovler | Chair, Treas |
| Bill Anton | Vice Chair |
| Carrie Willis | Director |
| Heidi Bjornson-pennell | Director |
| Tori Eastvold | Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $330,365 |
| Salaries, Compensation, and Employee Benefits | $176,083 |
| Total Fundraising Expense | $29,887 |
| Grants and Similar Amounts Paid | $6,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $192,476 | - | $4,200 | $196,676 |
| Current Officers, Directors, Trustees, and Key Employees | $122,448 | $40,816 | - | $163,264 |
| Fees for Services Other | $68,538 | - | - | $68,538 |
| Information Technology | $86 | $28 | $20,921 | $21,035 |
| Payroll Taxes | $9,614 | $3,205 | - | $12,819 |
| Fees for Services Accounting | $8,573 | $2,857 | - | $11,430 |
| Grants to Domestic Orgs | $6,000 | - | - | $6,000 |
| Other Expenses | $4,895 | $918 | $4,766 | $4,895 |
| Insurance | $1,865 | $621 | - | $2,486 |
| Office Expenses | $1,596 | $532 | - | $2,128 |
| Advertising | $1,276 | - | - | $1,276 |
| All Other Expenses | $521 | - | - | $521 |
| Total Functional Expenses | $432,139 | $50,422 | $29,887 | $512,448 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $512,448 |
| Total Expenses per Audited Statements | $512,448 |
| Total Expenses per Form 990 | $512,448 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“X”
“Gary joyner 64 lawton road hilton head, sc 29928 amy kovler 540 w stratford chicago, il 60657 bill anton 1907 n milwaukee ave chicago, il 60647 lynn ehrne 61 lake meadow drive rochester, ny 14612 tori eastvold 123 woodland dr forest city, ia 50436 carrie willis 387 kamnic street pierz, mn 56364 heidi bjornson-pennell 442 arlington street san francisco, ca 94131 carey kauffman 3131 brittan ave san carlos, ca 94070”
“Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.”
“Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.”
“No documents available to the public”
“CONSULTING 68,538 0 0”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 23747 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 24223 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1276 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1276 |
| IRS990/AllOtherContributionsAmt | 0 | 616785 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 521 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 521 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LYNN EHRNE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5856218915 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 61 LAKE MEADOW DR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCHESTER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 14612 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1022101 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1199982 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 40816 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 122448 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 163264 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 4200 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 192476 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 196676 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 616785 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 6000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 167 |
| IRS990/CYOtherExpensesAmt | 0 | 330365 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 51950 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 156454 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 176083 |
| IRS990/CYTotalExpensesAmt | 0 | 512448 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 29887 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 668902 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | CONDUCTED REGIONAL SUPPORT MEETINGS TO PROVIDE INFORMATION TO INDIVIDUALS AFFLICTED WITH PCD. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | PCD FOUNDATION |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 361674 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 89522 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 92272 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2857 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 8573 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 11430 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 68538 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 68538 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MICHELE MANION |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | GARY JOYNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | AMY KOVLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BILL ANTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LYNN EHRNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | TORI EASTVOLD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CARRIE WILLIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HEIDI BJORNSON-PENNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CAREY KAUFFMAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 117000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 46264 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 68538 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXEC. DIR., |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR EMERIT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR, TREAS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2004 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 63 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 6000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 6000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 21383 |
| IRS990/GrossReceiptsAmt | 0 | 690222 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 20921 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 28 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 86 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 21035 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 621 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1865 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2486 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 104 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 104 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 10061 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 10154 |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MN |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 21320 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1031637 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1188135 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 63 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 63 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 44 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 669963 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1098613 |
| IRS990/NoncashContributionsAmt | 0 | 21365 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 532 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1596 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2128 |
| IRS990/OfficerMailingAddressInd | 0 | true |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | CHARTIABLE REGISTRATIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK SERVICE CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 4766 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1445 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 918 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 9915 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 4336 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 4895 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 9915 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5781 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5684 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4895 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3205 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9614 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12819 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 20250 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 2972 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 2222 |
| IRS990/PrincipalOfficerNm | 0 | MICHELE MANION |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | SPONSORSHIP FEES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | REGISTRATION FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 31500 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 20450 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 31500 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 20450 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMATION AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 67716 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 6000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 272151 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 629306 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 143500 |
| IRS990/PYInvestmentIncomeAmt | 0 | -565 |
| IRS990/PYOtherExpensesAmt | 0 | 91641 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 225815 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 167785 |
| IRS990/PYTotalExpensesAmt | 0 | 402926 |
| IRS990/PYTotalRevenueAmt | 0 | 628741 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 156454 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 51950 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 616785 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 629306 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 834950 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 407275 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 327001 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2815317 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 104 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 70 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 34 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 29 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 19 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 256 |
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| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 12284 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 11700 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 11052 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 86986 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 104 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 70 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 34 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 29 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 19 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 256 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
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| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99990 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99990 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2902303 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
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| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 629306 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 847234 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 418975 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 338053 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2902303 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 668839 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 629376 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 847268 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 419004 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 338072 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2902559 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 512448 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 42 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 42 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 668902 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 512448 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 668902 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 668944 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 512448 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | false |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | X |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 HEIDI BJORNSON-PENNELL 442 ARLINGTON STREET SAN FRANCISCO, CA 94131 CAREY KAUFFMAN 3131 BRITTAN AVE SAN CARLOS, CA 94070 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | NO DOCUMENTS AVAILABLE TO THE PUBLIC |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | CONSULTING 68,538 0 0 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 9 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART IX, LINE 11G |
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| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
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| IRS990/TotalAssetsEOYAmt | 0 | 1212358 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1055384 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1212358 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 616785 |
| IRS990/TotalEmployeeCnt | 0 | 2 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 29887 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 50422 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 432139 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 512448 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 23747 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 24223 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 23747 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 24223 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 1031637 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 1188135 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 432139 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 51950 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 231802 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 104 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 52013 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 668902 |
| IRS990/TotalVolunteersCnt | 0 | 20 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 1055384 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 1212358 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| IRS990/USAddress/CityNm | 0 | MINNEAPOLIS |
| IRS990/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990/USAddress/ZIPCd | 0 | 55420 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 7 |
| IRS990/VotingMembersIndependentCnt | 0 | 5 |
| IRS990/WebsiteAddressTxt | 0 | WWW.PCDFOUNDATION.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2021-01-29 14:40:06Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | MICHELE MANION |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | EXEC. DIR., FOUNDER |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6123861261 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2020-05-08 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | PCD KS FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PCDK |
| ReturnHeader/Filer/EIN | 0 | 200543474 |
| ReturnHeader/Filer/PhoneNum | 0 | 6123861261 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| ReturnHeader/Filer/USAddress/CityNm | 0 | MINNEAPOLIS |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MN |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.