Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Liabilities / Revenue
34th percentile
Higher debt load relative to revenue than 34% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
73rd percentile
Higher top officer pay than 73% of similar nonprofits.
Top officer pay equals 17.8% of source-year revenue.
Asset Growth
85th percentile
Faster asset growth than 85% of similar nonprofits.
Revenue Growth
11th percentile
Faster revenue growth than 11% of similar nonprofits.
Assets
Up$1,055,384
Up $226,420 (+27%) from 2017
Net Assets
Up$1,031,637
Up $225,821 (+28%) from 2017
Liabilities
Up$23,747
Up $599 (+2.6%) from 2017
Revenue
Down$628,741
Down $218,493 (-26%) from 2017
Expenses
Down$402,926
Down $43,118 (-9.7%) from 2017
Net Income
Down$225,815
Down $175,375 (-44%) from 2017
To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $828,964 | $1,022,101 | ▲ $193,137 |
| Pledges and Grants Receivable | - | $20,250 | - |
| Investments in Publicly Traded Securities | - | $10,061 | - |
| Prepaid Expenses and Deferred Charges | - | $2,972 | - |
| Total Assets | $828,964 | $1,055,384 | ▲ $226,420 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $23,148 | $23,747 | ▲ $599 |
| Total Liabilities | $23,148 | $23,747 | ▲ $599 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $277,630 | $669,963 | ▲ $392,333 |
| Temporarily Rstr Net Assets | $528,186 | $361,674 | ▼ $166,512 |
| Total Net Assets Fund Balance | $805,816 | $1,031,637 | ▲ $225,821 |
| Total Liabilities and Net Assets / Fund Balance | $828,964 | $1,055,384 | ▲ $226,420 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michele Manion | Exec. Dir., | FT | $112,000 | $112,000 |
| Lynn Ehrne | Secretary | FT | $43,425 | $43,425 |
| Carey Kauffman | Director, Vi | - | $15,600 | $15,600 |
| Name | Title |
|---|---|
| Gary Joyner | Chair Emerit |
| Amy Kovler | Chair, Treas |
| Carrie Willis | Director |
| Heidi Bjornson-pennell | Director |
| Richard Vassar | Director |
| Tori Eastvold | Director |
| Bill Anton | Director, Vi |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $167,785 |
| Grants and Similar Amounts Paid | $143,500 |
| Other Expenses | $91,641 |
| Total Fundraising Expense | $7,832 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $116,569 | $38,856 | - | $155,425 |
| Grants to Domestic Orgs | $138,500 | - | - | $138,500 |
| Conferences and Meetings | $51,029 | - | $2,393 | $53,422 |
| Payroll Taxes | $9,270 | $3,090 | - | $12,360 |
| Fees for Services Accounting | $6,764 | $2,254 | - | $9,018 |
| Foreign Grants | $5,000 | - | - | $5,000 |
| Office Expenses | $2,254 | $751 | - | $3,005 |
| Information Technology | $269 | $89 | $2,520 | $2,878 |
| Other Expenses | $2,320 | $407 | $2,919 | $2,320 |
| Insurance | $1,709 | $570 | - | $2,279 |
| Travel | $219 | - | - | $219 |
| All Other Expenses | $111 | - | - | $111 |
| Advertising | $35 | - | - | $35 |
| Total Functional Expenses | $347,548 | $47,546 | $7,832 | $402,926 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $402,926 |
| Total Expenses per Audited Statements | $402,926 |
| Total Expenses per Form 990 | $402,926 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| American Thoracic Society Foundatio | New York, NY | 501c-3 | Fund Research Grant | $130,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“No committee meeting minutes are prepared as the board of directors makes the final decision on any committee recommendations.”
“Gary joyner 64 lawton road hilton head, sc 29928 vicki bailey 11326 14th street n lake elmo, mn 55042 amy kovler 540 w stratford chicago, il 60657 lynn ehrne 61 lake meadow drive rochester, ny 14612 carey kauffman 1026 adams st decatur, ga 30030 bill anton 1907 n milwaukee ave chicago, il 60647 heidi bjornson-pennell 442 arlington st san francisco, ca 94131 tori eastvold 123 woodland dr forest city, ia 50436 richard vassar 627 springer ter los altos, ca 94024 carrie willis 387 kamnic street pierz, mn 56364”
“Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.”
“Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.”
