Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
98th percentile
Higher top officer pay than 98% of similar nonprofits.
Top officer pay equals 21.5% of source-year revenue.
Asset Growth
79th percentile
Faster asset growth than 79% of similar nonprofits.
Revenue Growth
76th percentile
Faster revenue growth than 76% of similar nonprofits.
Assets
Up$410,759
Up $100,497 (+32%) from 2015
Net Assets
Up$410,759
Up $100,497 (+32%) from 2015
Liabilities
Flat$0
Flat from 2015
Revenue
Up$419,004
Up $80,932 (+24%) from 2015
Expenses
Up$318,507
Up $63,435 (+25%) from 2015
Net Income
Up$100,497
Up $17,497 (+21%) from 2015
To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $310,262 | $410,759 | ▲ $100,497 |
| Total Assets | $310,262 | $410,759 | ▲ $100,497 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $310,262 | $320,759 | ▲ $10,497 |
| Temporarily Rstr Net Assets | - | $90,000 | - |
| Total Net Assets Fund Balance | $310,262 | $410,759 | ▲ $100,497 |
| Total Liabilities and Net Assets / Fund Balance | $310,262 | $410,759 | ▲ $100,497 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michele Manion | Exec. Dir., | FT | $90,000 | $90,000 |
| Lynn Ehrne | Secretary | FT | $38,900 | $38,900 |
| Name | Title |
|---|---|
| Vicki Bailey | Chair |
| Gary Joyner | Chair Emerit |
| Bill Anton | Director |
| Carrie Willis | Director |
| Heidi Bjornson-pennell | Director |
| Richard Vassar | Director |
| Tori Eastvold | Director |
| Carey Kauffman | Director, Vi |
| Amy Kovler | Treas., Vice |
| Line Item | Amount |
|---|---|
| Other Expenses | $171,411 |
| Salaries, Compensation, and Employee Benefits | $145,096 |
| Total Fundraising Expense | $13,575 |
| Grants and Similar Amounts Paid | $2,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $125,956 | - | $3,652 | $129,608 |
| Current Officers, Directors, Trustees, and Key Employees | $96,675 | $32,225 | - | $128,900 |
| Payroll Taxes | $12,147 | $4,049 | - | $16,196 |
| Fees for Services Accounting | $8,045 | $2,681 | - | $10,726 |
| Information Technology | $313 | $104 | $7,788 | $8,205 |
| Travel | $6,034 | - | - | $6,034 |
| Insurance | $2,133 | $711 | - | $2,844 |
| Grants to Domestic Orgs | $2,000 | - | - | $2,000 |
| Other Expenses | $1,009 | $595 | $2,110 | $1,009 |
| Advertising | $818 | - | - | $818 |
| Office Expenses | $307 | $102 | - | $409 |
| All Other Expenses | $353 | - | $25 | $378 |
| Total Functional Expenses | $262,957 | $41,975 | $13,575 | $318,507 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $318,507 |
| Total Expenses per Audited Statements | $318,507 |
| Total Expenses per Form 990 | $318,507 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“No committee minutes are prepared as the board of directors makes the final decision on any committee recommendations.”
“Gary joyner 64 lawton road hilton head, sc 29928 vicki bailey 11326 14th street n lake elmo, mn 55042 amy kovler 540 w stratford chicago, il 60657 lynn ehrne 61 lake meadow drive rochester, ny 14612 carey kauffman 1026 adams st decatur, ga 30030 bill anton 1907 n milwaukee ave chicago, il 60647 heidi bjornson-pennell 442 arlington st san francisco, ca 94131 tori eastvold 123 woodland dr forest city, ia 50436 richard vassar 627 springer ter los altos, ca 94024 carrie willis 3120 aspen ave medina, mn 55359”
“Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.”
“Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.”