“No documents available to the public”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 23148 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 23747 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 35 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 35 |
| IRS990/AllOtherContributionsAmt | 0 | 629306 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 111 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 111 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LYNN EHRNE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5856218915 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 61 LAKE MEADOW DR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCHESTER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 14612 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 828964 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1022101 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 38856 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 116569 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 155425 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 2393 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 51029 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 53422 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 629306 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 143500 |
| IRS990/CYInvestmentIncomeAmt | 0 | -565 |
| IRS990/CYOtherExpensesAmt | 0 | 91641 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 225815 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 167785 |
| IRS990/CYTotalExpensesAmt | 0 | 402926 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 7832 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 628741 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | CONDUCTED REGIONAL SUPPORT MEETINGS TO PROVIDE INFORMATION TO INDIVIDUALS AFFLICTED WITH PCD. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | PCD FOUNDATION |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2254 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 6764 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9018 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 5000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 5000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MICHELE MANION |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | GARY JOYNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | AMY KOVLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | LYNN EHRNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CAREY KAUFFMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BILL ANTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | HEIDI BJORNSON-PENNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TORI EASTVOLD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RICHARD VASSAR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | CARRIE WILLIS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 112000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 43425 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 15600 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXEC. DIR., |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR EMERIT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR, TREAS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR, VI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR, VI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2004 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -635 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 138500 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 138500 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 7575 |
| IRS990/GrossReceiptsAmt | 0 | 636951 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 2520 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 89 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 269 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2878 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 570 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1709 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2279 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 70 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 70 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 10061 |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MN |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 8210 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 805816 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1031637 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | -635 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -635 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 6 |
| IRS990/NoncashContributionsAmt | 0 | 18266 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 751 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 2254 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3005 |
| IRS990/OfficerMailingAddressInd | 0 | true |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | CHARITABLE REGISTRATIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK SERVICE CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2919 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1529 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 407 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 8912 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 4587 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2320 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 8912 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 6116 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3326 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2320 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3090 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9270 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12360 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 20250 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 2972 |
| IRS990/PrincipalOfficerNm | 0 | MICHELE MANION |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMAITON AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 221036 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 143500 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 126512 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 834950 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 100000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 34 |
| IRS990/PYOtherExpensesAmt | 0 | 191308 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 12250 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 401190 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 154736 |
| IRS990/PYTotalExpensesAmt | 0 | 446044 |
| IRS990/PYTotalRevenueAmt | 0 | 847234 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 225815 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 629306 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 834950 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 407275 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 327001 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 295557 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2494089 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 70 |
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| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | FUND RESEARCH GRANT |
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| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 202138855 |
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| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 10004 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | false |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | NO COMMITTEE MEETING MINUTES ARE PREPARED AS THE BOARD OF DIRECTORS MAKES THE FINAL DECISION ON ANY COMMITTEE RECOMMENDATIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 VICKI BAILEY 11326 14TH STREET N LAKE ELMO, MN 55042 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 CAREY KAUFFMAN 1026 ADAMS ST DECATUR, GA 30030 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 HEIDI BJORNSON-PENNELL 442 ARLINGTON ST SAN FRANCISCO, CA 94131 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 RICHARD VASSAR 627 SPRINGER TER LOS ALTOS, CA 94024 CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | NO DOCUMENTS AVAILABLE TO THE PUBLIC |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 9 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
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| IRS990/SignificantChangeInd | 0 | false |
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| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
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| IRS990/TotalEmployeeCnt | 0 | 2 |
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| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 347548 |
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| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 23148 |
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| IRS990/TotalVolunteersCnt | 0 | 15 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 1055384 |
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| IRS990/TravelGrp/TotalAmt | 0 | 219 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
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| IRS990/UnrestrictedNetAssetsGrp/EOYAmt | 0 | 669963 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| IRS990/USAddress/CityNm | 0 | MINNEAPOLIS |
| IRS990/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990/USAddress/ZIPCd | 0 | 55420 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 9 |
| IRS990/VotingMembersIndependentCnt | 0 | 7 |
| IRS990/WebsiteAddressTxt | 0 | WWW.PCDFOUNDATION.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2019-02-21 02:37:17Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | MICHELE MANION |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | EXEC. DIR., FOUNDER |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6123861261 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2019-07-17 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | PCD KS FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PCDK |
| ReturnHeader/Filer/EIN | 0 | 200543474 |
| ReturnHeader/Filer/PhoneNum | 0 | 6123861261 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| ReturnHeader/Filer/USAddress/CityNm | 0 | MINNEAPOLIS |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MN |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 55420 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.