“No documents available to the public”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 818 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 818 |
| IRS990/AllOtherContributionsAmt | 0 | 407275 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 25 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 353 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 378 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LYNN EHRNE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5856218915 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 61 LAKE MEADOW DR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ROCHESTER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 14612 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 310262 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 410759 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 32225 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 96675 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 128900 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 3652 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 125956 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 129608 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 407275 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 2000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 29 |
| IRS990/CYOtherExpensesAmt | 0 | 171411 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 11700 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 100497 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 145096 |
| IRS990/CYTotalExpensesAmt | 0 | 318507 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 13575 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 419004 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | CONDUCTED REGIONAL SUPPORT MEETINGS TO PROVIDE INFORMATION TO INDIVIDUALS AFFLICTED WITH PCD. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | PCD FOUNDATION |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 125465 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2681 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 8045 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 10726 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 7.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MICHELE MANION |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | GARY JOYNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | VICKI BAILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | AMY KOVLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LYNN EHRNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | CAREY KAUFFMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | BILL ANTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HEIDI BJORNSON-PENNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TORI EASTVOLD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | RICHARD VASSAR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CARRIE WILLIS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 90000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 38900 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXEC. DIR., |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR EMERIT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREAS., VICE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR, VI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2004 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 419004 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 7788 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 104 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 313 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 8205 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 711 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2133 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2844 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 29 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 29 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MN |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 310262 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 410759 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 102 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 307 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 409 |
| IRS990/OfficerMailingAddressInd | 0 | true |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK SERVICE CHARGES |
| IRS990/OtherExpensesGrp/Desc | 2 | CHARITABLE REGISTRATIONS |
| IRS990/OtherExpensesGrp/Desc | 3 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2110 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1508 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 595 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4525 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 2642 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1009 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 6033 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2705 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2642 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1009 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4049 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 12147 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 16196 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | MICHELE MANION |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REGISTRATION FEES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 11700 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 11700 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMAITON AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 124465 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 2000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 13027 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 327001 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 10000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 19 |
| IRS990/PYOtherExpensesAmt | 0 | 137286 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 11052 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 83000 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 107786 |
| IRS990/PYTotalExpensesAmt | 0 | 255072 |
| IRS990/PYTotalRevenueAmt | 0 | 338072 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 100497 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 11700 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 407275 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 327001 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 295557 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 122627 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 74767 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1227227 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 29 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 19 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 10 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 10 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 30 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 98 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 11700 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 11052 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 22752 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 29 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 19 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 10 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 10 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 30 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 98 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
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| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99990 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99990 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 1249979 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
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| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 338053 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 295557 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 122627 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 74767 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 1249979 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 419004 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 338072 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 295567 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 122637 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 74797 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 1250077 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 318507 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 419004 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 318507 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 419004 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 419004 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 318507 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | false |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | NO COMMITTEE MINUTES ARE PREPARED AS THE BOARD OF DIRECTORS MAKES THE FINAL DECISION ON ANY COMMITTEE RECOMMENDATIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 VICKI BAILEY 11326 14TH STREET N LAKE ELMO, MN 55042 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 CAREY KAUFFMAN 1026 ADAMS ST DECATUR, GA 30030 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 HEIDI BJORNSON-PENNELL 442 ARLINGTON ST SAN FRANCISCO, CA 94131 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 RICHARD VASSAR 627 SPRINGER TER LOS ALTOS, CA 94024 CARRIE WILLIS 3120 ASPEN AVE MEDINA, MN 55359 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | NO DOCUMENTS AVAILABLE TO THE PUBLIC |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 8B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 9 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
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| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 90000 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 310262 |
| IRS990/TotalAssetsEOYAmt | 0 | 410759 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 310262 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 410759 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 407275 |
| IRS990/TotalEmployeeCnt | 0 | 2 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 13575 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 41975 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 262957 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 318507 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 310262 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 410759 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 262957 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 11700 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 128900 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 11729 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 419004 |
| IRS990/TotalVolunteersCnt | 0 | 15 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 310262 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 410759 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 6034 |
| IRS990/TravelGrp/TotalAmt | 0 | 6034 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UnrestrictedNetAssetsGrp/BOYAmt | 0 | 310262 |
| IRS990/UnrestrictedNetAssetsGrp/EOYAmt | 0 | 320759 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| IRS990/USAddress/CityNm | 0 | MINNEAPOLIS |
| IRS990/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990/USAddress/ZIPCd | 0 | 55420 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 11 |
| IRS990/VotingMembersIndependentCnt | 0 | 9 |
| IRS990/WebsiteAddressTxt | 0 | WWW.PCDFOUNDATION.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2017-02-10 21:41:12Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | MICHELE MANION |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | EXEC. DIR., FOUNDER |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6123861261 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2017-09-13 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | PCD KS FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | PCDK |
| ReturnHeader/Filer/EIN | 0 | 200543474 |
| ReturnHeader/Filer/PhoneNum | 0 | 6123861261 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 10137 PORTLAND AVE S |
| ReturnHeader/Filer/USAddress/CityNm | 0 | MINNEAPOLIS |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MN |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 55420 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId | 0 | 4ACDD77FD380C208A1352724A21152E20F5A15BC |
| ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId | 0 | 8C1B34DA8F2F2B54E0FA44E760949C4630042362 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 411681939 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | OLSON CLOUGH & LEBLANC LTD |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 10580 WAYZATA BLVD STE 200 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | MINNETONKA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MN |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 553051525 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 9525449600 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2017-09-13 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | JERRY A HULSTEIN |
| ReturnHeader/ReturnTs | 0 | 2017-10-12T11:25:40-05:00 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.